CI for son...CI friendly only please

Momoftwo said:
Issacsmom-

Why don't you and your family move to Pittsburgh, PA? So, your son can go to that school. I grew up in Pittsburgh and went to WPSD and loved there very much. It's only 10 minutes away from WPSD to my parents' house. Maybe you don't want to move to PGH because of your job or your husband's job but if you really care for your son to interact with other deaf kids, then I recommend you to think about moving to PGH for your son's sake. You have to find a way. If I were you, we will move to PGH and look for a new job for our child's sake.

Your son would be a lot happier if you move to PGH and send him to WPSD as a day student.

WPSD is a good school - it is an oral/sl school. It's a beautiful campus.

Think about it.

Good luck!
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Gee, talk about pressure! Instead of trying to guilt this mother into seeing things your way, why don't you just accept that she's made her decision, and try to support her. I think she knows more about what is best for her son, than you do. Don't you think?
 
Oceanbreeze said:
Gee, talk about pressure! Instead of trying to guilt this mother into seeing things your way, why don't you just accept that she's made her decision, and try to support her. I think she knows more about what is best for her son, than you do. Don't you think?
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Quoted for truth. Some people just need to butt out and let people raise their own families. Isaacsmum has already done her research by reading the boards for several months. Chill!
 
R2D2 said:
Quoted for truth. Some people just need to butt out and let people raise their own families. Isaacsmum has already done her research by reading the boards for several months. Chill!
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Thank you! Agreed!!!
 
Momoftwo said:
Issacsmom-

Why don't you and your family move to Pittsburgh, PA? So, your son can go to that school. I grew up in Pittsburgh and went to WPSD and loved there very much. It's only 10 minutes away from WPSD to my parents' house. Maybe you don't want to move to PGH because of your job or your husband's job but if you really care for your son to interact with other deaf kids, then I recommend you to think about moving to PGH for your son's sake. You have to find a way. If I were you, we will move to PGH and look for a new job for our child's sake.

Your son would be a lot happier if you move to PGH and send him to WPSD as a day student.

WPSD is a good school - it is an oral/sl school. It's a beautiful campus.

Think about it.

Good luck!
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*headdesk*

Just let her be. She's made her decision. Let it be.
 
Oceanbreeze said:
Gee, talk about pressure! Instead of trying to guilt this mother into seeing things your way, why don't you just accept that she's made her decision, and try to support her. I think she knows more about what is best for her son, than you do. Don't you think?
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No, not at all...not pressure on Issacsmom because I only gave her my point of view.

So, that way it can give her more informations from many people.
 
Momoftwo said:
No, not at all...not pressure on Issacsmom because I only gave her my point of view.

So, that way it can give her more informations from many people.
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heh. It sounded like pressure to me. :ugh3:
 
i agree.. i can see there are pressure.. sigh... need to chill on that part.. let her be.... :whistle:
 
On the other hand OB, I think those of us who have been through the mill, know a little better then a hearing parent with no previous experiance in the sped educational system. I look at Momoftwo, as giving advice.
I really really think that most parents need to be openminded when it comes to educational placement. I wish someone had told MY parents that it's perfectly OK to be flexiable when it comes to educational placment, and that mainstream isn't all that it's cracked up to be. Many sped kids go through social-emoitional hell.......and if I can help another kid avoid what I went through......b/c trust me, I will never ever forget tacks being put on my chairs, that attitude that I didn't fit in or didn't belong, boys making very nasty prank phone calls and obscene letters......
 
deafdyke said:
On the other hand OB, I think those of us who have been through the mill, know a little better then a hearing parent with no previous experiance in the sped educational system. I look at Momoftwo, as giving advice.
I really really think that most parents need to be openminded when it comes to educational placement. I wish someone had told MY parents that it's perfectly OK to be flexiable when it comes to educational placment, and that mainstream isn't all that it's cracked up to be. Many sped kids go through social-emoitional hell.......and if I can help another kid avoid what I went through......b/c trust me, I will never ever forget tacks being put on my chairs, that attitude that I didn't fit in or didn't belong, boys making very nasty prank phone calls and obscene letters......
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Your comments about thinking about educational placement are fine deafdyke but it doesn't nescessarily have any bearing on the CI. As you yourself have said you can get a CI, still sign, still have a well thought out educational placement etc. There needs to be no mutual exclusivity.

I think that people need to be more positive in the way they give advice. Rather than say "Nooo don't do it! It won't work!" they could rather say "Okay it's your choice for your child to benefit from a CI and I respect that. You could combine this with ......"
 
deafdyke said:
On the other hand OB, I think those of us who have been through the mill, know a little better then a hearing parent with no previous experiance in the sped educational system. I look at Momoftwo, as giving advice.
I really really think that most parents need to be openminded when it comes to educational placement. I wish someone had told MY parents that it's perfectly OK to be flexiable when it comes to educational placment, and that mainstream isn't all that it's cracked up to be. Many sped kids go through social-emoitional hell.......and if I can help another kid avoid what I went through......b/c trust me, I will never ever forget tacks being put on my chairs, that attitude that I didn't fit in or didn't belong, boys making very nasty prank phone calls and obscene letters......
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Yes, I agree with you.
 
