Hearies view on a CI kid... its a bummer

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Yes I agree with you both 100% about bonding relationship with hearing parents because I know how I feel over my parents and my hubby's parents. My hubby's and my bonding relationship with them is not stronger enough.

I forgave my Dad and move on... I love him and accept what he is. Of course he told me that he suggest my mom to go sign class but my mom told him that I should learn oral because doctor said so. He agreed and then regret how kind of bonding relationship we have...

My hubby love and respect his mother mostly but his bonding relationship with her is not strong enough.

I envied my friends' bonding relationship with their signing parents. Why? Because their parents are moviate to learn anything for their deaf children.
!

Anyway, I thought hearing posters are open mind and listen our advice over our experience with hearing parents but I was wrong about them. All what they LISTEN doctors and professional over our experiences... :(

This frustrats me ssoooo much! Do you know how many children have
been hurt or even killed because some doctor said so?! Do you remember
when the new retroviral vacine came out for babies and it was supposed
to prevent a potentially life threatining diareah that babies often get?
Do you know why it was removed from the recomended vacine list? Because it
killed BABIES! It caused their intestines to telescope inside themselves and
those that didn't die had to have portions of their colon removed! Some
will wear cholostomy bags all their lives. Because some doctor says so. Moms
read everything! Don't take one opinion and do what you feel is right. And
don't jump on someones bandwagon. Wait to see. If a salesman ever
approaches me and says, YA GOTTA DO THIS NOW or you'll miss out! I say
goodby and leave. Never do anything hastily. How many of us mommies have
done what was recomended by the experts, only to regret it later? I know I have.
 
O focurse that statement is incorrect, because it doesn't fit in with your view. Whether you can feel it or not, a depression is made inthe actual bone of the skull to receive the implant. And a hole is drilled throughthe bone to receive the electrodes that are insertedinto the cochlea. You can feel the pins in a knee relacement externally, too. It doesn't mean that they haven't been inserted into the bone. Get a grip.
"Whether you can feel it or not".... Are we dismissing the experience of USers of Ci and the parents of children with CI. You can feel it...
Funny, sad actually... You say you work with children that have CI... and you don't know if you can feel it or not... revealing !!!

And, a hole is drilled to reach the middle ear.... which is outside. BUT NOT THROUGH THE SKULL.
You still make it look like it is brain surgery... Trying to scare people with misinformation? Is that the idea??
"Get a grip!"
 
This frustrats me ssoooo much! Do you know how many children have
been hurt or even killed because some doctor said so?! Do you remember
when the new retroviral vacine came out for babies and it was supposed
to prevent a potentially life threatining diareah that babies often get?
Do you know why it was removed from the recomended vacine list? Because it
killed BABIES! It caused their intestines to telescope inside themselves and
those that didn't die had to have portions of their colon removed! Some
will wear cholostomy bags all their lives. Because some doctor says so. Moms
read everything! Don't take one opinion and do what you feel is right. And
don't jump on someones bandwagon. Wait to see. If a salesman ever
approaches me and says, YA GOTTA DO THIS NOW or you'll miss out! I say
goodby and leave. Never do anything hastily. How many of us mommies have
done what was recomended by the experts, only to regret it later? I know I have.

You are absolutely right. I remember when I was a small kid, I only had a few vaccine shots. And, now look at what happened today ? They had soo many vaccine shots comparin' mine. I couldn't believe it with my own eyes ! I would say that's a " murder " to me. There's somethin' wrong with this picture.

Same goes with CI - I don't trust doctors nowdays. Doctors are not God. They don't have honest answers. All they ever want is sellin' their ads and get the people's money.
 
I started off with a wish to get into Deaf culture and hold on to that while Lotte grows up. But there is also reality. Deaf culture has to be around in order to be part of it. Hearing parents cannot always just do that, since sign is foreign to them as well.
Still, I read Harlan Lane, learned sign, Lotte to a deaf school etc.
Choosing CI does not reduce the wish to engage with Deaf culture, and learn sign language.

What does reduce that wish is the attitude and ignorance at times from the Deaf. Calling parents names, saying that they don't love their child, that they don't accept their child.
I have been around in order to show a different side compared to the assumptions that are around. But is does not help most of the time.
The ignorance is still there. Also with people to whom I explained time and time again how CI works.
The insults are still there,
The assumption are still there.

THAT is what nowadays turns me off about Deaf culture.

