CI for son...CI friendly only please

greema said:
Hmm, interesting. Rockdrummer, may I ask you how old your child was?
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Sure, he was 18 months old at the time.
 
Highlands said:
I heard about ossification before .
Don't CI manufacturers have implants for ossificated cochleas ? :confused:
I did read a manual of MED-EL ( a CI brand ) and it mentioned about specially made implants for ossificated cochleas !!!
I don't know if I'm right , anyway .
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I am not sure about that. I have never heard of such a thing.
 
No, actually I don't think that mainstreamed kids automaticly get made fun of.......I myself was never really called names.....it was more the mentality in the school that made my life misrable. No rules or zero tolerance polcies can change that mentality. Yes, in some schools, (like diverse schools) things are OK.......but the thing is Isaccsmom, should be prepared for the possibilty that her son's social life won't be that great. There are still very snobby and prejudicated schools out there.
 
rockdrummer said:
I am not sure about that. I have never heard of such a thing.
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Yes Med-El does very well with clients with ossified cochlea because they have several types of electrodes to meet the needs.
http://www.medel.com/ENG/US/20_Products/10_Pulsar_Implant/999_electrodes.asp

One of them is
Compressed Electrode Array
Specifically designed for partial ossification or malformation of the cochlea, the Compressed Electrode Array features 12 pairs of contacts equally spaced over a shorter distance to maximize the number of channels available and optimize performance.
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main front entry site: http://www.medel.com/ then select your language.
 
Boult said:
Yes Med-El does very well with clients with ossified cochlea because they have several types of electrodes to meet the needs.
http://www.medel.com/ENG/US/20_Products/10_Pulsar_Implant/999_electrodes.asp

One of them is


main front entry site: http://www.medel.com/ then select your language.
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Thanks Boult... the second CI he got was a Med-El and they said it had a better chance because it had more electrodes. It was the split electrode array. But that was 10 years ago... maybe now they are better.

Split Electrode Array
Specifically designed for severe ossification of the cochlea, the Split Electrode features two separate electrode branches, one with five pairs and one with seven pairs of contacts. The arrays are designed for insertion into different areas of the cochlea to maximize the number of channels available and optimize performance.
 
deafdyke said:
No, actually I don't think that mainstreamed kids automaticly get made fun of.......I myself was never really called names.....it was more the mentality in the school that made my life misrable. No rules or zero tolerance polcies can change that mentality. Yes, in some schools, (like diverse schools) things are OK.......but the thing is Isaccsmom, should be prepared for the possibilty that her son's social life won't be that great. There are still very snobby and prejudicated schools out there.
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Fair enough I think that is a good thing for her to be aware of and to plan for. However bullying unfortunately seems to be a regular and frequent experience for all children, although many schools now have anti bullying policies. Going into a deaf environment does not automatically mean the children won't make fun of them or that they will have friends - there could be other factors e.g. race and appearance that children can cruelly choose to highlight for their amusement.

I was bullied by both hearing and deaf children during school years and today as an adult I have moved on and don't feel bitter about my experiences. If anything those experiences have made me more tough and more able to face the other difficulties of life.
 
SxyPorkie said:
I thought you said you were gay .. i assumed youre male??? Am i wrong??
SxyPorkie
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I'm female and gay, but what does that have to do with anything? :confused:
 
R2D2 said:
Fair enough I think that is a good thing for her to be aware of and to plan for. However bullying unfortunately seems to be a regular and frequent experience for all children, although many schools now have anti bullying policies. Going into a deaf environment does not automatically mean the children won't make fun of them or that they will have friends - there could be other factors e.g. race and appearance that children can cruelly choose to highlight for their amusement.

I was bullied by both hearing and deaf children during school years and today as an adult I have moved on and don't feel bitter about my experiences. If anything those experiences have made me more tough and more able to face the other difficulties of life.
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:gpost:

Incidently, I was also bullied by both able-bodied and disabled students. So, I still believe that it doesn't matter what circumstances you're in. If you come up against a kid who's hell bent on tormenting you, the reason or the circumstances, don't really matter.
 
rockdrummer said:
Sure, he was 18 months old at the time.
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Ah, thanks and I'm sorry the CI didn't work for him. Wonder if you would try what Boult and Highlands on this thread brought up that would work with ossified ears?

