CI on 6 year old.

[R2D2]

This is not about against child implantation. This is about SYMPATHY on the child. Also I want to empathize that I AM NOT AGAINST child implatation. If my child is profoundly deaf I PREFER not to have one for him/her because I have alternative way to communicate with my child and wait until she/he grows to make her own decision period.

I am not here purposely to start the arguement. I just needed to express about how I feel bad about the child. So everyone please respect each other's opinion.

Okay that's fine with me. I accept it when you say that you didn't intend to start an argument.

However, I just find it interesting that another thread http://www.alldeaf.com/parenting/41746-depressed-father-drowned-deaf-blind-toddler.html
started at around the same time and which concerns the suffering of another deaf child to a more tragic degree has attracted far fewer responses compared to this one. Only 6 replies!

I think we just have found from experience that it's best to stay out of thread s like this one (well I didn't manage that successfully did I?) because they attract certain people like bees to a honeypot. We've had many threads like this before.

By the way, incidently if I wanted to adopt a deaf child from overseas, my country (Australia) would not allow me to because they fail deaf children on the immigration medical test and do not let them in! (reason being a drain on federal resources). At least this particular child was able to be adopted and be part of a loving family. It would be rotten to be parentless and deaf in a third world country where they have archaic attitudes about deafness.

 

[neecy]

Sorry for having an opinion. I'll keep my thoughts to myself in the future. Its safer that way, and less namecalling occurs.

 

[Cloggy]

Ahhh, but your daughter has walked a couple of miles in Angel's shoes. So what does that tell you, cloggy---or are you even capable of getting the meaning?

No, she just crawled a bit and then walked for a year. She is not growing up deaf without the ability to hear. Since she's 3, she has been using her CI to go through the world hearing and speaking.

So, she's not even close to walking in Angels shoes... and probably never will.

 

[Cloggy]

Be perfectly honest with some of you, I haven't seen at least one cochlear implant person that had came in this thread show any sign of sympathy for this adopted child, and I don't know what else to say to this point on, It's like don't they have a heart? I have never experience those type of people before. It's very sad.

Perhaps because the attitude in this thread is NOT about a surgery that went wrong, it's about being against CI. With the surgery as an excuse.
So, this childs experienced is milked by anti-CI for kid posters to give an argument against CI.. NOT about being sorry for the child.

The incident at the start of the topic is just that. An incident. Sad, and the attitude of the father is totally against anything I can imagine. Again, it is not the norn...
Just like the death of the deaf girl that got hit by the train. That is also an incident.

External circumstances make things happen. Sad as they are they are not the norm.

 

[Cloggy]

Sorry for having an opinion. I'll keep my thoughts to myself in the future. Its safer that way, and less namecalling occurs.

Ah, the rules state (you should have read the small stuff..):

Any misfortune of a patient due to a CI-procedure, or any testimony of an unhappy CI-user can be used against you in the messageboard and will be used as global evidence as it will be valid for ALL CI-users..

Any successful testimony or evidence can and will be ignored or downplayed. It will be treated as a freak accident that it works so well. Also, success now will still mean that when they grow up they will be miserable and have a huge identity crisis.
Proof for this is the experience of 40+ year old people that have experienced this even though they have absolutely no experience (and often knowledge) about CI and of course the Deaf person that tried CI and expected he/she would be able to hear everything and understand all... without putting in some work to make it happen...

BTW... ASL will save you!!

 

[Liebling:-)))]

What a thread here

I do not see that beetarehoh created his thread to ask us for feedback or share opinion but his own RANT/VENTING... I noticed that the problem was began few posts after beetarehoh's first thread is Rick48's post #5, that's how it ends debate...

No sypmathy feeling or postive posts to feed beetarehoh's thread. It's about a 6 years old boy, not us. All what I see here is CI supporters defend themselves from negative issues but talk about themselves etc which is really sad.

 

[Liebling:-)))]

Yes... Denmark, Hamburg, Bremen, Osnabruck and last holiday we went to Austria....

All the safetymeasures don't help at 150 km/hr.... You reduce risks, you cannot eliminate them! It will allways be taking a risk. Which you do... with your loved ones.... Even all the way to Italy... adding to the risk....
How is that risk different than the risk with an operation?

Infections happen, and it's sad. Rockdrummer knows everything about that. But infections are the exception, not the norm.

Yes, I aware that we would risk our life what and how we lead everyday like this when we are out of our houses or whatever. This is a life. Nobody knows when it will happen to us but all of that we are trying our best to take care of ourselves and protect family. I already explained in my previous post to listen mechanic's warn for not drive BMW Touring to Italy because I am doing to protect our family's safety, no matter what. It's same thing with re-implant with CI. Would you ignore doctor's warning and continue to re-implant your child when you KNOW it would risk her life?

I would LISTEN warning to cancel anything, no matter what because our life are more matter than worry how to try anything to improve then end risk their life.

But Rockdrummer did not re-implant his child with CI, right?

 

[Liebling:-)))]

Maybe CPS isn't aware of this adopt boy's case just as yet. This adopt boy's whole right side of face is paralyzed from cochlear implant, You don't even think that's child abuse? How many more takes can this boy have to suffer? Five more cochlear implant to make it successful or make this poor boy worst than he already is.

Have a heart Boult.

CPS would do something if they knew what/how a father did to his adopted son.

CPS is on children's side against parents. CPS is for children's rights. The children has the right to say NO to any non-neccassary surgery.

 

[Liebling:-)))]

And if I had a deaf child of my own - I would definitely get them implanted.

What about re-implant? Would you do that when you know it might risk your child's life after re-implant?

