Designing A Hearing Baby

[Cloggy]

...............
I wouldn't be surprised if there's another advanced technology comin' than CI's ... meanin' somethin' else they invent better than CI.. gee, it would be wasted for those who want somethin' new. Let's just say for example:

First, people bought Nintendo and then, when a new game technology comes, there's Playstation and, then Playstation 2 and then 3 and so on... and now there's Wii. The CI will do the same thing in the near future and I think it is foolish to replace somethin' else repeatly in every time when somethin' new comes up. So such a waste ! I think it is too much.

Well, at least that's a new argument..

So, you compare CI, around before most of the computers, with computergames that are changed out every 5 years.
Actually... it's a good comparison.
Look at how fast technology is going ! !
New developments make it possible to upgrade systems constantly. New software making the system better every time. Imaging the difference between a CI 10 years ago and a CI now. And the beautiful thing is: the electrode under the skin is capable of following the trend for a long time. When the processor is upgraded (remember... PS-1, PS-3, PS-3, WII etc) the processor with the electrode can be upgraded as well.
That's wonderful news. Glad you brought it up...

You say - "such a waist" - but what kind of computer are you using.
Please tell me you are using the computer from 10 years ago, because you seem to think all the upgrades are a waist..
So, tell me please - what kind of computer are you using?

 

[Liebling:-)))]

The implant is not always successful. What then?

Unfortunlately yes!!! It doesn´t work on some CI users. They shared their experiences with me in real life. I posted the stories about them in some threads. Some CI users are also members here & other forum as well and share their experiences. Unfortunlately, their posts are being ignored which is really sad.

 

[Liebling:-)))]

The whole point is that you have to teach a deaf child to hear.
And if you think that exposing a child to ASL is the easy way out, you have no clue what it is to raise a deaf child in a bilingual environment. If you think changing a home environment to accommodate the deaf child by learning a new language, making sure that all environmental sounds are made visual, and making sure that all communication is visual is easy, you are woefully uninformed on the issues. I take it you are not a parent, and are also post lingually deafnened.

Excellent post!!!!

I would like to share my knowledge about my friends who wear HA all in their life since they were 6 months old since you mentioned "The whole point is that you have to teach a deaf child to hear."

My friend´s parents wear her and his brother HA as soon as they can after found out they are deaf when they were 6 months old. They speak like HOH and can phone with no complication. (I repeated it in my previous posts in several threads - unfortunlately my posts about them are being ignored). They thank their parents to have their time to teach them and show them to hear the sounds with HA... My friend is now 48 years old and speak like HOH/hearing. They rejected my suggestion to consider CI and said that they are happy what they are. I learned from some friends, I met at 5 weeks spa last year and must say that I am really glad that my friend & her brother rejected my suggestion over CI issues. Some can speak like HOH as they wear HA all their life... It´s not necassary to have surgery to hear better.

A lady, I met at Spa last year - she was HOH all her life and can hear anything with HA.... and can phone... until the doctor influenced her to consider CI to hear better... Guess what? She lost her HOH to CI due different sounds after CI surgery. It took her 6 years to train to hear/understand the sounds after CI surgery. She recommend anyone that if anyone who lost their hearing to 100% then is right for CI surgery, not few % HOH... but 100%

I would do the same as my friends´s parents if I found out my child is deaf instead of "rush" to consider CI...

 

[Cloggy]

No, my old doctor recommended them to use HA and sent me to a private school to learn how to talk. My parents don't know what to do at that time when they discovered that I was deaf. When I reached the age of 11 years old, my old speech therapist told my parents that I was close enough to become HoH. I was only 11 years old ! Can you imagine that ? I was wearin' HAs ( both ears ) for 8 years. If, I continue wearin' them, then I will become HoH at the age of 21 for sure. That HAs worked and soo much better than CI since I don't like the idea of usin' knife and carvin' up on the baby's head at that tender age. My head is still good and healthy without touchin' nerves. I don't need complications and that will save my parents from heartaches.

Amazing... I just explained to you that .. if you can hear with a HA, you don't need a CI. It is not the choice between one or the other.
My daughter could not hear with a HA.!!
So, YOU do not qualify.
Are you so against CI because you do not qualify? Is that it?

