Lies about CI's

[faire_jour]

THAT is what I am talking about.. He's made his decision... and why the pushing for the CI?? Why???

He said that his child has access to all sounds in speech, I said that means he is not a candidate for a CI. He can't have it both ways. Either he is a CI candidate and does not have spoken language access through hearing aids, or his hearing aids provide access and he is not.

 

[rick48]

He said that his child has access to all sounds in speech, I said that means he is not a candidate for a CI. He can't have it both ways. Either he is a CI candidate and does not have spoken language access through hearing aids, or his hearing aids provide access and he is not.

Makes sense and also in no way were you pushing the ci on him.
Rick

 

[Daredevel7]

I think it's funny how people can be so sensitive. PFH is so sensitive by ANY talk that MAY resemble "pushing for CI", while FJ is so sensitive by ANY talk that MAY resemble that "CI is bad" as seen in the "veddy veddy interesting" thread.

.... and that's why I advocate for the legalization of pot.

Chillax, man...

 

[deafgal001]

I never saw PFH as sensitive.

 

[GrendelQ]

I think it's funny how people can be so sensitive. PFH is so sensitive by ANY talk that MAY resemble "pushing for CI", while FJ is so sensitive by ANY talk that MAY resemble that "CI is bad" as seen in the "veddy veddy interesting" thread.

.... and that's why I advocate for the legalization of pot.

Chillax, man...

Very true.

 

[rockdrummer]

I think it's funny how people can be so sensitive. PFH is so sensitive by ANY talk that MAY resemble "pushing for CI", while FJ is so sensitive by ANY talk that MAY resemble that "CI is bad" as seen in the "veddy veddy interesting" thread.

.... and that's why I advocate for the legalization of pot.

Chillax, man...

I love this woman!!

 

[posts from hell]

I never saw PFH as sensitive.

That is correct.

I have my reasons behind asking certain questions.... I'm a hell of a carpenter.. I'm building a reinforced corner.

 

[posts from hell]

I think it's funny how people can be so sensitive. PFH is so sensitive by ANY talk that MAY resemble "pushing for CI", while FJ is so sensitive by ANY talk that MAY resemble that "CI is bad" as seen in the "veddy veddy interesting" thread.

.... and that's why I advocate for the legalization of pot.

Chillax, man...

It's legal here, and I have a shitload sitting around.......

Oh and I don't smoke. You're welcome to have some.

 

[posts from hell]

I don't totally follow what you describe in your case, but if you are suggesting that he, like you, look into a CI despite having access to spoken language through HAs, that's fine. Just saying that FJ was not pushing CIs, and seemed to me she was simply explaining that if his hearing loss is below a certain threshold PLUS he was meeting specific speech comprehension milestones, he isn't a candidate for a CI.

Yeah, but something in that post compelled her to make a comment on it... Wasn't exactly necessary........ Also what was more impressive, getting that thread closed where a poster wanted to be just deaf... Why the oppression?

 

[GrendelQ]

Yeah, but something in that post compelled her to make a comment on it... Wasn't exactly necessary........ Also what was more impressive, getting that thread closed where a poster wanted to be just deaf... Why the oppression?

I don't know what got that 'going silent' thread closed, threads seem to come and go so quickly around here, and unless you are online right as they implode, the trigger or pile-on is usually gone, leaving a tame conversation. There's rarely an explanation. I happen to think it was a bit inspired, actually, though perhaps not appropriate for the forum in which it appeared (although given the intended audience, maybe so).

But seriously, I think Daredevil's advice is something we all can take, whether we inhale or no doesn't matter. Hair trigger responses abound.

 

[deafgal001]

Yeah, but something in that post compelled her to make a comment on it... Wasn't exactly necessary........ Also what was more impressive, getting that thread closed where a poster wanted to be just deaf... Why the oppression?

That does seem alittle unfair when all other threads stay open.

At least his other thread stayed open... so far.

 

[AlleyCat]

Yeah, but something in that post compelled her to make a comment on it... Wasn't exactly necessary........ Also what was more impressive, getting that thread closed where a poster wanted to be just deaf... Why the oppression?

Which thread are we talking about? I lost track!

 

[deafgal001]

Which thread are we talking about? I lost track!

