Re: video of child crying while CI activated

BleedingPurist said:
I fully believe that the majority at Gally are accepting these days, but I also fully believe there are likely cliques at Gally with their own mindsets that may not be shared by the greater community at Gally. I imagine this is what he is trying to say he experienced.
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Yep, just like the cliques here.

Ok guys & gals, lets end this thread right now. Moving on to the next controversial subject......:ugh3:
 
BleedingPurist said:
I fully believe that the majority at Gally are accepting these days, but I also fully believe there are likely cliques at Gally with their own mindsets that may not be shared by the greater community at Gally. I imagine this is what he is trying to say he experienced.
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Yes, however there is a but. But, that mindset was so prevalent that any individual who wanted a CI was "hush-hush". It was a taboo subject.
 
BleedingPurist said:
More of the usual reinforcement of passive aggressive "it's not happening, you imagined it" games. It happens... still does to this day. I'd say the attempt to dismiss one's experience when sharing it falls under that category no matter how you dress it up. One should not encounter that when sharing it at AD.

I'm not sure what linking to bbaseball's story about his summer at Gally is trying to show.... that he was frustrated that he didn't know ASL already?
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No. The point is... He is exactly the example of what I'm talking about and I fear that this child in video will follow same path.

BleedingPurist said:
I did YSP myself one summer there and didn't know ASL, either. It was a cool experience all around though. It didn't make me regret not learning ASL sooner or feel that I had been deprived. It also helped me decide that Gally wasn't for me.
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That's fine. No one is telling you or forcing you to accept deaf pride or whatsoever. We're not concerned about deaf or late-deaf adults... only deaf babies with misguided parents.
 
Steinhauer said:
Yes, however there is a but. But, that mindset was so prevalent that any individual who wanted a CI was "hush-hush". It was a taboo subject.
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How unfortunate. In the past, it can be quite cruel and close-minded. A lot of things were considered taboo too. Now... time has changed and we do support deaf people wanting to hear. I think the latest ones are AliciaM and JClarke getting CIs and they have our full support and always have.

But what hasn't changed is hearing parents' view on deaf people and their reason for their decisions.
 
If the mods want to close this thread that is their decision. I don't see a reason too, as for the most part, the dialogue has been civil.

I realize what the predominant views are regarding CI's for children. Not everyone agrees. Some, such as myself, view the predominant negative discourse from the deaf community concerning this subject as cruel and close minded.

I am not going to beat around the bush - I would just be wasting your time and my time.

My wife was the first child to receive a CI in Atlanta. When I find the newspaper clipping about it, I will copy and post it. Right now, it is in a box somewhere in the basement. She has absolutely no negative feelings towards her hearing parents about their decision to do what they thought was best for their child. Any responsible parent would want to improve the quality of life for their children.

My in-laws did not make that decision lightly. They studied up on the subject as well as attended several workshops regarding it.

My wife knows ASL as well as can speak.

She refuses to wear her CI because her ex husband told her it made her look ugly. He told her to reject her parents because they were hearing and could never understand deaf culture (they sign). Even though this all happened years ago, the stigma of her experience remains.

She was absolutely fine wearing her CI until her ex husband fed that utter BS to her.

And ... it's BS. That was why I posted the follow up video in the OP.

You can take this comment for what it is worth, or continue to play the passive aggressive game that was described ... oh ... so ... well by another poster.

I am not pointing fingers at anyone. I am only pointing out things I have personally observed.

Other than that, I am very glad to know that you supported other members here who have made a decision to get a CI. Any deaf person who makes that decision absolutely needs reassurance that they will still be "accepted" afterwards. It is truly important. I am just glad to know that this is happening now because it sure as heck didn't happen when I was at Gally.
 
Steinhauer said:
If the mods want to close this thread that is their decision. I don't see a reason too, as for the most part, the dialogue has been civil.
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I'm not talking about mods. I'm talking about your agreement with green427 to end this thread and move on.

Steinhauer said:
I realize what the predominant views are regarding CI's for children. Not everyone agrees. Some, such as myself, view the predominant negative discourse from the deaf community concerning this subject as cruel and close minded.

I am not going to beat around the bush - I would just be wasting your time and my time.

My wife was the first child to receive a CI in Atlanta. When I find the newspaper clipping about it, I will copy and post it. Right now, it is in a box somewhere in the basement. She has absolutely no negative feelings towards her hearing parents about their decision to do what they thought was best for their child. Any responsible parent would want to improve the quality of life for their children.

My in-laws did not make that decision lightly. They studied up on the subject as well as attended several workshops regarding it.

My wife knows ASL as well as can speak.

She refuses to wear her CI because her ex husband told her it made her look ugly. He told her to reject her parents because they were hearing and could never understand deaf culture (they sign). Even though this all happened years ago, the stigma of her experience remains.

She was absolutely fine wearing her CI until her ex husband fed that utter BS to her.
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now you see why we're very outspoken about this. we want parents to make an informed decision with right reason behind their decision. I know many parents do their homework thoroughly by contacting best people, organization, etc. what concerns us is their unrealistic expectation and the harm it will cause to deaf children.

