Questions and debates about blindness:

Nika said:
Definitely. I wish I had access to braille earlier on. But many educators are too caught up on making you use whatever vision you have left, so they use braille as a last resort. They would rather see you strain over a visual medium than use a tactile medium.
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exactly.

it would be nice if some of these vision teachers could live a day in our shoes so they can understand what it's like to look at a book 2 inches away from their face or to experience constant headaches.
 
Nika said:
I wish my eye problems had been caught earlier. I wish I could have had access to a long white cane. Blind people should be able to use a cane if they feel they need it. I don't care about the social stigma surrounding the long cane--if a blind person needs it, they should have it. Period. I also wish I could have had access to programs like Zoomtext earlier on. I spend many hours straining my eyes trying to read regular print. Wasn't going to happen. And I also wish that children would be believed in general more often and not just assuming to be malingering until proven otherwise. Even if a child is complaining for attention, what is the harm of one or two unnecessary doctors' appointments? It's sure better than the alternative of leaving a child underdiagnosed or misdiagnosed.
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I agree. Not just children either. It happens to babies too. I mean the mother not being believed.

I was told that they delayed putting me in an incubator which made me very ill.

Also I had thyroid deficency. Only the doctors kept telling mother that the reason that I was being really leathagic and not taking an interest in the world was because I was premmie. My parents only wanted the doctor to do the tests but the doctor was refusing to. In the end my dad threatened to sue the doctor.

So the doctors did the test and it seemed I did have thyroxine disorder after all.
 
Nika said:
I answered earlier in the thread. But not far off from you. LP and shadows in the left eye and 20/400 in the right eye with I don't know how much vision field now because I have noticeably lost some since my last visit to the eye doctor.
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Funny thing. My right eye is better too. I can't give exact details of eyes sorry since it's been ages since I last had a test. My dad usually communicates to the doctor on my behalf then doesn't always tell me what the doctor said.
 
dreama said:
Funny thing. My right eye is better too. I can't give exact details of eyes sorry since it's been ages since I last had a test. My dad usually communicates to the doctor on my behalf then doesn't always tell me what the doctor said.
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dreama,

how does your father communicate with you? voice? print on palm?
 
My dad uses the deafblind manual to communicate with me. I've been unable to use voice at all for the last 8 years.
 
dreama said:
Well they all went to have a look at my CCTV? The teacher couldn't wait long enough for them to calm down and get on with their work.

Nika: you're right. It was discrimating.
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It's the teacher's responsibility to keep the class under control and the students' responsibility to stay focused on the material. It is by no means your responsibility to keep the class focused. A student should not be deprived of an accommodation because of the other students' immaturity/teacher's inability to discipline the class. I'm sorry but that was just wrong of your teacher to put you out in the hallway.
 
Hear Again said:
exactly.

it would be nice if some of these vision teachers could live a day in our shoes so they can understand what it's like to look at a book 2 inches away from their face or to experience constant headaches.
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<excellent posting>
 
dreama said:
My dad usually communicates to the doctor on my behalf then doesn't always tell me what the doctor said.
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No offense dreama, but can't you speak for yourself? That is indirectly reinforcing assumptions that deafblind people can't do anything for themselves.

I think that is really unfair of your father to withhold information for you. It's information about your own health.

Maybe you could go to the doctor with a tactile terp in the future.
 
dreama said:
I can't give exact details of eyes sorry since it's been ages since I last had a test.
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I understand. I can't tell you what my visual field is now since it's definitely changed since my last eye doctor appointment. Do you experience any eye pain?
 
dreama said:
Well they all went to have a look at my CCTV? The teacher couldn't wait long enough for them to calm down and get on with their work.

Nika: you're right. It was discrimating.
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oh.... I see.... that's just wrong of teacher to put you in hallway. When I had a case like this - I sat at the back of classroom so that it's less distracting for class.
 
Nika said:
I understand. I can't tell you what my visual field is now since it's definitely changed since my last eye doctor appointment. Do you experience any eye pain?
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Yes, when my eye is exposed to light. That's why I wear sleepers.
 
Ooh, photophobia. Got it. Thanks for answering, dreama.

Jiro, I can't speak for anyone else but I know that I personally couldn't sit in the back of the classroom. I need to be as close as possible to the professor to use my vision maximally.
 
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