Lies about CI's

[shel90]

The system of audies and doctors who prey on unsuspecting people for theor own personal gains.

 

[posts from hell]

The system of audies and doctors who prey on unsuspecting people for theor own personal gains.

yep. and funny how the "normal people" want to counter the 6 billion++++ a year in profits with costs of deaf schools.. *laughs*

 

[posts from hell]

Oh, another lie about CI:

It works.

 

[Oceanbreeze]

Yes the time is very different and HA/CI users have it better than those w/ HA/CI in the past because of better ADA laws, better technology, better awareness, etc.

but... the main issue is the social aspect. It's all the same. They all felt left out in hearing world and it wasn't what they expected it to be as they get older - regardless of what era they're in. There will always be a communication issue between friends, family, spouses/couples, or colleagues.

Thank you. You don't have to BE deaf to empathize with that, either. I've known the person I spoke of for the last 9.5 yrs. She was implanted about 6 yrs ago and regrets it to this day.

 

[Oceanbreeze]

So that that that THAT!

Sorry, Shel! Not laughing AT you, but the way you emphasized that is sorta funny! It's gotta be true with SO many deafies saying the same thing! If only the audists would open their EARS and HEAR/LISTTEN to them!

Ironic, isn't it?

 

[Oceanbreeze]

Oh, another lie about CI:

It works.

Well, it does; just not for everyone or every situation.

 

[deafskeptic]

yes the time is very different and ha/ci users have it better than those w/ ha/ci in the past because of better ada laws, better technology, better awareness, etc.

But... The main issue is the social aspect. It's all the same. They all felt left out in hearing world and it wasn't what they expected it to be as they get older - regardless of what era they're in. There will always be a communication issue between friends, family, spouses/couples, or colleagues.

bingo

 

[Oceanbreeze]

not exactly true

That is the fear the systems is playing... which I am not for.

HAs worked fine for my friend. She was getting enough auditory input from them for her needs. The problem arose when her hearing husband/Mother pressured her into getting the CI. Unfortunately, she caved and ended up in a worse situation when she came down with meningitis. That necessitated a re-implantation. She is profoundly deaf. Six years ago, she benefited from her HAs and was doing well. Today, she still has a CI, but didn't gain much except the ability to speech read a little better than she could before the implant.

 

[posts from hell]

Well, it does; just not for everyone or every situation.

shhh.. That was my angle.

 

[posts from hell]

HAs worked fine for my friend. She was getting enough auditory input from them for her needs. The problem arose when her hearing husband/Mother pressured her into getting the CI. Unfortunately, she caved and ended up in a worse situation when she came down with meningitis. That necessitated a re-implantation. She is profoundly deaf. Six years ago, she benefited from her HAs and was doing well. Today, she still has a CI, but didn't gain much except the ability to speech read a little better than she could before the implant.

Okay, now who profited in this situation... off a body?

 

[Mountain Man]

By choosing not to get a CI, you are in fact, choosing to make sure he can never hear certain sounds.

Oh, you've seen my son's audiogram and spoken with his audiologist, have you? I knew Obamacare wanted to allow better access to patient records, but I had no idea.

 

[shel90]

Sorry, Shel! Not laughing AT you, but the way you emphasized that is sorta funny! It's gotta be true with SO many deafies saying the same thing! If only the audists would open their EARS and HEAR/LISTTEN to them!

Ironic, isn't it?

It is derived from ASL when putting a strong emphasis on something.

 

[Oceanbreeze]

Okay, now who profited in this situation... off a body?

Well, honestly. Not many. The hospital and her ENT did for sure. As for the AVT training, she went for awhile, but frankly, she wasn't getting anywhere, so she quit going after awhile. So, I would honestly say in her situation, it's nothing more than glorified HA.

She didn't do the AVT much past a few months past implantation. Keep in mind, we're talking about a twenty-four year old here. There was a SLIM chance she would gain anything more than environmental discrimination to START with. Therefore, she ditched the therapy in favor of living/being. She got the implant to please people. In the end, she ended up screwing them when she didn't follow through with their demands.

But, to the profit question, in her case the only ones who truly profitted were the hospital and her ENT. Thank God she had good insurance because she needed a second hospitalization for the meningitis, too!

 

[posts from hell]

Well, honestly. Not many. The hospital and her ENT did for sure. As for the AVT training, she went for awhile, but frankly, she wasn't getting anywhere, so she quit going after awhile. So, I would honestly say in her situation, it's nothing more than glorified HA.

