Why CI is bad for kids under 6 yrs.

[lumbingmi]

Where? I quoted Boult. Original post here. or just see post #12. I merely responded to Boult's post. I never "implied" specifically you as an anti-CI. I was just saying a general population of people who are against ci sometimes won't really listen. I could care less if you were against CI, all I care is if you back up your facts and opinions. If you give out false facts or an opinion based on ONE case or two, it will get attacked. So, no I did NOT specifically imply you.

I dont give jack about deaf adult who receive CI but I do have issues with parents put CI on deaf children against their wishes. It is our responsible to make sure parents aware of the negative sides of CI rather than just positive sides only that are being false advertising by hearing peoples and media.

Btw there are more than just one case:

Bacterial Meningitis Among Cochlear Implant Recipients --- Canada, 2002

Bacterial Meningitis Among Children With Cochlear Implants Beyond 24 Months After Implantation -- Biernath et al. 117 (2): 284 -- Pediatrics

 

[jillio]

Only if and when the child becomes a LEGAL ADULT with a WELL INFORMED DECISION to decide on whether or not that individual wants to take the risk that associates with CI surgery.

The child on one hand who is NATURALLY born deaf needs to be left alone! Let the child grow NATURALLY with all of the enimities that is already provided for deaf children around the world.

Being deaf isn't the end of the world.

A deaf child can grow up normally just like any hearing child. Attend school to receive their education and if so choose, attend college.

Deaf kids are no different from hearing kids who deal with the day to day trivial things such as fashion, gadgets, sports, girlfriend and boyfriend, money, cars, a summer job, etc.

Until the day they turn 18 and given all of the information about the risks with CI, if they choose so to receive CI. More power to them and a little prayer that they don't suffer any complications from post surgery.

Until then, leave the deaf children alone.

I hate it when parents pities their kids and think they're doing what they think is right for them. Kids don't want to be pitied, they want support and help them adapt to their deafness as they are naturally and meant to be born with.

Bottom line is, don't screw with nature.

Yiz

Informed consent means much, much more than simply surgical risks.

 

[jillio]

Blame on that website's poor search feature. Nothing do with my "lack of research"



Hearing parents are likely to brainwash poor innocent kids even if kids protest or dont want CI, hearing parents will still impose implants on them anyway. Sad isn't it?



You didn't mention my name but you implied me as anti ci since you quoted me.

Actually, lumbingini, if you will check out the rest of the postion statement, you were not wrong. The attempt to prove you wrong was through taking one sentence totally out of context.

 

[Buffalo]

So it is about what you need from your children.

That is exactly what was running in my mind when I read Jackie's post.

 

[jackiesolorzano]

jackiesolorzano,
Pay attention.. read scroll up.. I've already made statement to LadySekhmet as my respond. Did I critiztie teenager?
Look it again..
I'm not here repeat to you..
*sigh*
Seems you shove fill up the full dirty into my mouth! I ain't here to debate w/you.
I'm trying to point of view as my concern.

CI isn't magic as same thing hearing aid.
Exactly Cheri made good point her statement. What make the difference?

and also you cannot face con vs pro ?
I'm here raise up speak out my voice and trying to make point but seems you doesn't want to hear feedback. Fine by me then.. Whatever you say.. CI is always right..

Sure~:sure: whatever you say..

Update: My older son have little hearing loss his left ear. I did ask my son, Do you willing Cochlear Implant? He respond me, Heck no, why should I have those? and doesn't want to have ci on his head making me look uglier something stick on it.. I was kinda little laughing him.. but nothing can I say more.. He's making a joke.. really serious he's getting little hearing loss..
He is proud ASL but still rusty his sign languages and understand Deaf Culture for!

Galaxy,
I think you are the one that cannot face the pros. I know all of the cons. I swear I do. And even with knowing all the cons I would implant my children over again the one thing different I would do is implant them sooner.
Of course your son doesn't want implant and if I was deaf and raised with signs I more then likely probable wouldn't suggest an implant to my son. It is a personal choice made by a family.
No one ever sees my daughter's implant or hearing aide since she is girl and has long hair. And the same thing with my son since his hair is kind of long. If that is a concern for you it shouldn't be.

 

[jackiesolorzano]

his left ear hearing loss..

Barely hard to hear.. He trying to listen his friend over the telephone but doesn't mind have volume bit louder..
He kept telling me, cannot wait I'll turn Deaf.. I say heck no, don't be silly.. He say I want to have relationship closer mom everyday.. Melt my heart for him!
(chuckles)
He want more improve his ASL pro!

So your son feels that he needs to be more deaf in order to have a closer relationship to you. Think about what that means about yourself to your son. Or what you are indirectly telling your son that he needs to be deaf in order to be closer to you.

