Why CI is bad for kids under 6 yrs.

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neecy said:
The whole issue is like a merry-go-round, where nobody gets the brass ring.
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And exactly what is the brass ring, in your opinion?
 
jillio said:
Exactly what I was thinking, flip. I detest the words "oral failure" to start with because the implication is that the child is somehow "failed", making it a personal assessment on that child's worth. It is not the child that fails, it is the system that fails. We have children that have been failed by the system of oralism; we do not have children that fail the system. The child is of the utmost importance, not the propoagation of the system.

Likewise, speaking well is considered to be the first cirtierion of success under the oralist umbrella. Many posters on this forum will agree that they were considered "oral successes" simply because they were able to develop understandable speech skills. They will also tell you of missing things in class, of feeling as if they were social outcasts, of feeling speaprated from hearing family members, and of the emotional difficulties they experienced as a result. Once again, we need to look at a deaf child as more than their ability to speak or to perceive sound. They have the same social, psychological, and emotional needs as does a hearing child. Even when they have been able to conform to the parental demand for oral language only, it is obvious that they are still experiencing not just academic difficulties, but psychological, social, and emotional difficulties as a result. Is the price worth it?
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For me, the price wasnt worth it. If I could go back and change it, I would change a lot of things starting with the doctors who told my mom about learning signing will make me abnormal.
 
jillio said:
And, since it is the deaf individual who is most affected, it is the price to them that should be the first consideration.
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Yep but the price means different things to different people.
 
lumbingmi said:
Do you want to risk your kid to this?
Do you want to risk your kid to this?

Quote:
Risks associated with cochlear implantation include those associated with the surgery itself, such as bleeding, infection, problems with anesthesia or healing, dizziness, or injury to the facial nerve. In addition, there are risks associated with the implant, such as mechanical or electrical failure, rejection, infection and problems what would require removal or replacement of the implant.
Quote:
Worldwide, there are over 90 known reports of people getting meningitis after getting a cochlear implant

First - bleeding, infection, problems with anesthesia, healing, dizziness: ALL OF THESE are risks associated with anesthesia, as well as drugs, doing gymnastics (well, not anesthesia), etc. CI is not the only one. Many kids have surgeries at a young age - Heart surgeries, brain surgeries, leg surgeries, abdominal surgeries...they all have the same risks. I have not yet seen one case that happened the last year or two (I'm talking about now, not "way back then") that had facial nerve injury. If I'm wrong, then prove me wrong. I don't want to see cases that happened more than 3 years ago (I know there was VERY FEW..probably due to bad surgeon, surgeon is new to this).

Okay, 90 out of 100,000 implantees? I think that's a pretty damn low percentage of chances considering that there's more people that got meningitis when they were born. Did all of them survive? How many of these people that had meningitis died? How many were children? I know there's probably was a higher percentage of children, but it's still a pretty low number. Those 90 people most likely got meningitis WITHOUT the vaccine. I have said this before, there was a small outbreak...therefore, that's why it's now required for all pre-CI users to be vaccinated. Have you seen a case since? If so, prove it.

Implant risks - mechanical or electrical failure, rejection - they have occurred, and for an informed parent/patient, she/he will accept those risks. What about those artificial heart valves? Pacemakers? LapBands? Same concept.

Some of these risks are really just to save the doctor's asses. If they don't include these, and you signed the surgery form, and you have issues, you can sue.
I used to work in Surgery at a very large veterinary hospital, and I can tell you that some of the technicians DO NOT really scrub well when it comes to cleaning the area, and guess what happens...there was an outbreak of infections because of that. These technicians (not me, cuz sometimes I would get yelled at for taking my time to scrub!), learned that they have to take their time to scrub the surgical area and the Vet Students have to watch where they're touching (sterile area compared to non sterile area), etc. Same thing at hospitals. For a very strict doctors/nurses they would triple check to make sure everything is sterile. Others think that it can be solved with antibiotics.

Sorry for the long post. My whole point is...there's risks associated with everything in this world, driving a car, getting a paper cut, eating uncooked meat, walking under the ladder, need I go on? CI risks is the least of my concerns.
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jillio said:
And exactly what is the brass ring, in your opinion?
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It was a similie. Sorry you didn't get it. The point is it never ends. This argument just goes 'round and 'round and 'round.....
 
LadySekhmet said:
lumbingmi said:
Do you want to risk your kid to this?
Do you want to risk your kid to this?

