Allergies? Fluid in your Ear?

It's really a sort of "new age" type of treatment, although its use dates far back. Now, I am a "new age" type so have been curious about many things of this kind.

The problem is that there is no proven benefit, and in fact, there have been more reports of damage. It is supposed to create a negative vacuum and pull wax out. There just realistically isn't enough vacuum, and the chance of a perforated eardrum and burns from the wax are too great.
 
*sighs* I figured lol, if your mom ever told you not to shove things in your nose, ears, prolly a good reason why :D

I was explaining to my hearing friend that if its nerve damage than candling would be pointless to do. I'd rather see a neurologist, find out for sure if thats whats going on.

Tomorrow is the big day... hopefully I can get some answers but I get to pick up my MRI results today to bring to that appointment....

hmm... hopefully I can get a sneak peak of the report.
 
ladysolitary85 said:
All I can really do at this point is wait for my appointments.

Important dates:

7/19th: First meet with Neurologist

7/25: Meet with the Audiologist, hearing test day

7/28: Follow-up with Doctor
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Hope the meeting with the neurologist is helpful tomorrow
 
We'll all be pulling for you to have a positive visit tomorrow, while getting some answers and real help.
 
Ok so I got my MRI report and the flim (their actually letting me keep this copy :shock: sweet!)

Ok I have no clue what all this means so bare with me. Maybe someone in the medical field here could sum it up for me:


MRI of the brain without contrast:

Clinical information: Sudden hearing loss in the left ear.

Technique: Sagittal T1 FSPGR, axial FSE T2, FLAIR, and diffusion sequences
were performed.

Findings: The ventricles and sulci are normal. FLAIR images show multiple small subcortical hyperintensities, most prominent in the parietooccipital regions, but also involving the frontal lobe. These are very numerous and small, some of them becoming somewhat confluent. No periventricular or definite corpus callosum lesions identified. No brainstem abnormality is identified. Flow voids are present in the major cerebral vessels. Craniocervical junction and sella are normal. Diffusion-weighted images are normal.

Impression: Abnormal MRI, with numerous subcortical FLAIR hyperintensities scattered throughout the cerebrum bilaterally. Although typical demyelinating lesions are not seen, the number and extent of these lesions is suggestive of a pathological etiology, and demylinating process is suspected.

Big day tomorrow.... blah
 
ladysolitary85 said:
Ok so I got my MRI report and the flim (their actually letting me keep this copy :shock: sweet!)

Ok I have no clue what all this means so bare with me. Maybe someone in the medical field here could sum it up for me:


MRI of the brain without contrast:

Clinical information: Sudden hearing loss in the left ear.

Technique: Sagittal T1 FSPGR, axial FSE T2, FLAIR, and diffusion sequences
were performed.

Findings: The ventricles and sulci are normal. FLAIR images show multiple small subcortical hyperintensities, most prominent in the parietooccipital regions, but also involving the frontal lobe. These are very numerous and small, some of them becoming somewhat confluent. No periventricular or definite corpus callosum lesions identified. No brainstem abnormality is identified. Flow voids are present in the major cerebral vessels. Craniocervical junction and sella are normal. Diffusion-weighted images are normal.

Impression: Abnormal MRI, with numerous subcortical FLAIR hyperintensities scattered throughout the cerebrum bilaterally. Although typical demyelinating lesions are not seen, the number and extent of these lesions is suggestive of a pathological etiology, and demylinating process is suspected.

Big day tomorrow.... blah
Click to expand...

It means you have some disease of the white matter but the pattern is not typical for MS. It doesn't mean you don't have MS, but it is atypical.

There are lots of pathologies that involve this.
 
ladysolitary85 said:
off to the neurologist office I go, wish me luck!
Click to expand...

Good luck! I hope you get a really good answer, and they get you on a good treatment regimen for whatever you have!

Not knowing is often the hardest part.
 
Ok Update... and the results are in...


YOU ARE NOT THE FATHER! :D Sorry after the day I've had I had to make a light of the situation.


