Its Not The Parents Fault....

[Cloggy]

Cloggy, sometimes you act like I don't know anything about these implants and you do? and I'm trying to express how I feel yet you see it as an argument? Every surgeries involves risk and I feel a 6 months old baby is way too young and yes, it's scary to me!! ..

Sometimes I am scare to post cause some people just twist everything around instead of giving them a chance to speak or express their feelings...

I'm sorry. It is not my intention to do that.
What I'm trying to get across is that every parent will have that initial thought. Of course it's scary. Especially with a child so young the idea is a far away from the mind as possible.

But, in the internal discussion of parents, the thinking "way to young" cannot be a factor. It's an emotional reason without real grounds. The reasoning is about waht is best for the child. Not the fear of the parent. And what's best for the child.... the operation is not a deciding factor.

I know that you, Cheri, Liebling know about CI, THAT's why I reacted as I did. You girls should know there's more behind it.

 

[R2D2]

Cloggy, sometimes you act like I don't know anything about these implants and you do? and I'm trying to express how I feel yet you see it as an argument? Every surgeries involves risk and I feel a 6 months old baby is way too young and yes, it's scary to me!! ..

Sometimes I am scare to post cause some people just twist everything around instead of giving them a chance to speak or express their feelings...

As a mum I know what you mean about seeing a little 6 month old baby going for an operation - it wouldn't be an easy thing to do! But I'm wondering whether statistically is there any more risk for a child of that age? What about the recovery? Does anyone know?

 

[Angel]

I do agree, but they do operations to insert tubes in ear drums early to.

Actually when my second son was 3 he was seen by a ear, nose, and throat doctor because he had many ear infections since the age of 1, we tried several ways to keep the fluid out of his ears but nothing works until the doctor told us about these myringotomy tubes but some children with ear tubes continue to develop ear infection and after the tube comes out, a small hole may remain in the eardrum and for that will need to be repaired..He said my son was too young at that time, and rather to wait until he turns 5, because age of 5 years, most children have wider and longer tubes by allowing better drainage of fluids from the ear... The point is not always they do allow younger children go through operations unless the results are successful...

Remember every results are different they're never the same....

 

[Angel]

I'm sorry. It is not my intention to do that.
What I'm trying to get across is that every parent will have that initial thought. Of course it's scary. Especially with a child so young the idea is a far away from the mind as possible.

But, in the internal discussion of parents, the thinking "way to young" cannot be a factor. It's an emotional reason without real grounds. The reasoning is about waht is best for the child. Not the fear of the parent. And what's best for the child.... the operation is not a deciding factor.

I know that you, Cheri, Liebling know about CI, THAT's why I reacted as I did. You girls should know there's more behind it.

You keep forgetting one thing, it don't always work for every child out there, and operations are vary for each child

 

[Cheri]

But, in the internal discussion of parents, the thinking "way to young" cannot be a factor. It's an emotional reason without real grounds. The reasoning is about waht is best for the child. Not the fear of the parent. And what's best for the child.... the operation is not a deciding factor.

I know that you, Cheri, Liebling know about CI, THAT's why I reacted as I did. You girls should know there's more behind it.

Talk about best interests of a 6 months old baby, ever stopped and thought or concern would a 6 months old being under a knife cause some surgery failure or conflicts? This is what strikes me, when parents don't even think of that. All they think about is what's best for the child

 

[Angel]

But from what I've read that researchers found that the earlier a deaf child gets cochlear implants the better his or her spoken language will be at age 3 , it say nothing about 6 months of age and hearing aids are placed prior to 6 months of age, babies should develop normal speech and language at the same rate as children without hearing loss and since screen tests are not perfect, how do they really know the results are so true? and study showing that children with cochlear implants are at greater risk of developing bacterial meningitis, and I do understand that cochlear implant could greatly improve the child's quality of life but I can't bear with the idea of a 6 months old baby going through something like this when they're so little...Maybe you're right, I'm just being a mother ..

 

[Boult]

But from what I've read that researchers found that the earlier a deaf child gets cochlear implants the better his or her spoken language will be at age 3 , it say nothing about 6 months of age and hearing aids are placed prior to 6 months of age, babies should develop normal speech and language at the same rate as children without hearing loss and since screen tests are not perfect, how do they really know the results are so true? and study showing that children with cochlear implants are at greater risk of developing bacterial meningitis, and I do understand that cochlear implant could greatly improve the child's quality of life but I can't bear with the idea of a 6 months old baby going through something like this when they're so little...Maybe you're right, I'm just being a mother ..