Quote:
Risks associated with cochlear implantation include those associated with the surgery itself, such as bleeding, infection, problems with anesthesia or healing, dizziness, or injury to the facial nerve. In addition, there are risks associated with the implant, such as mechanical or electrical failure, rejection, infection and problems what would require removal or replacement of the implant.
Quote:
Worldwide, there are over 90 known reports of people getting meningitis after getting a cochlear implant

First - bleeding, infection, problems with anesthesia, healing, dizziness: ALL OF THESE are risks associated with anesthesia, as well as drugs, doing gymnastics (well, not anesthesia), etc. CI is not the only one. Many kids have surgeries at a young age - Heart surgeries, brain surgeries, leg surgeries, abdominal surgeries...they all have the same risks. I have not yet seen one case that happened the last year or two (I'm talking about now, not "way back then") that had facial nerve injury. If I'm wrong, then prove me wrong. I don't want to see cases that happened more than 3 years ago (I know there was VERY FEW..probably due to bad surgeon, surgeon is new to this).

Okay, 90 out of 100,000 implantees? I think that's a pretty damn low percentage of chances considering that there's more people that got meningitis when they were born. Did all of them survive? How many of these people that had meningitis died? How many were children? I know there's probably was a higher percentage of children, but it's still a pretty low number. Those 90 people most likely got meningitis WITHOUT the vaccine. I have said this before, there was a small outbreak...therefore, that's why it's now required for all pre-CI users to be vaccinated. Have you seen a case since? If so, prove it.

Implant risks - mechanical or electrical failure, rejection - they have occurred, and for an informed parent/patient, she/he will accept those risks. What about those artificial heart valves? Pacemakers? LapBands? Same concept.

Some of these risks are really just to save the doctor's asses. If they don't include these, and you signed the surgery form, and you have issues, you can sue.
I used to work in Surgery at a very large veterinary hospital, and I can tell you that some of the technicians DO NOT really scrub well when it comes to cleaning the area, and guess what happens...there was an outbreak of infections because of that. These technicians (not me, cuz sometimes I would get yelled at for taking my time to scrub!), learned that they have to take their time to scrub the surgical area and the Vet Students have to watch where they're touching (sterile area compared to non sterile area), etc. Same thing at hospitals. For a very strict doctors/nurses they would triple check to make sure everything is sterile. Others think that it can be solved with antibiotics.

Sorry for the long post. My whole point is...there's risks associated with everything in this world, driving a car, getting a paper cut, eating uncooked meat, walking under the ladder, need I go on? CI risks is the least of my concerns.
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you've hit the nail on the head. I've said many times here that just LIVING has its own set of risks. Doesn't mean we lock ourselves in a closet for fear of anything bad ever happening. Good post.
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neecy said:
LadySekhmet said:
you've hit the nail on the head. I've said many times here that just LIVING has its own set of risks. Doesn't mean we lock ourselves in a closet for fear of anything bad ever happening. Good post.
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Unfortunately many of "THOSE" people do not listen. They are closed minded and will not accept it. I've said this like 3 or 4 times already, within the last couple weeks. Anyone that does the research will realize that there's a risk in EVERY SINGLE LITTLE THING you do every day. God forbid that I drop a ice cube on a slippery floor and I slip. *bam* I hit my head and have to go to the hospital.

So, yeah. Who's listening?
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LadySekhmet said:
neecy said:
Unfortunately many of "THOSE" people do not listen. They are closed minded and will not accept it. I've said this like 3 or 4 times already, within the last couple weeks. Anyone that does the research will realize that there's a risk in EVERY SINGLE LITTLE THING you do every day. God forbid that I drop a ice cube on a slippery floor and I slip. *bam* I hit my head and have to go to the hospital.

So, yeah. Who's listening?
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I am listening! What do we do, except ignore these threads.
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Is it me, or is there something really wrong with what's going on with the QUOTE commands?! That's making me confused.
 
Drew's Dad said:
You use ice? Don't you know using ice increases the risk of slipping and possibly hitting your head?
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Lol :laugh2:


Vallee - The commands is screwed up. Look at the post you just did..Drew's dad said that, not me. Make sense? It seems that there's an added command that's not supposed to be there.
 
yes and go back and look at what was posted with MY name. I guess we broke alldeaf. Too many quotes
 
lumbingmi said:
Actually I didn't know that her kids are in their teens. But re-read my posts. Nowhere I said they are going to be failure and I said I hope that her kids wouldn't experience similar to other deaf people who had to go through frustration and struggle to deal with being forcibly implanted against their wishes. :ugh3:




I believe others already posted why CI procedure can be very dangerous. As you know that surgery require risks, and I wouldn't want to gamble the risks on my own kids.



