The CI for children issue (My POV)

That's awful, Jillio. Did you aunt ever get over it? Such a tragic loss.
 
sallylou said:
That's awful, Jillio. Did you aunt ever get over it? Such a tragic loss.
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No, she never did. She always felt a huge sense of guilt. She was delivering Avon, and was reaching into the back seat to get something when she let go of his hand for just a second. But toddlers are so quick! She had 9 children total, but always missed the one she lost. It was doubly tragic for her as it happened the day before his 3rd birthday.
 
Toddlers are fast. It could happen to anyone. I don't know how parents deal with the death of a child. It's so out of the natural order of things you expect.
 
however we did choose to give her the opportunity to access sounds that might possibly lead to her being able to understand and acquire spoken language skills. The implant did indeed give her the access to those sounds she was incapable of hearing with her hearing aids and for her, has had a tremendous and immeasurable impact upon her life.
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Rick.......bear in mind that the percentage of your daughter's generation who were able to aquire speech early on (especially with AND keep on grade level with minimal accomdations with CI was very small. Your daughter only needed basic classroom accomondations, and she suceeded quite well. That is good for you. You just have NO idea how lucky you were that she did not require accomondations beyond minimal accomondations. If she had....I really do think that you'd be singing a different tune! But you're missing the fact that your daughtwr's experiance wasn't that common. back then. God, it wasn't that common even in the late 90's!!!!!
It was very common for CI kids to have significent speech delays as well as significent academic delays (resource room was very very common) as well as social-emotional delays. Social emotional delays are pretty much almost universal.
 
Wow! I am sorry about that , Jillio. I had a scare myself over the summer when my son got his hand free from mine and darted out onto the street when we were leaving his daycare. All I could think was if a car was coming, I wouldnt live with myself. I still torment myself about it sometimes. I yelled at him but he was just too fast and ignored my yells because he was so excited to get in my SUV.
 
sallylou said:
Toddlers are fast. It could happen to anyone. I don't know how parents deal with the death of a child. It's so out of the natural order of things you expect.
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I agree. I can imagine nothing worse to deal with than the loss of a child.
 
shel90 said:
Wow! I am sorry about that , Jillio. I had a scare myself over the summer when my son got his hand free from mine and darted out onto the street when we were leaving his daycare. All I could think was if a car was coming, I wouldnt live with myself. I still torment myself about it sometimes. I yelled at him but he was just too fast and ignored my yells because he was so excited to get in my SUV.
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I'm glad he was safe. I know what you mean, though. It is so frightening to have a close call like that. Unfortunately, things can happen even when we are doing our very best to protect our kids.
 
On the point about a child would have to be implanted at birth in order for it to be of any kind of benefit is just completely inaccurate. Yes, we are born with an "instinct" to develop language. But we do not have the ability to start to process language at birth. That comes a little later. Actually some have commented about 6 months of age. That's actually about the time that a child can start to comprehend some words or sounds. Of course every child will be a little different but below is a common estimate.

Babies are born programmed to learn language, and are actually quite adept at it. Their built-in language ability follows a universal timetable, one that transcends ethnicity and socioeconomic class. Here's an overview of what to listen for and when in your child's language development:

2 months: Cooing; making long vowel sounds like "oo," "aa," and "ee"

6 months: Babbling using consonants

7 1/2 months: Recognizing familiar words or names

10 months: Pointing, grunting, and gazing to get her demands met; using her own invented words

12 months: Saying his first real words, such as Mama and Dada, a sibling's name, body parts, animal names, or noises like "woof, woof"

14 months: Identifying objects; following simple one-step commands like "Get the ball."

18 months: Saying 50 words; using verbs; asking "What's that?" to get name recognition

24 months: Speaking in two-word sentences, such as "Drink milk" or "Play ball"; using the words "no" and "mine" frequently
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I looked around and found quite a few "guide lines" like this and they are all pretty close on the time table.

Of course this all depends on if the child has the kind of hearing loss that can be aided. I'm just saying that waiting till they are a little older doesn't mean it's to late. Even a school age kid can be a benefit from it. It's known that grade school kids can pick up on a new language much faster then most adults can too. My niece (hearing) has learned ASL much better then most of the adults in my family for example. She's now 16 but started learning ASL when she was about 10.

