About CI...

Boult said:
that's not what she meant... she has to go somewhere for balance surgery. she hasn't had the operation YET. she asked you... after the balance test? OR after the surgery?
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oh.. its after the Implant surgery
 
i got the response from Leslie from the office in Little Rock..

her reply is..

Ginger,
Sorry it took me awhile to get back to you. Crazy day here on Friday and I did not check e-mail. The cola and chocolate are ok. We have not found any connection between them and the tests. The medications are much more important than the cola. Alcohol will affect them so nothing to drink for 3 days before.

The tests are designed to stress your balance system so we can see how each ear is reacting. We will know if your ears are the problem and even which one. If everything is normal, then we can rule out the ears and look elsewhere. The tests make some people sick at their stomachs and some feel wobbly and "out of sorts" Not everyone is affected by the tests. We never know who will feel bad following the tests, that is why a driver is needed. It is also a liability issue for us. Most folks are fine within a few hours of the tests, a day at the most. If you are not, Dr. Dickins can give you something to control the dizziness if it does not go away in a day or so.

Don't worry yourself over these tests. The majority of people may feel a little funny afterwards but it goes away quickly and they are back to normal life within a day.

Contact me with more questions as you think of them.

Leslie

there u get it.. ok.. :)

so i can have coffee and chocolate fix? weird.. but wonder why it said bad idea online?? weird? ha..
 
SmileyGin said:
i got the response from Leslie from the office in Little Rock..

her reply is..

Ginger,
Sorry it took me awhile to get back to you. Crazy day here on Friday and I did not check e-mail. The cola and chocolate are ok. We have not found any connection between them and the tests. The medications are much more important than the cola. Alcohol will affect them so nothing to drink for 3 days before.

The tests are designed to stress your balance system so we can see how each ear is reacting. We will know if your ears are the problem and even which one. If everything is normal, then we can rule out the ears and look elsewhere. The tests make some people sick at their stomachs and some feel wobbly and "out of sorts" Not everyone is affected by the tests. We never know who will feel bad following the tests, that is why a driver is needed. It is also a liability issue for us. Most folks are fine within a few hours of the tests, a day at the most. If you are not, Dr. Dickins can give you something to control the dizziness if it does not go away in a day or so.

Don't worry yourself over these tests. The majority of people may feel a little funny afterwards but it goes away quickly and they are back to normal life within a day.

Contact me with more questions as you think of them.

Leslie

there u get it.. ok.. :)

so i can have coffee and chocolate fix? weird.. but wonder why it said bad idea online?? weird? ha..
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that's what I thought.. "liability" :D
 
Boult said:
that's what I thought.. "liability" :D
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yep.. dont wnt me to sue them.. so have to have a driver for protection.. jeez.. prolly will make me sign :deal: before i have test so i can t sue them.. LOL..
 
SmileyGin said:
yep.. dont wnt me to sue them.. so have to have a driver for protection.. jeez.. prolly will make me sign :deal: before i have test so i can t sue them.. LOL..
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LOL :)
 
SmileyGin said:
i got the response from Leslie from the office in Little Rock..

her reply is..

Ginger,
Sorry it took me awhile to get back to you. Crazy day here on Friday and I did not check e-mail. The cola and chocolate are ok. We have not found any connection between them and the tests. The medications are much more important than the cola. Alcohol will affect them so nothing to drink for 3 days before.

The tests are designed to stress your balance system so we can see how each ear is reacting. We will know if your ears are the problem and even which one. If everything is normal, then we can rule out the ears and look elsewhere. The tests make some people sick at their stomachs and some feel wobbly and "out of sorts" Not everyone is affected by the tests. We never know who will feel bad following the tests, that is why a driver is needed. It is also a liability issue for us. Most folks are fine within a few hours of the tests, a day at the most. If you are not, Dr. Dickins can give you something to control the dizziness if it does not go away in a day or so.

Don't worry yourself over these tests. The majority of people may feel a little funny afterwards but it goes away quickly and they are back to normal life within a day.

Contact me with more questions as you think of them.

Leslie

there u get it.. ok.. :)

so i can have coffee and chocolate fix? weird.. but wonder why it said bad idea online?? weird? ha..
Click to expand...

Yep she is spot on. I felt a bit funny for about half an hour afterwards and the audie sent me downstairs to have some hot chocolate and browse in a bookshop before I drove home. I was fine by then.
 
R2D2 said:
Yep she is spot on. I felt a bit funny for about half an hour afterwards and the audie sent me downstairs to have some hot chocolate and browse in a bookshop before I drove home. I was fine by then.
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really.. weirdo.. surprised me that they let u drive home? if u had an accident .. u can sue them for that! jeez..
 
Update:

Just an update on this- I went to Little Rock last Tuesday and did the balance tests. The audiologist said I failed some tests. Ouch. Would you know that the tests made me sick to my stomach and vertigo did got worse that day and I had to take it easy by not overdo anything but rest and stay still. Whew!

Finally I got the letter from the doctor today. He did reviewed my vestibular testing's and said that some of tests that I did not performed well. My inner ear function is excellent but I don't have any useable hearing in my left ear and marked loss in my right ear.

My Ct scan is essentially normal, but it looks like I only have 2 turns of the cochlea. (a normal cochlea has 2 1/2 turns) The cochlea is shaped like a snail shell and your top turn appears to be overly open. This may well be the etiology of my progressive hearing loss. Interesting? I was surprised at this information? I wonder if anyone have this like me? I guess I am different, eh? ha ha :whistle:

He said what I have is called Meniere's Disease. (In case you are not sure what this is. It is a fluid imbalance within the inner ear.) This periodically responds to diuretics (water pills). So he is putting me on medicine called Maxzide, 75 mg daily. Also another medicine amytriptyline, 10 mg at night to help with tinnitus and my balance. ( I am clumsy and will fall easily, yikes!) He also said walking 30 to 40 minutes a day will help with my balance and should improve the dizziness.

