Designing A Hearing Baby

[shel90]

Now this is where I have to be careful - dont want to assume - what is your definition of language? Deprived of what language?

any language...many deaf children are usually exposed to oral only and then later on when they are older, they are not hitting the language milestones appropriate for their age, they get introduced to ASL but most of them struggle since the critical years of language development has passed. I see so many kids get referred to our school at elementary age with a language level of 2 or 3 years old.

 

[Gemma]

any language...many deaf children are usually exposed to oral only and then later on when they are older, they are not hitting the language milestones appropriate for their age, they get introduced to ASL but most of them struggle since the critical years of language development has passed. I see so many kids get referred to our school at elementary age with a language level of 2 or 3 years old.

Exactly that is why I advocate all tools! Why must it be either CI or ASL ..cant they have it all? But in order to have more benefits with a CI, it needs to be implanted at a very very young age - same goes with learning sign language. So I do not agree with the viewpoint "Let a child decide and tell me when she/he wants a CI.".

 

[shel90]

Exactly that is why I advocate all tools! Why must it be either CI or ASL ..cant they have it all? But in order to have more benefits with a CI, it needs to be implanted at a very very young age - same goes with learning sign language. So I do not agree with the viewpoint "Let a child decide and tell me when she/he wants a CI.".

I have no problem with that view.


It doesnt have to be either CI or ASL, at least not with me but many people seem to think that I am against CIs. Oh well. This year I have a student who benefits from her CI. In the past I always got the students who didnt benefit from their CIs.

 

[Hwy99]

Wow I am so past on this thread..

I have to DISAGREE with this! What if the baby grow and have bigger head, then that baby will have head problem, even it could risk baby's brain that could kill the baby!

Leave the baby alone and let it grow first. Surgical Produces is very LASTLY decision for the newborn babies.

 

[shel90]

Wow I am so past on this thread..

I have to DISAGREE with this! What if the baby grow and have bigger head, then that baby will have head problem, even it could risk baby's brain that could kill the baby!

Leave the baby alone and let it grow first. Surgical Produces is very LASTLY decision for the newborn babies.

U got a CI as a baby right?

 

[Hwy99]

U got a CI as a baby right?

No lol I got it last year at my 19th age and rare use it.

 

[shel90]

No lol I got it last year at my 19th age and rare use it.

So why didnt it work for u? Since some people want on info on why CIs dont work for some people, maybe u can give one of the many examples? Was it your age or the device itself?

 

[Gemma]

Wow I am so past on this thread..

I have to DISAGREE with this! What if the baby grow and have bigger head, then that baby will have head problem, even it could risk baby's brain that could kill the baby!

Leave the baby alone and let it grow first. Surgical Produces is very LASTLY decision for the newborn babies.

What do you mean? It is implanted right behind the ear - very tiny device - it has nothing to do with growth of the head. It will never affect the physical growth of the head.

So you are saying if a baby with a heart problem or something like that shouldnt have surgeries too?

 

[Hwy99]

So why didnt it work for u? Since some people want on info on why CIs dont work for some people, maybe u can give one of the many examples? Was it your age or the device itself?

Well I already post the reason several times around here, anyway here I go.

Before I got CI, I was very into Japanese language and I thought if I can get CI then I can learn Japanese speaking.

Thus I got surgery and got CI, and found out it was all mistake for me. I raise whole of my life as deaf and only sign or read lips, never use the hearing aids since I was 12. I can hear lot of stuff very clearly but CI is giving me weird feelings on my head, like sounds coming out in the area between my nose and mouth (which is hurtful and makes me want to get it off NOW) because my brain don't know where to put the sounds, also the sounds tend to get on my nerve even though I put it all way down, it still give me headaches and weird feelings. Also the metal inside my head is not convience for me, when I itch on it, I barely can feel my skin and also if I do anything to the metal on my head, it will make my ear ringing which are annoying.

So that's why I rare use it, mostly I use it when I went to movie theater or visiting to my family members who desire for me to use it. Also it is annoying when my hearing family kept begging me to use the CI.

There is just some of things I regret about receive the CI, but there is other thing I like about CI although.

 

[Gemma]

I have no problem with that view.


It doesnt have to be either CI or ASL, at least not with me but many people seem to think that I am against CIs. Oh well. This year I have a student who benefits from her CI. In the past I always got the students who didnt benefit from their CIs.

Got a question - you work at a mainstreamed program or a school for the deaf?

 

[Hwy99]

What do you mean? It is implanted right behind the ear - very tiny device - it has nothing to do with growth of the head. It will never affect the physical growth of the head.

So you are saying if a baby with a heart problem or something like that shouldnt have surgeries too?

Yes it do, sorry. Head have skull, that's where the implant is drilled on and the cochlea where the implant go inside. Look at the size of adult's head/ear system and baby's head/ear system. Baby's head is very small, soft, and WEAK. It's far more risk for the baby to take the unnecessary surgery like the CI than those who are older. If I was parents who want a hearing child, I would wait till the baby grow up to like maybe 4-5 years old then I will go for the CI.

Heart problem situation is different than the CI. CI is not really necessary which you can wait till the baby develop its own body the healthy way. Heart problem is one of urgency surgical produces, CI surgical produce is not.

I just prefer to hold a happy healthy baby. A baby that being deaf does not mean the baby is unhealthy.

 

[Liebling:-)))]

So you are saying if a baby with a heart problem or something like that shouldnt have surgeries too?

Are you saying that deaf is a diease and risk life saving emergency as heart, etc?

 

[Gemma]

Are you saying that deaf is a diease and risk life saving emergency as heart, etc?

