dont know what to do anymore!

Dino65 said:
Due to Benign Paroxysmal Positional Vertigo (BPPV) and Meniere's disease - I can't wear my hearing aids often. I got the first diagnosis in 91' . I got it back in 88 which I didn't know.

While wearing my hearing aids, I get vertigo and hear the uncomfy sounds. I get tinnitus without wearing them. It is frustrating. It is very annoying and non-stopping. Right now The digital hearing aids seem to be better for me. The Analog ones are useless for me.

Alicia you are not alone .. I am in the same boat as you right now. I am working on to get a new neckloop (telecoil) to listen the music at my bedtime only. Hopefully it will help me. The Direct Audio Input/Cable is not working -- will replace with the different one. My hearing loss is profoundly. Cut down salt as you can. Drink H20 often -- cut down cheese, soup (high sodium!) and.. stresss too. Good luck .. Next time can you call the doctor office by yourself with the VP or Relay Operator? I am sure your mom doesn't fully understand your tinnitus and hearing loss. My family doesn't but my mom gets the picture bec she has gotten vertigo every now and then due to aging.
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BPPV does not effect the cochlea (hearing portion). It is strictly a disorder of the semi-circular canals and only becomes prevalent when you put yourself in a certain position (laying on your left side, tilting head back, ect). Meniere's on the other hand does affect your hearing, which is one of it's characteristics. Fluctuating sensorineural hearing loss, tinnitus, feeling of fullness, true rotary vertigo that can last hours. However I have never seen nor read about hearing aids provoking a meniere's attack. Who told you that they would?
 
Blazing Sunset said:
I thought Meniere's disease has no association with the hearing?
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Most ENT's will not classify someone with Meniere's without a fluctuating SNHL, so yes, it is very much a part of the disease. Without a hearing loss they will likely classify the Vertigo/fullness as vestibular hydrops or labryinthitis.
 
SteveAUD said:
BPPV does not effect the cochlea (hearing portion). It is strictly a disorder of the semi-circular canals and only becomes prevalent when you put yourself in a certain position (laying on your left side, tilting head back, ect). Meniere's on the other hand does affect your hearing, which is one of it's characteristics. Fluctuating sensorineural hearing loss, tinnitus, feeling of fullness, true rotary vertigo that can last hours. However I have never seen nor read about hearing aids provoking a meniere's attack. Who told you that they would?
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Yeah I know the difference between BPPV and Meniere's It is quite complicated! I have both diagnoses .. fun huh? not.

Exactly I don't think they haven't researched on hearing aids that causes a meniere's attack. There is a hearing guy who has Meniere's disease I spoke with last summer. He despises hearing the strange sounds. He wants to "shut it off" his hearing but he can't (bec he is hearing!) Similiar to my case -- I hate hearing the "echo" and odd sounds. It also makes me dizzy. Nothing I can do but turn it off. Blessed that I am Deaf but at the same time ugh ... The problem is the tinnitus creeps back out again after I take off my hearing aids! So no one has told me this. I knew myself all thru years. I can see the big difference myself and it is no fun.
 
today...

lilitalia89 said:
k so my appt got rescheduled to friday at 8:30 am...My mom is ridiculous she was telling the lady that i need an appt cuz by accident they gave it away etc. and that i need to be referred to a new audi/ent cuz im turning 18 soon n i go to CHEO a childrens hospital...so she tells them that i have tinnitus and ringing etc and doenst even explain it right and then doesnt mention that i also have hearing loss...shes making me mad..its like she's choosing not to believe i can't hear properly..its ridiculous...so im not in the greatest mood at the moment...:(
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So i had my appt and i can now say that i hate doctors just a bit more than i did b4...so i got another hearing test and my left is still in the "normal range" and the right they say is borderline..i would like to know who the heck comes up with what is borderline..cuz as far as i can tell everyone has diff hearing probs no? so what is borderline for one can be diff for another?! i dunno..im mad..my mom didnt even discuss with the ent about my hearing so there goes me trying to see if ha's work, cuz they dont think its a problem...and the tinnitus, well there giving me some type of medication that is spose to help it...ya we'll see...im really mad tho, i dont understand what the problem is with just trying to see if ha's work, its ridiculous and not fair...so i have to suffer becuz my doctors r stupid and my moms thinking vainly and she is trying to deny the fact that i have hearing loss...

