Adjustment to late onset deafness

CJB, you have a great sense of humor. :D

quirkylibra, I have balance problems, too. I'm clumsy and always running into things. The part of me that perceives what's around me and how far in distance it is doesn't work properly. In fancy terms, I have issues with vestibular system. Don't feel alone in this. :wave:

Thanks to each of you who responded. I guess that I am sociable here and in the activities that I attend. I feel more at ease in this forum because people here understand. I've had to reevaluate some of my friendships because the people in question are not supportive. That's for the best, though.
 
sallylou said:
CJB, you have a great sense of humor. :D

quirkylibra, I have balance problems, too. I'm clumsy and always running into things. The part of me that perceives what's around me and how far in distance it is doesn't work properly. In fancy terms, I have issues with vestibular system. Don't feel alone in this. :wave:

Thanks to each of you who responded. I guess that I am sociable here and in the activities that I attend. I feel more at ease in this forum because people here understand. I've had to reevaluate some of my friendships because the people in question are not supportive. That's for the best, though.
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I agree, CJB, your sense of humor is wonderful:)

It's nice to know I'm not alone. Sometimes it feels like I am. I don't have any friends who have the same problems, so people think I'm being silly. I also noticed that people at work and school are not very interested in making friends with a girl with HAs. People will talk to me in the begining of the semester because they notice, and then the next thing I know, they aren't talking to me anymore. Maybe I am paranoid, but I don't think so. I guess with my long hair hiding my HAs and my speaking, they assume I am "normal". I have an accent, but most pep don't notice. Sorry about the ranting lol:mad:
 
No need to apologize, quirkylibra. That's what we're here for--to listen and support each other. :hug:
 
:ty: for the compliment sallylou and quickylibra. :) :) Good to know you're not just typing : laugh : or : lol :while painfully cringing on the inside. ;) :laugh2:
 
I just have to say that I am loving the way you guys support each other and share experience that is valuable to other members. I had concerns over whether we could actually get that process working in an online forum, but my concerns have all been alleviated. The input I have had to contribute has been minimal, and you guys have taken over the process; which is the way it should function in a group setting. You would be a great example for some of the clients I work with in face to face settings!
 
jillio said:
I just have to say that I am loving the way you guys support each other and share experience that is valuable to other members. I had concerns over whether we could actually get that process working in an online forum, but my concerns have all been alleviated. The input I have had to contribute has been minimal, and you guys have taken over the process; which is the way it should function in a group setting. You would be a great example for some of the clients I work with in face to face settings!
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My idea. (smug)
 
:wave:am glad of your idea, Bott and :ty: for compliment and all thoughts too, Jillio

both hubby and I were considered "different" in childhood and the experiences and issues surrounding that for him, as well as probably other stuff<among other things, he was adopted>, have led some emotional stuff about that to this day, which is illustrated in his reluctance to use ASL in public. Some years back I taught him ILY sign and we use that in public. But at home, sometimes we use "home signs" and he seems more open to just the idea of it and so I just want to :ty: everybody here who I share with, as hubby and I go along on this journey at home-
 
CJB said:
When you say things are too loud, are you referring to a problem of recruitment or hyperacusis or something else? Just wondering. :ty:
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It's not that all sound is too much, it's that some sounds are -- particularly high-pitched ones. Some days are better than others with that. At first it was all the time -- I'd be walking down the street and pass a playground, and the sound of the kids squealing happily hurt really bad. It's not at that level now, thank goodness!

I have noticed that if I'm having a Bad Ear Day (I have Meniere's, which fluctuates), my noise tolerance gets lower across the board.
 
ms_redcat said:
It's not that all sound is too much, it's that some sounds are -- particularly high-pitched ones. Some days are better than others with that. At first it was all the time -- I'd be walking down the street and pass a playground, and the sound of the kids squealing happily hurt really bad. It's not at that level now, thank goodness!

I have noticed that if I'm having a Bad Ear Day (I have Meniere's, which fluctuates), my noise tolerance gets lower across the board.
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Oh in that case, I totally understand what you mean. There are some frequencies I'm really sensitive to that shoot a shooting pain in my head. It's hard to convey to other people that you can be both hard-of-hearing and sound-sensitive, though. :ty: for explaining. :)
 
sallylou said:
I have phantom noises. I can hear high pitched noises that aren't real. Sometimes, I hear a voice that not real. At first, I thought that I was going crazy. :shock: Now, I just turn to my husband and ask "Did you hear that?"
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I hear a lot of phantom noise. I didn't know what it was at first, then I read something about it and was like "ooooohhhhhhhhhhhh!!!":doh:
 
The phenomenon of "phantom noise" in someone who has lost hearing later in life is similar to the concept of "phantom pain" that someone feels after a limb has been amputated. It is a very real phenomenon.
 
Thank you both Bottesini and Jillio. Just one more reason to love you.
 
ms_redcat said:
I have noticed that if I'm having a Bad Ear Day (I have Meniere's, which fluctuates), my noise tolerance gets lower across the board.
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Nothing like telling people about "Bad Ear Days" to get them scratching their heads. When my Meniere's pays me a visit, I can hear a car with a bad muffler from a mile away.
 
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