Cochlear Implant is death sentence to your health!

Cloggy said:
Such rubbish...

A bit like "now, now. You just let me worry about that. I'm deaf and you're hearing.... I know best". Patronizing indeed..
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Hardly the same at all. Butit doesn't surprise me that you would fail to notice the difference.
 
lilylover72 said:
Doctors dont always tell a truth.
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Exactly!!!!!!!!!!!!!!

He influenced HOH person to get CI. After CI surgery, she can´t understand the difference sounds between original HOH and CI anymore... It took her 6 or more years to train to hear the sound... She told me herself at Spa resort where I was stayed for 5 weeks at 2 years ago. We were recommended to get CI unless we lost our hearing to zero, not HOH...


We met a hearing mother and deaf toddler at spa resort where my hubby attended for 4 weeks last weekends. Surprisely, she told us that the Experts recommended her to attend spa resort to collect experience on cons/pros between HA and CI, not just listen only doctors... :eek3: We feed her decision with cons and pros... She accept both sides between Experts and deaf culture before she is able to make her decision either she wear her son HA first or CI straight way? Most of us told her our opinion and explain her why... We will respect if she decide for CI on her toddler which we personally disagree to this.

One guy, we also met at my hubby´s spa resort, too. We made nice converstion last Saturday. He lost his HOH to zero and took it very badly. The doctors convinced him that CI is the best method to help him to hear again... but the Experts told him to not do that yet and recommend him to go Spa resort to make his own decision, not listen anyone. The Expert at Spa resort convinced him that it would be negative on him either after CI surgery if he thought negative a lot... There´re a form of grieving for lost his hearing... then CI surgery is no good... First of all, he MUST cope his grieving first and think positive then able to make decision either he consider to have CI or not. He was already 6 weeks in Spa resort before my hubby attended there. I asked him what he thought about CI. He said that he finally accept what he is and still doubt about CI... He heard about special techology about HA and would try it... If it doesn´t work on him then he will consider CI. Wish him best of good luck.
 
Cloggy said:
Not my experience.
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It´s good for you.


However, If only Deaf culture would provide correct information...
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.

Why can´t you accept their experience when you have good experience which they doesn´t? It doesn´t mean that they mislead the information when they have their own experience or collect people´s experience.
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HA HA ..NAD research CI ?? Now that is funny

Brian said:
Maria, I don't believe it is necessary to pay attention and do some research. We have advocates like NAD doing that. If it is very urgent, they will do something about it and let the deaf community know about it.
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NAD is very anti CI ..Read their postion paper a few years ago over it . Of course, they changed their position when they started losing money and members.. HOW CONVEINET of them !!!

Shheesshhhh
 
Thank GOD for FDA !!!

Maria said:
Exactly! It's the same with the company who invented/created Cochlear Implants. They don't always tell the truth, either. I will research on that matters myself. :)
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That's why it is not easy for companies to just throw medical devices at us in the good ole USofA.. Have to pass the FDA inspection first..

Thank GOODNESS!!!

So, Maria , you will probably just be rehashing with other's have already done years and years ago...
 
Ok.

I got my friend to summarize the video for me.
All I can say is, I have had a number of surgeries. All surgeries have risk. All could have complications, or potentially kill you, even 'minor' ones.

I have a fair amount of titanium and screws in me. I don't see CI as much different, especially since even anesthesia is risky for me (I have to be closely monitored while under). Probably the only reason I even got CI is because of blindness.

So yes, it could probably kill a person, on some chance. If they feel the risk is not worth it, then they don't do it.
 
vallee said:
My doctor was great. He answered so many questions and helped so much. I spent a year e-mailing him with questions. He answered them all and directed me to places to find answers. I hope he is the norm. If I had two more ears, he could do them too.
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Well you are lucky. but many people are not lucky!
 
Liebling:-))) said:
Exactly!!!!!!!!!!!!!!

He influenced HOH person to get CI. After CI surgery, she can´t understand the difference sounds between original HOH and CI anymore... It took her 6 or more years to train to hear the sound... She told me herself at Spa resort where I was stayed for 5 weeks at 2 years ago. We were recommended to get CI unless we lost our hearing to zero, not HOH...


We met a hearing mother and deaf toddler at spa resort where my hubby attended for 4 weeks last weekends. Surprisely, she told us that the Experts recommended her to attend spa resort to collect experience on cons/pros between HA and CI, not just listen only doctors... :eek3: We feed her decision with cons and pros... She accept both sides between Experts and deaf culture before she is able to make her decision either she wear her son HA first or CI straight way? Most of us told her our opinion and explain her why... We will respect if she decide for CI on her toddler which we personally disagree to this.

One guy, we also met at my hubby´s spa resort, too. We made nice converstion last Saturday. He lost his HOH to zero and took it very badly. The doctors convinced him that CI is the best method to help him to hear again... but the Experts told him to not do that yet and recommend him to go Spa resort to make his own decision, not listen anyone. The Expert at Spa resort convinced him that it would be negative on him either after CI surgery if he thought negative a lot... There´re a form of grieving for lost his hearing... then CI surgery is no good... First of all, he MUST cope his grieving first and think positive then able to make decision either he consider to have CI or not. He was already 6 weeks in Spa resort before my hubby attended there. I asked him what he thought about CI. He said that he finally accept what he is and still doubt about CI... He heard about special techology about HA and would try it... If it doesn´t work on him then he will consider CI. Wish him best of good luck.
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I bet that it is hard to decide. It is risk to try.
 
