And the last scentence is the key word for me. It's never too late to switch off the CI and immerge in the d/Deaf world. But it doesn't work the other way. It might be too late to choose CI and immerge in the hearing world.Cheri said:When my parents recovered that I became deaf at the age of five, My dad did some digging in educational, gather information that fit right for me as a deaf person, I know that for matter of fact that hearing parents with deaf children have no knowledge what to do until they start digging through. Absolutely. I was the same. Internet was great in providing information and I used it extensively. Parents also need to understand the importance of being flexible, in meaning when a deaf child is born into a family, they have to find ways to communicated with their child, by using sign language, finding the right education. Your are absolutely right. When the official news arrived, the first thing I did was by 3 sign-language books for the family and for friends. The first word the whole family learned was "spaghetti". The other two kids loved signing, and still do. CI is the least on a child's list just because hearing parents want their deaf child to hear because a deaf child is missing out the meaning to hear. Sure, and with CI she can understand that meaning. That's why we went that way.That's not even accepting the child who he/she is as a person, a person who is deaf. And how long is the waiting period where acceptance is there. Wouldn't that depend on the individual. But in a way you are right. Acceptance that she was deaf was easier when knowing that a HA or CI might help her.
Decisions do not need to be made immediately, when a child has not yet experience their role in trying the education that I mention above. Actually, they do. Like it or not, results with CI are better when the implant is done early. Sorry, just a fact.What happened to even trying those education out to see how much a child would developed, instead they jump onto CI implant to avoid the disappointing that might overcome. CI might be a disappointment as well. Do not assume that it's an easy choice. I always believe a child should be involved in a discussion regarding any changes that would effect them for life. (Which meaning CI) I agree, but the child cannot decide. And at later age, the choices are different. So it's up to the parents to make that decision. Not to postpone the decision and leave it to the child.
It's very common for hearing parents who have deaf children who have no experience with deafness, until they search some information. True. Most deaf children are born from hearing parents. With hearing family and hearing friends.But to be honest no deaf person is the same as another deaf person, Like I said before each person is different on their skills of learning. There are pros and cons.
Fortunately, I'm very lucky that I can be able to speak well spoken English language where most hearing people understands me, I know sign language, I know how to read lips, I can hear sounds not 100 percent. This confused me. Do you mean that you hear nothing? I've been to oral schools, I've been to mainstream, I've been to total communcation schools. CI was not required for me to know all what I've learn when I was growing up. Any deaf can learn that too. It's never too late.
Cloggy said:
Cloggy said:
Cheri said:I apology I meant was that I cannot hear everything like a hearing person, I can hear certain sounds that I can pick up and know what that sounds are from. Example, Like people talking, music, noises at workplace and etc.
Momoftwo said:
But.. the arguments provide insight as well and the possibility to view the world from a different perspective. Often the arguments are a result of lack of knowledge and then it's great to find an equilibrium. When the argument is due to unwillingness to see each others perspective, then it's fruitless.ecevit said:
You said you think hers is a profound hearing loss and yours is severe to profound hearin gloss and you equal profound to hoh actually it is other way around.ecevit said:I think you have profound hearing loss..in that case you can hear loud sounds.. you can hear loud speech but cannot understand what they say without lipreading.. Your case isn't a total deaf case.. Your more like a hard of hearing person than a total deaf !.
To my case, I have severe to profound loss.. I can hear so many sounds.. water running out of taps.. noises.. slamming doors.. telephone ringing.. most types of music ..people speaking loud..dogs barking.. but I cannot understand speech without hearing aid... I'm not considering myself (pure) deaf.. I prefer hoh term..
About cochlear implants, this is an endless argument.. Some people likes CIs and the others are against them...There is no need to get into a fierce battle !!! Everyone and every parent have the right to choose their own solution..
As technology progress more, the pure deaf people will be more and more rare.. what a pity.. the world will miss deaf culture much more than that of now... More deaf person will be able to function in hearing world ... hoh culture will be more common.. pure deafness and its culture may begin to disappear slowly
ecevit said:
That's the way I feel! You managed to say it better than I could....Bear said:
rockdrummer said:Man... I see way to many generalizations here. Dont say hearing people can't accept the deaf world. I am hearing and I totally accept the deaf world as I understand it. Not only do I accept it, I am focused on learning about it and trying to assimilate myself to it. Instead say "why can't some hearing people accept the deaf world" When you generalize, you come across as someone that has a closed mind. I am sure that is not your intention Leibling and hopefully you understand my point. I see so much of this type of stereotyping in here by some folks in the deaf community. Perhaps it's a just matter of how we choose our words.
What I am learning is there are may facets to the deaf world. It's not as simple as just saying the deaf world. There appears (to me) to be different beliefs between those that are profoundly deaf all the way to those that can hear with some sort of device such as HA or CI and everything in between. And obviously there are differing experiences for the deaf depending on where they fall in this continum and what there beliefs are.
