CI on 6 year old.

R2D2 said:
Okay that's fine with me. I accept it when you say that you didn't intend to start an argument.

However, I just find it interesting that another thread http://www.alldeaf.com/parenting/41746-depressed-father-drowned-deaf-blind-toddler.html
started at around the same time and which concerns the suffering of another deaf child to a more tragic degree has attracted far fewer responses compared to this one. Only 6 replies!
Click to expand...


Please don't make assumptions....I haven't seen this thread yet until now
 
Cloggy said:
Nothing in life is all positive, you're right.

But why would I allow a negative experience influence a decision for a positive experience??
Click to expand...


What positive experience? having a 6 years old child going through two infections that caused his right face to be paralized?...:eek3:


My question to you Cloggy, are you willing to go this far just to damage your child's heath no matter how many infections, or how much left on your child's body that isn't paralized?....
 
beetarehoh said:
This is not about against child implantation. This is about SYMPATHY on the child..
Click to expand...

You're one hundred percent correct. I'm so surprised that some don't even know how to show any sympathies, just ranting off how this story is bias.
 
Cloggy said:
beginsarcasmmode.gif

Ah, the rules state (you should have read the small stuff..):

Any misfortune of a patient due to a CI-procedure, or any testimony of an unhappy CI-user can be used against you in the messageboard and will be used as global evidence as it will be valid for ALL CI-users..

Any successful testimony or evidence can and will be ignored or downplayed. It will be treated as a freak accident that it works so well. Also, success now will still mean that when they grow up they will be miserable and have a huge identity crisis.
Proof for this is the experience of 40+ year old people that have experienced this even though they have absolutely no experience (and often knowledge) about CI and of course the Deaf person that tried CI and expected he/she would be able to hear everything and understand all... without putting in some work to make it happen...

BTW... ASL will save you!!
endsarcasmmode.gif
Click to expand...


Sorry, I forgot to laugh....I think it's time for me to step out, this is getting too silly agrue about this, I still stand on the fact that CI impants does not work for EVERYONE period....

*stepping out quietly*
 
Cloggy said:
No, she just crawled a bit and then walked for a year. She is not growing up deaf without the ability to hear. Since she's 3, she has been using her CI to go through the world hearing and speaking.

So, she's not even close to walking in Angels shoes... and probably never will.
Click to expand...

But close enough, Your daughter is deaf when her CI is turned off, that's one, Your daughter enrolled in speech, that's two, and your daughter also involving in the hearing world, that's three

Angel is deaf, she had enrolled in speech therapy she involves in both world hearing and deaf. Only thing is cochlear implant that she doesn't have. so what? It's even close enough to walk the miles in her shoes.
 
The original post doesn't give much information, so we really have no idea what is going on in this story except for the outcome. Do you really imagine this father was sitting in his Barcalounger rubbing his hands together with glee and just waiting for his adopted boy to arrive so that he could torture him multiple times with infection from failed CIs?

I'm sure this father went into the first CI surgery never expecting that it would have to be removed due to infection. He was probably devastated that his child had to go through a surgery without a successful outcome. I'm just as sure the surgeon assured him that once the infection cleared up, a new CI would work fine. And in normal cases it would. Imagine what that father was feeling after the second infection occurred? Do you think he was happy, clapping his hands and shouting, "Woo Hoo! Now let's do it again!" No, he was probably even more devasted that this surgery didn't work and that there were additional complications to boot.

(And there is no way they took the CI from the infected ear and implanted it on the other side, like the original post claims. That would run the risk of transferring the infection from one side to the other. If there was an implant put in there, it was a new one.)

So now this father has a child with two surgeries that didn't work. Perhaps he is allergic to one of the components? Well, they have other brands/versions for people who are allergic, so if a doctor said that using one of these would prevent infection from occuring, at this point I think it's all or nothing. I can understand why at this point, a parent might want to proceed. They WOULD feel blame that their child went through all this, and to just stop would mean having done it all for nothing. But keep in mind, you DON'T know what the reasoning is for proceeding with a 3rd surgery, and there could be perfectly valid reasons to do so, rather than just as an extra excuse to torture a child!

Hopefully for the boys sake, the facial paralysis (which is always a risk, but IS rare) is only temporary. Only in rare cases is it permanent. This boy has had a terrible experience that I wouldn't wish on my own child, but that doesn't make it child abuse. What it makes it is sad—sad for the child who has to go through it, and sad for the parents that have to deal with the guilt.
 
Angel said:
What positive experience? having a 6 years old child going through two infections that caused his right face to be paralized?...:eek3:


My question to you Cloggy, are you willing to go this far just to damage your child's heath no matter how many infections, or how much left on your child's body that isn't paralized?....
Click to expand...

What a question... "Just to damage your childs health" it sounds as if damaging the child is the goal with CI...

I'll assume you don't mean it that way.