Why can you not be happy for deaf children that can hear with a CI - like you can hear with a HA??

Video: Have a look at Lotte's website. Look for a video there....
Ah, what the hell. With your non-upgraded system it might take a while... here's a link...

 

[Liebling:-)))]

Yeah ! I know ME through my own experience as bein' deaf. I want to share my experience. I prefer " deaf " rather than usin' CI to make me to hear. I don't think it will work that way. CI is NOT my first language. CI is not " hands " to learn ASL. CI is for " voice " and THAT voice is not ASL. That's different.

That ASL is for the eyes to read and understand through the hands, not CI.

I wouldn't be surprised if there's another advanced technology comin' than CI's ... meanin' somethin' else they invent better than CI.. gee, it would be wasted for those who want somethin' new. Let's just say for example:

First, people bought Nintendo and then, when a new game technology comes, there's Playstation and, then Playstation 2 and then 3 and so on... and now there's Wii. The CI will do the same thing in the near future and I think it is foolish to replace somethin' else repeatly in every time when somethin' new comes up. So such a waste ! I think it is too much.

This is a prefect example and comparison.

 

[Liebling:-)))]

Amazing... I just explained to you that .. if you can hear with a HA, you don't need a CI. It is not the choice between one or the other.
My daughter could not hear with a HA.!!
So, YOU do not qualify.
Are you so against CI because you do not qualify? Is that it?

Why can you not be happy for deaf children that can hear with a CI - like you can hear with a HA??

Video: Have a look at Lotte's website. Look for a video there....
Ah, what the hell. With your non-upgraded system it might take a while... here's a link...

I hope you don´t mind me to ask you some questions since you mentioned that HA doesn´t work on your daughter. Yes I read your website about your daughter but I didn´t find where I can read. I am here to ask you question... Can you link me some to match my questions here if I might overlook it?

Can you please explain why HA does not work on your daughter?

How old your daughter was when you & your wife found out about her deafness?

How old is your daughter when she first wear HA?

How long your daughter wear HA before have a CI surgery?


The reason I am asking because many parents are being influence by the doctors that CI is better & sucessful with hear fast than HA which is not all true. Look at some parents are disappointed that CI doesn´t work on their child.

To me, it´s mainly important is take time and patience if the parents really want to help their child instead of "rush" their child with surgery because they think CI is fast and easier than HA.

 

[Liebling:-)))]

I know that. But that doesn't mean EVERYONE wouldn't mind the parents decision of NOT implanting. Just because Maria doesn't mind doesn't mean all of deaf or HoH people feel the same.
As for me - I accept who I am but if I was offered a chance to hear better I would take it.
How about you - if you had choice, would you rather hear or be deaf? be honest.

Fuzzy

Maria never say EVERYONE but herself. I see nothing wrong when she want to share her own experience and opinion. I must say that Maria is not first person who says this.

Anyway, remember that each person entitle his/her own POV and see what they beleive in.

Well, for me... - I accept what I am for a long time. My parents positive me about deafness that´s why I don´t hate about myself and deafness. I guess I would complaint or unhappy about hear again when I received negatives over deafness but I was raised to receive the positive about deafness that´s why I really never, never thought about want to hear. I am happy with HA, I had for years until I quitted to wear HA at 20 years ago. I am happy with no complaint.

My parents went to doctor for advice after found out I am deaf when I was one year old. The doctor advised them positive way about deafness, that´s time CI was not around. Deaf school, sign language, learn speak, etc... They do not need to worry because I can do anything like hearing people except hear... - train to hear with HA...

Now the doctor advised the parents to consider CI ... Is it too simple for the doctor to give the parents at present time?

I asked my Dad last year about CI issues... I was like when Dad told me that he would of implant me with CI after learn from doctor at present time. I asked him why? He said that he like to whisper my ear... *mmmhhh*

 

[shel90]

Maria never say EVERYONE but herself. I see nothing wrong when she want to share her own experience and opinion. I must say that Maria is not first person who says this.

Anyway, remember that each person entitle his/her own POV and see what they beleive in.

