kokonut, can you provide a transcript for me and other Deafblind members of AD?
Warning: This video contains footage of an extremely premature infant. Please do not watch if this will make you uncomfortable. I show this because this is my life.
My name is Joey. I was born at 22 weeks and 6 days gestation. i was 1 pound 2 ounces at birth. I was not expected to survive.
This is me. 4 days old.
I weigh about 1 pound.
I was born 4 months early.
I am very fragile.
I am not expected to live.
If I do live, they say I will probably be severely disabled.
I am on a ventilator.
I eat through an IV line.
My eyes are not open yet.
My skin can be rubbed off.
I have countless potential problems.
My parents are prepared for the worst.
This is my life.
5 days old - phototherapy.
This was where I lived.
Some of my medical equipment.
17 days old. I start tube feeds.
29 days old. Mommy held me for the first time.
6 weeks old. I reach 2 pounds.
8 weeks - 3 pounds.
10.5 weeks - 4 pounds.
11 weeks. Moved from NICU to StepDown Unit.
13 weeks 5 pounds.
Going home after 116 days in the hospital.
At home, I am on oxygen and 2 monitors.
I visit a lot of doctors and I start to grow.
and grow (3 weeks home)
and grow (1 month home)
and grow (11 lbs) (over 2 months home). 6 months old and 2 months adjusted age.
Over the next 6 months I will have my ups and downs. I will get of oxygen and my monitors, but I will develop bad reflux. I will need 1 surgery because I have problem gaining weight. I will spend a lot of time visiting doctors.
I do keep exceeding everyone's expectations.
Now I am almost 1 year old (8 months adjusted)
And less than 1 year adjusted.
I crawl...then at 1 year adjusted.
I start to walk.
And walk.
Then I learn to chase Daddy.
Then I start to learn signs.
"Book"
"Dog"
"Shoes"
"Thank you"
"Bubbles"
"More"
"Ball"
I know a few more, and am now working on talking.
I should have this down soon.
This will have to be continued. This is where I am today. I am 15 months adjusted age (from due date).
I hope to have a long and happy life ahead. Thank you for watching. I am going to go grow and learn some more stuff.
Thank you God for giving me and my family a wonderful miracle.
Thank you to my doctors, nurses, and other medical professionals who helped me so very much. Thank you also, to my family and friends whose prayers helped me get through the rough times I had so very early in my life.
*scrolling* - Joey - Birth to 19 months. Born 4 months early. 22 weeks 6 days gestation. 1 lb 2 oz at birth. Thank you for watching. Video created NOvember, 2008. Copyright 2008 Joey z.