A cochlear implant story

epmirical shmempirical. If the individual was unable to talk on the phone having residual hearing aided with strongest HAs, and now CAN with CI - this is MUCH better.
MUCH MUCH.

Fuzzy

In your opinion. Which has no foundation of expertise. Additionally, you are basing your opinion on a situation which you have not excperienced. I might remind you, fuzzy, despite your desire to present yourself as informed, you do not have a CI. Therefore, your judgement is moot.
 
I think "who pushes what communications modality" is very regional. In California, for example, it is actually the opposite of what you indicate below. Early Intervention in our state is very biased towards communication modalities that include sign, our foundation actually developed and provided to them the first set of information they distributed on oral programs, but I don't even know that they are getting handed out to families on a consistent basis.

One thing that I'm not sure people realize (I didn't, until I read Niparko's study) is that deaf children's outcomes with respect to fluency in spoken language are very tightly associated with the parent's level of education and income. Education and income are actually statistically more significant than the etiology of the deafness !!! All the therapy that is required is very expensive, and not always covered by insurance. The # one outcome predictor is age of implantation -- earlier is always better.

Every child I have personally come into contact with in the past five years who got their first CI before age 2 (probably a total of about 400 or so) who came from an oral program and had struggles with spoken language later in childhood fall into one of the following categories:

1) they came from families where English was not spoken at home (so they had TWO spoken languages they were getting exposed to, not one)

2) the families did not adhere to the therapy program for many reasons (divorce, moving, lack of availability/funds).

3) the child was multiply disabled, the hearing impairment was not the only issue

I think in retrospect knowing that information, we can make better suggestions to families that come from those categories that are more appropriate for their situations. I cannot stress how important the therapy is. Yes it is hard, yes it is expensive, yes it is a nuisance. But it is absolutely essential to a good outcome, and if you decide to get an implant for your child, you are committing to a LOT more than just surgery.

So, just my opinion, but thank you for asking Shel

Sheri

Not here...just referring to the general public about the oral-only programs that I have experienced. I am just wondering out loud why do those oral specialist push to put deaf children with those kinds of losses into such programs that restricts them severely. Just wondering why that is happening all over. I thought maybe LTHAdvocate can answer since she seems to have a lot of knowledge about it.
 
Having a CI is not a pre-requisite to being "informed" on the topic. I don't have a CI, my child doesn't have a CI, but we are both HI, and I have come into contact with over 1000 people who have CIs in the past 3 years. I spend probably 60+ hours per week on the topic related to my job, and have access to some of the top experts in the country, as well as attending conferences and having Google and PubMed crawlers sending me weekly updates on new research.

Being able to use a non-adapted phone without a relay service slowing things down is one of the most significant benefits frequently cited by our adult implant recipients. 0 % of them could do that before implantation, 85 % of them can do that within 1 year of implantation. I know of one of my clients who was convinced she was able to prevent a fatality in a car accident she witnessed (no one around but her and the person bleeding out in the other car) because she was able to understand the instructions of the 911 operator she called on her cell phone. Lots of people would categorize that as "much better". If you don't, that's fine, but that is also only your opinion.

Sheri

In your opinion. Which has no foundation of expertise. Additionally, you are basing your opinion on a situation which you have not excperienced. I might remind you, fuzzy, despite your desire to present yourself as informed, you do not have a CI. Therefore, your judgement is moot.
 
Our clinic would likely not recommend an oral-only approach for someone with an infant with a 120 dB bilateral loss that unless the child was going to receive an implant, and we would strongly urge the implant.

Sheri
If that's the case that a 110 dB level does no good with understanding speech and not much with environmental noise then why the push to put kids with those kinds of heaing losses in an oral-only environment without any sign language exposure? I have a bilateral dB loss of 120 but I was denied sign language. It is a wonder I managed to learn. *sighs*
 
Having a CI is not a pre-requisite to being "informed" on the topic. I don't have a CI, my child doesn't have a CI, but we are both HI, and I have come into contact with over 1000 people who have CIs in the past 3 years. I spend probably 60+ hours per week on the topic related to my job, and have access to some of the top experts in the country, as well as attending conferences and having Google and PubMed crawlers sending me weekly updates on new research.

