About CI...

SmileyGin said:
dID your mom lost the hearing i wonder? You are right everyone are different when it come to this disease not all are same. it all depend on individuals.

what about if i am driving? i have few times coming on while im driving.. it freaked me out.. but lasted few seconds then its gone? but the constant ringing or the roar of a jet engine is so ANNOYING. nothing i can do about it? what about the days i have to go for appt? and i felt like shit? what can i do? drop it? its affecting my life. :(
my sons father pointed out maybe it could come from stress that I am under? due to my sister and taking care of my mom as she is sick? Now foods and drinks? I gotta find out what certain foods and drinks so i can stay away from and take care of myself so i wont make myself sick.

btw thanks for the link. :)
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If you are having vertigo attacks while driving I would stop driving until you get to the bottom of it or at least get your doctor's approval. If an accident happens and they find out your medical history you could become liable and find yourself in a difficult legal situation.

I relate about the roar of the tinnitus jet engine sound! A CI can improve it but there is no guarantees. It has improved it somewhat for me 2 weeks after switch on but I'm hoping to see more improvement! Actually it is less noticeable in a sense because you are distracted by the fact that you can actually now hear sounds.
 
R2D2 said:
If you are having vertigo attacks while driving I would stop driving until you get to the bottom of it or at least get your doctor's approval. If an accident happens and they find out your medical history you could become liable and find yourself in a difficult legal situation.

I relate about the roar of the tinnitus jet engine sound! A CI can improve it but there is no guarantees. It has improved it somewhat for me 2 weeks after switch on but I'm hoping to see more improvement! Actually it is less noticeable in a sense because you are distracted by the fact that you can actually now hear sounds.
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I agree. I am going to find out about this and see what I can do. But then maybe the water pills will help settle it down and I might be able to drive? I don't know? Just wait n see. I haven't filled the prescriptions as the pharmcy where I always go to was closed yesterday so gotta wait till tomorrow.

I should know how I reacted to the medicine and how I feel driving. I have anxiety attacks that may be why I get nervous driving . I hate driving! Due to stress that may caused me to have the "attacks" jeez. Hmm..

I already wrote down on the paper to ask the doctor questions as I wonder about anxiety attacks. And oh yeah especially if I get ci- will I still have Meniere's disease? Will it go away? Will I still be clumsy and have balance problems? and many questions, so on and on I got and need them to be answered so I can understand. :)
 
I did reread this and here is very helpful for you to understand and share with people who have experience I do not have. I learn much about meniere, your tests, vestibutor, tinnitus, and vertigo. Also another 6 weeks you will go to your doctor. You are not different from people. You will understand and have many questions to answer for your concerns of clumsy, anxiety, balance, and driving. I know very difficult for you. I am with you and glad for your sharing with us. I sometime stuck here but wish I am with you for your comfort. Thanks for sharing your feeling with us. I hope you will have CI. :)
 
SmileyGin said:
that's a first i hear about avoiding foods and drinks. can u ask ur friend what exact to avoid from? pretty pls? Thanks!
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Hi there, I asked my friend and she said whenever she goes shopping she always looks at the back of a can or a bottle of food or drink to check on how high or low the sodium is. She gets the ones that has low or no sodium in it.
 
ButterflyGirl said:
Hi there, I asked my friend and she said whenever she goes shopping she always looks at the back of a can or a bottle of food or drink to check on how high or low the sodium is. She gets the ones that has low or no sodium in it.
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Really, ok thanks so much for asking your friend. I appreciate it. :)
 
tmw is my follow up care appt to dr due to the fact that I took the medicines for Meniere's disease and see if they are any helpful? I still get the attacks and dizziness. My hearing still go away then few days it come back. So nothing changes. I dont know what will happen tmw. I will let yall know, ok. :)

Have a great night! :)
 
Can I say something here? I experienced dizziness in 2002 at work when I reached to the floor. I stopped taking Hydroxycut. It seems like unbalance I frought back to normal. I never go back to Hydroxycut again.

