Why - Why the Medical Society constantly pressure on the Parents?

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orginally posted by roadrunner
Please be more thorough with citing your sources--such as providing a link, giving credit to whom made this presentation, etc.,....
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Facts are it is unpublished and not peer reviewed. We are not being provided the entire opinion paper.

Could be a presentation by a second year med student.:dunno: There is no way of knowing with the information that has been given. Supplying the name of the author in simply not suffecient for analysis of the suggested implied meaning from the said author.

Unless one can engage directly with the author, it is imposibble to determine exactly the opinion of the author.
 
that responsive testing is innacurrate prior to the age where a child is developmentally capable of responding. While a child may be severe to profoundly deaf, it is impossible to discern other variab les such as discrimination with an HA without some form of responsive testing.
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Indeed. RIGHT ON!
 
jillio said:
When parents are given the impression that the only way they will be able to provide opportunity for their child, or the only way their child will be able to fucntion "normally" is by having an implant, their options are greatly reduced.
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Then NAD should start distributing brochures/pamphlets at hospitals so that those parents can get all the materials needed. ;)
 
shel90 said:
In my experience, it was the opposite... most people told me that I was making it up about being profoundly deaf cuz I speak so well or forget that I am deaf and start talking to me without making sure I am facing them.
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Right. So they saw you as being uncooperative, or just ignoring them, or not responding as they expected a hearing person would.
 
LadySekhmet said:
Quote:
Originally Posted by jackiesolorzano
Good Implant centers do not implant until they are 100% sure that the child has a severe to profound hearing loss. Do you know of any babies getting implant and they ended up being hearing. I know that I do not know of any.

Originally Posted by jillio
How would you know if they ended up being hearing jackie, if residual hearing is destroyed during the surgery? Once they are implanted, they are most certainly profoundly deaf. But the point is, if you will go back and reread my post, that responsive testing is innacurrate prior to the age where a child is developmentally capable of responding. While a child may be severe to profoundly deaf, it is impossible to discern other variab les such as discrimination with an HA without some form of responsive testing.

I did not lose my residual hearing after my CI surgery. I agree with Jillio is how can the audiologist determine that a baby is deaf/hearing at that young age?

Jackie - SxyPorkie is one that mentioned that her daughter's children was determined to be deaf at a young age, then later they grew up...they're hearing.
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Yes, the shorter arrays are allowing for the preservation of residual hearing in some frequencies. The procedure is more often used for adults, though.
 
VamPyroX said:
Then NAD should start distributing brochures/pamphlets at hospitals so that those parents can get all the materials needed. ;)
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That would definately be a good place to start. But I think that face to face, personal contact with people has more impact. And the doctors are the first contact most of these people have.
 
loml said:
orginally posted by roadrunner

Facts are it is unpublished and not peer reviewed. We are not being provided the entire opinion paper.

Could be a presentation by a second year med student.:dunno: There is no way of knowing with the information that has been given. Supplying the name of the author in simply not suffecient for analysis of the suggested implied meaning from the said author.

Unless one can engage directly with the author, it is imposibble to determine exactly the opinion of the author.
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Yes, loml, it is an unpublished paper, and was never indicated to be a published paper. It is not an opinion paper. However, it is an example that the opinion of CI as a cure does exist, and one does not need to read the entire paper to locate that opinion. Nor does it need to be peer reviewed to provide evidence of such. The meaning is not implied. It is very explicit. Read the words. You tell me what they mean.
 
shel90 said:
Read the article "Falling on Deaf Ears" that I posted for Kalista to read..it mentioned a Deaf mother who got taken to court in 2002 for neglecting her children because she did not get them implanted. I was like :eek3: when I read that.

Here is a portion of the article

Consider the case of Michigan resident Lee Larsen, the deaf mother of two deaf sons whose custody dispute became an internationally publicized Deaf rights case in 2002. Larsen landed in court after school officials claimed she was neglecting her children, and a year later, court-appointed advocate Joseph Tevlin petitioned the Michigan court system to order implants for her two sons, asking, “Is it neglect not to have a cochlear implant when the bulk of the research shows everyone benefits?”

If hearing parents want their rights to choose then Deaf parents should have the same. I cant believe that such a case went to court.
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Lee Larsen temporarily lost her rights to her two deaf boys due to neglience which had nothing to do with CI. The foster parents can ask for CI except if the parents lost their custody completely.