 

[shel90]

Galaxy,
I think you are the one that cannot face the pros. I know all of the cons. I swear I do. And even with knowing all the cons I would implant my children over again the one thing different I would do is implant them sooner.
Of course your son doesn't want implant and if I was deaf and raised with signs I more then likely probable wouldn't suggest an implant to my son. It is a personal choice made by a family.
No one ever sees my daughter's implant or hearing aide since she is girl and has long hair. And the same thing with my son since his hair is kind of long. If that is a concern for you it shouldn't be.

Why cant one be implanted and be exposed to both ASL and English? I reallly dont get that concept at all.

 

[jackiesolorzano]

Life is full of chances.

I'd like to minimize my chances by making a well informed choices in my life before I make my next move.

With the risks that associates with CI, I think I'll pass.

I'm happy with my deafness as it is. Hell, why would I want to leave my deaf culture behind?

What bothers me about CI as mentioned on another topic is about the possible destruction of the deaf culture as a whole if CI was forced upon deaf children.

It really is your choice. I by no means think that every deaf person should get an implant. But I also feel that no one has the right to tell me to not implant my child. As long as a parent has all the information both good and bad, it their child and their choice.

I know some people in the Deaf culture are scared that their culture would be lost but it is never going to be lost nor should it be. There are always going to be deaf people that do not want or get implants or want to be oral.

What I am saying is that it a personal choice and we should respect each other choices.

 

[jackiesolorzano]

Only if and when the child becomes a LEGAL ADULT with a WELL INFORMED DECISION to decide on whether or not that individual wants to take the risk that associates with CI surgery.

The child on one hand who is NATURALLY born deaf needs to be left alone! Let the child grow NATURALLY with all of the enimities that is already provided for deaf children around the world.

Being deaf isn't the end of the world.

A deaf child can grow up normally just like any hearing child. Attend school to receive their education and if so choose, attend college.

Deaf kids are no different from hearing kids who deal with the day to day trivial things such as fashion, gadgets, sports, girlfriend and boyfriend, money, cars, a summer job, etc.

Until the day they turn 18 and given all of the information about the risks with CI, if they choose so to receive CI. More power to them and a little prayer that they don't suffer any complications from post surgery.

Until then, leave the deaf children alone.

I hate it when parents pities their kids and think they're doing what they think is right for them. Kids don't want to be pitied, they want support and help them adapt to their deafness as they are naturally and meant to be born with.

Bottom line is, don't screw with nature.

Yiz

I am giving my kids what they want. My kids have a choice. I have told them many many times that if they want they can drop their voice and get immerse in the Deaf culture. It is their choice now and they choose to be oral, why can't you respect that. Or would you prefer that I make them drop their voice and make them sign only.

 

[jackiesolorzano]

A little more verbiage if I may....

Why would you want to deny the very heritage that the child is naturally born with?

Why would you deny the knowledge of the deaf culture that he or she is born into?

You make it sound as if the child is born with a disease, being deaf if not a disease. It's called nature.

I hate double speak, some of you people say that the parent(s) have a right to give their deaf children CI and yet turn around to say that if the parent(s) does not give their child CI, you cry child abuse.

Excuse my French, but I call bullshit.

Yiz

I think the case you are talking about is a deaf mom lost custody of her kids and the foster parents and school wanted to implant the children. That case was wrong and those kids never got implanted. In that case you had parents of children with cochlear implants go to that court and tell the judge that they could not go that that they had to respect the mother's decision.

 

[jackiesolorzano]

I dont give jack about deaf adult who receive CI but I do have issues with parents put CI on deaf children against their wishes. It is our responsible to make sure parents aware of the negative sides of CI rather than just positive sides only that are being false advertising by hearing peoples and media.

Btw there are more than just one case:

Bacterial Meningitis Among Cochlear Implant Recipients --- Canada, 2002

Bacterial Meningitis Among Children With Cochlear Implants Beyond 24 Months After Implantation -- Biernath et al. 117 (2): 284 -- Pediatrics

In case you haven't notices the only parents of children with CIs that stay on this board are the ones like me that are so secured in our decision that there is nothing you can say that would change our opinion. The parens that need you and your experiences people like you scared them away. Or then like Galaxy Angel they want us to leave because we believe in implants but this is called cochlear implants and hearing section the last time I checked.

 

[jackiesolorzano]

Why cant one be implanted and be exposed to both ASL and English? I reallly dont get that concept at all.

I have already explained to you why. If the goal of getting an implant is to develop oral language then that is what need to be focused on. If that is not the goal then the parents should develop a plan. I work with the children and parents that their goal is to develop oral language.

 

[shel90]

I have already explained to you why. If the goal of getting an implant is to develop oral language then that is what need to be focused on. If that is not the goal then the parents should develop a plan. I work with the children and parents that their goal is to develop oral language.

I disagree with that view... I strongly believe that they can learn both. It has been done and I have seen it. ASL for conceptual understanding and academic access since it takes the children intensive training to learn how to use their CIs and speech for a skill to use with hearing people.