I have to come back in 6 weeks to see if there is a difference if I am responding to the treatment of the diuretics or not. If I have significant improvement and my hearing is up in my right ear then will continue the course of the treatment but If the hearing does not improve. We will then explore the pros and cons of doing a cochlear implant surgery due to the fact that I will lose my hearing over time. :(

My mom said it's impossible that I have this because I was born deaf. I told her I would look up the information online. Sure enough I did- It said deaf people do get this even stone deaf? They still have it no matter what.

I told her- See? She said ok. I guess it is new to her. Mom know best? Nope not this time. She know nothing, lol. I told her how do you explain that and why I can't hear at all in my left ear? I used to be able to? but not anymore? She said nothing more. :scatter:

Sometimes I can't hear some days in my right ear but like today I can hear the modem ringing. For few weeks I couldn't? Sometimes it is frustrating as I can hear now but why not other times or especially every day? Sigh. I still wonder if it was from the accident? He didn't say so but I will ask if it can be caused by that or not?? Good question, hmm.

I guess I will lose my hearing over the time. Might as well get myself CI so I can and continue to enjoy hearing things like music anyway. :)

Any of you have this disease? I wonder? Let me know your treatments and what will work for you. I am curious. :)
 
ahhh very interesting! thanks for sharing.. I do not have that disease but I do know who does.. it is Dale but he lurks and doesn't post very much.. So I do not know about others in AD.
 
Boult said:
ahhh very interesting! thanks for sharing.. I do not have that disease but I do know who does.. it is Dale but he lurks and doesn't post very much.. So I do not know about others in AD.
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You're welcome! Ok, no problem. :) Guess we both have to wait and see who does have this disease like I do? hmm :)
 
aww i am sorry it didn't go well
but no matter good luck to get well smile hugs

i hope things will go well smile
 
Wow Smileygin that is a mouth dropper. Even if you didn't proceed with the CI it was obviously worth getting evaluated as you came up with the cause of your deafness and also an indication of what the future looks like for you.

Sorry to hear that the balance issues look somewhat complicated. But it's good that you know now rather than have the CI surgery and then be knocked for six. At least you can prepare beforehand and have resources and a more realistic expectation of balance recovery.

I felt a bit off keel after surgery and didn't stop feeling that way until I was switched on so balance issues can be very common.
 
SmileyGin, I have a good friend who also have Meniere's Disease and she would always tell me that she has to avoid any foods or drinks that has high sodium in it. I asked her why and her reply was she gets dizzy if she took anything that had high sodium in it. She says it is related to Meniere's Disease :dunno:
 
ButterflyGirl said:
SmileyGin, I have a good friend who also have Meniere's Disease and she would always tell me that she has to avoid any foods or drinks that has high sodium in it. I asked her why and her reply was she gets dizzy if she took anything that had high sodium in it. She says it is related to Meniere's Disease :dunno:
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that's a first i hear about avoiding foods and drinks. can u ask ur friend what exact to avoid from? pretty pls? Thanks!
 
R2D2 said:
Wow Smileygin that is a mouth dropper. Even if you didn't proceed with the CI it was obviously worth getting evaluated as you came up with the cause of your deafness and also an indication of what the future looks like for you.

Sorry to hear that the balance issues look somewhat complicated. But it's good that you know now rather than have the CI surgery and then be knocked for six. At least you can prepare beforehand and have resources and a more realistic expectation of balance recovery.

I felt a bit off keel after surgery and didn't stop feeling that way until I was switched on so balance issues can be very common.
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the only reason why im clumsy is due to water in my ears so it can affect balance. also i always had swimmer's ears . i wonder if that is related to this?
 
Boult said:
well not sure if it is same but seems to be separate category

swimmer's ear
http://www.ncemi.org/cse/cse0302.htm

(I know this is canadian site but...)http://chealth.canoe.ca/channel_main.asp?channel_id=165 so both are not same but related conditions hmmm...
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Thanks for the link! Though I will ask the doctor more question on this subject when I go back for the follow- up care in 6 weeks. I will let you know on that, ok. :)

I did emailed the other doctor so hopefully will hear from her? Maybe she will be able to answer the question? I hope so! heh..
 
My Mother has Meniere's disease as well, and I know a couple other ladies who have it too. Everybody is different, and you will find that there might be some foods (as mentioned before) or some activities which aggrivate the condition. The best thing is to not push yourself, and make sure that if you feel a vertigo attack coming on you have a safe place to sit down/lie down and rest.

My mom found this website to be a great source of information: http://www.menieres.org/
 
neecy said:
My Mother has Meniere's disease as well, and I know a couple other ladies who have it too. Everybody is different, and you will find that there might be some foods (as mentioned before) or some activities which aggrivate the condition. The best thing is to not push yourself, and make sure that if you feel a vertigo attack coming on you have a safe place to sit down/lie down and rest.

My mom found this website to be a great source of information: http://www.menieres.org/
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dID your mom lost the hearing i wonder? You are right everyone are different when it come to this disease not all are same. it all depend on individuals.

what about if i am driving? i have few times coming on while im driving.. it freaked me out.. but lasted few seconds then its gone? but the constant ringing or the roar of a jet engine is so ANNOYING. nothing i can do about it? what about the days i have to go for appt? and i felt like shit? what can i do? drop it? its affecting my life. :(
my sons father pointed out maybe it could come from stress that I am under? due to my sister and taking care of my mom as she is sick? Now foods and drinks? I gotta find out what certain foods and drinks so i can stay away from and take care of myself so i wont make myself sick.

btw thanks for the link. :)
 
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