Being able to use a non-adapted phone without a relay service slowing things down is one of the most significant benefits frequently cited by our adult implant recipients. 0 % of them could do that before implantation, 85 % of them can do that within 1 year of implantation. I know of one of my clients who was convinced she was able to prevent a fatality in a car accident she witnessed (no one around but her and the person bleeding out in the other car) because she was able to understand the instructions of the 911 operator she called on her cell phone. Lots of people would categorize that as "much better". If you don't, that's fine, but that is also only your opinion.

Sheri

No it is not a prerequisite to being informed regarding the issues. However, the terms that were being used were terms of a subjective nature, and can only,therefore be determined by the indiviudal who does experience such. Onc\e can form an objective opinion based on information without experience. However, in order to form a subjective opinion, one must first have the experience that allows for subjectivity. Improvement is a more objective term, as it can be measured and defined empirically. Your client feeling that she wa able to prevent a faltality is subjective in nature....it is something that she experienced. However, medical evidence that she actually was able to prevent a fatality, and that death would have occurred had she not been present to make the 911 call is objective. See the difference?
 
Being a lawyer, I am well acquainted with the difference between objective and subjective. However, you can objectively report on a collection of subjective experiences.

No it is not a prerequisite to being informed regarding the issues. However, the terms that were being used were terms of a subjective nature, and can only,therefore be determined by the indiviudal who does experience such. Onc\e can form an objective opinion based on information without experience. However, in order to form a subjective opinion, one must first have the experience that allows for subjectivity. Improvement is a more objective term, as it can be measured and defined empirically. Your client feeling that she wa able to prevent a faltality is subjective in nature....it is something that she experienced. However, medical evidence that she actually was able to prevent a fatality, and that death would have occurred had she not been present to make the 911 call is objective. See the difference?
 
.............Therefore, using a phrase to imply agreement with intent is not the same thing as repeating words that one does not have any idea of the meaning sof simply because one has been taught those words and thinks they make one "sound smart."
"one has been taught those words and thinks they make one "sound smart."
That sounds familiar...

Jillio... you are soo right....
 
CI might be better in sounds than HA but I think CI is a lot of hassle/costly - all that mappings, recharging the batteries, replacing the cord if necessary.

To me, sign language beats all..

I agree and better than hearing the noisy real world everyday and everywhere. :giggle:
 
Being a lawyer, I am well acquainted with the difference between objective and subjective. However, you can objectively report on a collection of subjective experiences.

But that is not what fuzzy was doing. Hence, my correction.
 
"one has been taught those words and thinks they make one "sound smart."
That sounds familiar...

Jillio... you are soo right....

The difference being, cloggy, I am well aware of the meaningof the words I use. You are the one that requires definition. See the difference?
 
The difference being, cloggy, I am well aware of the meaningof the words I use. You are the one that requires definition. See the difference?
Ah, yes... that was it... it had nothing to do with feeling superior or putting people down...
It's just because one knows the difficult words to replace to simple words.....

Silly me...
 
At the small cost of losing residual hearing the CI implantees can hear MUCH better than before.


A person with a CI does not actually loose any residual hearing. I am aware that this is an belief that is "out there" about CI's, but could not be further from the truth.

Looking for a contact to confirm this? A very gracious and kind individual, here you go:

Charles Berlin, Ph.D, CCC-A
Communication Sciences and Disorders
College of Arts & Sciences
University of South Florida

Biographical Sketch:

Charles I. Berlin, PhD, retired on 9/1/02 as Professor of Otorhinolaryngology, Head and Neck Surgery, and Physiology, and Director of the world-renowned Kresge Hearing Research Laboratory at LSU Medical School in New Orleans. He was also a practicing licensed audiologist who saw patients weekly in the audiology clinic he directed which was selected by Family Circle magazine in 1987 as the Best Place in the United States for Hearing Problems. He has been called the "Teacher's Teacher" and succeeds in making complicated auditory concepts accessible to parents, teachers, hearing aid specialists, as well as his Audiology and Physician students.