How old is your sweet son now? Does he use HAs or anything? (if you think I'm asking too many questions just tell me to mind my own business :) )
 
greema said:
Ah, thanks and I'm sorry the CI didn't work for him. Wonder if you would try what Boult and Highlands on this thread brought up that would work with ossified ears?

How old is your sweet son now? Does he use HAs or anything? (if you think I'm asking too many questions just tell me to mind my own business :) )
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No greema, not to many questions at all. He is 10 now. We did try the dual array CI that claims to work in ossified choclea. He is profoundly deaf so HA. won't work. His other ear has malformed packed choclea so it's not a candidate for CI or HA.
 
However bullying unfortunately seems to be a regular and frequent experience for all children, although many schools now have anti bullying policies. Going into a deaf environment does not automatically mean the children won't make fun of them or that they will have friends - there could be other factors e.g. race and appearance that children can cruelly choose to highlight for their amusement.

I was bullied by both hearing and deaf children during school years and today as an adult I have moved on and don't feel bitter about my experiences. If anything those experiences have made me more tough and more able to face the other difficulties of life.
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Yes, I know that people get bullied. Being bullied is a fact of life. But there is a huge huge difference between being bullied, and being the victim of incredibily snobby people.
I know that going into a Deaf enviorment won't automaticly avoid issues like that......I just think that initially, that parents and students should be openminded as to academic placement early on, so they can find the best one for them! See what I'm saying......and yes, I know that suffering makes you stronger......but still *shakes head*......growing up in a whitebread place where anyone different is ostracized can be just beyond horrible.
 
Good News!

We met with the surgeon today and Isaac's surgery date of September 25 is definate now. We have chosen the Nucleus Freedom. We will be getting the blue color. We are so excited!
 
Isaacsmom said:
We met with the surgeon today and Isaac's surgery date of September 25 is definate now. We have chosen the Nucleus Freedom. We will be getting the blue color. We are so excited!
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Good luck . I'm happy for you :)
 
Isaacsmom said:
We met with the surgeon today and Isaac's surgery date of September 25 is definate now. We have chosen the Nucleus Freedom. We will be getting the blue color. We are so excited!
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Thanks for updating us Isaacsmom and I like the colour selection! I hope the surgery goes well with no complications. Please continue to keep us informed as to how things go...
 
:party:

Congrats on the surgery date!
BTW The biggest advantage of the Freedom is the fact that it can get wet. Your son can wear it in the rain and even during splash play. Lilly has worn hers in the sprinkler and it wored fine afterwards. Just do not submerge it in water. It is a very neat peice of equpitmeent.
 
rockdrummer said:
No greema, not to many questions at all. He is 10 now. We did try the dual array CI that claims to work in ossified choclea. He is profoundly deaf so HA. won't work. His other ear has malformed packed choclea so it's not a candidate for CI or HA.
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Ah, I see... Hope he's doing just fine regardless. I've gone since I was in jr. high school or high school without any HAs as they don't help me -- I'm profoundly deaf too. If I've made it this far in life (I've already retired from one job after 25+ years and working in another job), your son will do just fine! :wave:
 
Lillys dad said:
:party:

Congrats on the surgery date!
BTW The biggest advantage of the Freedom is the fact that it can get wet. Your son can wear it in the rain and even during splash play. Lilly has worn hers in the sprinkler and it wored fine afterwards. Just do not submerge it in water. It is a very neat peice of equpitmeent.
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Oh, all right Isaacsmom! I promise you that date will be here before you know it! I was actually surprised at how fast it went between the time we found out Fragmenter was going to have his son implanted and the actual surgery date!

(p.s. Frag -- Lillys dad had told me Lilly being able to play in a sprinkler with her CI on and the other CI parents say no no -- but it's allright. Woinder if you were aware of t his? Isn't that way cool?) :ily:
 
greema said:
(p.s. Frag -- Lillys dad had told me Lilly being able to play in a sprinkler with her CI on and the other CI parents say no no -- but it's allright. Woinder if you were aware of t his? Isn't that way cool?) :ily:
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:) yep, we did our research :ily:
 
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