No, I will want to know what is happening. Why is this child reacting so much different compared to other children.?
But I would not just give up. Is it something to do with the chemistry of the child, I would not operate again. If it was bad luck, I would decide to do another operation.
 
MomToDeafChild said:
The original post doesn't give much information, so we really have no idea what is going on in this story except for the outcome. Do you really imagine this father was sitting in his Barcalounger rubbing his hands together with glee and just waiting for his adopted boy to arrive so that he could torture him multiple times with infection from failed CIs?

I'm sure this father went into the first CI surgery never expecting that it would have to be removed due to infection. He was probably devastated that his child had to go through a surgery without a successful outcome. I'm just as sure the surgeon assured him that once the infection cleared up, a new CI would work fine. And in normal cases it would. Imagine what that father was feeling after the second infection occurred? Do you think he was happy, clapping his hands and shouting, "Woo Hoo! Now let's do it again!" No, he was probably even more devasted that this surgery didn't work and that there were additional complications to boot.

(And there is no way they took the CI from the infected ear and implanted it on the other side, like the original post claims. That would run the risk of transferring the infection from one side to the other. If there was an implant put in there, it was a new one.)

So now this father has a child with two surgeries that didn't work. Perhaps he is allergic to one of the components? Well, they have other brands/versions for people who are allergic, so if a doctor said that using one of these would prevent infection from occuring, at this point I think it's all or nothing. I can understand why at this point, a parent might want to proceed. They WOULD feel blame that their child went through all this, and to just stop would mean having done it all for nothing. But keep in mind, you DON'T know what the reasoning is for proceeding with a 3rd surgery, and there could be perfectly valid reasons to do so, rather than just as an extra excuse to torture a child!

Hopefully for the boys sake, the facial paralysis (which is always a risk, but IS rare) is only temporary. Only in rare cases is it permanent. This boy has had a terrible experience that I wouldn't wish on my own child, but that doesn't make it child abuse. What it makes it is sad—sad for the child who has to go through it, and sad for the parents that have to deal with the guilt.
Click to expand...

Welcome, and just want to say it's nice to see a sane voice in all the discussion going on. (I got caught up in it as well..)

I agree with you. There is little information.
No-one would want a child to go though all this, so there must be some other reasoning behind it...
 
Cheri said:
But close enough, Your daughter is deaf when her CI is turned off, that's one, Your daughter enrolled in speech, that's two, and your daughter also involving in the hearing world, that's three

Angel is deaf, she had enrolled in speech therapy she involves in both world hearing and deaf. Only thing is cochlear implant that she doesn't have. so what? It's even close enough to walk the miles in her shoes.
Click to expand...

You're missing a BIG part of the comparison here... about 95% of the equation.... you forgot to mention that my daughter can hear !!

My daughter speaks and hears her own voice,
My daughter can hear me from another room of floor,
My daughter doesn't need to look at a person when whe wants to understand what is said,
That's how she goes through life....

And don't worry... she's enjoying it - like your sister is enjoying it..
 
jag said:
You do realize that many many kids who hear 'normally' are in speech?
Click to expand...

Ohh boy Ok, lotte has absulotely nothing in common with Angel...zip and zero. Everyone happy?
 
MomToDeafChild said:
The original post doesn't give much information, so we really have no idea what is going on in this story except for the outcome. Do you really imagine this father was sitting in his Barcalounger rubbing his hands together with glee and just waiting for his adopted boy to arrive so that he could torture him multiple times with infection from failed CIs?

I'm sure this father went into the first CI surgery never expecting that it would have to be removed due to infection. He was probably devastated that his child had to go through a surgery without a successful outcome. I'm just as sure the surgeon assured him that once the infection cleared up, a new CI would work fine. And in normal cases it would. Imagine what that father was feeling after the second infection occurred? Do you think he was happy, clapping his hands and shouting, "Woo Hoo! Now let's do it again!" No, he was probably even more devasted that this surgery didn't work and that there were additional complications to boot.

(And there is no way they took the CI from the infected ear and implanted it on the other side, like the original post claims. That would run the risk of transferring the infection from one side to the other. If there was an implant put in there, it was a new one.)

So now this father has a child with two surgeries that didn't work. Perhaps he is allergic to one of the components? Well, they have other brands/versions for people who are allergic, so if a doctor said that using one of these would prevent infection from occuring, at this point I think it's all or nothing. I can understand why at this point, a parent might want to proceed. They WOULD feel blame that their child went through all this, and to just stop would mean having done it all for nothing. But keep in mind, you DON'T know what the reasoning is for proceeding with a 3rd surgery, and there could be perfectly valid reasons to do so, rather than just as an extra excuse to torture a child!

Hopefully for the boys sake, the facial paralysis (which is always a risk, but IS rare) is only temporary. Only in rare cases is it permanent. This boy has had a terrible experience that I wouldn't wish on my own child, but that doesn't make it child abuse. What it makes it is sad—sad for the child who has to go through it, and sad for the parents that have to deal with the guilt.
Click to expand...
+1
 
beetarehoh said:
This is not about against child implantation. This is about SYMPATHY on the child. Also I want to empathize that I AM NOT AGAINST child implatation. If my child is profoundly deaf I PREFER not to have one for him/her because I have alternative way to communicate with my child and wait until she/he grows to make her own decision period.