You are currently on medicine or without when you experience attacks and dizziness? I wonder? I know you have meniere disease. I am forward to hear your news of doctor. :)
 
SmileyGin said:
tmw is my follow up care appt to dr due to the fact that I took the medicines for Meniere's disease and see if they are any helpful? I still get the attacks and dizziness. My hearing still go away then few days it come back. So nothing changes. I dont know what will happen tmw. I will let yall know, ok. :)

Have a great night! :)
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Good luck!
 
:jaw: I don't know why I haven't even seen this thread! its been going on for a couple of months now..

Gin, I'm surprised you decided to go for the CI, but what can I say? You're a big girl and want to do the best for yourself to be able to hear better. So are you a candidate now?

Hope all goes well with your follow up tomorrow. hugs!
 
RebelGirl said:
:jaw: I don't know why I haven't even seen this thread! its been going on for a couple of months now..

Gin, I'm surprised you decided to go for the CI, but what can I say? You're a big girl and want to do the best for yourself to be able to hear better. So are you a candidate now?

Hope all goes well with your follow up tomorrow. hugs!
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Pfft cuz you have been busy, thats why.. :) hehe thats ok..

yes I am a candiate for the CI for sure! I used to have severe neurosneural loss in my right ear and profound neurosneural loss in my left ear, 15 yrs later it have declined since then. now there is no useable hearing at all in my left ear and severe to profound neurosneural loss in my right ear. So it had gotten worse! Not even my hearing aid had helped.. but they gave me prescirpitons of duiretics for dizziness and anti-depressenat for pain and help with balance. So far it had helped some but not fully.

As you know tday was a follow up care check up for Meniere's Disease. I took another audiogram test then I had to take a STRONG diuretic drink to drain the fluid out of my ears. every hour I had to take the audiogram test to see if any improvement or not. the first 2 was bad.. then the last 2 was a lil improvement as I could hear a bit clear but not 100% you know?

the Audiologist said why dont i try the digital hearing aid to see if it help any for trail basis see if it does help. If it doesnt work then will go for CI. She said it might help for short time but not for long time as i will become fully deaf. also She said it all depend on how bad Meniere's disease mine is? so not sure when? it taken 15 yars for my left to go fully deaf so maybe my right ear will take another 15 yrs to go fully Deaf? so who knows.. i told her but what if i buy digital hearing aid then one day become deaf. i dont want to buy digital hearing aid for nothing? she said thats true. She was not sure if I really want CI for sure due to freak from surgery? Ilaughed at her i had 2 surgeries before so told her yes i will go for it no matter what.. we laughed then.. hehe :)

Anyway she show me the implant device that they will put in my head and explain what they will do during surgery. etc etc.. then 6 weeks later will activiate then and go from there with mappings. so now i have to wait for a letter from DR to see what he have decided what to do.. give me strong prescription or what? he want to review the audiograms first then will let me know and we will go from there. As for the surgery we will talk about that at the next appt. Right now just focus on the treatment of Meniere's disease as I still have dizziness, brain fog and vertigo attacks. He also mentioned i have to be careful with sodium. So you all were right about that. ha. :)


Can I say something here? I experienced dizziness in 2002 at work when I reached to the floor. I stopped taking Hydroxycut. It seems like unbalance I frought back to normal. I never go back to Hydroxycut again.

You are currently on medicine or without when you experience attacks and dizziness? I wonder? I know you have meniere disease. I am forward to hear your news of doctor.
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u might have ear infections as it can cause dizziness.. anything can happen due to ear drums red and swollen, fluids inside, and all that. maybe hot weather ?? many environements ..who knows..

yes i have been taking duiretic pills for 2 months .. it does help alots as i havent had vertigo attacks daily.. but still have tinnutis daily .. but dizziness i still have that oh well.. but still feel bad like last week i had the attack and i had to take it easy .. so see its not gone completely.. but at least not often more than 5 times a month.. but seems like i get 2 to 3 times a month now.. so much improvement now.. :)
 
Glad that you made candidacy Smiley Gin and sounds like they were really nice with you and suggesting different options and alternatives at the same time as a CI.

