Why - Why the Medical Society constantly pressure on the Parents?

[jillio]

Point taken, but keep in mind that I can sue you for using the screen name "Shel90" if I want. That doesn't mean my case has any validity behind it. If the court made a ruling that there was neglect in that case, then I would be uncomfortable with that.

The very fact that the attitude is such that it would even be considered to be neglect is the issue.

 

[jillio]

If I knew who said it and saw the speech, yes. CI are not a cure for deafness. Also the date in relationship to the speech. alot of ideas have changed over the course of time to reflect a true vision.

It was 2002.

 

[shel90]

The very fact that the attitude is such that it would even be considered to be neglect is the issue.

I know...it seems like, Deaf people who use ASL and are involved in the Deaf community, get a bad rap. Maybe that is why so many are angry at the professionals, media, oral organizations, and doctors?

If everyone wants Deaf people to stop being so angry then the lies and misconceptions about ASL and the Deaf community need to stop.

 

[Roadrunner]

The cochlear implant is one of the more intriguing technologies that the FDA regulates. It terms of its medical effectiveness, the device is truly revolutionary. Before this technology hearing impaired individuals were consigned to amplification devices that ameliorated only some of the symptoms of deafness, and did nothing towards the actual causes. This technology has the promise to actually cure hearing impairment and allow people to hear sounds and tones that were previously impossible to duplicate.

There you go. From a paper presented at Harvard University.

Please be more thorough with citing your sources--such as providing a link, giving credit to whom made this presentation, etc.,....





~RR

 

[jillio]

Sorry, missed that.

However, points out the inherent hypocrisy of certain Deaf advocates who simultaneously trumpet the right of the deaf mom to choose NOT to implant her child but would seek to deny her the same exercise of her parental rights if she had chosen TO implant her child.

Apparently, they feel that a parent only has the ability to exercise their parental authority when they agree with the parent's choice for their child.

No one here is disagreeing with a parent's right to implant their child. The disagreement is with the parent being given implicit and explicit messages that convey the attititude that their child has been rendered "more normal" by virtue of a surgical procedure, or that deafness is somehow pathological.

 

[jillio]

Please be more thorough with citing your sources--such as providing a link, giving credit to whom made this presentation, etc.,....





~RR

This was not a published paper, RR. It was a paper presented to a conference. As soon as I hear back via email from the author, and have been given permission to release the name, I will do so. This is a paper that is in my personal collection of documents.

 

[jillio]

So you are not attacking Vallee decision to get implants but you are attacking my decision to implant my children. I made an informed decision. It was not because I did not want them to be involved in the deaf world. I wanted to give them the option of being oral or now if they choose they can turn off their voice and immerse themselves in the deaf world. I wanted them to have choices. You say that if my children wanted to implant them when they are adults that would be OK but then it would have been to late for them to be oral if that was their choice.
It really doesn't matter what you think or anyone else. Do you honestly think that the governement would ever side with the Deaf culture in regards to the decisions that parents can make for their own child.

No, jackie, no one is attacking your decision to implant your children. Please separate the issue of implantation and oral only environment.

 

[jillio]

The medical community does not put pressure on parents. Have you ever gone thorugh the preimplant process no, I have and I never felt any pressure. They informed me of the choices I can make for my children.

Perhaps you did not feel pressured because you already saw your children as in need of fixing,

 

[Roadrunner]

This was not a published paper, RR. It was a paper presented to a conference. As soon as I hear back via email from the author, and have been given permission to release the name, I will do so. This is a paper that is in my personal collection of documents.

Ok, thank you for making that clear, however, even if it's in your personal collection, the 'comment/quote' still would have to be granted permission before you had posted it.



~RR

 

[jillio]

Good Implant centers do not implant until they are 100% sure that the child has a severe to profound hearing loss. Do you know of any babies getting implant and they ended up being hearing. I know that I do not know of any.

How would you know if they ended up being hearing jackie, if residual hearing is destroyed during the surgery? Once they are implanted, they are most certainly profoundly deaf. But the point is, if you will go back and reread my post, that responsive testing is innacurrate prior to the age where a child is developmentally capable of responding. While a child may be severe to profoundly deaf, it is impossible to discern other variab les such as discrimination with an HA without some form of responsive testing.

 

[shel90]

How would you know if they ended up being hearing jackie, if residual hearing is destroyed during the surgery? Once they are implanted, they are most certainly profoundly deaf. But the point is, if you will go back and reread my post, that responsive testing is innacurrate prior to the age where a child is developmentally capable of responding. While a child may be severe to profoundly deaf, it is impossible to discern other variab les such as discrimination with an HA without some form of responsive testing.

That was what happened with the family of the deaf 2 year old. The first few hearing tests showed that their daughter was hearing at first.

 

[jillio]

That was what happened with the family of the deaf 2 year old. The first few hearing tests showed that their daughter was hearing at first.

Exactly. No one seems to comprehend the issue. The issue is not whether parents have the right to make the decision to implant. That is a given. The issue is the attitude that conveys deafness as pathological and in need of cure. So that even with the CI, the deaf person is still viewed as defective.