I am not here purposely to start the arguement. I just needed to express about how I feel bad about the child. So everyone please respect each other's opinion.
Click to expand...

***noddong agreement*** And, we don't need any more facts that you supplied to know that this child has endured tremendous pain and suffering, plus permanent disfigurement, at the hads of his adopted parent and the surgeon he hired. That in and of itself is enough to warrant a conclusion of abuse. Had the child suffered the same results from being beatedn, it would be abusive. The action taken to the end result doesn't matter. What matters is the end result.
 
shel90 said:
Arent there at least two things they have in common which are both deaf and they both experienced speech therapy?
Click to expand...

You got it shel! Cloggy is just too busy looking for how his daughter is different from all the other deaf people in the world. Can't see the similarities. I think its called can't see the forest for the trees!
 
Cheri said:
Who said anything about allowing a negative experience influence a decision for a positive experience. All I'm saying is show the courage to care about those who are experiencing the negative.
Click to expand...

:gpost: :gpost: :gpost: :gpost:
 
MomToDeafChild said:
The original post doesn't give much information, so we really have no idea what is going on in this story except for the outcome. Do you really imagine this father was sitting in his Barcalounger rubbing his hands together with glee and just waiting for his adopted boy to arrive so that he could torture him multiple times with infection from failed CIs?

I'm sure this father went into the first CI surgery never expecting that it would have to be removed due to infection. He was probably devastated that his child had to go through a surgery without a successful outcome. I'm just as sure the surgeon assured him that once the infection cleared up, a new CI would work fine. And in normal cases it would. Imagine what that father was feeling after the second infection occurred? Do you think he was happy, clapping his hands and shouting, "Woo Hoo! Now let's do it again!" No, he was probably even more devasted that this surgery didn't work and that there were additional complications to boot.

(And there is no way they took the CI from the infected ear and implanted it on the other side, like the original post claims. That would run the risk of transferring the infection from one side to the other. If there was an implant put in there, it was a new one.)

So now this father has a child with two surgeries that didn't work. Perhaps he is allergic to one of the components? Well, they have other brands/versions for people who are allergic, so if a doctor said that using one of these would prevent infection from occuring, at this point I think it's all or nothing. I can understand why at this point, a parent might want to proceed. They WOULD feel blame that their child went through all this, and to just stop would mean having done it all for nothing. But keep in mind, you DON'T know what the reasoning is for proceeding with a 3rd surgery, and there could be perfectly valid reasons to do so, rather than just as an extra excuse to torture a child!

Hopefully for the boys sake, the facial paralysis (which is always a risk, but IS rare) is only temporary. Only in rare cases is it permanent. This boy has had a terrible experience that I wouldn't wish on my own child, but that doesn't make it child abuse. What it makes it is sad—sad for the child who has to go through it, and sad for the parents that have to deal with the guilt.
Click to expand...

OMG! How far are you willing to go in the name of technology when there are solutions that don't involve invasive surgical procedures? I just don't understand how anyone can justify permanent disfigurement and the pain this child went through just for the chance of a small amount of sound perception! This is downright scary!!!!!!
 
Hey to those who are not feeling so bad for this child......think for a minute about how would you feel if your own child went through the same thing as this child is going through. Would you want that to happen to your own child? What is so wrong with those including me to show our care and sympathy for this child?

Some of you are just so self centered to think of others.
 
shel90 said:
Ohh boy Ok, lotte has absulotely nothing in common with Angel...zip and zero. Everyone happy?
Click to expand...

Actually SHel you are missing the point. Many normally hearing kids have speech theraphy, it really isn't as big of a deal as some deaf people seem to think it is. It's something normally hearing kids end up doing to, the advantage the normally hearing kids have is they actually do hear themselves so it's easier, Lotte hears herself with her CI so she has that advantage over Angel when it comes to speech, being able to hear the sounds makes it easier to make them and understand them. But for whatever reason some of you are refusing to ackknowledge that fact. Oh well. In another 10 years the CI's will probably be excepted just a HA's are now.
 
jag said:
Actually SHel you are missing the point. Many normally hearing kids have speech theraphy, it really isn't as big of a deal as some deaf people seem to think it is. It's something normally hearing kids end up doing to, the advantage the normally hearing kids have is they actually do hear themselves so it's easier, Lotte hears herself with her CI so she has that advantage over Angel when it comes to speech, being able to hear the sounds makes it easier to make them and understand them. But for whatever reason some of you are refusing to ackknowledge that fact. Oh well. In another 10 years the CI's will probably be excepted just a HA's are now.
Click to expand...

That would be accepted. Excepted means left out.
 
Back
Top