 

[jackiesolorzano]

I disagree with that view... I strongly believe that they can learn both. It has been done and I have seen it. ASL for conceptual understanding and academic access since it takes the children intensive training to learn how to use their CIs and speech for a skill to use with hearing people.

I know that we disagree and I know that we will never agree but it is OK with me.

 

[deafbajagal]

What worries me about implanting children under age 6 - is the high likelihood that the child will not fully understand what is happening to him/her...I think it is very important for children undergoing any kind of serious medical procedures to have full access to parents and medical personnel assuring them things are going to be ok- before, during, and after the procedures.

At age 3, I had my nose sewed up (wide gash)...I STILL have nightmares about the man (doctor) and the alien in whites (nurses) holding me down while he sewed my nose back together...I wish, wish, wish my mother had the communication tools to explain to me what was happening...I needed to know it was going to be ok. Also, I worked at St. Jude's Hosptial - and my gosh, there were so many times that I had to take the time to explain to a young child what to expect. So many children asked me to stay with them and talk with them through procedures that most adults couldn't even withstand to undergo themselves.

Another concern that I have - so many parents are either misinformed or not getting the full information that they need to know in order to make fully-informed decisions about whether or not their child should get a CI.

For my child who is hard of hearing - if she became deaf (which is likely) - I will not implant her with a CI because it is a medical procedure that is not necessary in order to save/prolong her life. The idea of a doctor cutting open her beautiful head scares the shit out of me. If something ever happened - I would never, ever forgive myself. Trust me - there are worst things than her not being able to hear computerized version of a bird singing.

 

[deafdyke]

He kept telling me, cannot wait I'll turn Deaf.. I say heck no, don't be silly.

Wow...........that's amazing. He'll be "late deafened" but have a more "early deafened" attitude about having a hearing loss. That is so cool!

DrewsDad,
Agreed a 4-5 year old is too immature to make decisions for themselves......
I FULLY support early implantation in the cases where it's OBVIOUSLY needed. That is, hearing aids don't help at all.
However, it does seem like nowadays implantation criteria is a little too flexiable.
I remember a mom who posted at DumbNotes, who said that even thou her sons were good HA users, they were able to be implanted b/c their unaided speech perception was 10% (profound)
I think there are SOME parents who are opting for implantation both b/c its portrayed as the latest most up to date technology (many of the posters here will remmy in the 90's when they were really pushing digital aids with the same fervour.) and b/c it's covered by insurance when hearing aids aren't.
I think if its ambigious that parents and kids should both help decide. Sort of like getting a new HA.

 

[lumbingmi]

In case you haven't notices the only parents of children with CIs that stay on this board are the ones like me that are so secured in our decision that there is nothing you can say that would change our opinion. The parens that need you and your experiences people like you scared them away. Or then like Galaxy Angel they want us to leave because we believe in implants but this is called cochlear implants and hearing section the last time I checked.

Good for you. Quite frankly, we have enough of 'hearization'. We need to expose the dangers and frauds behind CI to make parents to be more informed than being misinformed by hearing doctors, professionals who have zero clues about deaf community/culture. Like others said what is the problem with teaching ASL AND spoken language at the same time to kids with CI? But nope hearings are scared that their time and money will go down in drain if kids with CI decide to ditch spoken language into favor of their natural language ASL. Pity.

 

[shel90]

I know that we disagree and I know that we will never agree but it is OK with me.

I dont have any problems with the kids being oral outside of school but I have concerns about kids missing out on important learning information and/or being deprived of full language development. In my heart, I cant respect that kind of practice of putting deaf children in that kind of risk when hearing children are not. It just doesnt seem fair.

That is why I feel so strongly about all deaf children having the right to full 100% access to language and to the curriculm. The only way they can get that is by being in a signing program.

Yes, there are interpreters but too often, they are underpaid and dont do quality interpreting and CART but if the child is very young just learning how to read, what good use is the CART for? It seems more appropriate for middle school or high school. I am talking about the young little ones when language development and access to learning is very very critical.

 

[shel90]

Good for you. Quite frankly, we have enough of 'hearization'. We need to expose the dangers and frauds behind CI to make parents to be more informed than being misinformed by hearing doctors, professionals who have zero clues about deaf community/culture. Like others said what is the problem with teaching ASL AND spoken language at the same time to kids with CI? But nope hearings are scared that their time and money will go down in drain if kids with CI decide to ditch spoken language into favor of their natural language ASL. Pity.

I dont get it either.

 

[lumbingmi]

I am giving my kids what they want. My kids have a choice. I have told them many many times that if they want they can drop their voice and get immerse in the Deaf culture. It is their choice now and they choose to be oral, why can't you respect that. Or would you prefer that I make them drop their voice and make them sign only.

If you just did that, I applaud you for it. Let's hope that they dont sudden have epiphany when they get into their teen years. It ain't pretty pictures for oral failure deaf children.