How will having the CI surgery affect your vertigo and dizziness?

By the way I've been switched on for 9 weeks now and have had a big improvement on my tinnitus over this time. It hasn't gone away completely but I no longer get the loud roaring jet sound at night. I would say at least a 50% reduction, probably more. At first mappings were difficult because tinnitus got in the way but now they are vastly easier because it's quiet!

I think that it's wise to go with the CI now rather than wait until your hearing loss is even bigger. The tinnitus might get worse since it's a byproduct of hearing loss.
 
I agree with you also and Congrats on the CI,, I can't wait to see how your process goes! :hug:



R2D2 said:
Glad that you made candidacy Smiley Gin and sounds like they were really nice with you and suggesting different options and alternatives at the same time as a CI.

How will having the CI surgery affect your vertigo and dizziness?

By the way I've been switched on for 9 weeks now and have had a big improvement on my tinnitus over this time. It hasn't gone away completely but I no longer get the loud roaring jet sound at night. I would say at least a 50% reduction, probably more. At first mappings were difficult because tinnitus got in the way but now they are vastly easier because it's quiet!

I think that it's wise to go with the CI now rather than wait until your hearing loss is even bigger. The tinnitus might get worse since it's a byproduct of hearing loss.
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R2D2 said:
Glad that you made candidacy Smiley Gin and sounds like they were really nice with you and suggesting different options and alternatives at the same time as a CI.

How will having the CI surgery affect your vertigo and dizziness?

By the way I've been switched on for 9 weeks now and have had a big improvement on my tinnitus over this time. It hasn't gone away completely but I no longer get the loud roaring jet sound at night. I would say at least a 50% reduction, probably more. At first mappings were difficult because tinnitus got in the way but now they are vastly easier because it's quiet!

I think that it's wise to go with the CI now rather than wait until your hearing loss is even bigger. The tinnitus might get worse since it's a byproduct of hearing loss.
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i did ask the dr that question.. he siad every individual are different.. it may go away.. it may stay.. it may come and go.. so hes not sure on that.. i was like ok.. from what i have talked to several people who have Meniere's Disease they said some go away.. other said still get it a bit but not often.. so from what i undy it all depend on each individual.. gotta remmy we all are not same! :) so i wont know till after the surgery then we will see if it go away or not?? :D
 
Hi guys,

I finally got the letter from my dr today. He said that my urea test was somewhat positive with a significant improvement in my speech discrimination scores. He wanted me to change the medicine to a stronger diuretic pills to see how it will do for me.

Hopefully with the new diuretic, my fluctuant dizzy spells will abate. If the spells persist. He said we will need to determine if the spells are panic attacks or true vertiginous spells. Might have to change the anti-depressant medicine to Paxil to see if this will do a better job of controlling both of my symptoms.

My dr also recommended that I try a newer hearing aid to see if I can get adequate hearing with amplification before I resort to cochlear implant. So I have to make appt to see the audiologist to try the hearing aid on trial basis. (Noticed my dr said in the letter NEWER hearing aid so am not sure if its digital hearing aid or not? will find out about that) I will have to go back in 3 to 4 months for another evaluation.

I guess dr want to make sure I do have residual hearing especially with newer strong diuertic pills before resorting to ci surgery which is a major event you know? I am kinda disappointed but I gotta be patient. lol. :) Anyway I will keep yall update on this.. ok. :)


Have a great evening!
 
Hi Smiley,

You do sound a bit disappointed but I do think it's good that your doctor is trying out all the options and being very thorough before allowing you to go to the CI surgery. We get told so often that hearing and CI doctors are only interested in making a quick buck and yet I see with you, Fragmenter and others that caution is being applied.

It's not easy for you though having to go through all the dizzy spells and then waiting to see if it will improve. Waiting is hard! I hope the short term solutions do have some impact though. Hugs.
 
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