Lies about CI's

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BecLak said:
Yes, OB, I totally agree.

And, as many know now, I am one of those dreaded people. For the time being I have to continue being oral because my family is used to it. I am slowly changing that but it will take time. I am learning sign language, firstly AUSLAN because I am Australian and secondly ASL. I also have times I will go completely voice-off, what a relief it is to me when I do that.

Finally realising only last year, (and I am 47) that I no longer need to keep 'pretending to hear' and 'hiding' my deafness because I was taught mostly by society that it was something to be 'corrected' so brought shame and humiliation on me if I didn't correct it.

I thought I had mastered the art of 'hearing' and of 'hiding' but I had a severe wake up call last year that made me realise that I was only fooling myself and others. I am taking steps now where I longer have to live a lie.

May I alert you to the fact, those of you who are advocating for CIs, (however, like OB, I respect the parents decision),that children and adults alike learn tricks along the way to accomodate their situation. ie: KristinaB mentioned how she lip-reads her son through the rear-view mirror, yet her MIL thought she could hear him. In other words, for a long time, they may give you the impression that everything is ok until they realise they can't keep up the pretense anymore.

It is a stark reality that needs to be recognised. It concerns those of us who have experienced this that you are ignoring this because it is something you don't want to face the facts with. Your efforts to do what you think is the best for your children is commendable, there is no doubt of that.

If you bear in mind the negative social consequences mentioned by Jiro, Shel, myself and others (who were raised oral only)in previous posts then you will be able to address those issues before they become a problem.
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OMG , are you sure you arent my clone????? :shock:

I have been telling the oralists almost the exact same thing for years but only to get rebutted. Wow.
 
BecLak said:
So, it really is just a 'glorfied HA', after all. When my parents and I first heard about CIs, it was projected as a 'cure all'. I have learned a lot from this forum and I still take the stand because of my experience above, to discourage the use of them. However, as I said, if parents decide that it is the best route for their child, that is their choice but my advice would be to make sure that the social stigma of wearing an aid and the difficulties they will continue to face will be addressed so that the child can overcome those issues are they face them instead of facing them after the damage is done.
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I wouldn't call it a glorified HA. It is superior to HA in that it allows the child to understand speech. They can listen and speak, but yes, the CI is only good as the maps it has. A child who is mapped well hears pretty well, and there are programs for noise reduction. However, the child may still have trouble. That's where the FM system comes in and such. It's a little more than a glorified CI, but, it's not a cure by any means.
 
Oceanbreeze said:
I wouldn't call it a glorified HA. It is superior to HA in that it allows the child to understand speech. They can listen and speak, but yes, the CI is only good as the maps it has. A child who is mapped well hears pretty well, and there are programs for noise reduction. However, the child may still have trouble. That's where the FM system comes in and such. It's a little more than a glorified CI, but, it's not a cure by any means.
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Agreed. I don't know anyone with a CI or any parent of a child with a CI who thinks of it as a cure or cure all. Those of us who know the technology also know its limitations. And we're the ones identifying accommodations as needed in IEPs.
 
Oceanbreeze said:
I wouldn't call it a glorified HA. It is superior to HA in that it allows the child to understand speech. They can listen and speak, but yes, the CI is only good as the maps it has. A child who is mapped well hears pretty well, and there are programs for noise reduction. However, the child may still have trouble. That's where the FM system comes in and such. It's a little more than a glorified CI, but, it's not a cure by any means.
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Remember this is lies about CIs so whatever you are saying is considered a LIE!
 
How about this one:

It is always best to implant as early in a child's life as possible.

:shock:

True story, when my wife and I found out our six-month old son was deaf, the audiologist had already booked the implant procedure for him before she even informed us of his diagnosis. She was so sure that we would want him "fixed" that it never dawned on her that we might be willing to consider other options, and she was visibly annoyed when we told her, "Hold on, we're not convinced cochlear implants are the best decision." She is, of course, no longer our audiologist.
 
Mountain Man said:
How about this one:

It is always best to implant as early in a child's life as possible.

:shock:

True story, when my wife and I found out our six-month old son was deaf, the audiologist had already booked the implant procedure for him before she even informed us of his diagnosis. She was so sure that we would want him "fixed" that it never dawned on her that we might be willing to consider other options, and she was visibly annoyed when we told her, "Hold on, we're not convinced cochlear implants are the best decision." She is, of course, no longer our audiologist.
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I almost thought that last part was true until I realized you'd said that your audi booked the surgery :)
 
"It works" is a lie (most, if not all, of the time) if you are thinking that it makes you hear as well as a hearing person.

"It works" is the truth (most, if not all, of the time) if you are thinking that it is much better than a HA.

The success of the CI is so subjective, hence the varying responses of CI recipients. If you ask them specific questions as opposed to simply asking "Does it work?" or "Are you happy with it?", you will get a MUCH better idea of how the CI works.
 
posts from hell said:
Oh, another lie about CI:

It works.
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If someone had said "it works for all" -- this would be a lie, it doesn't (some can't get one, some wouldn't want one, and for a few, it doesn't provide access to sound. For most, however, it works. So I don't think that can qualify as a lie we've seen on Alldeaf.
 
Daredevel7 said:
"It works" is a lie (most, if not all, of the time) if you are thinking that it makes you hear as well as a hearing person.

"It works" is the truth (most, if not all, of the time) if you are thinking that it is much better than a HA.

The success of the CI is so subjective, hence the varying responses of CI recipients. If you ask them specific questions as opposed to simply asking "Does it work?" or "Are you happy with it?", you will get a MUCH better idea of how the CI works.
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lol you are right. I guess it depends on how one measures success in a CI. I went into great detail about that in another thread which ended up heated an locked as most CI threads do.
 
GrendelQ said:
I almost thought that last part was true until I realized you'd said that your audi booked the surgery :)
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She did, or at least she had called the right people and told them to book it. Either way, she came into the office with a date in hand and told us not to worry because she had already taken care of everything. This is the same audiologist who gravely told us that we probably shouldn't have any more children lest they, too, be "cursed" with deafness. The horror!

Ooh, I just thought of another lie!

Audiologists and other medical professionals do only what is in the child's best interest.
 
rockdrummer said:
lol you are right. I guess it depends on how one measures success in a CI. I went into great detail about that in another thread which ended up heated an locked as most CI threads do.
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That's true. It doesn't matter. People believe what they want to believe.

Here is another lie:

"My friend is unhappy with the CI, so therefore it means it didn't work."
 
Mountain Man said:
She did, or at least she had called the right people and told them to book it. Either way, she came into the office with a date in hand and told us not to worry because she had already taken care of everything. This is the same audiologist who gravely told us that we probably shouldn't have any more children lest they, too, be "cursed" with deafness. The horror!

Ooh, I just thought of another lie!

Audiologists and other medical professionals do only what is in the child's best interest.
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yes, My audiologist set up an appt. for ENT for me too.
 
Mountain Man said:
Oh, you've seen my son's audiogram and spoken with his audiologist, have you? I knew Obamacare wanted to allow better access to patient records, but I had no idea. :hmm:
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If the hearing aids provide enough amplification to hear all of spoken language, the child is not a CI candidate. If they are a candidate, they are not hearing all the sounds. It is one way or the other. It is pretty simple.
 
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