Lies about CI's

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deafskeptic said:
I'm passing up latex gloves as I don't want a severe case of hives on my hands. I don't want my tactile sense enhanced by hives. :P
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Uh oh. Latex allergy?
 
faire_jour said:
If the hearing aids provide enough amplification to hear all of spoken language, the child is not a CI candidate. If they are a candidate, they are not hearing all the sounds. It is one way or the other. It is pretty simple.
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Wrong. Determination for candadicy is not black and white. Not yes or no.
 
faire_jour said:
If the hearing aids provide enough amplification to hear all of spoken language, the child is not a CI candidate. If they are a candidate, they are not hearing all the sounds. It is one way or the other. It is pretty simple.
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Maybe I need you to contact my audiologist, then, because she obviously doesn't know what she's talking about. :roll:

jillio said:
Wrong. Determination for candadicy is not black and white. Not yes or no.
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Exactly.

The other factor that has led to my current stance on cochlear implants is that they are not 100% effective. For some people, spoken language will never be accessible, even with CI, and there's really no way to pre-screen for future success. Therefore, if I decided to implant my son then there is the risk of him losing all of his residual hearing with nothing gained, and that's in addition to all the other risks associated with CI. Frankly, it's just not worth it.
 
Oceanbreeze said:
+1 I'm allergic to latex, too. :aw: That's thanks to the 32 surgeries I've had over the years (soon to be 33).
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+ another... I am too, When the asthestist (sp) came on the morning of my CI surgery, he said, any allergys, I said Latex.. his face fell! and he said why didn't anyone put that in your records... I pointed it out, it is on the front page in red pen... He said he must have missed it! I was very nervous at that point then he said he was winding me up... he already knew as he pulled out 2 red braclets! I was so relieved! 20 mins later i was "gone"
 
overthepond said:
+ another... I am too, When the asthestist (sp) came on the morning of my CI surgery, he said, any allergys, I said Latex.. his face fell! and he said why didn't anyone put that in your records... I pointed it out, it is on the front page in red pen... He said he must have missed it! I was very nervous at that point then he said he was winding me up... he already knew as he pulled out 2 red braclets! I was so relieved! 20 mins later i was "gone"
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That's freaking scary!

I've never actually reacted to latex, but it's well documented that people with spina bifida have a high rate of latex allergy. So much so that if they know you have SB, they WILL automatically use latex free products on you. There is also a blood test they now routinely do on all SB patients. Turns out, the blood test came back positive, so, I'm too assume that I'm allergic to the stuff. Just another freaking thing for me to deal with! :roll:
 
Yeah it was scary, I really thought they were going to cancel my op to make the OR latex free... He's an asshole for winding me up but really is a lovely bloke, Looked after me so well for 4 hours.

My allergy came up when i went to hosp to have my wisdom teeth taken out, when I went under, they used latex gloves and was putting tube down my throat and sorting out my mouth ready for incision, my mouth started to get red and swollen then i was having difficulty breathing and the surgeon/nurses acted immediately and gave me anti histime, when my breathing returned to normal and they all changed everything to non latex and contiuned to pull my teeth out, usually 40 mins routine op but it ended up 2 hours and i was first on the list (oops not very happy patients after me!)

I had plasters before they gave me hives but I never thought about it until I had my op for wisdom teeth.
 
overthepond said:
Yeah it was scary, I really thought they were going to cancel my op to make the OR latex free... He's an asshole for winding me up but really is a lovely bloke, Looked after me so well for 4 hours.

My allergy came up when i went to hosp to have my wisdom teeth taken out, when I went under, they used latex gloves and was putting tube down my throat and sorting out my mouth ready for incision, my mouth started to get red and swollen then i was having difficulty breathing and the surgeon/nurses acted immediately and gave me anti histime, when my breathing returned to normal and they all changed everything to non latex and contiuned to pull my teeth out, usually 40 mins routine op but it ended up 2 hours and i was first on the list (oops not very happy patients after me!)

I had plasters before they gave me hives but I never thought about it until I had my op for wisdom teeth.
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It's a pretty scary allergy to have considering that a lot of things are made of latex.
 
Oceanbreeze said:
That's freaking scary!

I've never actually reacted to latex, but it's well documented that people with spina bifida have a high rate of latex allergy. So much so that if they know you have SB, they WILL automatically use latex free products on you. There is also a blood test they now routinely do on all SB patients. Turns out, the blood test came back positive, so, I'm too assume that I'm allergic to the stuff. Just another freaking thing for me to deal with! :roll:
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Hmm. I hadn't known that. Why do people with SB have such a high rate of latex allergy?
 
deafskeptic said:
Yes. I've had severe hives from latex.
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I'm also allergic to rubber as well. I had a pair of Doc Martens and I got hives on my feet from the rubber and one of them turned into a blister. I went to the ER room to get it treated and that's how I found out I have diabetes.
 
deafskeptic said:
Hmm. I hadn't known that. Why do people with SB have such a high rate of latex allergy?
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Multiple surgeries and being exposed to latex products during hospitalizations and other specialty care. Latex gloves are commonplace as well as other things like IV tubing, endotracheal tubes, ect. It's all made of latex. However, that is gradually being phased out, I think, due to the prevalence of latex allergy. If it's known that you're allergic, they will use non-latex products.

http://www.webmd.com/allergies/guide/latex-allergies
 
Mountain Man said:
Maybe I need you to contact my audiologist, then, because she obviously doesn't know what she's talking about. :roll:


Exactly.

