Baby born deaf will get 'bionic ears' that could help him hear and talk

GrendelQ said:
:laugh2: She wants attention paid to CMV. This disturbs you?

Her child was featured in the news, she found here a discussion underway about him and their choices, including several mis-statements and erroneous assumptions. She didn't seem to be looking for a fight: in fact she started by answering questions very calmly, directly, without any bristling or manipulation, and even addressed several demands put to her. The people looking for a fight were already into it before she even stepped into the conversation ... ABOUT HER KID.

There's sharing experiences (and that goes two ways), having an open discussion about different approaches, and providing information and expertise. This is great. And there's telling people you know very little about how they should be raising their children, whose needs you don't and can't know, regardless of what you think you might have in common. This is ridiculous and offensive.
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We've been paying attention to CMV for many years. My son is 25 years old, and the doctor was able to give me stacks and stacks of information. His audi was well informed regarding CMV deafness and the patterns it follows. Of course, she was part of a teaching hospital clinic, but still. I have found educators at Deaf schools that are well informed regarding CMV deafness, because it also has a high incidence of learning disabilities that are co-morbid, so educators need to be aware of the possibility when evaluating students. Just because this mother didn't know anything about CMV doesn't mean that awareness needs to be raised. The medical community is well aware. And since it is a viral infection, there is not much that can be done regarding transmission except employ the same preventative measures we do to prevent transmission of a cold.

When you seek to have your child placed in the news as a means to an end, you have to expect that the situation will be discussed by others. If your intent is to raise awareness, discussion is what you are attempting to generate. The problem is, you cannot control the discussion. That is just part of the bargain.
 
AlleyCat said:
I don't understand the hoopla going on the past few pages regarding this specific post. Am I looking at the wrong one?

As far as I can see, Jillio is right -- how would any mother know what kind of residual hearing is left in an infant? I have a profound loss, and even my own parents couldn't know what residual hearing I retained when I was an infant myself. (And I am a CMV child, same as the child in this specific case.)

:confused: :confused: :confused:
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When I posted regarding my son's CMV deafness, I thought I was correct in thinking you were CMV as well. Instead I just put "a few members here" because I didn't want to call anyone by name. You and my son both follow the typical pattern of residual use that is generally seen in CMV deafness, as well as an ability to develop very good oral skills with actual ranges falling into the severe to profound on your audiogram.

It puzzles me as to why people get so upset about having accurrate information provided.
 
AlleyCat said:
It doesn't change anything.

Any infant that has been diagnosed with a hearing loss can't have their residual hearing determined at such a young age.

Would you rather that she had said "ALL infants" ? I'm trying to figure out what you guys are taking issue with. She was replying to the mom's post about her own son, so I can see why Jillio said "He". I would have said the same, sorry....[/quote

The mother specifically asked me to share my experience with a CMV deafened son, as well as any information I had regarding CMV and deafness. And she also, in fact, apologized for her too quick reaction at the beginning. That is, until others started trolling the thread and creating issues where there were none. Kind of like what is continuing now.
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TXgolfer said:
He/he/his makes it specifically about the new posters son. So not just a generic fact. That is one problem
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Uhh...his mother made it about him, in the media and in AD. She's the one that put the personal spin on things.
 
netrox said:
off-topic.... how do you know if you're on someone's ignore list?
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They ignore you! j/k I was told by several members that a specific person had me on ignore. Then I watched the pattern of the posting, and it was obvious.
 
jillio said:
Numbers from today would be even lower. More students are mainstreamed in oral only environments. You find that acceptable?

And the data is not outdated. It is the most current available that has been meta-analyzed. Likewise, you cannot limit it to 17 and 18 year old students alone, as there are those deaf in the mainstream that do not graduate until the age of 21. (see post #302)

Now, back to the discussion. Given what the numbers are showing, is the orally based mainstream education addressing deaf children's needs as a whole? And if not, why are so many deaf children placed in the mainstream?

And keep in mind, these numbers are in relation to academics alone. There are many other issues to be considered when addressing children's needs in an educational environment.
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Bold statement, I graduated at the age of 21 years old.

I was wondering why I could not graduated at 17 or 18 years old like the rest of the hearing students. I thought I might have started late at 9 years old in the elementary settings entering in Grade 1, not Kindergarten. I jumped twice to try to catch up to graduate 6th grade level before entering high school. Very interesting. :hmm:
 
jillio said:
Since 90% of the students are being educated in the mainstream, the effect that Deaf schools will have on the numbers is minimal. You cannot expect 10% of the students to raise the numbers for 90% of the students.

