Questions and debates about blindness:

dreama said:
Some people keep mensioning that their are 3 blind and deafblind posters here. Actually their are 2 hearing blind: Nika and Typingtornado and

and 5 deafblind: Me, Hear again, Aleser, Mrs Bucket and Grayson Peddle.

Plus their are several others with ushers syndrome that are going blind: Pinky, Baby blue, Sexy porkie and several others. If I've missed you out You will have to come and identify yourself.

So definately more then 3.
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oh wow! thanks for listing other names! I didn't even know.. except Grayson. :ty:
 
faire_jour said:
Do parents deal well with blindness? I know that a lot of Deaf people think their parents were (or still are) in denial about their needs and Deafness. Is it the same for the blind? Are medical professionals "obsessed" with residual vision, like they are with residual hearing?
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Unfortunately yes. My dad seems to think totally blind people are incapable. They aren't.

He also thinks my dog is responsible for guiding me everywhere. Jilli's not. I'm responsible for giving her directions for her to follow.
 
dreama said:
Unfortunately yes. My dad seems to think totally blind people are incapable. They aren't.

He also thinks my dog is responsible for guiding me everywhere. Jilli's not. I'm responsible for giving her directions for her to follow.
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ugh... yes ignorance is the worse part... but the worst part ever is ignorance from your own family members..... :mad2:
 
Jiro said:
oh lord.... now that you mention it... that's going to be a problem for you since lot of sites/forums use some wacky picture with letters/numbers for you to type in when registering for an account. Even I cannot read it myself!! It usually takes me several tries! Yahoo's verification thing is the worst :mad2:
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For me all I see now is a box with 3 coloured blobs to indecate that it's a picture. Since I found it was easier to turn off the graphics since some graphics have print in them for people who cannot see graphics.
 
Jiro said:
ugh... yes ignorance is the worse part... but the worst part ever is ignorance from your own family members..... :mad2:
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Do you get that from your own folks too?

I find it's the well intended ignorance that is the worse. My dad isn't a bad guy. He just seems to have some funny ideas of what I'm capable of. He lets certain people influence him to much I fear.
 
dreama said:
Do you get that from your own folks too?

I find it's the well intended ignorance that is the worse. My dad isn't a bad guy. He just seems to have some funny ideas of what I'm capable of. He lets certain people influence him to much I fear.
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no but they did have some unrealistic expectation. Oddly enough - it helped me to overcome it.
 
dreama said:
How do you mean?
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thinking that I can overcome my deafness by training and listening harder. 100% oral approach. i thanked my parents for their diligence but they just didn't know any better cuz it was not well-understood at that time. If I ever have a deaf kid, I wouldn't put my kid thru what I went thru. I've learned a lot from Jillio and Shel so I know better now. AD taught me a lot as well. :ily:
 
Jiro said:
thinking that I can overcome my deafness by training and listening harder. 100% oral approach.
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I had that from my folks too. Made me glad when the rest of my hearing went. No more pressure to wear migraine inducing hearing aids. Hurray!

He uses deafblind manual with me now. Although he goes so fast and keeps making mistakes. So I don't always get what he's talking about.
 
dreama said:
I had that from my folks too. Made me glad when the rest of my hearing went. No more pressure to wear migraine inducing hearing aids. Hurray!

He uses deafblind manual with me now. Although he goes so fast and keeps making mistakes. So I don't always get what he's talking about.
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whoops sorry. I edited my post after you replied to my post. Here's what I added - i thanked my parents for their diligence but they just didn't know any better cuz it was not well-understood at that time. If I ever have a deaf kid, I wouldn't put my kid thru what I went thru. I've learned a lot from Jillio and Shel so I know better now. AD taught me a lot as well. :ily:

btw - it's great that your dad's very willing to learn to communicate with you.
 
Jiro said:
whoops sorry. I edited my post after you replied to my post. Here's what I added - i thanked my parents for their diligence but they just didn't know any better cuz it was not well-understood at that time. If I ever have a deaf kid, I wouldn't put my kid thru what I went thru. I've learned a lot from Jillio and Shel so I know better now. AD taught me a lot as well. :ily:
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I only wish more parents of deaf children would get the message.
 
dreama said:
I only wish more parents of deaf children would get the message.
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I think they're beginning to. More and more baby boomers are becoming HOH/Deaf so.... we'll see.
 
Dear deafblinders,

You are adult and decide what you do with your life, I respect that but I am wondering about eye surgery. They can make you see... How about that?
 
liebling,

i have retinopathy of prematurity (abbreviated ROP) and at this time there are no surgeries available for those who have retinal diseases. having said that, i do not wish to have surgery because i am perfectly content being totally blind since it is all i've ever known. while i'm curious about what certain things look like (such as the faces of my family and friends or a child's face when they laugh), it isn't strong enough for me to have the desire to become a sighted person.
 
Jiro said:
yike! i hope she feels better as soon as possible.
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:ty: jiro.

i'm feeling much better this morning. i need to be careful so that i don't start rapid cycling. i haven't rapid cycled for 9 days which is the longest i've been stable in a year and a half.

fortunately i was able to prevent that from happening yesterday evening, but even when i started to feel level again, i still thought it was best that i stay away from this thread until i had a chance to calm down.

today is another day (and nothing can ruin my mood today because obama will be sworn in as president! :D) which allows me to take a fresh look at everyone's posts.

jolie and naisho, i hope you will accept my sincere apologies for getting this thread off to a negative start. i guess my emotions got the better of me. i'm sorry. :(
 
Hear Again said:
:ty: jiro.

i'm feeling much better this morning. i need to be careful so that i don't start rapid cycling. i haven't rapid cycled for 9 days which is the longest i've been stable in a year and a half.

fortunately i was able to prevent that from happening yesterday evening, but even when i started to feel level again, i still thought it was best that i stay away from this thread until i had a chance to calm down.

today is another day (and nothing can ruin my mood today because obama will be sworn in as president! :D) which allows me to take a fresh look at everyone's posts.

jolie and naisho, i hope you will accept my sincere apologies for getting this thread off to a negative start. i guess my emotions got the better of me. i'm sorry. :(
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I'm glad you feel better today!
 
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