Its Not The Parents Fault....

R2D2 said:
According to the link that Boult cited there is still quite a window of opportunity after the age of 1. I personally don't think I could have a child implanted younger than that - there would have to be very compelling reasons for me to do so.
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I hear you, me too....
 
jag said:
Hi Angle, my youngest had tubes put in when she was around 18 months old (i think) She has down syndrome and very narrow ear canals. I think alot would depend on your ent/surgeon, we did go into the surgery knowing that he might 'not' be able to get them in place. He put the ones that stay in for a few years and they came out when she was around 6 or 7. She does have a hole in her left ear drum which is still there now and she'll be 17 this fall. They advised not repairing it because if she were to have problems that would cause pressure in the ear (allergies/colds etc) before it completely healed we'd end up with a bigger problem. Since she gets no infections despite swimming and washing hair we don't do anything.

I don't get why your sons dr. wanted to wait til your son was 5, unless your son was deaf? One of the reasons tubes are placed is to the child can hear better, the fluid muffles sound so hearing is effected, if there's infection tubes will usually help with that, tho as you said sometimes it doesn't, it's why I wonder why your dr. would put the procedure off if your child is hearing.

I know of a boy with down syndrome who would have the ones that only lasted about 6 months before falling out and he had narrow ear canals but he became very hmmmm crabby and would hit and stuff when he got fluid build up, took a couple times and his mom finally figured out that the first thing to check when he really started hitting alot was the ears. Narrow ear canals if normal for children with down syndrome and they get ear tubes for fluid build-up when very young.
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Hi,


Actually all my three children are hearing, and like I said, every situation is different, some doctors prefer to wait while the others do it when they're younger, so it's really what the result may be and the reason behind it all....:)

Thank you for sharing about your child's experiences with these tubes, it's always interesting hearing from another parents
 
^Angel^ said:
:nods as agreeing: and some babies don't learn to speak until 2 to 3 years of age, and for that I don't see a point of waiting to get implant
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Early implantation is not about early speech. It's about early hearing. A child that has just been born has allready heared several months in the womb. It will continue for another period before speech will start. For the profound deaf, implanted child, this proces will start after the operation.
 
Good point Cloggy. It takes babies about a year or so to talk. In that first year it's all about the intake of speech. When a dhh child gets their CI activated they are like newborn baby. That's why it takes time until they understand that speech has a meaning to it.
 
kayla123 said:
Good point Cloggy. It takes babies about a year or so to talk. In that first year it's all about the intake of speech. When a dhh child gets their CI activated they are like newborn baby. That's why it takes time until they understand that speech has a meaning to it.
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Exactly. I see my son lisping when my younger daughter speaks well. I can imagine him feeling exactly like Neo in the first Matrix movie when he gets his CI :rofl:
 
Cloggy said:
Early implantation is not about early speech. It's about early hearing. A child that has just been born has allready heared several months in the womb. It will continue for another period before speech will start. For the profound deaf, implanted child, this proces will start after the operation.
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I do know that Cloggy but waiting to be implant after a year old wouldn't hurt , I'm not going to allow my 6 months old baby to get implant just to hear ...Now I'm starting to see another light in this :squint:
 
^Angel^ said:
I do know that Cloggy but waiting to be implant after a year old wouldn't hurt , I'm not going to allow my 6 months old baby to get implant just to hear ...Now I'm starting to see another light in this :squint:
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I think it's pretty rare for babies to be implanted that young anyway so this is pretty hypothetical. Most cases I've heard of have been over 12 months, probably because it takes time to diagnose the magnitude of the hearing loss and also to try out aids.
 
R2D2 said:
I think it's pretty rare for babies to be implanted that young anyway so this is pretty hypothetical. Most cases I've heard of have been over 12 months, probably because it takes time to diagnose the magnitude of the hearing loss and also to try out aids.
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Thank you R2D2, I feel much better now :hug:
 
My daughter is 5 months old and has had hearing aids for almost 2 months. So far we have not seen much response with the hearing aids, but everyone involved stated that babies should wear hearing aids for at least 6 months before you can safely say they are not hearing anything. I may visit a cochlear implant center in the next few months to get information and discuss options. I'll let you all know what age they suggest implanting at.

Personally, I would not implant my daughter until she is 1. Even at 1, it's scary, I am not denying that. But I also read all the information about early implanting and it definetly makes a difference. I can't say what I will do yet, it's too early. I just know that whether I do it at 1, 2 or 3, the hearing aids are not going to help her much. She has a profound hearing loss so she is one of the children that most likely will not benefit from aids.

Great article Boult... I was actually given that article by the school for the deaf I take my daughter to.

As for tubes... my friends daughter had tubes put in at 8 months old. She had at least 15 ear infections before she was 6 months old. She wasn't hearing well at all, and was in so much pain. The dr's told her that she shouldn't wait to put the tubes in because she could have long term hearing loss if the infections continued. And the main reason, the little baby was in so much pain. She has been so much better since the tubes were put in.

There is so much to consider when it comes to hearing loss and implants. Please don't think any of us take this decision lightly, whether the child is 1, 5 or 20. It's still hard on a parent either way. We just have to do what we feel in our hearts is right, and that decision may be different for each person.
 
I agree - your post gives us a realistic idea of what the process is like for a parent of a profoundly deaf baby. Keep us informed, I would be interested to know what eventuates and which path you decide to take.
 
^Angel^ said:
I do know that Cloggy but waiting to be implant after a year old wouldn't hurt , I'm not going to allow my 6 months old baby to get implant just to hear ...Now I'm starting to see another light in this :squint:
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No, it wouldn't. There's nothing wrong with waiting another ½ year. Nor with another year. The child just won't hear sounds, and it will catch up later. But I doubt if your feelings would have changed after another 6 months?
So, for you, the same argument would count again, and ½ year becomes 1 year etc... and then 4 years.....
My point is that when the decision has been made to go for CI, and medically there's no problem, then 6 months is fine.
Let's just agree to disagree.
 
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