So just wanted to point out that a child who has the kind of hearing that can benefit from a procedure or device does not have to start at birth for it to be helpful to them.
 
jillio said:
They start out with a 6 month delay. And it must be petitioned in order to implant a child that age. The FDA only approves on an individual basis.
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The FDA does not approve them, they are done at the surgeons discretion.
 
RonJaxon said:
On the point about a child would have to be implanted at birth in order for it to be of any kind of benefit is just completely inaccurate. Yes, we are born with an "instinct" to develop language. But we do not have the ability to start to process language at birth. That comes a little later. Actually some have commented about 6 months of age. That's actually about the time that a child can start to comprehend some words or sounds. Of course every child will be a little different but below is a common estimate.



I looked around and found quite a few "guide lines" like this and they are all pretty close on the time table.

Of course this all depends on if the child has the kind of hearing loss that can be aided. I'm just saying that waiting till they are a little older doesn't mean it's to late. Even a school age kid can be a benefit from it. It's known that grade school kids can pick up on a new language much faster then most adults can too. My niece (hearing) has learned ASL much better then most of the adults in my family for example. She's now 16 but started learning ASL when she was about 10.

So just wanted to point out that a child who has the kind of hearing that can benefit from a procedure or device does not have to start at birth for it to be helpful to them.
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You are misinterpreting. I did not say a child would have to be implanted at birth to receive any benefit. I said a child would have to be implanted at birth in order to have no linquistic delays as a result of a hearing deficit. Quite a different thing. If you implant at 6 months, there is already a 6 month delay resulting from the linquistic input that the child cannot access for that time period. Additionally, you are failing to note the delays that continue to accumulate while a child is trained to use the implant following implantation. Those pile on top of the ones that begin to accumulate at birth.
 
faire_jour said:
The FDA does not approve them, they are done at the surgeons discretion.
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The surgeon has to petition the FDA to implant outside the guidelines specified by the FDA for cochlear implantation. Any surgeon that does not do so is risking the loss of their medical license.
 
jillio said:
You are misinterpreting. I did not say a child would have to be implanted at birth to receive any benefit. I said a child would have to be implanted at birth in order to have no linquistic delays as a result of a hearing deficit. Quite a different thing. If you implant at 6 months, there is already a 6 month delay resulting from the linquistic input that the child cannot access for that time period. Additionally, you are failing to note the delays that continue to accumulate while a child is trained to use the implant following implantation. Those pile on top of the ones that begin to accumulate at birth.
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One question... is it uncommon for deaf babies not to make a noise?

My mom said I never made a noise until I was 6 or so, a year after my first hearing aids. I never cried, but has shown discomfort on my face and such instead. :eek3:
 
souggy said:
One question... is it uncommon for deaf babies not to make a noise?

My mom said I never made a noise until I was 6 or so, a year after my first hearing aids. I never cried, but has shown discomfort on my face and such instead. :eek3:
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Sometimes. Depends on the infant. Most deaf infants will vocalize just like a hearing infant during the first few months of their life. Only when an infant should be imitating particular phnonetic combinations is a big difference noticed.

I've known a few hearing babies that never cried, and were very withdrawn vocally. The difference is, they are still getting stiumili auditorily and their brain is processing it, so no delays.
 
souggy said:
One question... is it uncommon for deaf babies not to make a noise?

My mom said I never made a noise until I was 6 or so, a year after my first hearing aids. I never cried, but has shown discomfort on my face and such instead. :eek3:
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you read my mind. I thought they make noise rather they hear them or not. and make raspberries as well.
 
jillio said:
The surgeon has to petition the FDA to implant outside the guidelines specified by the FDA for cochlear implantation. Any surgeon that does not do so is risking the loss of their medical license.
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My daughter's surgeon is extremely conservative. He does not implant befor 12 months, but he implanted Miss Kat even though she did not meet the FDA guidelines. He did not petition at all. Where are you getting the information that they must petition? I have never heard of such a thing.
 
faire_jour said:
No. An ABR is completely diagnostic, and requires no imput from the child at all.
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An ABR is a screener. They are not for diagnostic levels, nor can one test for discrimination abilities or get an accurrate dB level. Input from the child is required for definitive diagnosis.
 
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