Well, for me... - I accept what I am for a long time. My parents positive me about deafness that´s why I don´t hate about myself and deafness. I guess I would complaint or unhappy about hear again when I received negatives over deafness but I was raised to receive the positive about deafness that´s why I really never, never thought about want to hear. I am happy with HA, I had for years until I quitted to wear HA at 20 years ago. I am happy with no complaint.

My parents went to doctor for advice after found out I am deaf when I was one year old. The doctor advised them positive way about deafness, that´s time CI was not around. Deaf school, sign language, learn speak, etc... They do not need to worry because I can do anything like hearing people except hear... - train to hear with HA...

Now the doctor advised the parents to consider CI ... Is it too simple not like the doctor advised my parent at my time?

U know it is funny...10 years ago, I would have probably had the same view as Audio fuzzy but since learning ASL, I view the same as u and learned to adapt without being able to hear well. Growing up up until 10 years ago, I hated my deafness and it was my dream to hear normally but now that dream has changed thanks to learning ASL. I am just more appreciative of what I have instead of focusing on what I dont have. I cant hear..no biggie and not the end of the world. There are far worst things in life, in my opinion.

 

[jillio]

Eh... what was that a few posts back about resorting to personal insults?

No, I am just someone who you can't talk down and has the experiences you can't refute and you can't stand that.

Match experience, let's see I've raised a child with a cochlear implant 24/7/365 for over 18 years and been actively involved with ci people for almost 20 years. You can't even understand the fact that for profoundly deaf people the loss of residual hearing is a non-issue as it is the very reason why they are eligible for cochlear implants. Don't need credit from you for it is worthless.

nitey-night

PS Still waiting to learn about that surgical procedure that makes deaf children hearing. Also how we made our hearing daughter deaf through lingusitic restrictions.

Exactly, rick. Your experience is limited. And your mind is so closed that you are incapable of recognizing exactly how limited your experience is.

Your comment re: residual hearing...quite obviously you have no understanding of the way in which residual hearing can and does operate inthe individual, nor of the many variables that affect its functional use.

I've already explained the PS to you. And I explained that you did not make your daughter deaf, not is she hearing. She is deaf with a CI. And you did not make her deaf, she acquired her deafness prelingually. You simply managed to restrict her opportunities through linguistic restriction.

And, given your examples, you have a lot of catching up to do if you want to match my experience, knowledge, and education. Better get started.

 

[shel90]

Exactly, rick. Your experience is limited. And your mind is so closed that you are incapable of recognizing exactly how limited your experience is.

Your comment re: residual hearing...quite obviously you have no understanding of the way in which residual hearing can and does operate inthe individual, nor of the many variables that affect its functional use.

I've already explained the PS to you. And I explained that you did not make your daughter deaf, not is she hearing. She is deaf with a CI. And you did not make her deaf, she acquired her deafness prelingually. You simply managed to restrict her opportunities through linguistic restriction.

And, given your examples, you have a lot of catching up to do if you want to match my experience, knowledge, and education. Better get started.

My dB level is 120 in both ears but I rely on the little residual hearing I have heavily to communicate with hearing people. Without my HAs, I cant hear cuz my hearing loss is so severe. However, many audis I have encountered get shocked by how well I use the little residual hearing I have. I guess I was wired to a more auditory approach than my brother was. LOL!

 

[jillio]

My dB level is 120 in both ears but I rely on the little residual hearing I have heavily to communicate with hearing people. Without my HAs, I cant hear cuz my hearing loss is so severe. However, many audis I have encountered get shocked by how well I use the little residual hearing I have. I guess I was wired to a more auditory approach than my brother was. LOL!

Exactly. My son, even though 120dB in the right ear, and 110dB in the left ear, is able to use his residual hearing as you do. But it could not be determined how well he would be able to use that residual hearing until he had been aided for quite a while, and reached the developmental stages necessary to demonstrate that. Whether or not a deaf child will be able to use their residual hearing is not something that can be determined in 2 or 3 months, and it is very dependent on the individual. By contrast, there are people with more actual residual hearing than either you or my son have, and they cannot functionally use it as well.