And when the decsion is made for CI, no matter how much one would like to continue sign, it will become obvious that the child will lead the way. It will show when to use speech, when to use sign. The parents will notice what works and what does not.

So, bridging the gap has to come from both sides, and one of the main thngs in doing so, is accepting that hearing parents handle with the best interest for their child. They DO know what they are doing.

My focus on Lotte, who is doing great with Ci, is because of the huge focus on children that do not do well.
And that is not strange... in this (Deaf) culture, the focus is on how CI doesn't work, how children fail, how parents refuse to learn sign. And with that tunnelvision, it is only that what is seen.
Because think of it... how many parents will spend time on being abused, and misinterpreted. Not many, and since I have been here, I have seen quite some parents of which Deaf culture could have learned a lot go away.

And I have to say... I also have the feeling sometimes that there is nothing to say here. Actually, that's not the case. There's lots to say, but there is so much denial that there's no listning. There's so much focus on failure that no-one listens to succes.
But fortunately, there are people that do listen, think freely, look beyond their lack of hearing. And these people are happy for children that benefit from CI.

Because the focus sometimes seems to be on how Deaf culture should be perserved... not how deaf children can be helped.
And they can be helped in different ways. It can be by raising the child in a Deaf culture, with sign, whatever. It can be by raising the child with the ability to hear.. In the end, it's all about the child.

And THAT is what is often forgotten...
 
...

Because the focus sometimes seems to be on how Deaf culture should be perserved... not how deaf children can be helped.
And they can be helped in different ways. It can be by raising the child in a Deaf culture, with sign, whatever. It can be by raising the child with the ability to hear.. In the end, it's all about the child.

And THAT is what is often forgotten...

I agree with you on that,Cloggy
 
I get you Cloggy, and as for this:

What does reduce that wish is the attitude and ignorance at times from the Deaf. Calling parents names, saying that they don't love their child, that they don't accept their child.
I have been around in order to show a different side compared to the assumptions that are around. But is does not help most of the time.
The ignorance is still there. Also with people to whom I explained time and time again how CI works.
The insults are still there,
The assumption are still there.

THAT is what nowadays turns me off about Deaf culture.


I must say this is exactly what I see here with my very own eyes. I am suprised hardly anyone is honestly interested in learning anything TRUSTWORTHY about CI thanks to your generous idea of sharing Lotte with AllDeaf.
Instead, looks like people preffer to believe those who doesn't seem to posses enough education and knowledge about CI, not to mention simply education.
Misinformation about CI is rampant, and happily spread around especially by those who oppose CI.



Fuzzy
 
I only POINTED your behavior there and here.
Thank you Liebling for bringing it all back ... again. and again.... and again.....
again..... and again..... and again ..... again..... and again ..... and again.....
and again.

I stopped you for accused Cheri misleading, liar etc to defend hearing parents and tried to convince you that it´s truth because I have similar experience like that in the past. You denied it but defend hearing parents...

Thank you so much for bringing it all back......


See? You gave her loving support about her experience with her Deaf parents and then over her Deaf mother. What's about our bad experience with hearing parents? Where's your loving support about our experience with hearing parents?


OMG. You are jealous of me saying a few kind words to M.A.?
tell me your story about your parents, and I will comment it as well!

How about MY experience with MY parents? NOBODY gave a flying fit about that. not a word. after I pointed that out - the only response I got was putting me down! how about that, hmmm?

Unfortunately yes, I would say MOST (which I mean is many/most) because I withnessed FEW parents who can sign their children.

Okay. That is just YOUR experience, and the thing is - you don't know ALL the parents in Germany? so how do you figure "most parents"?

And that STILL doesn't mean other parents who didn't sign were bad parents. Just because a parent know how to sign doesn't make it a GOOD parent.

Where's your loving support about our experience with hearing parents?


WHERE IS LOVING SUPPORT FOR HEARING PARENTS WHO DID THEIR BEST?


Fuzzy
 
I agree about the bonding relationship would been a lot stronger if they learned and uses signs, I feel the same way, I totally understand how you feel. Don't get me wrong I love my dad to death, he's been there a lot for me when growing up to today, I know he tried his best and thought his decision were right, but people learn things everyday and sometimes they learned too late also.

Not to knock down your experience Cheri, but I wonder if you would feel as close to your dad if he learned ASL to sign mostly "go away"?

