Why - Why the Medical Society constantly pressure on the Parents?

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jackiesolorzano said:
Shel, I read this article a long time. It was just so wrong. How can a court system tell a parent what to do with their child. It didn't matter that the kids were in foster care at the time. The mom still had full custody of her children.

But it is the same thing that many of you do here trying to tell us what is right for our children. You have no right tell me or any other parent that we should not implant our child. You shoudl tell us to make informed decision to speak to people on both sides but do not try to make our decisions for us. In the case you are talking those kids should not get implants because mom is from a deaf family and more importantly she did not want that to happen to her kids. Her choice should be respected.
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*sighs*

I have never ever once told anyone or made any statement that the parents dont have the right to implant their children.

How many times do I have to say that? Pls do not accuse me of something I didnt say.
 
Liebling:-))) said:
Please re-read Kalista's post carefully.

Kalista is against parent's decision on CI for their deaf children. She respect Vallee's decision because he as an adult choose CI, not his parents.
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Vallee is a female not a male.
 
jackiesolorzano said:
RIGHT ON ANGEL, it is so wonderful that you are trying to see things from both sides. And people like are the ones that I make a huge effort to have in my children's lives.
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:ty: Jackie.
 
Liebling:-))) said:
Please re-read Kalista's post carefully.

Kalista is against parent's decision on CI for their deaf children. She respect Vallee's decision because he as an adult choose CI, not his parents.
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Maybe it is wrong to feel this way, but by being negative to children's implant it is also negative to adults. It is just a personal opinion. I discussed my implant choice with my family as well. So overall it is a family choice. My family helped choice my implants as well. There is a lot of cost involve and it effects the whole family from my child, husband, mom, dad, and sisters. I may be older, but the choice is no less easier to make than a parent to implant their child.

Other CI users, how do you feel? Do you feel that these comments about children, do you feel that also apply to you?
 
vallee said:
Maybe it is wrong to feel this way, but by being negative to children's implant it is also negative to adults. It is just a personal opinion. I discussed my implant choice with my family as well. So overall it is a family choice. My family helped choice my implants as well. There is a lot of cost involve and it effects the whole family from my child, husband, mom, dad, and sisters. I may be older, but the choice is no less easier to make than a parent to implant their child.

Other CI users, how do you feel? Do you feel that these comments about children, do you feel that also apply to you?
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I absolutely understand what you're saying here Vallee, I know what is it like not being able to hear as well however If I had a deaf child, I would go for a cochlear implant if my deaf child cannot benefit from hearing aids same applies to being blind and if there was surgery to help my child to see, I would go for it without a second thought. It's all about choices and parents do have the right to make decision based on what they feel is best for their own children and I believe that one must understand both sides to truly pass a judgement.

Anyways I accept you for who you are with or without a cochlear implant! :hug:
 
vallee said:
Maybe it is wrong to feel this way, but by being negative to children's implant it is also negative to adults. It is just a personal opinion. I discussed my implant choice with my family as well. So overall it is a family choice. My family helped choice my implants as well. There is a lot of cost involve and it effects the whole family from my child, husband, mom, dad, and sisters. I may be older, but the choice is no less easier to make than a parent to implant their child.

Other CI users, how do you feel? Do you feel that these comments about children, do you feel that also apply to you?
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I can understand how you feel.

Each person is different and has different POV.

Mainly important to follow your own heart what you really want. Its about you, not think what everyone says.

I personally do not against CI itself but I do not support to have CI on babies/toddlers. I would wear HA on child as soon as I found out his/her deafness and let him/her involve with deaf, CI, HOH and hearing children first to find out himself/herself what he/she really wants. I would be happy to fulfill my child's wish as soon as he/she feel want to have CI instead of wait until he/she is 18 years old then make his/her decision.
 
Liebling:-))) said:
Please re-read Kalista's post carefully.

Kalista is against parent's decision on CI for their deaf children. She respect Vallee's decision because he as an adult choose CI, not his parents.
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I did read her post and I am parent who made an informed decision to implant my son at the age of 3 years and 2 months and my daughter was implant at 11 years old. So she is against like me that decide to make informed decisions of implanting or deaf children.
 
loml said:
shel90- It is out of context. The fact is you do not have the entire presentation to read. You are not aware of content of the entire presentation. It is one sentence from a presentation that was never been published. You nor I were there.