so vented..feel a lil better..but still mad at the whole fact that ppl are that inconsiderate of how others feel and hear..or lack there of...
 
lilitalia89 said:
So i had my appt and i can now say that i hate doctors just a bit more than i did b4...so i got another hearing test and my left is still in the "normal range" and the right they say is borderline..i would like to know who the heck comes up with what is borderline..cuz as far as i can tell everyone has diff hearing probs no? so what is borderline for one can be diff for another?! i dunno..im mad..my mom didnt even discuss with the ent about my hearing so there goes me trying to see if ha's work, cuz they dont think its a problem...and the tinnitus, well there giving me some type of medication that is spose to help it...ya we'll see...im really mad tho, i dont understand what the problem is with just trying to see if ha's work, its ridiculous and not fair...so i have to suffer becuz my doctors r stupid and my moms thinking vainly and she is trying to deny the fact that i have hearing loss...

so vented..feel a lil better..but still mad at the whole fact that ppl are that inconsiderate of how others feel and hear..or lack there of...
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Best for you to talk with your doctor alone .. less confusing etc. Many years ago (I was in college) .. My mom drove me to the audiology place because I didn't have a driving license therefore I was unable to drive. The male audiology asked my mom to join us to discuss my hearing loss. He uncovered my hair and checked if I have my hearing aid on without asking me first! Ugh ... Anyway .... I suddenly became left out. They both yap yap yap behind my back. Finally I asked my mom to sit in the waiting area but she insisted that the guy asked her to join us. I explained to her .. it is not her hearing test appointment. We ended up fighting. After my mom left -
(whew finally) I went ahead and took a test but at the meantime I was very unhappy and not comfy La la la. A few weeks later I received a new hearing aid but it turned out it is the wrong kind! I barely couldn't hear the sounds! That hearing aid is used for mild to moderate hearing loss. Mine is profound. I understand you are a minor -- best to explain to your mom how you feel. The appt is all yours! You are the only one know your hearing loss. Not anyone else. Good luck.

My mom still doesn't understand my hearing loss, tinnitus, and many more. She is not in my shoes. She gets the picture of the vertigo bec she has one too. She got it a few years ago as she is getting older.
 
Alicia,

I'm sorry about the news you received. :( As for the hearing test, your audi and/or ENT probably determined the extent of your hearing loss based on the pure tone hearing test that you were given.

I have a question for you: By "borderline," do they mean that your hearing loss falls between "normal" and a mild loss? If so, one of the reasons your audi and/or ENT may not have recommended HAs is because when a person's hearing loss is normal to mild or mild (as opposed to mild to moderate or worse), there aren't alot of frequencies that need to be amplified. Wearing a HA in an ear that does not require amplification can cause pain (due to the amplification/loudness) and end up damaging one's hearing to some extent. (I have a friend with mild hearing loss who has been trying to get HAs for the past 2 years and this is what her audi said to her.) Having said that, this isn't true for everyone with mild hearing loss. I know a few people with mild losses who wear HAs, experience absolutely no pain and report good success with them.

Were you given a HINT (hearing in noise) test? That test can give your audi and/or ENT a clue as to the problems you are experiencing hearing in noise.

Please don't take this the wrong way, but the next time you see your audi and/or ENT, tell them about your hearing loss *yourself*. Since your mother isn't hearing through your ears (and seems to be in denial about your loss), it might be helpful if you can explain what kind of difficulties you are having.

What kind of medication did they give you for tinnitus? When I talked to my CI surgeon about my tinnitus, he said there was no medication available to help relieve or cure tinnitus.