 

[shel90]

Exactly. No one seems to comprehend the issue. The issue is not whether parents have the right to make the decision to implant. That is a given. The issue is the attitude that conveys deafness as pathological and in need of cure. So that even with the CI, the deaf person is still viewed as defective.

I thought it was the opposite since people marvel and are amazed at some deaf people's ability to speak and understand hearing people so they are no longer viewed as defective?

 

[jillio]

I thought it was the opposite since people marvel and are amazed at some deaf people's ability to speak and understand hearing people so they are no longer viewed as defective?

Yes, they do marvel and become amazed at the deaf person's ability to "Acr" more like a hearing person. But do they see them as hearing? I don't think so.

 

[shel90]

Yes, they do marvel and become amazed at the deaf person's ability to "Acr" more like a hearing person. But do they see them as hearing? I don't think so.

In my experience, it was the opposite... most people told me that I was making it up about being profoundly deaf cuz I speak so well or forget that I am deaf and start talking to me without making sure I am facing them.

 

[LadySekhmet]

Quote:
Originally Posted by jackiesolorzano
Good Implant centers do not implant until they are 100% sure that the child has a severe to profound hearing loss. Do you know of any babies getting implant and they ended up being hearing. I know that I do not know of any.

Originally Posted by jillio
How would you know if they ended up being hearing jackie, if residual hearing is destroyed during the surgery? Once they are implanted, they are most certainly profoundly deaf. But the point is, if you will go back and reread my post, that responsive testing is innacurrate prior to the age where a child is developmentally capable of responding. While a child may be severe to profoundly deaf, it is impossible to discern other variab les such as discrimination with an HA without some form of responsive testing.

I did not lose my residual hearing after my CI surgery. I agree with Jillio is how can the audiologist determine that a baby is deaf/hearing at that young age?

Jackie - SxyPorkie is one that mentioned that her daughter's children was determined to be deaf at a young age, then later they grew up...they're hearing.

 

[shel90]

Good Implant centers do not implant until they are 100% sure that the child has a severe to profound hearing loss. Do you know of any babies getting implant and they ended up being hearing. I know that I do not know of any.

Something just hit me...u say "good implant centers" so do u mean there are centers that are not good and possibly be too quick to implant babies without ensuring that they do not have a severe to profound hearing loss?

What about those implant centers in other countries? I read an article that in Japan, the criteria is not as strict as it is here.

 

[doubletrouble]

I just have to say, I NEVER once received any pressure to implant my child from the medicial community- in fact it was the opposite. I received A LOT of pressure from the Deaf community for my decision- to the point where I have been called names, tell my child lies about me (from Deaf people) .... I could go on and on... If you were a Deaf person looking in , you would think that my child in "brainwashed" into loving his CI- after all, he has deafness all around him and yet praises his CI every chance he can get. He writes poems about how he can "hear" and then how his world becomes "silent" when he wants it to... he has written an essay about the benefits of his CI.. yet, I have done nothing to "force" (for lack of a better word) down this road... He has Deaf aunts, uncles, grandparents, cousins, sees it all around him, and yet- still chooses the path of wearing his CI...He sees his Deaf role models (like his grandfather that he ADORES) and yet says to me that he is lucky to live in a time that he has the CI

 

[shel90]

I just have to say, I NEVER once received any pressure to implant my child from the medicial community- in fact it was the opposite. I received A LOT of pressure from the Deaf community for my decision- to the point where I have been called names, tell my child lies about me (from Deaf people) .... I could go on and on... If you were a Deaf person looking in , you would think that my child in "brainwashed" into loving his CI- after all, he has deafness all around him and yet praises his CI every chance he can get. He writes poems about how he can "hear" and then how his world becomes "silent" when he wants it to... he has written an essay about the benefits of his CI.. yet, I have done nothing to "force" (for lack of a better word) down this road... He has Deaf aunts, uncles, grandparents, cousins, sees it all around him, and yet- still chooses the path of wearing his CI...He sees his Deaf role models (like his grandfather that he ADORES) and yet says to me that he is lucky to live in a time that he has the CI

That's why I posted # 124

 

[Angel]

I just have to say, I NEVER once received any pressure to implant my child from the medicial community- in fact it was the opposite. I received A LOT of pressure from the Deaf community for my decision- to the point where I have been called names, tell my child lies about me (from Deaf people) .... I could go on and on... If you were a Deaf person looking in , you would think that my child in "brainwashed" into loving his CI- after all, he has deafness all around him and yet praises his CI every chance he can get. He writes poems about how he can "hear" and then how his world becomes "silent" when he wants it to... he has written an essay about the benefits of his CI.. yet, I have done nothing to "force" (for lack of a better word) down this road... He has Deaf aunts, uncles, grandparents, cousins, sees it all around him, and yet- still chooses the path of wearing his CI...He sees his Deaf role models (like his grandfather that he ADORES) and yet says to me that he is lucky to live in a time that he has the CI

Wow this is soo sad, I'm very sorry to hear what you and your deaf child went through, that is something I would not be part of, even through I'm deaf.

Your son is very lucky to have parents like you and a grandfather that he adores.