The other factor that has led to my current stance on cochlear implants is that they are not 100% effective. For some people, spoken language will never be accessible, even with CI, and there's really no way to pre-screen for future success. Therefore, if I decided to implant my son then there is the risk of him losing all of his residual hearing with nothing gained, and that's in addition to all the other risks associated with CI. Frankly, it's just not worth it.
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The candidacy for a child under the age of 2 is a profound hearing loss. Over age two it is a severe to profound hearing loss in addition to limited benefit from hearing aids. That is generally measured by speech discrimination testing or by a child's spoken language not progressing and the child missing the developmentally appropriate spoken language milestones. If your child is hitting those milestones, he wouldn't be a candidate.

As for the risks, yes, there are risks. As for losing residual hearing, I have never heard of a story in which someone was implanted and they lost speech perception. There are lots of stories where they went from hearing aids to CIs and did not gain as much as they hoped, but I don't know of anyone who did not perform as well as they did with their hearing aids.

And as for the "pre-screening", there are centers that "rate" the child as a canidate. They label them an A, B, or C candidate. (And then an A, B, or C communicator). They do actually make an educated determination, based on various factors, as to what kind of benefit the child would get from the implant. Perhaps you could speak to some of the professionals from a center and they would be able to give you a clearer picture of the factors that make some kids successful auditory learners.
 
faire_jour said:
The candidacy for a child under the age of 2 is a profound hearing loss. Over age two it is a severe to profound hearing loss in addition to limited benefit from hearing aids. That is generally measured by speech discrimination testing or by a child's spoken language not progressing and the child missing the developmentally appropriate spoken language milestones. If your child is hitting those milestones, he wouldn't be a candidate.

As for the risks, yes, there are risks. As for losing residual hearing, I have never heard of a story in which someone was implanted and they lost speech perception. There are lots of stories where they went from hearing aids to CIs and did not gain as much as they hoped, but I don't know of anyone who did not perform as well as they did with their hearing aids.

And as for the "pre-screening", there are centers that "rate" the child as a canidate. They label them an A, B, or C candidate. (And then an A, B, or C communicator). They do actually make an educated determination, based on various factors, as to what kind of benefit the child would get from the implant. Perhaps you could speak to some of the professionals from a center and they would be able to give you a clearer picture of the factors that make some kids successful auditory learners.
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THAT is what I am talking about.. He's made his decision... and why the pushing for the CI?? Why???
 
posts from hell said:
THAT is what I am talking about.. He's made his decision... and why the pushing for the CI?? Why???
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It is all about the quest to hear..that's why. Deafness is a BAD BAD BAD thing to them.
 
posts from hell said:
THAT is what I am talking about.. He's made his decision... and why the pushing for the CI?? Why???
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She isn't pushing the CI, she's doing the opposite: saying that if his son has a certain level of hearing and hearing aids already provide access to spoken language, he isn't a CI candidate (and wouldn't stand to "lose speech perception" as MM stated as a risk).
 
GrendelQ said:
She isn't pushing the CI, she's doing the opposite: saying that if his son has a certain level of hearing and hearing aids already provide access to spoken language, he isn't a CI candidate (and wouldn't stand to "lose speech perception" as MM stated as a risk).
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The audiologist set an appt. for him so he probably was a candidate . The child probably more like me. in the 90 db loss in both ears, enough hearing to benefit from hearing aids and spoken language through hearing aids, but it's not enough, and there's no benefit without hearing aids (total silent).

I had enough hearing with my hearing aids but they felt I was still a candidate for CI and they were right.
 
deafgal001 said:
The audiologist set an appt. for him . The child probably more like me. in the 90 db loss in both ears, enough hearing to benefit from hearing aids and spoken language through hearing aids, but it's not enough, and there's no benefit without hearing aids (total silent).

I had enough hearing with my hearing aids but they felt I was still a candidate for CI and they were right.
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I don't totally follow what you describe in your case, but if you are suggesting that he, like you, look into a CI despite having access to spoken language through HAs, that's fine. Just saying that FJ was not pushing CIs, and seemed to me she was simply explaining that if his hearing loss is below a certain threshold PLUS he was meeting specific speech comprehension milestones, he isn't a candidate for a CI.
 
I'm saying even if people do have enough hearing, they still can be a canididate. I'm just about in the severe hearing loss but I"m not.

but yeah, I know what she saying, but I don't know how much of it is true.
 
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