Want to focus on the words or
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The entire content of the paper is in the same vein. Out of context, in context, or any way you care to see it, the statement is the same.
 
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Raykat said:
Maybe doctors in the US have a different perspective on "cure"....when I applied for my CI it was stressed to me that although it would be much better than a H/A it still would not give me "normal" sound. I was told that CI was first invented in the hope of helping the deaf to lipread more efficiently, not as a "cure". I was also told it would not be much good for hearing music as it was not programmed for that purpose.

However going by the success of several friends who have already been implanted I cant wait to get my CI, hopefully this year. "Cured" or not it seems I will have a much broader scope of sound, and in my view anything is better than nothing. Of course at my advanced age I can make whatever choice I want for myself.....lol
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And I wish you luck with your Ci, Raykat. You are an adult, and are entitled to make that decision for yourself.
 
VamPyroX said:
Should we really be blaming the doctors?

It's the parents that mold the children's future.

If the parents don't want their children to get cochlear implants, all they have to do is say... "no".

If the parents do allow their children to get cochlear implants, but still want their deaf children to maintain their deaf identitiy... then they simply ensure that their children are well taught on deaf culture. :)
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When parents are given the impression that the only way they will be able to provide opportunity for their child, or the only way their child will be able to fucntion "normally" is by having an implant, their options are greatly reduced.
 
Drew's Dad said:
I didn't see a great deal of pressure, so I can't speak much from experience here. However, while it seems to me that doctors receive far too much blame, I do agree that there is a significant portion of our population that needs something that you could call "protection from themselves, "babysitting" or something else.

These are the people that won't research anything on their own and will literally follow the first opinion they receive. If they talk to someone who sells hammers, they'll buy a hammer to fix their problem. If the drill salesman got to them first, they would've bought a drill to fix that same problem.

I believe that every family who has a child that fails the newborn hearing screening should receive a sheet that lists resources including where to find information about hearing aids, cochlear implants, sign language, as well as the doctors and schools around the area with at least a short explanation that there are many different routes to take and things to explore within the world of "hearing loss" or "hearing impairment" or whatever term you'd like to use. At least then if someone chooses to ignore those resources it is obviously their problem and not that of the doctors or medical communities.

While I personally agree with the quoted statement above, I do recognize that there are many out there that simply will hear whatever they want when a cochlear implant surgeon describes the CI surgery to them...and that means that even if the surgeon states alternatives such as signing and dangers of the procedure, they will hear "this will fix my baby...guaranteed". I don't know that there is a way to fix that issue, but at least letting them where the information is would be a good first step - in my opinion.

Everything lies in the hands of the parents in the end.
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I couldn't agree with you more. While you may have been one of the lucky ones to whom information was disseminated properly, that is hardly the situation in all cases.
 
vallee said:
Who stated this opinion. I wanted to know the person who stood up at Harvard and said this.
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And if you knew who it was, vallee, would you be willing to speak out against such an opinion? That is the whole point.
 
vallee said:
I put all cochlear implant people together. To make a comment about one group, goes against all of them. We can't pick and choose the set within the group we are going to discrimante against.
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You tell others that they cannot lump all deaf people together because they are all different, yet you lump all CI people together. Surely you can see the difference between making an informed choice for oneself and making a choice for another.
 
Maybe a confusion?

Maybe there is confusion on who is portraying the CI as a cure for deafness?

This articles states that it is the media that portrays CI as a cure so maybe many got the wrong idea that the doctors told the media this info and in turn accuse the medical community for calling it a cure?

This is part of this article:
The Decision-Making Process-Cochlear Implants--KidsWorld Deaf Net E-Document--Gallaudet University's Laurent Clerc National Deaf Education Center

It is important for families to be realistic regarding their expected outcomes from cochlear implants. While the media often portrays cochlear implants as a "cure" for deafness, those directly involved in the educational process with implanted children are keenly aware of how individualized the outcomes may be for each implanted child.

This is an organization that I feel is very neutral about all aspects of deafness.
 
jillio said:
And if you knew who it was, vallee, would you be willing to speak out against such an opinion? That is the whole point.
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If I knew who said it and saw the speech, yes. CI are not a cure for deafness. Also the date in relationship to the speech. alot of ideas have changed over the course of time to reflect a true vision.
 
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