I understand If the parent had to compromise then it would be later than 1 but best before 3. Although there are all kinds of operation that can be done on 6 months old baby. *shrug* Parents and surgeons doctors discuss to the best of ability and parent make decision. If doctors says more risk for this specific child of 6 months then postpone. so it varies but we know that the windows of opportunity close at 3 to 5 yrs old.

 

[Cheri]

But from what I've read that researchers found that the earlier a deaf child gets cochlear implants the better his or her spoken language will be at age 3 , it say nothing about 6 months of age and hearing aids are placed prior to 6 months of age, babies should develop normal speech and language at the same rate as children without hearing loss and since screen tests are not perfect, how do they really know the results are so true? and study showing that children with cochlear implants are at greater risk of developing bacterial meningitis, and I do understand that cochlear implant could greatly improve the child's quality of life but I can't bear with the idea of a 6 months old baby going through something like this when they're so little...Maybe you're right, I'm just being a mother ..

And I cannot picture a 6 months old talking/hearing on telephones, understand speech, learn to talk, response to sound and to help predict his/her response to a cochlear implant.

 

[gnulinuxman]

I just get mad when I see parents yelling at their implanted kids for taking off the processor. Not all deaf people want to hear. That's what makes me mad--when parents say things like "Put that back on! Mommy knows what's best for you!" They need to understand that having a deaf child isn't a tragedy--it can be a rewarding experience. After all, deafness isn't the end of the world.

 

[gnulinuxman]

I understand If the parent had to compromise then it would be later than 1 but best before 3. Although there are all kinds of operation that can be done on 6 months old baby. *shrug* Parents and surgeons doctors discuss to the best of ability and parent make decision. If doctors says more risk for this specific child of 6 months then postpone. so it varies but we know that the windows of opportunity close at 3 to 5 yrs old.

But what bothers me is that these doctors view deafness as one of the worst things that can happen to a child. Is it really that bad? Jillio, for example, really loves her deaf son and is happy she didn't listen to the doctors--and she doesn't regret it. She loves being able to talk to her son without making him wear these hearing aids or cochlear implants, and she even said he's getting better at oral speech and lipreading. That seems like a wonderful success story to me, but do all of these doctors share these kinds of success stories?

I don't think it is 100% the parents' fault. I think doctors need to go easier on deaf kids who don't want to wear the implants, and so do more parents. I believe it should be the requirement of every parent of a deaf child to sign at least PSE or similar so they can communicate with their children without forcing them to use the implant.

 

[Cheri]

They need to understand that having a deaf child isn't a tragedy--it can be a rewarding experience. After all, deafness isn't the end of the world.

I agree! I've seen so much special needs children out in the society, I applause to those parents who stick around. And the ones who couldn't handle the fact that their child is special, that needs a lot of attention are the ones that gives a child up for adoption, I have no respect for those parents. You bring a child in the world, no matter what you'll get, Learn to accept what's in front of you.

 

[Boult]

But what bothers me is that these doctors view deafness as one of the worst things that can happen to a child. Is it really that bad? Jillio, for example, really loves her deaf son and is happy she didn't listen to the doctors--and she doesn't regret it. She loves being able to talk to her son without making him wear these hearing aids or cochlear implants, and she even said he's getting better at oral speech and lipreading. That seems like a wonderful success story to me, but do all of these doctors share these kinds of success stories?

I don't think it is 100% the parents' fault. I think doctors need to go easier on deaf kids who don't want to wear the implants, and so do more parents. I believe it should be the requirement of every parent of a deaf child to sign at least PSE or similar so they can communicate with their children without forcing them to use the implant.

Actually parents talk to doctors first not the other ways around. It is the parents that are more interested in getting their kid implanted at earlier and doctors are consulted to see if it is safer to do that. They have to go thru process to see if it is feasible. This such ci operation at 6mos is safer than having twins baby joined at head getting separated. Of course, risk can't be avoided in any ages if it arise.

You are right, they don't speak but does baby talk at 6 mos but will be hearing more sounds at earlier age. Just like any other babies who are born hearing they heard the sound right before birth right in the wombs! I don't mean they understand but develop reactions skills better than deaf when it comes to sounds. That's how the early language development works. The earlier the better.

Right now, most surgeon doctors are aware that administering vaccine to prevent meningitis is best before operation. Those kids born hearing don't get it but are advised to get them before their first school year begin. Because at any school, one can get bacterial meningitis. It is not funny. And that incidents are higher in hearings than those who get implanted.