Fuzzy
 
Thank you Liebling for bringing it all back ... again. and again.... and again.....
again..... and again..... and again ..... again..... and again ..... and again.....
and again.

Thank you so much for bringing it all back......

I can see that you twist my word... :roll: I only pointed your behavior....

Never mind!!!


OMG. You are jealous of me saying a few kind words to M.A.?
tell me your story about your parents, and I will comment it as well!

You should quoted FULL of my sentence instead of cut my sentence & tried to twist my post to accused me as being jealous... What an unbelievable and immaturity... so I pasted to add half of my sentence here where you tried to half of my sentence to twist me...



......... NO, but offensive and acussed us to insult hearing parents for being lazy. That's what I tried to explain you in my first post that you us over our experience with hearing parents and loving support to hearing poster over her Deaf parent... but I wasn't realized that you obessed Cheri's old posts...

How about MY experience with MY parents? NOBODY gave a flying fit about that. not a word. after I pointed that out - the only response I got was putting me down! how about that, hmmm?

We were :Ohno: that you might get offensive again if we said something what we thought about your mother since you DID accused us to insult hearing parents because your parents are hearing...


Okay. That is just YOUR experience, and the thing is - you don't know ALL the parents in Germany? so how do you figure "most parents"?

Again, please don't twist my post... and go back and re-read my post... I SAID most/many parents signing their CI and HA children at PRESENT time which is not my OLD TIMES... Got it? If you can't understand then I can't help you.

Yes, it's my own experience because I withnessed soooo many deaf people who have struggled with their hearing parents for not signing to them...

Like what Cheri said: "but people learn things everyday and sometimes they learned too late also."


And that STILL doesn't mean other parents who didn't sign were bad parents. Just because a parent know how to sign doesn't make it a GOOD parent.

I has no clue why you interpreted our posts in the wrong way. Nobody says that the hearing parents are bad here. We only point out that they only doing because their doctor/experts says so.


WHERE IS LOVING SUPPORT FOR HEARING PARENTS WHO DID THEIR BEST?


wow - Don't make false statement toward us...

Oh yes, I would suggest you go back and re-read any CI threads... We gave hearing posters loving support. We show our interesting on their posts... We share our advices/information toward their open mind questions...



It's the best proof is your ignorant!!!!!!!!
 
...........................
Oh yes, I would suggest you go back and re-read any CI threads... We gave hearing posters loving support. We show our interesting on their posts... We share our advices/information toward their open mind questions...

It's the best proof is your ignorant!!!!!!!![/COLOR]

Not really...
Sure there are those posts as well, but the majority is not.
And don't get me wrong. I appreciate the posts when I post about Lotte. Positive and negative, but in general, most often, there is no support. Especially lately...

There is "telling what they should have done" and "telling what they should do NOW"...
But support.... not unless you agree to use sign language to your child.

Why do you thing many of the hearing parents left.... too much support?
 
WHERE IS LOVING SUPPORT FOR HEARING PARENTS WHO DID THEIR BEST?


wow - Don't make false statement toward us...

I didn't stated anything about anybody - I only ASKED, and am asking again:

WHERE IS LOVING SUPPORT FOR HEARING PARENTS WHO DID THEIR BEST?


Where? where is it, Liebling? show me. WHERE? WO IST?

Fuzzy
 
MYTH? you call Jesus MYTH?
:eek3:

ooo-oops

Fuzzy

:topic:

Yep, it's quite probable that he's a myth. There's little evidence that he exists but I will note here that I didn't come here to discuss God. I'm not one for taking things on faith.
 
:topic:

Yep, it's quite probable that he's a myth. There's little evidence that he exists but I will note here that I didn't come here to discuss God. I'm not one for taking things on faith.

No! Noooooooo! Don't go there! :Ohno:
 
Not to knock down your experience Cheri, but I wonder if you would feel as close to your dad if he learned ASL to sign mostly "go away"?

Fuzzy

Yes, I would have the much a closure relationship with him if he learned signs and kept using signs, all my life I felt like I'm a second class citizen to my own family. I'm sure most of us felt the same way.
 
There is "telling what they should have done" and "telling what they should do NOW"...
But support.... not unless you agree to use sign language to your child.

Why do you thing many of the hearing parents left.... too much support?

They were never interesting in learning about the deaf culture, they were only here bragging about cochlear implants on their own child, giving their child an ability to hear. I don't see them taking up the time listening the need to get all the information about the pros and cons of each piece of advice before making an informed decision that feels comfortable for the parents and the child. It's like it's either their way or the highway.