More on this: News: October 2002 - e-Michigan Deaf and Hard of Hearing
 
loml said:
orginally posted by valle


orginbally posted by jillio


orginally posted by loml



orginally posted by jillio


:dunno:
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Evidently, you have not engaged in any academic writing. An opinion can be contained in a paper without the paper being in the format of an "opinion paper".
 
jillio said:
And if you knew who it was, vallee, would you be willing to speak out against such an opinion? That is the whole point.
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I don't know if vallee would but I know that I would. I know that if I knew who made such a comment, I would explain to that person what a disservice they are doing to parents who do not have all the information to make an informed decision. I would also tell them how an implant does not restore normal hearing and if they didn't believe me if you direct them to my children's implant center.
 
jillio said:
No one here is disagreeing with a parent's right to implant their child. The disagreement is with the parent being given implicit and explicit messages that convey the attititude that their child has been rendered "more normal" by virtue of a surgical procedure, or that deafness is somehow pathological.
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I know that you have never directly said a parent does not have the right to implant their child. But several other people have on this site.
 
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jackiesolorzano said:
I did read her post and I am parent who made an informed decision to implant my son at the age of 3 years and 2 months and my daughter was implant at 11 years old. So she is against like me that decide to make informed decisions of implanting or deaf children.
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You got it right Jackie.
 
jillio said:
No, jackie, no one is attacking your decision to implant your children. Please separate the issue of implantation and oral only environment.
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I know that you have not directly said that I didn't have have the right to implant my children but others have said that. I know that your issues with me is because I believe deaf children can be oral with the right support and technology not all deaf children.
 
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Jackie,



Can I ask you, other parents of children with cochlear implants and adults with cochlear implants. Do you view your children or yourself as in need of "fixing"? Do you view your children or yourself as "defective"?

Speaking for my wife and I, I can tell you emphatically that neither of those statements apply to either our daughter or how we viewed her. I would say that they are indicative of someone who has little or no understanding of the issues involved in making the decision to choose a cochlear implant for either your child or for yourself. I would also add that they are indicative of someone who has absolutely no understanding of our relationship with our child and our love for her.

In the end, they are indicative of someone with an anti-cochlear implant agenda who is desperately grasping at straws and will use any argument, no matter how offensive or untrue it is, to advance her agenda.

Rick
 
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jillio said:
Exactly. No one seems to comprehend the issue. The issue is not whether parents have the right to make the decision to implant. That is a given. The issue is the attitude that conveys deafness as pathological and in need of cure. So that even with the CI, the deaf person is still viewed as defective.
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You didn't answer my questions do you know of any children implanted at an early age that they later found out that the child was hearing? I know that I have not heard of any.
 
jackiesolorzano said:
I know that you have not directly said that I didn't have have the right to implant my children but others have said that here such as Cheri and others. I know that your issues with me is because I believe deaf children can be oral with the right support and technology not all deaf children.
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I'm glad that you understand that. But let's refine it even further, and clarify that it is not that you believe deaf children can be oral. I also believe that the majority of deaf children have the ability to develop oral skills of varying degree. My objections are to oral only in the educational environment, or to delaying visual communication for the sake of oral only communication.
 
jillio said:
Perhaps you did not feel pressured because you already saw your children as in need of fixing,
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First you say one thing and then you say another thing. First you say that medical professional put pressure on us and then when I told you that I did not feel pressure then you said I did not feel pressure because I already saw my children as needing to be fixed. And so you know what was going on in my head during this time frame. My first reaction when my children were diagnosis was to take A ASL class. My children's first teacher was a TC teacher. My first information in this new world was from people in the Deaf community. I did not get implants for my children to fix them. I made an informed decision. Cochlear implants do not fix anything. Cochlear implants allow my children access to sounds that they learned to use. My children were born deaf and will die being deaf. There is nothing I can do to change this nor have I ever attempt to fix their deafness.
 
jackiesolorzano said:
You didn't answer my questions do you know of any children implanted at an early age that they later found out that the child was hearing? I know that I have not heard of any.
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I did answer your question, jackie. Following implantation, even if the child had been hearing, we will never know because of the nature of the surgery. And, if you implant a child in infancy, you do not know whether they would have been able to discriminate speech with an HA, or if they would have developed speech skills using an HA.
 
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