Lies about CI's

[flip]

See, that's what happens if you guys take a break, anti-CI'ers take over and brainwashes everyone. An endless Sisyphus battle isn't it?

 

[shel90]

wow!! Go away for a few days and a lot changes.

Parents who are raising their kids with both asl and cochlear implants are now oralists!!!


Btw, my daughter has flown on planes all her life and has never has a problem with metal detectors nor has she ever lost a program due to static electricity.
Rick

yes that"s right!!!!!!!

 

[overthepond]

My brain had been fried by going through airport metal detector! NOT!


Have static issues thanks to winter, my hair sticks up but never had map wiped. At work, the uniform are nylon/polyester, i put tumble dryer sheet in my pocket or wear rubber wrist band, these seems to take the worst of the static.
Have flown many times since i was implanted nearly 2 and half years ago, never had problems, if the detector beeps I produce the card (already in my hand just in case) and have wand search...

 

[john57]

The airports do not use the hand wand anymore. The last time I went to a airport since my implant at the time trigger the metal detector I had to have a pat down these days.

 

[deafgal001]

People are so defensive that they think I talking about brain being fried. Well anyway static electricity will wipe the mapping of your processor rather you like it or not. I nearly wiped it off again last night while folding clothes from the dryer. Thankful I was wearing my bodyworn so it only touch the wire and not the box. I heard that familar crinkling sound from static electricity.and my processor cut off for a second.

 

[Mountain Man]

Some see denying access to sound which can provide access to spoken language and such as a form of oppresion as well.

And the people who think that are the oppressors. I know many Deaf individuals who don't have access to spoken language and yet are successful and contribute to society. It's access to language that should be prioritized, whatever language that happens to be.

Which brings me back to a point I made earlier: we don't know if sticking technology into a child's head will give him access to spoken language -- there are no guarantees -- but we do know that he has a natural and intuitive access to sign language, which is why my family is focusing on sign language for my son and will let him make his own decision, when he is old enough, about whether or not he wants cochlear implants.

 

[rockdrummer]

Dang, what a blurry line it is now!

CI's cause your vision to blur.

 

[deafgal001]

My brain had been fried by going through airport metal detector! NOT!


Have static issues thanks to winter, my hair sticks up but never had map wiped. At work, the uniform are nylon/polyester, i put tumble dryer sheet in my pocket or wear rubber wrist band, these seems to take the worst of the static.
Have flown many times since i was implanted nearly 2 and half years ago, never had problems, if the detector beeps I produce the card (already in my hand just in case) and have wand search...

actually I came across one of your old post, and you did have your map erased. : AllDeaf.com - View Single Post - What effects your CI (Objects, locations, gadgets, etc...)

 

[faire_jour]

And the people who think that are the oppressors. I know many Deaf individuals who don't have access to spoken language and yet are successful and contribute to society. It's access to language that should be prioritized, whatever language that happens to be.

Which brings me back to a point I made earlier: we don't know if sticking technology into a child's head will give him access to spoken language -- there are no guarantees -- but we do know that he has a natural and intuitive access to sign language, which is why my family is focusing on sign language for my son and will let him make his own decision, when he is old enough, about whether or not he wants cochlear implants.

Just because some deaf people believe that ASL is best, does not mean that all of them do. There are plenty of deaf people who believe that spoken language is the priority. It is by no mean uncontested! Kokonut is deaf himself.

 

[deafgal001]

Just because some deaf people believe that ASL is best, does not mean that all of them do. There are plenty of deaf people who believe that spoken language is the priority. It is by no mean uncontested! Kokonut is deaf himself.

I thought he was moderate HOH but that doesn't matter how much loss he have because he is still affected.

 

[Beowulf]

Just because some deaf people believe that ASL is best, does not mean that all of them do. There are plenty of deaf people who believe that spoken language is the priority. It is by no mean uncontested! Kokonut is deaf himself.

Oooooo, what an insult to us!

 

[posts from hell]

And the people who think that are the oppressors. I know many Deaf individuals who don't have access to spoken language and yet are successful and contribute to society. It's access to language that should be prioritized, whatever language that happens to be.