I barley see them posting in any other threads expect cochlear implant threads. What does that tell you? It tells me they don't want to learn about the deaf culture, only cochlear implants information.

You parents only seem to listen and take advices from medical professionals what about deaf adults that experienced every walk in life?

Most hearing parents tend to favor concentrating on speech skills and want to mainstream their child, what about sign language? there is a window of opportunity when a child is most receptive to learning language by speech skills and sign language.

You are your child's primary teacher. Learn what you need to know to be an effective advocate and to do a good job in this very important role you must play, even if it means to learn by us too, not just by medical professionals.

We were hoping you will find the resources we gave you to be useful, but most of you decided to ignored it.

It's time to stop playing the victim, we are only looking out for your child as well as other hearing parents out there, we want to help, but it seems even so most of you don't want our help, then fine be it.
 
WHERE IS LOVING SUPPORT FOR HEARING PARENTS WHO DID THEIR BEST? Fuzzy


For now on, I will only support hearing parents that still sign to their ci children because it shows that they willing to go both ways....
 
They were never interesting in learning about the deaf culture, they were only here bragging about cochlear implants on their own child, giving their child an ability to hear. I don't see them taking up the time listening the need to get all the information about the pros and cons of each piece of advice before making an informed decision that feels comfortable for the parents and the child. It's like it's either their way or the highway.
They are interested - believe me. Why would they end up at AllDeaf...???
What you forget is that the decision is already made. Why do you assume it's not an "informed decision that feels comfortable for the parents and the child"... because it is not the choice YOU would make..???

You see....
You're already telling me that my decision was not only wrong - it was not informed....
And that is just the first alinea

I barley see them posting in any other threads expect cochlear implant threads. What does that tell you? It tells me they don't want to learn about the deaf culture, only cochlear implants information.
Not true. There's plenty of activity in other deaf-related forums, just not as much...
Then again, I came here to learn about Deaf culture, and found a lot of misinformation regarding CI.... sure, I focus on that..... The perception that Deaf culture has of CI is distorted...
This is not the case regarding the perception of hearing people towards Deaf culture, or deafness... In general, hearing people don't think about it. I had not been in contact with deaf people until my daughter was born. When I did, did not have a clue. But at least, it was not distorted.
I read the books, I talked to deaf people.... I learned...

You parents only seem to listen and take advices from medical professionals what about deaf adults that experienced every walk in life?
Their experiences are taken into account. And I have to say... most of the are like:
"My childhood sucked because my parents didn't learn sign, so therefore YOU must learn sign." or
"My childhood sucked because I didn't know sign and had to learn to speak, then I discovered sign and my life changed, so therefore YOU must learn sign."

The comparison of growing up deaf without being able to hear (or hear very, very little) and a deaf child growing up being able to hear does not hold...

But there are deaf people that CAN explain about their experiences with CI.... and their stories are most of the time very positive...

Most hearing parents tend to favor concentrating on speech skills and want to mainstream their child, what about sign language? there is a window of opportunity when a child is most receptive to learning language by speech skills and sign language.
Yes... if there's people around that will use sign as well. Signlanguage is beautiful. So is French. I will allow my daughter to learn Dutch and Norwegian first....

You are your child's primary teacher. Learn what you need to know to be an effective advocate and to do a good job in this very important role you must play, even if it means to learn by us too, not just by medical professionals.
That's exactly what I'm doing....

We were hoping you will find the resources we gave you to be useful, but most of you decided to ignored it.

It's time to stop playing the victim, we are only looking out for your child as well as other hearing parents out there, we want to help, but it seems even so most of you don't want our help, then fine be it.

Had it not been useful, I would have been gone a long time ago.

And how are you looking out for my child? How are you relating to hearing parents of deaf children when you say "hearing is overrated" or "there are soo many bad sounds" or "I don't care about hearing" . It shows how you have reduced hearing to something that is not important, which is perfectly understandable when one cannt hear, but not when one is able to hear.
You learned to live with deafness. It is part of your identity. And the wonderful life you have built is tribute to all the work you have done.
But why would you assume that for a deaf person the only way to be happy is by not being able to hear?

Lotte grows up hearing. It will be part of her identity, together with the abcense of sound when she takes the CI off..

THAT is the difference between YOU as a child, and Lotte. She can choose to hear. You had to make hearing a non-issue.
 
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