Oh no not at all! I am only referring to the surgery part - I never will think deafness is a disease. It is not a life threatening disease

My point is that if people can do surgeries on babies, CI is one of them - so what is difference between implanting a CI and something else in a baby? Why do people scream abuse if implant a CI in a baby but not say anything if do surgery on something else on a baby? *just curious*

 

[Gemma]

Yes it do, sorry. Head have skull, that's where the implant is drilled on and the cochlea where the implant go inside. Look at the size of adult's head/ear system and baby's head/ear system. Baby's head is very small, soft, and WEAK. It's far more risk for the baby to take the unnecessary surgery like the CI than those who are older. If I was parents who want a hearing child, I would wait till the baby grow up to like maybe 4-5 years old then I will go for the CI.

Heart problem situation is different than the CI. CI is not really necessary which you can wait till the baby develop its own body the healthy way. Heart problem is one of urgency surgical produces, CI surgical produce is not.

I just prefer to hold a happy healthy baby. A baby that being deaf does not mean the baby is unhealthy.

I understand - thanks for clarifying. I am just curious to hear from your perspective.

 

[Liebling:-)))]

Well I already post the reason several times around here, anyway here I go.

Before I got CI, I was very into Japanese language and I thought if I can get CI then I can learn Japanese speaking.

Thus I got surgery and got CI, and found out it was all mistake for me. I raise whole of my life as deaf and only sign or read lips, never use the hearing aids since I was 12. I can hear lot of stuff very clearly but CI is giving me weird feelings on my head, like sounds coming out in the area between my nose and mouth (which is hurtful and makes me want to get it off NOW) because my brain don't know where to put the sounds, also the sounds tend to get on my nerve even though I put it all way down, it still give me headaches and weird feelings. Also the metal inside my head is not convience for me, when I itch on it, I barely can feel my skin and also if I do anything to the metal on my head, it will make my ear ringing which are annoying.

So that's why I rare use it, mostly I use it when I went to movie theater or visiting to my family members who desire for me to use it. Also it is annoying when my hearing family kept begging me to use the CI.

There is just some of things I regret about receive the CI, but there is other thing I like about CI although.

Your description is an exact same as my friend who had it at 4 years ago. My hubby described her to me how different person she is when he met her at BBQ festival as I came home from 9 days vacation in USA at 2 months ago.

Let me to tell you what I know about her.

She was HOH all her life and work as nurse at hospitail until she lost few percent of hearing. She thought CI would help better so she decided for it. After surgery and 7 weeks spa resort..., she turn into different person because "noise" bother her a lot. She often tell the people off to keep quiet, etc... She complaint more and more about noise. That´s what I know from the rumor but I rather to listen her myself than listen the rumor until my hubby met her personally for a first time during my vacation in USA. The rumor is unfortunlately true. I would like to share about her but I know my post will be ignore because I shared my knowledge what I collect from CI users in real life until you posted it... I am glad that you share your experience here. She told my hubby that she REGRETTED to have CI. She felt that her behavior bother her marriage as well.

 

[Hwy99]

I understand - thanks for clarifying. I am just curious to hear from your perspective.

No problem.

 

[Liebling:-)))]

Oh no not at all! I am only referring to the surgery part - I never will think deafness is a disease. It is not a life threatening disease

My point is that if people can do surgeries on babies, CI is one of them - so what is difference between implanting a CI and something else in a baby? Why do people scream abuse if implant a CI in a baby but not say anything if do surgery on something else on a baby? *just curious*

Yes I can understand.

I do not against CI as what everyone thought.

I would do SOMETHING to save my baby risk life if they told me that my baby won´t stay alive longer if I reject to have surgery to save my baby´s life but CI?

Is it necassary to risk baby´s life with CI surgery because it´s not life threatening emergency? I rather to do something with my baby without surgery because it´s safety and risk-free. You can teach your HA child to speak/hear. My friends are HOH but really is they are deaf without HA... they speak and can phone like HOH... thank their parents for their patience and time to develop them with speak/hear.

I beleive to let child to decide because it´s his/her body, he/she wear rest of his/her life, not me. I will be happy to support my child´s wish if she or he want to have CI.

 

[jillio]

Poor Jillio....
But like you stated elsewhere.... some people need to be shocked....

Here's Post#2...

I did notice the phrasing, but have a hard time finding the "?" at the end. I cannot see the question you are talking about, but then, English is not my first language. But then again, I don't think the problem is on my side.

Now, please... find a specialist.

Are you doing drugs? I meant item # 2 in the post you referred to, which would be post # 199. You really do need to read more carefully, and pay attention to the psots you are replying to. Or stop being obtuse...I'm not sure which it is at this point.

 

[jillio]

Gemma,
Thanks for sharing that personal experience.
I hope to hear more about your and your nieces experiences. Perhaps in your own thread.


I'm sure she meant hearing and speech, considering Gemma is talking about CI.
You didn't get that?

Then say hearing and speech, not language development. You need to go ahead and put your agenda ont he table, because it is evident anyway.

 

[jillio]

Ok thanks for clarifying.

That's why I believe in the BiBi approach using both sign and spoken languages. As for hearing devices, I dont have deaf children so I cant pass judgement on people who decide to or to not implant their children. I have always said and still do that it is the family's business and decision. I just dont want any deaf children to get deprived of language..that's my agenda.

Exactly. Gemma's niece is getting a bi-bi environment at home, thus facilitating her comfort with both. She has full access to deaf culture at home and hearing culture outside the home. Likewise full access to two languages.