 

[Liebling:-)))]

It is not shel's business to determine the usefullness of a CI or the reason why the child may or may not be wearing them. It is her buisiness to educate those children no matter what their hearing status. It is the parents job to determine the rest, along with those experts they put so much faith in.

Exactly

 

[Liebling:-)))]

Oh please don't! they'll put us on double secret probation!

I'll get to your latest round of gibberish later but BTW my daughter was not born deaf, get your facts straight and stop spreading lies. Typical Jillio, just make it up to fit your argument, Shel will just agree with you later anyway.

And she doesn't need a "pen and paper" to communicate with the over 99% of the country that does not know ASL, she can just talk to and with them--much better method.

What is that surgical procedure that makes a deaf child hearing? A hackey sack implant? How has my hearing daughter been made deaf through linguistic restrictions?

Still "all ears"

*scratch my head*

 

[shel90]

Exactly. My son, even though 120dB in the right ear, and 110dB in the left ear, is able to use his residual hearing as you do. But it could not be determined how well he would be able to use that residual hearing until he had been aided for quite a while, and reached the developmental stages necessary to demonstrate that. Whether or not a deaf child will be able to use their residual hearing is not something that can be determined in 2 or 3 months, and it is very dependent on the individual. By contrast, there are people with more actual residual hearing than either you or my son have, and they cannot functionally use it as well.

Right...

 

[jillio]

Who is "refusing".??? If our daughters do not feel the need for sign... who are you to force that upon the child - or parent...

You asked me a question, cloggy and I answered it. And in response to your question, how is exposure to sign sothat the child might relyt on it when needed forcing anything on anyone. If you expose the child, they can make the choice to use it for comprehension or not. Just because its there doesn't mean they have to rely on it at all times. But if you don't provide it, you are focing the child to rely on what is available...oral only. You have take a choice away by not exposing the child to the visual cues that could very well be the difference between complete understanding and partial understanding. And that has great implications for that child's ability to develop critical thinking skills.

Now, how about if you go back and answer all of the questions I have asked, rather than selecting only those you think you can twist in an attempt to discredit?

 

[shel90]

*scratch my head*

LOL! It doesnt make sense to me either.

 

[Liebling:-)))]

Do I care why their CI are not benefitting them? To be honest , not really cuz I care more about their language development and literacy skils than their ability to hear.

Some u seem to not like it that I posted about working with children that don't benefit from their CIs without stating the real reason. Too bad cuz that is a fact. iam not an audiologist so iam not trained in the area of the mechanics of the CIs.

All I care is about the children's academic and social well being. I tried asking about the reasons for the CIs not working and all I got were "don't know" so I gave up asking.

I agree with you 110% on this...

Yes, training to hear and speak is audiologist´s job task, not teacher.

Yes, you are teacher and educate deaf children to develop with their writing skill, social, languages, use sign language to help them to understand easy, focus their behavior etc.

I am very lucky that I have teacher who can sign and make me easy to understand what she said and make me moviation. I visited audiologist in school twice a week to have speech therapy.

Opposite to my hubby, he was raised oral and went to oral school - sign language forbidden. My hubby described his feeling... It was stress for him to watch his teacher´s lip with his own eyes to neglect his writing skill and his moviatation, etc... That´s same school, my hubby visited is allow deaf students to use sign language... wow... My hubby´s mother negative him about his deafness which is really sad... My hubby learn from me since he married to me and know what really he is and what he really want.

 

[jillio]

LOL! It doesnt make sense to me either.

Add me to that confused group.

 

[jillio]

Unfortunlately yes!!! It doesn´t work on some CI users. They shared their experiences with me in real life. I posted the stories about them in some threads. Some CI users are also members here & other forum as well and share their experiences. Unfortunlately, their posts are being ignored which is really sad.

I know, Liebling. Soem people don't want to hear about the real life situations, because they can't bear to face the fact that everything is not wonderful and perfect. They just refuse to listen to anything but the positive. It reminds me of when my son was small, and I would be correcting him on his behavior in sign, and he would close his eyes so he didn't ahve to see what I was telling him!

 

[deafskeptic]

Add me to that confused group.

LOL, I think I'm in this group too.