She didn't do the AVT much past a few months past implantation. Keep in mind, we're talking about a twenty-four year old here. There was a SLIM chance she would gain anything more than environmental discrimination to START with. Therefore, she ditched the therapy in favor of living/being. She got the implant to please people. In the end, she ended up screwing them when she didn't follow through with their demands.

But, to the profit question, in her case the only ones who truly profitted were the hospital and her ENT. Thank God she had good insurance because she needed a second hospitalization for the meningitis, too!

Yeah, pretty common.. :/ sad.

 

[Oceanbreeze]

Yeah, pretty common.. :/ sad.

Well, it ended well. She has divorced the clod she was married to and has little contact with her Mother now. She's in a supportive relationship with another person; also hearing. We don't talk about her CI experience that much anymore, but I know she resents it. I've seen her take it off at times and fling it on the table. She also refers to it as a "hearing aid". Her body language is pretty telling of her feelings towards it.

But, despite that, she's happy with her life now; but her happiness definitely is NOT tied to her implant or the surgeries she had. I'm sure if she could live with total silence she would. Unfortunately, she can't.

 

[posts from hell]

Well, it ended well. She has divorced the clod she was married to and has little contact with her Mother now. She's in a supportive relationship with another person; also hearing. We don't talk about her CI experience that much anymore, but I know she resents it. I've seen her take it off at times and fling it on the table. She also refers to it as a "hearing aid". Her body language is pretty telling of her feelings towards it.

But, despite that, she's happy with her life now; but her happiness definitely is NOT tied to her implant or the surgeries she had. I'm sure if she could live with total silence she would. Unfortunately, she can't.

why can't she

 

[BecLak]

Thank you, but I'm not bothered by what Rick says. For one, he's on my ignore list. Secondly, unless you're 100% for cochlear implants in every situation, you're going to be attacked for your position.

For the record (for the bazillionth time), I'm NOT AGAINST implantation; even for toddlers. That's a parent's choice to make and I'm not one to step on that. What I am against is oral only.

I made the point, however, that we don't know what these kids are going to do in 20 yrs time. History has shown that deafies in the past have rejected their strict oral only upbringing. A lot of the friends I have, learned ASL later in life. Some of them went completely voice off; while others continued to use their devices, but incorporated ASL into their lives (much like Shel90 has done).

I'm also NOT saying all will do this. But, just because a child appears to enjoy hearing at the age of 3 doesn't mean they'll continue as they get older. Things change. People change, and, experiences often shape a person's viewpoints. That's what I am saying. I'm not saying you shouldn't implant your child. That's not my place. But, I am saying that it may turn out that not every implanted child is going to follow the path you set out for them.

Yes, OB, I totally agree.

And, as many know now, I am one of those dreaded people. For the time being I have to continue being oral because my family is used to it. I am slowly changing that but it will take time. I am learning sign language, firstly AUSLAN because I am Australian and secondly ASL. I also have times I will go completely voice-off, what a relief it is to me when I do that.

Finally realising only last year, (and I am 47) that I no longer need to keep 'pretending to hear' and 'hiding' my deafness because I was taught mostly by society that it was something to be 'corrected' so brought shame and humiliation on me if I didn't correct it.

I thought I had mastered the art of 'hearing' and of 'hiding' but I had a severe wake up call last year that made me realise that I was only fooling myself and others. I am taking steps now where I longer have to live a lie.

May I alert you to the fact, those of you who are advocating for CIs, (however, like OB, I respect the parents decision),that children and adults alike learn tricks along the way to accomodate their situation. ie: KristinaB mentioned how she lip-reads her son through the rear-view mirror, yet her MIL thought she could hear him. In other words, for a long time, they may give you the impression that everything is ok until they realise they can't keep up the pretense anymore.

It is a stark reality that needs to be recognised. It concerns those of us who have experienced this that you are ignoring this because it is something you don't want to face the facts with. Your efforts to do what you think is the best for your children is commendable, there is no doubt of that.

If you bear in mind the negative social consequences mentioned by Jiro, Shel, myself and others (who were raised oral only)in previous posts then you will be able to address those issues before they become a problem.

 

[BecLak]

Thank you, but I'm not bothered by what Rick says. For one, he's on my ignore list. Secondly, unless you're 100% for cochlear implants in every situation, you're going to be attacked for your position.

For the record (for the bazillionth time), I'm NOT AGAINST implantation; even for toddlers. That's a parent's choice to make and I'm not one to step on that. What I am against is oral only.

I made the point, however, that we don't know what these kids are going to do in 20 yrs time. History has shown that deafies in the past have rejected their strict oral only upbringing. A lot of the friends I have, learned ASL later in life. Some of them went completely voice off; while others continued to use their devices, but incorporated ASL into their lives (much like Shel90 has done).