The point is, since we are seeing the rates we are seeing, why are so many children still being placed in mainstream programs that are not serving their needs?
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That puzzle me very much. :hmm: Why it is still continuing (bold statement) since 1700 or earlier? Still getting the same feedback from hearing parents wanting their deaf children to hear and listen with CI. CI is just another tool that would not make the hearing normal at all. That is a whole different perspective on their part. The hearing parents expect to have their deaf child with CI to hear and listen with no minimal accommodations. The CI kids will still be struggling as usual like we have been struggled like many years ago with hearing aids. CI is not a miracle. What if the CI devices does not work and do we have to take the CI devices out or leave them in for the rest of their lives? That is the concern about surgery for CI. Hearing people with deaf children should accept them as deaf kids, not hearing kids. I am sure the child don't want to be like the hearing person, even me. That is what make me sad and upset all at the same time. :(
 
I came upon your post and wanted to correct the assumptions that you made about me, and to tell jillio that they are not using my son as an experiment.
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Agreed. You do sound like you have a good and very healthy attitude as to raising your son. That is AWESOME!!!!!!!!!!!!!!!!!!!!
jillo, I think she just misworded her thoughts. Wanting your dhh kid to be able to develop oral skills is NOT audist.
She wants her son to have that additional skill/abilty.
As to the mainstream oral debate.......I think a lot of the kids in that sitution, are like I was. Meaning many of their parents may be misinformed about the options......like a lot of parents may think that Deaf ed is just for voice off kids or may not even be aware of schools like CID or Clarke as an option.
It's so effing sad...most of those kids are in resource rooms with clueless sped teachers who only had a very tiny unit on deaf education.
 
jillio said:
We've been paying attention to CMV for many years. My son is 25 years old, and the doctor was able to give me stacks and stacks of information. His audi was well informed regarding CMV deafness and the patterns it follows. Of course, she was part of a teaching hospital clinic, but still. I have found educators at Deaf schools that are well informed regarding CMV deafness, because it also has a high incidence of learning disabilities that are co-morbid, so educators need to be aware of the possibility when evaluating students. Just because this mother didn't know anything about CMV doesn't mean that awareness needs to be raised. The medical community is well aware. And since it is a viral infection, there is not much that can be done regarding transmission except employ the same preventative measures we do to prevent transmission of a cold.

When you seek to have your child placed in the news as a means to an end, you have to expect that the situation will be discussed by others. If your intent is to raise awareness, discussion is what you are attempting to generate. The problem is, you cannot control the discussion. That is just part of the bargain.
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I don't know what CMV is (never heard of it). I am learning a lot from you on this subject. So that was what happened to Calumn when his mother had CMV or Calumn had it when transmitted with the viral infection. Very interesting. :cool2:
 
Yea, that's what the virus is called. I met a person who is Deaf from chicken pox at a social recently. Now, we have the vaccine.
 
jillio said:
AlleyCat said:
It doesn't change anything.

Any infant that has been diagnosed with a hearing loss can't have their residual hearing determined at such a young age.

Would you rather that she had said "ALL infants" ? I'm trying to figure out what you guys are taking issue with. She was replying to the mom's post about her own son, so I can see why Jillio said "He". I would have said the same, sorry....[/quote

The mother specifically asked me to share my experience with a CMV deafened son, as well as any information I had regarding CMV and deafness. And she also, in fact, apologized for her too quick reaction at the beginning. That is, until others started trolling the thread and creating issues where there were none. Kind of like what is continuing now.
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I most definately DID NOT apologise.
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deafdyke said:
Agreed. You do sound like you have a good and very healthy attitude as to raising your son. That is AWESOME!!!!!!!!!!!!!!!!!!!!
jillo, I think she just misworded her thoughts. Wanting your dhh kid to be able to develop oral skills is NOT audist.
She wants her son to have that additional skill/abilty.
As to the mainstream oral debate.......I think a lot of the kids in that sitution, are like I was. Meaning many of their parents may be misinformed about the options......like a lot of parents may think that Deaf ed is just for voice off kids or may not even be aware of schools like CID or Clarke as an option.
It's so effing sad...most of those kids are in resource rooms with clueless sped teachers who only had a very tiny unit on deaf education.
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Wanting a child to develop oral skills is not audist. The thinking behind wanting a child to develop oral skills, very often, is.

I don't believe any thoughts were misworded. I believe the thinking behind the reasoning became very clear through the way the thoughts were worded.
 
jillio said:
Wanting a child to develop oral skills is not audist. The thinking behind wanting a child to develop oral skills, very often, is.

I don't believe any thoughts were misworded. I believe the thinking behind the reasoning became very clear through the way the thoughts were worded.
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Are you implying that Calum's Mom's thinking was revealed to be audist in something she wrote?
 
GrendelQ said:
Are you implying that Calum's Mom's thinking was revealed to be audist in something she wrote?
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Who called Calum's mom audist? Nobody was willing to show where she was called audist so why does this crap continue? PFH asked CSign where that post was and I also asked for it too but nobody was willing to show it.

If you know where that post is, pls refer me to it because I cant find it.
 
Bebonang said:
I don't know what CMV is (never heard of it). I am learning a lot from you on this subject. So that was what happened to Calumn when his mother had CMV or Calumn had it when transmitted with the viral infection. Very interesting. :cool2:
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Yes. That is what happened to this child, to my son, to AlleyCat, to a few more members here, and to several of the kids I work with. Same as the rubella hump in the 60's. The virus, when the mother is exposed at a particular stage of pregnancy, attacks the 8th cranial nerve, causing deafness.
 
deafskeptic said:
Oh, varicella is just a fancy name for chicken pox. :P
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Right. All the herpes viruses have the potential to affect hearing congenitally.

The reason why we pay attention to the etiology, is there are specific learning disabilities or co-morbid disabilities that go along with certain etiologies, particularly when they involve a disease process transmitted to the fetus in utero.
 
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