Liebling:-))) said:
.......
Why can´t you accept their experience when you have good experience which they doesn´t? It doesn´t mean that they mislead the information when they have their own experience or collect people´s experience.
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I'm sure there are bad experiences with doctors... and friends and other people....
But I'm thinking in "information" like "It's the same as a HA", "Drilling into the skull/brain", "Major surgery", "High risks", "Parents in denial", "Parents not loving their child", "Doctors are always pushing for CI", "They just want to get the money", "CI will kill you" etc...
You know..., the general anti-CI nonsense generated by people that that don't have CI and really do not have a clue, or people that they would just try CI and thought they would be able to hear, without doing any work themselves....
 
SouthFella said:
NAD is very anti CI ..Read their postion paper a few years ago over it . Of course, they changed their position when they started losing money and members.. HOW CONVEINET of them !!!

Shheesshhhh
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NAD is decidedly not anti-CI. They are pro-individual choice, fully informed consent, and ethical behavior in the medical establishment. They are pro-indvidual rights, anti-discrimination based on hearing status and language used, and anti-denial of full language opportunity for all deaf adults and children. I challenge yo to find another organization that works as hard for the rights of all deaf individuals, irregardless if they are implanted or not, ASL users or oral, late deafended or prelingually deafened, and age.
 
Cloggy said:
I'm sure there are bad experiences with doctors... and friends and other people....
But I'm thinking in "information" like "It's the same as a HA", "Drilling into the skull/brain", "Major surgery", "High risks", "Parents in denial", "Parents not loving their child", "Doctors are always pushing for CI", "They just want to get the money", "CI will kill you" etc...
You know..., the general anti-CI nonsense generated by people that that don't have CI and really do not have a clue, or people that they would just try CI and thought they would be able to hear, without doing any work themselves....
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But cloggy, CI is the same as HA in that it is an assisitve devise; a prosthesis if you will. That is not to say that it functions the same, but that the intention of the devise is the same.

A depression is made in the skull, and a hole is drilled into the cochlea. Anytime bone is removed, drilling has taken place, unless it is accopmplished with a chisel and surgical hammer. To create a depression, bone must be removed.

It is an invasive surgery. Risks are inherent in any invasive procedure. General anesthesia is necessary. There are risks inherent in being anesthetized.

Many parents are in denial regarding their child's deafness. It is a sad fact of life.

No one has claimed that parents don't love their child. I think the turn of phrase you may be thinking of is a lack of acceptance of their child as a deaf individual different from themselves.

ENTs do push CI, as well as some audis. And, more often than not, they present CI as the only option without providing information regarding alternatives. We have another recent thread of exactly something of this nature occurring to a member. Her audi has pushed her to go for an evaluation, despite the individual's statement that she was not interested in CI. One only has to visit the websites of many CI centers to see the evidence of failure to provide complete information, and to protray the CI as the only option for living a full and complete life. The pathological perspective is very apparent in all the claims made.

If money is not an issue, why all the talk from the medical establishment regarding "cost effectiveness"? Surgeons are paid to do surgeries. The more surgeries they do, the more money they make. That is a fact that cannot be denied.

CI does not kill you. Complications from CI surgery have the potential to take a life.
 
Excellent post, Jillio. But what's a few sacrifices, so long as the deaf are "cured" (and the money keeps rolling in)?
 
I didn't even think about the possibility I could die when I had the surgery. I had a complication during my surgery that was due to scar tissue of my inner ear reconstruction surgery 15 and 12 years ago. My CAT scan and everything else was normal and we went through a long thought process with it. When my doctor got inside, there was a lot of scar tissue covering my cochlea. He cut away at it and in the process cut my ear canal.
The recovery with my skin graft for my ear canal took about a month... But the bottom line is I have an amazing doctor that if I ever decided to go bilateral, I'd go to. I say no to bilateral for now because I'm not ready... Not at ALL because of my doctor or because I'm afraid I'll die during the surgery or have any horrible complications.

A note to all anti CI-ers and skeptics: Stop it already with the posts about death/complications/unneccesary warnings.
You keep saying that Deaf people aren't stupid... So give those with CI's the benefit of doubt of actually understanding the risks of ANY surgery.
And this title? Absolutely ridiculous and fear inducing.
Get a new hobby instead of CI bashing.
 
Chase said:
Excellent post, Jillio. But what's a few sacrifices, so long as the deaf are "cured" (and the money keeps rolling in)?
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Why do people think that people with CIs believe we are cured? No matter how much I say it or others say it, judgement is placed based on the fact I made a personal choice to get them. Don't pull the oh this is about children. It is about the fact that people make a choice to have cochlear implants.

Maybe audies push CIs since patients are going in demanding more and more powerful hearing aids and guess what, they don't work. Who knows we hear so much hearsay. If your audie or doctor pushes it, change doctors or audies. It is that simple. Give up hearing aids, give up cochlear implants, make your choice. I made mine and I am very happy with my choice.

It is the same crap over and over again. Enjoy it without me.
 
vallee said:
Why do people think that people with CIs believe we are cured? No matter how much I say it or others say it, judgement is placed based on the fact I made a personal choice to get them. Don't pull the oh this is about children. It is about the fact that people make a choice to have cochlear implants.
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I'm not referring to people with CIs, especially those successful implantees such as yourself. I'm talking about manufacturing companies, surgeons who implant, and audiologists paid to refer. I have been there, was done to. Yes, it is the same old crap.
 
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