Anyway...
Here's research on implanting younger than 12mos. For those interested.
http://www.colorado.edu/slhs/mdnc/research/publications/itano.html


As for Jillo, It is her decision and I respect her wish and that her son is her son not mine. The success stories don't comes from doctors. they comes from parents who put lots of works through motivations and those are the only ones. Of course, there are other parents who didn't put efforts into hoping that schools will do the works for them. wrong approaches of course. They needs to be advised that they should involves their kids more often and work with them.

 

[R2D2]

Early implantation before 18 months. Children implanted before 18 months of age were found to have normal or even accelerated language development growth patterns (Hammes, Novak, Rotz, Willis & Edmondson, 2002; Novak et al., 2000). Children implanted prior to 18 months of age were also age to transition successfully from manual to oral communication as compared to fewer than 50% of those children implanted between 19-30 months. After the age of 30 months, the probability of transition from manual to oral communication is significantly diminished.

According to the link that Boult cited there is still quite a window of opportunity after the age of 1. I personally don't think I could have a child implanted younger than that - there would have to be very compelling reasons for me to do so.

Boult are you saying that the incidence of baterial meningitis is lower for vaccinated implanted deaf children than for hearing children who haven't been vaccinated? Interesting. Is there a link to an authority that states that?

 

[Boult]

According to the link that Boult cited there is still quite a window of opportunity after the age of 1. I personally don't think I could have a child implanted younger than that - there would have to be very compelling reasons for me to do so.

Boult are you saying that the incidence of baterial meningitis is lower for vaccinated implanted deaf children than for hearing children who haven't been vaccinated? Interesting. Is there a link to an authority that states that?

yes on FDA site of course.

but this news is one of an example.
http://www.webmd.com/content/article/99/105260.htm

 

[jag]

. The point is not always they do allow younger children go through operations unless the results are successful...

Remember every results are different they're never the same....

Hi Angle, my youngest had tubes put in when she was around 18 months old (i think) She has down syndrome and very narrow ear canals. I think alot would depend on your ent/surgeon, we did go into the surgery knowing that he might 'not' be able to get them in place. He put the ones that stay in for a few years and they came out when she was around 6 or 7. She does have a hole in her left ear drum which is still there now and she'll be 17 this fall. They advised not repairing it because if she were to have problems that would cause pressure in the ear (allergies/colds etc) before it completely healed we'd end up with a bigger problem. Since she gets no infections despite swimming and washing hair we don't do anything.

I don't get why your sons dr. wanted to wait til your son was 5, unless your son was deaf? One of the reasons tubes are placed is to the child can hear better, the fluid muffles sound so hearing is effected, if there's infection tubes will usually help with that, tho as you said sometimes it doesn't, it's why I wonder why your dr. would put the procedure off if your child is hearing.

I know of a boy with down syndrome who would have the ones that only lasted about 6 months before falling out and he had narrow ear canals but he became very hmmmm crabby and would hit and stuff when he got fluid build up, took a couple times and his mom finally figured out that the first thing to check when he really started hitting alot was the ears. Narrow ear canals if normal for children with down syndrome and they get ear tubes for fluid build-up when very young.

 

[jag]

and I do understand that cochlear implant could greatly improve the child's quality of life but I can't bear with the idea of a 6 months old baby going through something like this when they're so little...Maybe you're right, I'm just being a mother ..

Nothing wrong with being a mom. I do understand what you're saying and it's really NOT that easy for parents to make the decision to put their child under. In fact it's hard, even for a really minor thing like ear tubes. As for the menengitus(I think I just mangled the spelling, ) they are actually vacinating babies for that now as part of their immunizations so the risk of that is probably dropping. who knows. .

 

[jag]

I And the ones who couldn't handle the fact that their child is special, that needs a lot of attention are the ones that gives a child up for adoption, I have no respect for those parents. .

Personally I'd rather see such a selfish parent give their baby up to someone who really does want to deal with the problems. I'd rather they just go on with their lives without making the childs complete misery. Just my opinion.

 

[Angel]

I understand If the parent had to compromise then it would be later than 1 but best before 3. Although there are all kinds of operation that can be done on 6 months old baby. *shrug* Parents and surgeons doctors discuss to the best of ability and parent make decision. If doctors says more risk for this specific child of 6 months then postpone. so it varies but we know that the windows of opportunity close at 3 to 5 yrs old.

Thank you and I agree

 

[Angel]

And I cannot picture a 6 months old talking/hearing on telephones, understand speech, learn to talk, response to sound and to help predict his/her response to a cochlear implant.

:nods as agreeing: and some babies don't learn to speak until 2 to 3 years of age, and for that I don't see a point of waiting to get implant

 

[Angel]

I just get mad when I see parents yelling at their implanted kids for taking off the processor.

You mean you've seen some parents yelling at their children just for taking off the processor?