Questions and debates about blindness:

Nika said:
I have a tendency to close my eyes 95% especially in bright sunlight. However mine aren't naturally that way. In dimmer light my eyes are all the way open.
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i don't know why my eyes are the way they are except that one of my opthalmologists told me this isn't uncommon for people who are born blind due to retinopathy of prematurity.
 
nika,

why can't people see your left eye twist inward? wouldn't any movement of the eye be visible by others?
 
I'm guessing it's because one of the things that keeps sighted folks eyes all the way open is because they notice their eyelids blocking their vision if they close them part way. Whereas since you're NLP blind, they don't block any vision. I know my eyes feel a lot more comfortable when I close them part way. And also it's uncomfortable for me to keep them open in bright light.

But that's just me theorizing. <smile>
 
Nika said:
Same here. When I get glaucoma headaches, I wish I had prosthetic eyes. The pain can be really intense, and sometimes I also have nausea from it. <unpleasant> Then again I have also heard that sometimes prosthetic eyes are painful, so I'm not sure if that's the best out from pain.
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nika,

you also have some residual vision, so i assume you wouldn't want to go completely blind unless your glaucoma headaches were severe and unbearable, right?
 
Hear Again said:
nika,

why can't people see your left eye twist inward? wouldn't any movement of the eye be visible by others?
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They can't see it because it tilts inwards, and that dimension is not visible to others. Since the iris and the pupil are round, if they tilt left or right, they still look the same. I can feel it though, because sometimes if it twists too much, it hurts.
 
Nika said:
They can't see it because it tilts inwards, and that dimension is not visible to others. Since the iris and the pupil are round, if they tilt left or right, they still look the same. I can feel it though, because sometimes if it twists too much, it hurts.
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i'm afraid i'm confused, so pardon me. if your left eye tilts inward, wouldn't that be visible to the point where it would look like you have crossed eyes?
 
Hear Again said:
nika,

you also have some residual vision, so i assume you wouldn't want to go completely blind unless your glaucoma headaches were severe and unbearable, right?
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Right, but sometimes my glaucoma headaches feel unbearable. I would rather give up the rest of my vision and become NLP than deal with that kind of pain all the time. Plus with glaucoma I will become NLP someday anyway.
 
Nika said:
Right, but sometimes my glaucoma headaches feel unbearable. I would rather give up the rest of my vision and become NLP than deal with that kind of pain all the time. Plus with glaucoma I will become NLP someday anyway.
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if that's what you want, you should talk to a prothetics doctor to have your eyes removed.
 
Hear Again said:
if that's what you want, you should talk to a prothetics doctor to have your eyes removed.
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I think I'll wait for it to get a little bit worse before I take action. But I'm definitely thinking about it.
 
Nika said:
I think I'll wait for it to get a little bit worse before I take action. But I'm definitely thinking about it.
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maybe you could do one eye at a time. remove the eye with the worst degree of pain first.
 
Hear Again said:
maybe you could do one eye at a time. remove the eye with the worst degree of pain first.
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Good idea! I could start with my left eye. I only see shadows and light/dark out of that eye anyway and it causes me the most pain. Then I could do my right eye later once the vision reaches a point where I really can't make any use of it anymore or once the pain reaches a level that it's unbearable.
 
Nika said:
Right, but sometimes my glaucoma headaches feel unbearable. I would rather give up the rest of my vision and become NLP than deal with that kind of pain all the time. Plus with glaucoma I will become NLP someday anyway.
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What does NLP stand for?
 
Nika said:
Good idea! I could start with my left eye. I only see shadows and light/dark out of that eye anyway and it causes me the most pain. Then I could do my right eye later once the vision reaches a point where I really can't make any use of it anymore or once the pain reaches a level that it's unbearable.
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that sounds like a good plan because you would still be preserving your residual vision, if that's what you want to do.
 
Nika said:
No Light Perception, in other words, totally completely blind.
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forgive me for saying this (you can blame my 11th grade honors english teacher), but the words "totally completely blind" is an oxymoron. the correct phrasing should be "totally blind" or "completely blind." <running away from nika>
 
society's_child said:
Oh. Wow, just the thought of it scares me.
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it's not a big deal, society's_child. then again, being totally blind is all i've ever known, so that might explain why. for a sighted person though it's quite different because they are used to having their sight.
 
I actually wouldn't totally mind losing the rest of my vision. When my eyes are tired and hurting I just close them and do everything audio/tactile.

I think the biggest challenges would be learning O&M skills with zero vision and working on my braille skills. But I know that if I want to do something I can.

I don't fear total blindness, because in the orphanage I was functionally blind (even though I had light perception we stayed indoors all the time so there was little change in light levels). Plus between my glaucoma pain, my joint pain, my migraines, and sometimes my muscular pain, it would be nice to get rid of one of the sources of pain. <sardonic laughter>
 
Hear Again said:
it's not a big deal, society's_child. then again, being totally blind is all i've ever known, so that might explain why. for a sighted person though it's quite different because they are used to having their sight.
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Yes, I agree with you on that.
 
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