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R2D2 said:
It could be that your brain is protesting against the volume of the sound and needs more time to adjust after being so dormant to sound for so long. A couple of maps I found too loud and then I asked the audie to turn it down, which she did. Sound tolerance is built up over time - I think that if I were to have one of my first maps now I'd find it way too quiet. I remember I couldn't even hear cars to start off with.

I hope your audie is able to get you to a more comfortable level ASAP.
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Yeah, but I was tolerating sounds very well up til yesterday. Now everything is TOO LOUD.

I just spoke to a guy on my AIM buddy list who works for Cochlear, and he says that my clinic fucked up, that they should have waited the 4-6 weeks, that my audie fucked up, etc etc. That the 4-6 weeks wait is because of swelling in the surgical area, that the swelling is going down and the cochlea is getting smaller so its getting closer to electrodes, so everything is louder.

So I guess my CI is fucked up. IM PISSED.

FUCK THIS SHIT. I feel like bitchslapping everybody at the clinic upside the head. (no I won't actually do that.)

And I have this very annoying ringing in my right ear. I want it to go away right now!
 
Lucia

Maybe you can take it off and let your cochela heal for another couple of weeks. Maybe 3? And start from there with a light mapping?

I hope you're OK.
 
Wow! I notice something Lucia, that you had ur CI implanted on Oct 11th then had it activated on Oct 16th, pretty faster than other CIers, I noticed they had to waited like 4 to 6 weeks or so, maybe that's what troubling your CI right now. I hope they can fixed that problem, I'm keeping my fingers cross for you... Good luck! ;)
 
LuciaDisturbed said:
Yeah, but I was tolerating sounds very well up til yesterday. Now everything is TOO LOUD.

I just spoke to a guy on my AIM buddy list who works for Cochlear, and he says that my clinic fucked up, that they should have waited the 4-6 weeks, that my audie fucked up, etc etc. That the 4-6 weeks wait is because of swelling in the surgical area, that the swelling is going down and the cochlea is getting smaller so its getting closer to electrodes, so everything is louder.

...

And I have this very annoying ringing in my right ear. I want it to go away right now!
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Sorry to hear things are not so good right now especially with that loud tinnitus. There may be several reasons why you are having the trouble you are having right now. You really need to contact your CI center and explain what is going on and have them check out your maps. The electrode may be stimulating an area that needs to be turned off. Maybe there hasn't been enough time for your cochlea to settle down and it is "rebelling" at the moment. Perhaps, you need another mapping and turn down the level like R2D2 said.

Hang tight and we are thinking about you!
 
aww I hope you can get thru this. wait n see your audiologist and see what they said about that. maybe too early like the person u talked to aim on said it is. i dont know cuz i dont have ci myself.. i would be pissed too. grrr.. :hug:
 
Lucia, so sorry to hear you're going thru this experience -- hope today went better for you and that you were able to get some help. :hug:
 
Lucia,

I am so sorry you are dealing with this!! Were you able to speak to your clinic, did they attempt to help you at all today?

Good luck with everything.
 
Just wanted to say I hope the audiologist was able to reassure you that nothing is wrong with the CI.

I think that while your friend's explanation that as the swelling goes down the electrodes are closer is a good one it doesn't mean that something has been damaged. It basically suggests that you were mapped in such a way that became no longer appropriate for you as the swelling went down. This of course can be changed. This is the good thing about the versatility of CIs.

I agree with the others that perhaps giving it a rest for a couple of weeks and starting a new map from scratch might be the best way to go. Or at least, if you can't stand to be without sound, increasing the frequency of maps in order to keep up with the changes in the brain.

Many of us here are activated from 2 weeks onwards. I was activated at 3 weeks and this is standard across Australia (the home of Cochlear). So while you may have been activated a tad too early it's not so terribly off the radar if you know what I mean.

I hope you get some answers soon Lucia. You sound so upset :(
 
Lucia, hmm, I read your rant first as it appeared on "new post list" then this thread. now I see what was the issue. but still like I said before, I wished you had the map that you could revert back to if the other three are no good.

Hopefully, on wednesday, you would be able to adjust the comfort and threshold as well as loudness properly so next few days as your ear heal more, it will be still comfortable.

I expected that new implantee will experiences sound disappearing (fading) over the time due to increasing tolerance of threshold and loudness. like for example raising the db level from higher number to lower number like(from 50 dB to 30 dB).

I hope it will be resolved on wednesday in your audie visit.
 
R2D2 said:
Just wanted to say I hope the audiologist was able to reassure you that nothing is wrong with the CI.

I think that while your friend's explanation that as the swelling goes down the electrodes are closer is a good one it doesn't mean that something has been damaged. It basically suggests that you were mapped in such a way that became no longer appropriate for you as the swelling went down. This of course can be changed. This is the good thing about the versatility of CIs.

I agree with the others that perhaps giving it a rest for a couple of weeks and starting a new map from scratch might be the best way to go. Or at least, if you can't stand to be without sound, increasing the frequency of maps in order to keep up with the changes in the brain.