Which brings me back to a point I made earlier: we don't know if sticking technology into a child's head will give him access to spoken language -- there are no guarantees -- but we do know that he has a natural and intuitive access to sign language, which is why my family is focusing on sign language for my son and will let him make his own decision, when he is old enough, about whether or not he wants cochlear implants.

Right on.

 

[rockdrummer]

Just because some deaf people believe that ASL is best, does not mean that all of them do. There are plenty of deaf people who believe that spoken language is the priority. It is by no mean uncontested! Kokonut is deaf himself.

Bingo!!

 

[deafgal001]

Just because some deaf people believe that ASL is best, does not mean that all of them do. There are plenty of deaf people who believe that spoken language is the priority. It is by no mean uncontested! Kokonut is deaf himself.

Not if they struggle with accessible communication growing up, they are more likely have a change of heart.

 

[jillio]

Hey! These little ones we're advocating for ARE deaf, you know, some Deaf. We're doing just that, advocating for educational opportunities and rights and options, just as many of you have done for yourselves, for your children. We're just including CIs in the mix of possibilities, not excluding all else and crusading just for CIs, not expecting that CIs or any other option is the one size that fits all.



Yes, true. But I think we all agree on this! I consider many of the young deaf I've encountered online and off to be great role models for my daughter, some have CIs and HAs, some don't. The people whose choices frighten me are those who have grown up with or later adopted as adults one tool and a form of communication or another (for example, ASL without aids or CIs or CIs without ASL, etc.) and are now bitter, angry, and feel oppressed. When I see that happening, I become increasingly wary of whatever that choice is. I rarely see it among those with both spoken language via CIs and ASL together. I do see significant communication gaps and resentment among other combinations or approaches.

If my child's CIs stopped working tomorrow, it might be a shock, but I'd definitely not expect to see walls slamming down, doors closing, potential lost. I've been accused of being biased before on this not very scientific assessment , but she's brilliant and adorable today, she'd be brilliant and adorable tomorrow. Our approaches or activities might change, but not for the worse, just different. I can think of two big changes in our day to day: Instead of piano, percussion. And if the grandmas want to continue chatting with their granddaughter, they'll have to get their septuagenarian and octogenarian butts (and arthritic hands) in gear and learn more than the handful of ASL they know now (and one will need to finally learn how to use a computer and Skype with us!).

That is where the misunderstanding lies. No one here excludes the use of CI as an option. However, we do believe in giving realistic pictures of the CI, not some panacea that will make deafness all but disappear and make your child function exactly like a hearing child. We do not, in any circumstance, advocate that it be used as an excuse to exclude the visual from a deaf child's repetoire.

Keep this in mind...piano, is in effect, a percussion instrument. Sound is produced by stiking a key that forces a hammer to strike a string. Vibration of such can be felt through the keys, just as one can feel the vibration of a zylophone through the mallet. It is possible for a deaf child, with or without a CI to learn to play the piano.

 

[jillio]

I can vouch for that in other venues! It's ironic that many of you think that FJ is anything but a staunch supporter of ASL given her activism in forums where there's less familiarity with ASL.

Words and actions don't match. Too much incongruency. Perhaps on those other forums, FJ hasn't been around long enough to show her true perspective in the way she has here at AD. Or, perhaps those other forums are nothing but a bunch of hearing parents with no familiarity with deaf culture and have never even spoken to a deaf adult regarding what works and what doesn't. The guideline should be, when seeking advise, nothing for us without us. That means, don't go around advocating for things that the deaf tell you don't work, make things more difficult, and make coping with their lives that much harder, not to mention promoting discrimination.

You, too, are relatively new to the process. As with FJ, (and this isn't a criticism, but a piece of advise) you need to spend more time paying attention to, and considering, what the deaf themselves tell you they need. Your daughter will one day be one of those deaf adults, CI or no. You cannot possible learn what you need to know by communicating with hearing parents who are also new to the world of deafness, or "hearing experts" who know much, much less than they portray to you about deafness. The experts on deafness are the deaf. I have been advocating and working with the deaf for over 20 years. I still turn to them for guidance. I have learned a tremendous amount from their teaching over this period of time, and yet, they still are the experts to whom I turn. And that is how it should be.