Okay, I admit that it has nothing to do with money since most hospital would would provide free cost to implant deaf kids. But the fact remains -Parents would have to invest lot of their time to make sure deaf child with CI to undergo countless hours of speech therapy and poor kids have to miss some classes or extracurricular school activities in name of Speech Therapy.
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Actually you are wrong. My kids havn't seen a speech therapist in school in 10 years. They havn't seen their AVT therapist in a couple of years and when they were seeing her they would see her maybe 3 times a month. Both of my kids are involved in sports, this year it was cross country, water polo and track. My daughter is an amazing artiest so she is involved in that. My son is a computer geek, which takes up a lot of his time which as nothing to do with his deafness or CI. Since you don't have kids with CIs and do not have a CI, you wouldn't know, you can just sit there and think you know is involved.
 
flip said:
Curious how you define failures? Emotional? Social? Read/write? Language? Speech? Listening skills? Are you able to seperate failures due to educational programs and those due to family/environment and personal traits?
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A failure would be something personal, a person would have to define what a failure was to them. In all sense of the word and anyone who has had contact with my children would say that they are a success in every aspect of their lives.
 
flip said:
Good point. Depends on who you ask. To parents, this all is free. With the laws today, it's free to deprive children of language, no risk, no consquences. They can do anything and just tell deaf people to stop complaining. But to deaf people, this is very expensive yeah! :(
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No your wrong there is a risk and I knew the risks. We are very happy that my children did not endure any risks.
 
LadySekhmet said:
lumbingmi said:
Do you want to risk your kid to this?
Do you want to risk your kid to this?

Quote:
Risks associated with cochlear implantation include those associated with the surgery itself, such as bleeding, infection, problems with anesthesia or healing, dizziness, or injury to the facial nerve. In addition, there are risks associated with the implant, such as mechanical or electrical failure, rejection, infection and problems what would require removal or replacement of the implant.
Quote:
Worldwide, there are over 90 known reports of people getting meningitis after getting a cochlear implant

First - bleeding, infection, problems with anesthesia, healing, dizziness: ALL OF THESE are risks associated with anesthesia, as well as drugs, doing gymnastics (well, not anesthesia), etc. CI is not the only one. Many kids have surgeries at a young age - Heart surgeries, brain surgeries, leg surgeries, abdominal surgeries...they all have the same risks. I have not yet seen one case that happened the last year or two (I'm talking about now, not "way back then") that had facial nerve injury. If I'm wrong, then prove me wrong. I don't want to see cases that happened more than 3 years ago (I know there was VERY FEW..probably due to bad surgeon, surgeon is new to this).

Okay, 90 out of 100,000 implantees? I think that's a pretty damn low percentage of chances considering that there's more people that got meningitis when they were born. Did all of them survive? How many of these people that had meningitis died? How many were children? I know there's probably was a higher percentage of children, but it's still a pretty low number. Those 90 people most likely got meningitis WITHOUT the vaccine. I have said this before, there was a small outbreak...therefore, that's why it's now required for all pre-CI users to be vaccinated. Have you seen a case since? If so, prove it.

Implant risks - mechanical or electrical failure, rejection - they have occurred, and for an informed parent/patient, she/he will accept those risks. What about those artificial heart valves? Pacemakers? LapBands? Same concept.

Some of these risks are really just to save the doctor's asses. If they don't include these, and you signed the surgery form, and you have issues, you can sue.
I used to work in Surgery at a very large veterinary hospital, and I can tell you that some of the technicians DO NOT really scrub well when it comes to cleaning the area, and guess what happens...there was an outbreak of infections because of that. These technicians (not me, cuz sometimes I would get yelled at for taking my time to scrub!), learned that they have to take their time to scrub the surgical area and the Vet Students have to watch where they're touching (sterile area compared to non sterile area), etc. Same thing at hospitals. For a very strict doctors/nurses they would triple check to make sure everything is sterile. Others think that it can be solved with antibiotics.

Sorry for the long post. My whole point is...there's risks associated with everything in this world, driving a car, getting a paper cut, eating uncooked meat, walking under the ladder, need I go on? CI risks is the least of my concerns.
Click to expand...

Yes, you are so right life is a risks with meningitis my daughter had it when she was 5 years about 6 years before she was implanted. With all the children I know with implants none have gotten meningitis. I know of 2 kids with internal device failures.
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Some risks are inherent in living. Some we choose to take on that would not otherwise normally be there. Such is the difference. There are those that feel the risks associated with cosmetic surgery are worth it. There are those that feel that the risks associated with elective surgeries are worth it. There are those that don't. The question is, do we have the right to decide that the risk for an elective surgery is worth it for another. There are those that believe that right is theirs, there are those that will decide that they do not have the right to make that decision for another.
 
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