Well, the neurologist doesn't know why I'm having hearing loss on my left. so I wait to see a ENT, the damages tissues I have in my brain could be from a infection (kindergarten, had a fever of 104.4 for a week straight, then gradually lost complete hearing in my right ear) when I was a kid or it could be recent, no clue. MS isnt likely but not ruled out. Now I'm being tested for lupus and will know by the 28th. Freakin 15 viles of my blood later...

Oh so irritated, anyone wanna have a margarita with me? lol
 
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strawberry DQ? Hope they will be able to find out what went wrong with your hearing loss. keep faith.
 
I'm curious with the results. I may even get closure to how I lost my hearing in my right when I was young. The neurologist did say history could be repeating itself, they aren't sure at this moment. All I want is answers. Even if I did go completely deaf, I'm ok with that (just a lot more for me to work on, and a bit of a change) but I just want to know if thats what's going on.

One thing that irritated me today (slightly off topic) but there were a couple of things in asl I was thinking about getting for a tattoo. Just an idea and I asked for my mom's opinion. She straight out said "No! Don't do it its stupid! you should get something meaningful tattooed"

:roll:

So I texted back "its part of deaf culture mom" and she hasn't text me back all day since....

I honestly, think that my mom is still in denial with the fact that my hearing is getting worse and worse and the reality of it is hitting at her, who knows.

But it still hurts when your family wont even be there for you. She wouldn't even go to my neurologist appointment and I doubt she'll go to the other ones.

My fiance on the other hand, has been trying his hardest to be understanding about all this. Hes angry with my mom for not being there for me. This is a whole new chapter for him and hes accepting and encouraging me and him to practice asl and hes finally learn to accept my deafness (not that he didn't before, he'd often think I was ignoring him though, now he sees what I go through). He thought the tattoo idea was nice (although still up in the air lol) We have been through our ups and downs but he is there for me.
 
Well at least it sounds like incomplete news is not totally bad news.

What I feel bad for, is that you spent so much time being scared of the results and the possibility of something like MS.

I have a frozen margarita in my freezer. I'll toast you tonight when I have it. Hang in there.
 
At least you are learning a lot about your health. I hate having so much blood drawn too. At least only a little over a week until they say if it's lupus. :)
 
Yea thats the one thing I am thankful for, is I maybe getting some closure with how I lost my hearing in the first place.

MS isn't exactly ruled out but the neurologist didn't suspect it highly enough to have me go through a spinal tap to confirm (thank freakin god!)
 
Spinal taps - yuk! I was afraid I was going to have to have one. During my last major Meniere's attack, I went to the hospital. (big mistake). After treating me like I'm not really sick - they finally decided to do a cat scan. Because I had the VNS surgery, which is basically brain surgery - they THOUGHT they saw a brain infection. They then decided "you need to see a doctor RIGHT away". Duh...I was in a hospital ER??!!!

Turns out they read the Cat scan wrong. Thankfully when I saw my doctor in Orlando the next day, he knew they'd read the cat scan wrong, and I didn't have to have a spinal tap. The thought of that freaked me out.

I am still sending all the good vibes I can hoping all goes well for you, and it isn't anything big or scary.
 
And as if 15 huge vile samples wasn't enough, I got a phone call today from the medical office saying they needed more lab tests done. Now their checking my thyroid (I guess they forgot to check that while they did the other samples) and my doctor wants to see me on the 29th.

I thought I already had an appointment with him on the 28th, so I'm going to call Monday just to get some clarification of when I'm supposed to meet him.
 
So today I met with another audiologist.
This is my current hearing test results. Blue is my Left ear (severe hearing loss) and orange is right (profound hearing loss) :

hearingtestJuly252011.jpg


This audiologist wasn't familar with Starkey, only recommended Phonatak (sorry if I misspelled ) and said my RIC needed a ear mold. So he gave me this copy to bring to the Starkey audiologist and gave me pointers to places that can help should I run into trouble.

Starkey audiologist can make me a custom mold, for freaking $200.... and this one actually goes into the ear canal. (I seriously, seriously hate money right now)

Thursday and Friday are the doctor appointments... I should be getting closure soon.
 

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