 

[jillio]

And the people who think that are the oppressors. I know many Deaf individuals who don't have access to spoken language and yet are successful and contribute to society. It's access to language that should be prioritized, whatever language that happens to be.

Which brings me back to a point I made earlier: we don't know if sticking technology into a child's head will give him access to spoken language -- there are no guarantees -- but we do know that he has a natural and intuitive access to sign language, which is why my family is focusing on sign language for my son and will let him make his own decision, when he is old enough, about whether or not he wants cochlear implants.

I love you! Gawd knows I wish I had more hearing parents such as yourself in my area. I know for a fact I would see fewer deaf pre-teens and adolescents with adjustment and identity disorders.

It is so refreshing to see a hearing parent who actually gets, on a gut level, the holistic nature of deafness. Your child is lucky, indeed.

 

[jillio]

I don't believe they are "iffy". It isn't about working for some and not for others, it is about levels of benefit. To me, if you hear more than you did with a hearing aid, that is success. If you hear the same with it off as on, that would be "no benefit".
I think that some people have inappropriate expectations, and that is what leads to misinformation about "not working", but in truth, all the information I have read says that they have a very small rate of non-use, much smaller than CIs. If you get the surgery and believe that you will suddenly become hearing, of course you will be disappointed. But if you go in with appropriate expectations for your individual case and circumstance, it is much less likely.

As for choosing the CI when it is not life threatening....I had to make the choice about whether or not I wanted to give my child access to spoken language. If I had not implanted her, it would have been impossible. I had to choose because she was too young to choose.

The bolded is exactly the kind of statement that makes you a blantant audist. "Some hearing is better than no hearing." And the shame of it is, your daughter is getting the message that the more she can hear, or act like she hears, the more approval and love and acceptance she will get. You are teaching her that her value as a human being is reliant on her hearing status.

 

[Oceanbreeze]

Words and actions don't match. Too much incongruency. Perhaps on those other forums, FJ hasn't been around long enough to show her true perspective in the way she has here at AD. Or, perhaps those other forums are nothing but a bunch of hearing parents with no familiarity with deaf culture and have never even spoken to a deaf adult regarding what works and what doesn't. The guideline should be, when seeking advise, nothing for us without us. That means, don't go around advocating for things that the deaf tell you don't work, make things more difficult, and make coping with their lives that much harder, not to mention promoting discrimination.

You, too, are relatively new to the process. As with FJ, (and this isn't a criticism, but a piece of advise) you need to spend more time paying attention to, and considering, what the deaf themselves tell you they need. Your daughter will one day be one of those deaf adults, CI or no. You cannot possible learn what you need to know by communicating with hearing parents who are also new to the world of deafness, or "hearing experts" who know much, much less than they portray to you about deafness. The experts on deafness are the deaf. I have been advocating and working with the deaf for over 20 years. I still turn to them for guidance. I have learned a tremendous amount from their teaching over this period of time, and yet, they still are the experts to whom I turn. And that is how it should be.

 

[jillio]

Thank you also to your previous post. (I still haven't worked out this multiple quote posting thing).
I can see now, as a parent, why you made the choices you did.

Drawing from my own experience, I am advocating that sign language, the Deaf community, bi-lingual schools be made available to all d/Deaf. Whether they be HoH, Deaf, deaf or d/Deaf with CIs. BiBi schools should also have distinction classes,if they don't already, for those children who are VO sign language only. Parents should have access to full information on ALL options, so they can make the right decisions for the well-being of their child. "Ignorance is no longer bliss - Be educated".[/QUOTE]

And I, as well, Beclak. I cannot condone the CI being used as an excuse to limit opportunities for the child. When the child is placed in an oral only educational environment, simply because they have a particular type of assistive devise, it is a distortion of the true purpose of the devise, and a limitation on the child.