We chose to have our child implanted with a CI because we felt in our heart that this was the best thing for our childs development and that if successful, it would give him the best chances for achievement. The CI didn't work work for him. But you now what, I don't have any regrets.
In CI surgery as with any surgery, there are risks and in many cases there are complications. At the end of the day you have to weigh the risks against the rewards and base your decision accordingly. In my case, there was not enough information (10 years ago) to make a sensible decision so I followed my heart and my gut. I was wrong but again, I have no regrets. And you can't deny that for those that the CI works for, their ability to assimilate is much greater. Just ask anyone that has a CI that works for them.
I only hope that today there is enough information available to aid parents in there decision. I would be totally against a parent deciding to get their child implanted without first educating yourself on the pros and cons and how it may impact your child given their specific case. And don't just base it on what the doctor tells you. Do your homework. It's a complicated issue with many variables and you have to take the time to fully understand all aspects of the subject. It's not easy but you owe it to your child to do this. There is no silver bullet that works for everyone. Each case is different and requires careful consideration only after educating yourself of the the facts.. My heart goes out to those parents who are faced with this decision. I have been through it with unsuccessful results. Fortunatly there has not been any noticible negative impact on my child with his CI.. Don't take the decision lightly.
Cheri said:This is what the discussion board is for, to share their opinions with each others and learn from each others, I've learned a great deal from Cloggy even through we don't always see eye to eye, But I'm starting to know a great deal from him regarding about his daughter. Nobody really gave me the right answers I've been searching for a long time until Cloggy came on this message board. So I thankful to have Cloggy here to discuss some questions I may have or sharing my opinions with him, and having him sharing his with me.
CI has been around in medical field for long time more than 30 yrs.. it was first started back in 1800's but not as pratical use but as research test and first trial started back in 1960's then few years later first CI reciepent get it but it was a crude type. I do know one person who had it for more than 20 yrs and it stop functioning interally inside the device and got reimplanted. no sign of corroding. all implant since the first FDA approved implants are coated with silicone cover.Bear said:
If you think it will start corroding after 10 yrs or so then FDA won't approve it! please use logic thinking before you type thisBear said:
FDA approved it for long term safety in regard to implantation surgically. Think Heart Pacemaker which has same coating technology that CI maker applies to their devices. Don't forgot all other medical devices that are implanted in other part of body that don't corrode.
Boult said:You said you think hers is a profound hearing loss and yours is severe to profound hearin gloss and you equal profound to hoh actually it is other way around.
Profound means NOTHING while severe to profound means can hear some sounds from 70db to 100db range and profound fall below 100db
so that means cheri's is above severe to profound like severe or mild to severe hearing loss
Let me rephrase this:ecevit said:
Cloggy said:
Guten Tag, es geht mir gut!
For your information, I have 2 hearing sons (13 and 10 years old). They have feeling and mind. They know an exactly what they feeling. If there´re something what they didn´t like. We sit and have a talk together to solve why we agree to disagree... I explain them why I disagree with them and let them tell me how/why they disagree... instead of force them something what they don´t want... or tell them what do because I want my children´s trust on me. I beleive to resolve the issues with my children. Its about communicate KEY, not do what I want.
Yes we parents have decide for our children... Yes we limit our children with our rule... example pick which good school for our children, what they eat, get them to tidy things in their rooms, etc but with surgery is different story.
Example, my 13 years old son had a head surgery after bicycle accident last year. Did I force him to surgery? No, I haven´t but have a good talk to comfort his fear for surgery... I explained him why he have to ... would he want to end to have meningitis, left arm and right leg parazylse up to 2 years without operation.. With operation, he stay healthy forever... Doctors and we convince him to have an operation because he trust us. His trust mean me alot than pull and force him to do something to make him fear and what he don´t want. Its about trust and patience. Head surgery is an emergency to us but CI? I would not deny my children if they want to have CI. You can´t possible to deny that children have feeling and mind.
It´s easy for you say about your children because it doesn´t happened to them. I have a good friend who has 8 years old son, want to have CI after learn to know what CI is BECAUSE his parents let their son to mix with CI, HOH, hearing and deaf children... He want to have it but his parents did not implant him with CI yet until he is 100% sure... He want it for 2 years then finally got CI and happy... I would do the same as my friend if my children are deaf. 8 years old know exactly...
That´s why I said "From" 6 years old...
Liebling:-))) said:Liebling:-))) said:
Thank you but my both children are not deaf. I learn alot from my friends who have deaf children. I can image what I do if my children are deaf. (I will answer on your other thread).
All what I want to say that I do not against CI but respect every parent´s decision for their deaf children. I am here to tell you what I have opinion and feeling for implant deaf babies to toddler with CI. I as mother has feeling... it´s scare to implant babies to toddler with CI...
ecevit said: