Here it is, FWIW.
I was born hoh in my left ear, deaf in the right ear. My hearing in the left ear was fading fast from the time I was a baby. I had eight surgeries between the time I was a baby and the age of 8, and these stabilized my hearing enough for me to do well in a mainstream school, play guitar, and now I'm working on my master's degree at Hopkins. If my parents hadn't made these medical choices for me, I wouldn't be here.
I've paid a price for being part of the hearing world. I know that. I've had to deal with isolation, discrimination, and all of that. As a kid I thought I was a broken hearie, and that's about the worst way a deaf child can feel. Doesn't mean I was an unhappy kid, I just didn't accept who I was.
At the same time, I feel very thankful for the opportunities I've had. I don't want to give up being deaf, I just want to be able to communicate with 99% of the world. How does this apply to the whole CI/mainstream debate? Well, we need to give our kids what will give them the best opportunity we can. I don't have the answer for what that is-- it's complicated. I don't know what I'd decide if my child is deaf. Part of me would be proud and excited, part of me would have a big dilemma on my hands.
For all the hearing parents out there, there's something really important to consider if you're mainstreaming a CI kid. You don't want to raise your kid to be a broken hearie, someone who needs to be fixed up, because that will come back to haunt him or her. Your child is not just your average hearing kid. Your child is an exceptional deaf person who is using an amazing technology to get opportunities that she or he wouldn't otherwise.
As a mainstreamed kid I always felt like I was missing something. I was proud to overcome obstacles, but I was ashamed of being deaf. I was ashamed of my speech, to miss out on conversations, to be made fun of. Yeah, a lot of CI kids are doing way better than I ever did hearing-wise, with better speech, etc., but he or she is still deaf.
What can make a mainstreamed deaf kid feel he or she is really special? ASL, knowing about deaf culture, realizing that deaf doesn't mean broken. This should be a really important part of a mainstreamed education, but it's swept under the rug. In a hearing world, what a deaf kid hears comes up as a measuring stick, and it shouldn't.
Whether it's meant to or not, there's an underlying message sent with going through the CI regimen and mainstreaming a deaf kid.
More of my own experience:
I got this technology because I didn't hear right.
I got speech therapy because I didn't talk right.
I got in trouble because I didn't behave right.
When I was a kid, I once asked an audiologist when my hearing was going to get better, and when I was going to be normal.
WTF? I had fabulous parents. They're a big part of what got me to this point. And they didn't know what to do about this or understand this. They didn't know any deaf people. They had hearing educators, hearing doctors, and hearing experts giving them advice.
If you're a hearing parent with deaf kids, i don't really feel I have a right to tell you whether that kid should be oral or ASL, CI or not. But if you raise a a deaf kid as if he is hearing, and never educate him about deaf culture, and the measuring stick is always how well he hears and how he scores against his hearing peers... well, there's a pretty good likelihood that's going to create some issues down the road.
There's no reason a deaf/hoh child shouldn't be proud.
I began learning ASL in my early twenties. Deaf culture isn't the biggest thing in my life, but it's an important part of my life. And in terms of my cultural identity, it's the #1 way I identify myself. It's a no-brainer. It's certainly way better than feeling like a broken hearie that just doesn't measure up.