Many of us here are activated from 2 weeks onwards. I was activated at 3 weeks and this is standard across Australia (the home of Cochlear). So while you may have been activated a tad too early it's not so terribly off the radar if you know what I mean.

I hope you get some answers soon Lucia. You sound so upset :(
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Yeah I was finally able to get ahold of my audie and told her what happened. I am going in on Wednesday and we will try to fix it. I really hope it's just a case of needing a new map. I was scared because I didn't really know what to expect...it just upset me so much. I am not wearing my CI now because the sounds are so loud its unbearable. I miss my sounds. :(
 
Everything will be fine Lucia, I hope my message made sense. as i said I had (and still have) Lilly using me as a jungle gym while I type.
I feel so bad about all of your worrying :(
 
Lillys dad said:
Everything will be fine Lucia, I hope my message made sense. as i said I had (and still have) Lilly using me as a jungle gym while I type.
I feel so bad about all of your worrying :(
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You made perfect sense. Again, Lilly sounds cute! I feel better now. :)
 
Good Luck!

Good Luck at the audies on Wednesday, Lucia! Thanks for posting about your experiences with the CI. I am not quite ready for one myself but at some point I will be. It helps to know what to expect.
 
LuciaDisturbed said:
Yeah, its not the telecoil like I originally thought. Things are TOO loud, I don't like the way things sound. Everything was just fine til yesterday. I am back to P1 and its still TOO loud, I have it on volume 1 and still too loud. I'm just gonna have to see my audiologist ASAP. Thanks for your efforts, though. Goodnight!
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Hi Lucie, sorry to hear this. Since you've tried turning down volume do you also have sensitivity on really low? Making your bubble really small might help. Also do you have a t/m setting? after my first 2 weeks which nearly drove me insane my audie put the t/m on and I used that when I went out for my walks, I still heard the traffic but the wind sounds were diminshed. Actually I've found that now I can basically leave the vol set at 8 or 9 and just play with the sensitivity to get the correct sound and background noise combo. Cool.

I do not use the last 2 electrodes, 21 and 22 I believe, they really give me a buzz. :) When I get through with the clinical trial thing I'm participating in I might have her attempt to activate them again, but set really low.

I do know tha occasionally I feel like there is some static sound in the electrode part. But then I'm not sure if it's my internal piece or if it's the cars speakers. :)

OH and to add, my first set of maps was 3 differnt hrtz, I was supposed to try them and then went back 2 or 3 weeks later. They almost drove me nuts, there was no t/m setting they were all open programs I think and I had a heck of atime trying to get the sensitivity and volume at a good setting. So your going back is good, my audie told me I should have called and come in earlier at least you're doing that.
 
I do not have sensitivity on any of my maps, my audie had that turned off. I'm gonna ask her to put it back on. I have m/t but still too loud.

jag said:
Hi Lucie, sorry to hear this. Since you've tried turning down volume do you also have sensitivity on really low? Making your bubble really small might help. Also do you have a t/m setting? after my first 2 weeks which nearly drove me insane my audie put the t/m on and I used that when I went out for my walks, I still heard the traffic but the wind sounds were diminshed. Actually I've found that now I can basically leave the vol set at 8 or 9 and just play with the sensitivity to get the correct sound and background noise combo. Cool.

I do not use the last 2 electrodes, 21 and 22 I believe, they really give me a buzz. :) When I get through with the clinical trial thing I'm participating in I might have her attempt to activate them again, but set really low.

I do know tha occasionally I feel like there is some static sound in the electrode part. But then I'm not sure if it's my internal piece or if it's the cars speakers. :)

OH and to add, my first set of maps was 3 differnt hrtz, I was supposed to try them and then went back 2 or 3 weeks later. They almost drove me nuts, there was no t/m setting they were all open programs I think and I had a heck of atime trying to get the sensitivity and volume at a good setting. So your going back is good, my audie told me I should have called and come in earlier at least you're doing that.
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Eh, I'd probably wait a little bit before wearing the CI... but I hope your audilogist keeps the map really light if you really want to wear it right away.
 
LuciaDisturbed said:
I do not have sensitivity on any of my maps, my audie had that turned off. I'm gonna ask her to put it back on. I have m/t but still too loud.
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Oh, I just thought that sensitivity is was on any map....just the auto had to be programed in....it must be a difference in how a center activates things I guess. I know I had both s and v on my first day of activation. Doesn't mean I got how to work the things but they were there. :) Now it seems so simple to work them. I think after 6 months I've finally got it.

Oh when you get new maps and have the sensitivity option on them remember that when you get to the top or bottom of the 'selections' you'll hear a beep and the beep sounds differnent then the beep going up or down. to me the moving up or down is a beep the last one is more of a bloop. From there you can increase or decrease to get to where you want without having to take it off and look at it. Good Luck and I hope you get things straightened out tomorrow.
 
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