Steinhauer said:
And ... it's BS. That was why I posted the follow up video in the OP.
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I hope this child won't grow up to refuse to wear his CI because his gf/wife told him it made him look like an outcast. I hope this child won't have to suffer thru a stigma. this is precisely what concerns us. I say it again - we are not concerned with deafies wanting to hear... only parents because of their unrealistic expectation and not taking heed of it.

Steinhauer said:
You can take this comment for what it is worth, or continue to play the passive aggressive game that was described ... oh ... so ... well by another poster.

I am not pointing fingers at anyone. I am only pointing out things I have personally observed.

Other than that, I am very glad to know that you supported other members here who have made a decision to get a CI. Any deaf person who makes that decision absolutely needs reassurance that they will still be "accepted" afterwards. It is truly important. I am just glad to know that this is happening now because it sure as heck didn't happen when I was at Gally.
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yes. absolutely. deaf people have our support if they want to hear and we have absolutely no problem with it.

It amazes me to see that some people still think and are continuing to accuse us of preventing them from wanting to hear and they still fail to produce any evidence of this ridiculous accusation.
 
As someone who is open minded and supportive of everyone's experiences I hope parents will seek all information available (pro and con) before making their decision on whether or not to implant.

This "us" 'we" and "them" speak is pretty divisive IMO.
 
TXgolfer said:
As someone who is open minded and supportive of everyone's experiences I hope parents will seek all information available (pro and con) before making their decision on whether or not to implant.

This "us" 'we" and "them" speak is pretty divisive IMO.
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same here.

just to clarify - it does not bother me if parents chose to implant their kids at early or later age. in terms of medical sense regarding pros and cons... it's really of no concern to me because CI technology is already well-developed along with excellent medical advancement that can greatly minimize medical risk from implantation and post-op.

but what deeply disturbs me is their unrealistic expectation of CI and audist reasoning. what also concerns me is parents disregarding OUR life experience and dismissing us. that's the very issue we're concerned with at hand.
 
Jiro said:
same here.

just to clarify - it does not bother me if parents chose to implant their kids at early or later age. in terms of medical sense regarding pros and cons... it's really of no concern to me because CI technology is already well-developed along with excellent medical advancement that can greatly minimize medical risk from implantation and post-op.

but what deeply disturbs me is their unrealistic expectation of CI and audist reasoning. what also concerns me is parents disregarding OUR life experience and dismissing us. that's the very issue we're concerned with at hand.
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Could you give some examples of what you consider to be unrealistic expectations?

The reason I ask is because I used to have to give a tour of DC to incoming foreign deaf students and their families. On one such tour, the father of a profoundly deaf student pulled me to the side and told me he wanted me to personally teach his daughter to speak like I could (I speak clearly). So, in my mind, yeah, that was an unrealistic expectation. But, with modern technology, it isn't that far away from happening.

http://www.nuffieldbioethics.org/neurotechnology#2

http://www.chicagotribune.com/healt...rotechnologytre82000l-20120229,0,327602.story
 
I will give an example of an unrealistic expectation.

Rush Limbaugh.

Yeah.

He loses his hearing, and gets a CI, and voila, he is "back to almost normal". Announces all over the world that he got his hearing back, and can hear.

This, my friends, is what the rest of the hearing world is listening to, and expect the rest of us to have the same results. Even my staunch, Right-wing parents are pissed off that I am not back to the 'normal' 4-year old hearing kid I was once. The CI was supposed to cure me.
 
green427 said:
I will give an example of an unrealistic expectation.

Rush Limbaugh.

Yeah.

He loses his hearing, and gets a CI, and voila, he is "back to almost normal". Announces all over the world that he got his hearing back, and can hear.

This, my friends, is what the rest of the hearing world is listening to, and expect the rest of us to have the same results. Even my staunch, Right-wing parents are pissed off that I am not back to the 'normal' 4-year old hearing kid I was once. The CI was supposed to cure me.
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but Rush Limbaugh is late deaf.
 
Steinhauer said:
Could you give some examples of what you consider to be unrealistic expectations?
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biggest one - parents expecting that their deaf children w/ CI will live and function like a normal hearing person. and the worst one - treating them like hearing people and scorning them for falling short of their expectation.
 
Jiro said:
but Rush Limbaugh is late deaf.
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Yes, that's the issue....late-deafened people do much better with CI's than others. The general public does not hear the medical community announcing any details like that.

Rush loses his hearing, gets a CI, adapts quickly, then goes back to work calling women derogatory names....then tries to apologize......:lol:
 
I can understand why a late deafened adult would do better with a CI. They already developed speech discrimination and can discern what sounds are.

Maybe explaining to a hearing parent that a CI for a profoundly deaf child would almost be like a person born blind all of a sudden having sight. Not perfect sight ... But a person who was born blind would not be able to make sense out of what they are seeing. A lot like sensory overload. There would be no ability to discriminate.

In other words ... A CI for a deaf person who was born deaf would just produce unintelligible "noise".

I had functioned for about 4 years with broken HA's and often did not wear them. As stated earlier, I am clinically deaf without HA's. When I was able to finally get working aids, they absolutely freaked me out. It was scary. I remember going in my garage to open the garage door and I thought the sky exploded.
 
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