Perhaps you can go back to your audi and/or ENT in 6 months for another hearing test. I'm not an audi, but given the problems you've described with your hearing, it seems like a HA could help -- especially in your right ear.
 
ya i had a hint test on friday and they still said that. My hearing loss is between 35-40 dB in the right ear and the other i think is a between 25-30?I also explained what sounds i have trouble hearing and the probs ive been having with my fm system...and how much trouble it is to hear in background noise and they still had "no solution" cuz my hearing is still "normal"...o and also not sure about the medication that there giving me and I highly doubt it will work either...but we will see i guess..I dont understand how an audi can go with the everything they get with a test. people dont talk beside your ear so how do they expect to do a hearing test with beeps beside ur ear drum in ur ear and expect to get the same thing at the same dB with someone 5 or 6 ft away?! i dont think it makes sense...they say all these factors sometimes hinder your hearing like lighting, seeing lips, mouth being blocked, people not looking in your direction when speaking..how come there arent factors put into a hearing test?!..***frusterated***
 
Alicia,

I totally understand your frustration.

It would be nice if a person could be tested in a real world environment. For example, how about taking someone outside on a busy street corner to evaluate how well they hear? How about having a conversation with them in a quiet room at a distance of 5 feet or more to determine how well they can hear from a distance?

Steve is an audi on AD. Perhaps he'll see this thread and can explain why hearing tests aren't conducted in the real world. The only explanation I can think of is that one cannot control the environment to ensure noise levels are the same for everyone who is tested.
 
lilitalia89 said:
ya i had a hint test on friday and they still said that. My hearing loss is between 35-40 dB in the right ear and the other i think is a between 25-30?I also explained what sounds i have trouble hearing and the probs ive been having with my fm system...and how much trouble it is to hear in background noise and they still had "no solution" cuz my hearing is still "normal"...o and also not sure about the medication that there giving me and I highly doubt it will work either...but we will see i guess..I dont understand how an audi can go with the everything they get with a test. people dont talk beside your ear so how do they expect to do a hearing test with beeps beside ur ear drum in ur ear and expect to get the same thing at the same dB with someone 5 or 6 ft away?! i dont think it makes sense...they say all these factors sometimes hinder your hearing like lighting, seeing lips, mouth being blocked, people not looking in your direction when speaking..how come there arent factors put into a hearing test?!..***frusterated***
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Interesting.. A loss of 30 db isn't normal hearing at all !!! You have a mild loss and this may require wearing hearing aids at some situations.
 
Highlands said:
Interesting.. A loss of 30 db isn't normal hearing at all !!! You have a mild loss and this may require wearing hearing aids at some situations.
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thats what i thought too! and you'd think since my current ent and audi are CHILDRENS doctors they'd understand that younger people as well as everyone, but people who are still learning need to HEAR things as well as see etc. but nooooo i guess im not important enough and my loss doesnt merit any positive plan of action!
 
Highlands is right. A mild hearing loss is between 25-40 dB which means you have mild loss in both ears.

Have you thought about seeing another audi and/or ENT? I'd get a second opinion if I were you.
 
Hear Again said:
Highlands is right. A mild hearing loss is between 25-40 dB which means you have mild loss in both ears.

Have you thought about seeing another audi and/or ENT? I'd get a second opinion if I were you.
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I actually have to get a new ent/audi anyways so im being referred to a new one since i turn 18 in april and am no longer allowed to go to the childrens ent audi anymore...
 
Alicia,

Hopefully when you do see a new audi/ENT, they will recommend HAs. When the time comes, let us know how everything turns out. Perhaps the third time will be the charm! :)
 
SteveAUD said:
Most ENT's will not classify someone with Meniere's without a fluctuating SNHL, so yes, it is very much a part of the disease. Without a hearing loss they will likely classify the Vertigo/fullness as vestibular hydrops or labryinthitis.
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SteveAUD:

Interesting! Thank you! :)
 
ABout tinnitus..whenever it goes worse.. I always buy this tinnitus pill at Walgreen.. They do kinda help it go away or lower the noise... Just gotta keep taken them.
 
lilitalia89 said:
Tinnitus pill?since when???
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The pills are called *Clear Tinnitus*. They work on some people.. but they had work on me and my older sis whenever we have this loud ringing noise. It seem to stop it or lower the noise for me and my sis. I pay abut $18 for them.. They do have a diff kinds but i never try it cuz it even more money like $30 something.
 
Is this it?

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