I'm also NOT saying all will do this. But, just because a child appears to enjoy hearing at the age of 3 doesn't mean they'll continue as they get older. Things change. People change, and, experiences often shape a person's viewpoints. That's what I am saying. I'm not saying you shouldn't implant your child. That's not my place. But, I am saying that it may turn out that not every implanted child is going to follow the path you set out for them.

Yes, OB, I totally agree.

And, as many know now, I am one of those dreaded people. For the time being I have to continue being oral because my family is used to it. I am slowly changing that but it will take time. I am learning sign language, firstly AUSLAN because I am Australian and secondly ASL. I also have times I will go completely voice-off, what a relief it is to me when I do that.

Finally realising only last year, (and I am 47) that I longer need to keep 'pretending to hear' and 'hiding' my deafness because I was taught mostly by society that it was something to be 'corrected' so brought shame and humiliation on me if I didn't correct it.

I thought I had mastered the art of 'hearing' and of 'hiding' but I had a severe wake up call last year that made me realise that I was only fooling myself and others. I am taking steps now where I longer have to live a lie.

May I alert you to the fact, that children and adults alike learn tricks along the way to accomodate their situation. ie: KristinaB mentioned how she lip-reads her son through the rear-view mirror, yet her MIL thought she could hear him. In other words, for a long time, they may give you the impression that everything is ok until they realise they can't keep up the pretense anymore.

It is a stark reality that needs to be recognised. It concerns those of us who have experienced this that you are ignoring this because it is something you don't want to face the facts with. Your efforts to do what you think is the best for your children is commendable, there is no doubt of that.

If you bear in mind the negative social consequences mentioned by Jiro, Shel, myself and others (who were raised oral only)in previous posts then you will be able to address those issues before they become a problem.

 

[Oceanbreeze]

Yes, OB, I totally agree.

And, as many know now, I am one of those dreaded people. For the time being I have to continue being oral because my family is used to it. I am slowly changing that but it will take time. I am learning sign language, firstly AUSLAN because I am Australian and secondly ASL. I also have times I will go completely voice-off, what a relief it is to me when I do that.

Finally realising only last year, (and I am 47) that I longer need to keep 'pretending to hear' and 'hiding' my deafness because I was taught mostly by society that it was something to be 'corrected' so brought shame and humiliation on me if I didn't correct it.

I thought I had mastered the art of 'hearing' and of 'hiding' but I had a severe wake up call last year that made me realise that I was only fooling myself and others. I am taking steps now where I longer have to live a lie.

May I alert you to the fact, that children and adults alike learn tricks along the way to accomodate their situation. ie: KristinaB mentioned how she lip-reads her son through the rear-view mirror, yet her MIL thought she could hear him. In other words, for a long time, they may give you the impression that everything is ok until they realise they can't keep up the pretense anymore.

It is a stark reality that needs to be recognised. It concerns those of us who have experienced this that you are ignoring this because it is something you don't want to face the facts with. Your efforts to do what you think is the best for your children is commendable, there is no doubt of that.

If you bear in mind the negative social consequences mentioned by Jiro, Shel, myself and others (who were raised oral only)in previous posts then you will be able to address those issues before they become a problem.

A lot of deafies are good at hiding their inability to "get" everything. It's a shame that society puts them in this situation.

The CI is NOT the "cure all" the audists would like you to believe it is. Even the children who are implanted now, struggle in noisy situations. A lot of them in the mainstream setting, need FM systems to help them get what the teacher is saying. I'm also sure they have preferential seating as well. I wonder how they would fare if they were sitting in the back; without an FM system? These are the situations in which knowing ASL would be useful to the implantee, but the oralists are against it.

 

[BecLak]

A lot of deafies are good at hiding their inability to "get" everything. It's a shame that society puts them in this situation.

The CI is NOT the "cure all" the audists would like you to believe it is. Even the children who are implanted now, struggle in noisy situations. A lot of them in the mainstream setting, need FM systems to help them get what the teacher is saying. I'm also sure they have preferential seating as well. I wonder how they would fare if they were sitting in the back; without an FM system? These are the situations in which knowing ASL would be useful to the implantee, but the oralists are against it.

So, it really is just a 'glorfied HA', after all. When my parents and I first heard about CIs, it was projected as a 'cure all'. I have learned a lot from this forum and I still take the stand because of my experience above, to discourage the use of them. However, as I said, if parents decide that it is the best route for their child, that is their choice but my advice would be to make sure that the social stigma of wearing an aid and the difficulties they will continue to face will be addressed so that the child can overcome those issues are they face them instead of facing them after the damage is done.