 

[Liebling:-)))]

:jaw:

Oh my.....I cannot believe some of you who have NO sympathy for this child. It makes me sick in my stomach and I hope I will never get to meet those who are so selfish to have compassion for this poor child who went through so much.

*shakes my head*

*nodding sadly*

and agreed with Cheri and Shel90 totally.

 

[Liebling:-)))]

Sorry for having an opinion. I'll keep my thoughts to myself in the future. Its safer that way, and less namecalling occurs.

This is not about you but a 6 years old boy, we should talk about.

If you want to talk about yourself then create a new thread like what Cloggy did with his thread about his experience with Lotto.

 

[Liebling:-)))]

Okay that's fine with me. I accept it when you say that you didn't intend to start an argument.

However, I just find it interesting that another thread http://www.alldeaf.com/parenting/41746-depressed-father-drowned-deaf-blind-toddler.html
started at around the same time and which concerns the suffering of another deaf child to a more tragic degree has attracted far fewer responses compared to this one. Only 6 replies!

I see no comparison between beetarehoh's thread here and other thread because beetarehoh vented his feeling out what/where he expereinced in real life which total different as other thread because a child is dead.

I beleive that it would not debate if Rick didn't disrespect beetarehoh's thread in first place.

 

[shel90]

Okay that's fine with me. I accept it when you say that you didn't intend to start an argument.

However, I just find it interesting that another thread http://www.alldeaf.com/parenting/41746-depressed-father-drowned-deaf-blind-toddler.html
started at around the same time and which concerns the suffering of another deaf child to a more tragic degree has attracted far fewer responses compared to this one. Only 6 replies!

I think we just have found from experience that it's best to stay out of thread s like this one (well I didn't manage that successfully did I?) because they attract certain people like bees to a honeypot. We've had many threads like this before.

By the way, incidently if I wanted to adopt a deaf child from overseas, my country (Australia) would not allow me to because they fail deaf children on the immigration medical test and do not let them in! (reason being a drain on federal resources). At least this particular child was able to be adopted and be part of a loving family. It would be rotten to be parentless and deaf in a third world country where they have archaic attitudes about deafness.

Maybe that story about the toddler being killed by the father is just too depressing to read for some people. I almost didnt read it but I did and I was speechless. What can we all say? The child is dead.

Unless I seriously missed something here..I went back and reread all the post...yes some of them went off to talk about the risks of surgery so if that is what u are referring to then I guess u must have saw it differently than u do.

 

[Liebling:-)))]

Shel90

*nodding agreement*

 

[shel90]

No, she just crawled a bit and then walked for a year. She is not growing up deaf without the ability to hear. Since she's 3, she has been using her CI to go through the world hearing and speaking.

So, she's not even close to walking in Angels shoes... and probably never will.

Arent there at least two things they have in common which are both deaf and they both experienced speech therapy?

 

[Cheri]

Okay that's fine with me. I accept it when you say that you didn't intend to start an argument.

However, I just find it interesting that another thread http://www.alldeaf.com/parenting/41746-depressed-father-drowned-deaf-blind-toddler.html
started at around the same time and which concerns the suffering of another deaf child to a more tragic degree has attracted far fewer responses compared to this one. Only 6 replies!

Not everyone have time to read every thread on this forum. I am one of them who did not yet read that thread doesn't mean I have no sympathy for this deaf child.

Sorry for having an opinion. I'll keep my thoughts to myself in the future. Its safer that way, and less namecalling occurs.

The point is, You were speaking more about yourself than what this thread is really discuss about. Where's your compassion for this adopted son? You showed no remorse for this young 6 years old. How would you think some of us would reacted?

Children are the most previous human beings on earth, and Yet I haven't seen some of you show any courage of sympathy for anyone who has something negative to say about their own cochlear implant. You need to keep an open mind on both sides just like how we do. Have you seen me go my way apology in one thread to the parents in general? That because I have a heart to care, what about some of you?

Just my two cents.

 

[Bear]

Ok, we all know my views on implanting children by now.

That is not what I came here to post though.

I am concerned and curious. Will hold off the concern till the curiousity is satisfied.


My question is how long did the father wait between implants?

 

[Cheri]

Perhaps because the attitude in this thread is NOT about a surgery that went wrong, it's about being against CI. With the surgery as an excuse.

You making it sounds like beetarehoh's story that she shared on here is not the entire truth? My respond has nothing to do with being against CI. I have sympathy for people "any body", I've posted more in sympathy threads than you ever have on AllDeaf.

So, this childs experienced is milked by anti-CI for kid posters to give an argument against CI.. NOT about being sorry for the child.

How do you really know how each one of us are feeling, Can you look in our hearts and tell? You can't, just have to take our word for it just like how we take your word for how you do with your daughter.

The incident at the start of the topic is just that. An incident. Sad, and the attitude of the father is totally against anything I can imagine. Again, it is not the norn...

This is the first time I've heard someone re-implanting a child after a numeric of times, instead of going to a successful, it became a failure. What do you expect me to say? Oh that's bullcrap? I can't say that because I know not every cochlear implant works on everyone while it might work on others. You gonna deal with the negative and positive on all cochlear implants not just the positives. Nothing in life is positive, there's some negatives there are also some positives.

 

[Cloggy]

........Nothing in life is positive, there's some negatives there are also some positives.

Nothing in life is all positive, you're right.

But why would I allow a negative experience influence a decision for a positive experience??

 

[Cheri]

Nothing in life is all positive, you're right.

But why would I allow a negative experience influence a decision for a positive experience??

Who said anything about allowing a negative experience influence a decision for a positive experience. All I'm saying is show the courage to care about those who are experiencing the negative.