"I'm not getting a CI"

Why it is closed when plenty of other threads have the same old arguments.

 

[faire_jour]

Yeah, but something in that post compelled her to make a comment on it... Wasn't exactly necessary........ Also what was more impressive, getting that thread closed where a poster wanted to be just deaf... Why the oppression?

As I said before, I refuse to let people make untrue statements about CIs and let it stand. Why allow misinformation to continue to be disseminated? Nope.

 

[jillio]

Maybe I need you to contact my audiologist, then, because she obviously doesn't know what she's talking about. :roll:


Exactly.

The other factor that has led to my current stance on cochlear implants is that they are not 100% effective. For some people, spoken language will never be accessible, even with CI, and there's really no way to pre-screen for future success. Therefore, if I decided to implant my son then there is the risk of him losing all of his residual hearing with nothing gained, and that's in addition to all the other risks associated with CI. Frankly, it's just not worth it.

I understand exactly where you are coming from. That was my line of logic in making the decision not to implant my own son. Given the fact that he functions very well from an adaptive stand point, the risk was not worth the possible benefit. And, as he himself has said, now that he is an adult, "The CI can't add anything to my life. I am happy and successful already."

 

[jillio]

The candidacy for a child under the age of 2 is a profound hearing loss. Over age two it is a severe to profound hearing loss in addition to limited benefit from hearing aids. That is generally measured by speech discrimination testing or by a child's spoken language not progressing and the child missing the developmentally appropriate spoken language milestones. If your child is hitting those milestones, he wouldn't be a candidate.

As for the risks, yes, there are risks. As for losing residual hearing, I have never heard of a story in which someone was implanted and they lost speech perception. There are lots of stories where they went from hearing aids to CIs and did not gain as much as they hoped, but I don't know of anyone who did not perform as well as they did with their hearing aids.

And as for the "pre-screening", there are centers that "rate" the child as a canidate. They label them an A, B, or C candidate. (And then an A, B, or C communicator). They do actually make an educated determination, based on various factors, as to what kind of benefit the child would get from the implant. Perhaps you could speak to some of the professionals from a center and they would be able to give you a clearer picture of the factors that make some kids successful auditory learners.

Again, wrong. These guidelines are general and are crossed all the time.

 

[shel90]

I understand exactly where you are coming from. That was my line of logic in making the decision not to implant my own son. Given the fact that he functions very well from an adaptive stand point, the risk was not worth the possible benefit. And, as he himself has said, now that he is an adult, "The CI can't add anything to my life. I am happy and successful already."

Then that means it was all a lie about your son being happy without implants. Remmy this is lies about CIs thread.

 

[Oceanbreeze]

Then that means it was all a lie about your son being happy without implants. Remmy this is lies about CIs thread.

It has struck me that maybe this isn't such a black and white issue after all. Maybe, instead of being all accusatory about CI's, people should realize that the CI isn't a cure all and that some people will have problems; and, someone else won't get the benefit from them that they hoped. There will also be people who will get the benefits they hoped for and MORE. It seems to me that it's very individualized.

It comes down to being realistic about this technology. People are trying to treat it as absolute and it's SO NOT.

"It is an absolute miracle."

"The CI will be the death of the Deaf community."

Neither of these extremes is true. So, there you go. There's a LIE about the CI.

 

[jillio]

Then that means it was all a lie about your son being happy without implants. Remmy this is lies about CIs thread.

Dang! I messed up! My son wanted an implant really really badly, and I refused to get him one. (How's that?:P)

 

[posts from hell]

As I said before, I refuse to let people make untrue statements about CIs and let it stand. Why allow misinformation to continue to be disseminated? Nope.

Why don't you do the same for the deaf? Theres TONS more misinformation out there about the deaf... With your energy - I would expect to see a crusade out in the next state to me advocating the deaf as well? Why be so hellbent on CI's? Oh yes... Deaf people are inferior, eh?

you see -- my point is, even we as deaf people know that there is a shitload of misinformation out there about us - including that we need CI's to survive in this torrid world... We're pretty content on accepting that fact...

Didja know ... There ARE stupid people out there... They have this knack to bring you down to their level and beat you with experience. That is exactly what I'm seeing happening right here on this forum, its comical. Keep it up - argue with someone that will never get it.