He is the recipient of the American Academy of Otolaryngology, Head and Neck Surgery's highest award, the Presidential Citation; the recipient of the Honors of the Association as well as the Frank J. Kleffner Award for Lifetime Clinical Achievement from the American Speech Language and Hearing Association; and the recipient of the Lifetime Career Research Award from the American Academy of Audiology as well as the 2002 Wernick Award from the Academy of Dispensing Audiologists.

He was a founding Member of the Advisory Board to the National Institute of Deafness and Other Communication Disorders, and the recipient of the James P. Snow MD Award from SHHH and the prestigious Robert J. Ruben MD Award from the Society of Ear Nose and Throat Advances in Children.

He is also the first Audiologist and Hearing Scientist to have an Academic Chair named after him. On August 23, 2004 the Louisiana Board of Regents inaugurated the $1 Million Charles I. Berlin Ph.D. Chair in Molecular and Genetic Hearing Science. Berlin’s colleagues and friends, as well as grateful patients and their parents had donated $600,000 to the LSUHSC Foundation in Berlin’s name, and the Regents matched it with $400,000 to complete the $1Million Corpus. A National search beginning shortly for a highly funded and well-respected basic scientist to fill this Chair.

After Hurricane Katrina in August of 2005 he was graciously invited to serve as a Research Professor at the University of Tampa Department of Communication Sciences and Disorders where he coordinates one of its Pediatric Research Units.


Florida Symposium on Early Childhood Hearing Loss

He can also be reached via: AuditoryNeuropathy@yahoogroups.com
 
A person with a CI does not actually loose any residual hearing. I am aware that this is an belief that is "out there" about CI's, but could not be further from the truth.

Looking for a contact to confirm this? A very gracious and kind individual, here you go:




Florida Symposium on Early Childhood Hearing Loss

He can also be reached via: AuditoryNeuropathy@yahoogroups.com

Sorry, but the medical community would disagree with you on this one. Please not....this guy is a Ph.D., not an M.D.
 
Sorry, but the medical community would disagree with you on this one. Please not....this guy is a Ph.D., not an M.D.
Exactly... a Ph.D.... what does he know!!!
Unlike Jillio, she has a...., a....., aaaaaaaa,
J.. help me out!
 
Exactly... a Ph.D.... what does he know!!!
Unlike Jillio, she has a...., a....., aaaaaaaa,
J.. help me out!

A Ph.D. is not a medical degree, cloggy. Get a grip. Having memory problems, are you cloggy?
 
A Ph.D. is not a medical degree, cloggy. Get a grip. Having memory problems, are you cloggy?
Memory???
So... "M" stands for "medical" therefore knows about things, Ph" stands for "not medical", does not know about things, ... and Jillio has no degree... has no clue..........
 
Memory???
So... "M" stands for "medical" therefore knows about things, Ph" stands for "not medical", does not know about things, ... and Jillio has no degree... has no clue..........

Once again, cloggy, you completely miss the point. If one is going to post an article of authority on medical assessment, one needs to use a medical expert. A Ph.D. could be in comparative religions. But it doesn't surprise me that you aren't aware of the ways in which autority is determined. And, Jillio has 2 degrees, thank you, and is currently working on her third.
 
Once again, cloggy, you completely miss the point. If one is going to post an article of authority on medical assessment, one needs to use a medical expert. A Ph.D. could be in comparative religions. But it doesn't surprise me that you aren't aware of the ways in which autority is determined. And, Jillio has 2 degrees, thank you, and is currently working on her third.
Oh, again I missed the point... silly me... imagine, not understanding the relevance of M.D. vs Ph.D. in relation to "residual hearing."

Because - residual hearing is only medical... Nothing to do with the mental part of a person... How one person with more hearing loss can have more residental hearing than another person who medically has more hearingloss....
(Hi Shel!)

The things people post nowadays... no consideration for someone with 2 degrees.... and working on the third....
 
That's your opinion. I disagree with it.

Sure, respectfully I accept your opinion.
Now what I am going to say is my own opinion too, not to say you are not right or anything:

This IS bupkies, Shel. What we have is bupkies. Just because we managed with bupkies excellently, or as best possible, doesn't make it any less bupkies :)

Of course, you are still entitled to your own opinion :)

Fuzzy
 
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