I am sitting here shaking my head in amazement at some people in this thread. First, Isaacsmom was saying CI friendly only. Isaacsmom had done all the research and she had been following the threads on this forum for a long time. She has done a lot of research and she is showing how much she loves her son and Fragmenter is right, leave her alone.

Isaacsmom -- you are doing a great job for your son -- he will be very sure to benefit from your love and hard work. You go, girl! (no that should be... you go, mom!)

Thumbs up!
 
R2D2 said:
Your comments about thinking about educational placement are fine deafdyke but it doesn't nescessarily have any bearing on the CI. As you yourself have said you can get a CI, still sign, still have a well thought out educational placement etc. There needs to be no mutual exclusivity.

I think that people need to be more positive in the way they give advice. Rather than say "Nooo don't do it! It won't work!" they could rather say "Okay it's your choice for your child to benefit from a CI and I respect that. You could combine this with ......"
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Rght. This is what I'm saying.
 
deafdyke said:
On the other hand OB, I think those of us who have been through the mill, know a little better then a hearing parent with no previous experiance in the sped educational system. I look at Momoftwo, as giving advice.
I really really think that most parents need to be openminded when it comes to educational placement. I wish someone had told MY parents that it's perfectly OK to be flexiable when it comes to educational placment, and that mainstream isn't all that it's cracked up to be. Many sped kids go through social-emoitional hell.......and if I can help another kid avoid what I went through......b/c trust me, I will never ever forget tacks being put on my chairs, that attitude that I didn't fit in or didn't belong, boys making very nasty prank phone calls and obscene letters......
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This child hasn't even started school yet, and you're already predicting educational gloom and doom for him. This child probably will have a rough experience at some pt in his life, but guess what? ALL kids do! Being mainstreamed may NOT be the thing for him, but lets give him the oppotunity to see if it's for him before you decide it's not and start screaming " Deaf res school."
 
I only just read your topic, hence my late post. (Been on holiday...)

I believe in CI. Like someone allready mentioned, I have a daughter that is using it for the last 1-1/2 years, and she's doing very well. Actually, this is an understatement. She's doing GREAT!!

I will try to answer any questions you have. But first have a look at the topic I created with "information regarding my daughter". The link to that is in the signature! Otherwise, just ask in the forum. I feel that it's nicer to share questions with everyone, even when asked directly to me. Otherwise, just PM me.

And don't stop posting because you are afraid to be "bashed". As you allready noticed in this topic... there's plenty of support for you.

You made an excellent choice on behalf of your son.
 
Oceanbreeze said:
This child hasn't even started school yet, and you're already predicting educational gloom and doom for him. This child probably will have a rough experience at some pt in his life, but guess what? ALL kids do! Being mainstreamed may NOT be the thing for him, but lets give him the oppotunity to see if it's for him before you decide it's not and start screaming " Deaf res school."
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I agree that it's best to see how the child does after the implant. His mother did say she refuses to ship her child off to a res. school and only see him a couple days a week. I wish them all the best in this journey to hearing for their son.

DD, you cannot base this child's future educational experience on yours. You had a crappy placement and evidently your parents just let things slide. That doesn't mean it's the same for every child who uses oral methods. And truthfully he'll probably have to do all those speech things less then someone like yourself who really couldn't hear the sounds. It is a better option then a HA and has more potential for his future education. His parents may need to change their choice someday and send him to a residential school but there is no reason he can't at this time recieve the services in his own community and live with his OWN family instead of a place where the people who work there are very caring they are still NOT his family. I would not have been able to send my daughter earlier then we did to a residential school. So I don't blame parents for using the mainstream option and it can work.
 
Isaacsmom said:
............. I would like to learn what other parents experienced on this journey such as challenges and joys. What was the reaction when they were turned on? How long after surgery was the child groggy? What complications if any did your children have?..........
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In short....

Regarding the operation/groggy:
I recall that for my daughter (2½ at the time), the decision was the biggest hurdle. The operation - both sides in 1 operation - lasted from 09:00 to 13:00. After this, she was in the recovery-room, but was quickly send to the normal ward because she was too awake. She felt a bit sick, threw up, got a paracet and from there on started looking for the tricicle to start playing. She never got any other painkillers. Actually, the biggest "problem" was the IV in her foot (fluids) but when this was removed, we couldn't keep up with her.

We have not experienced complications of any kind... Well, we can't shut her up now. They never told us that when we take of the CI... she doesn't stop talking!!! So, you're warned! :)

Reaction at turn-on....
This happened over 3 day's and went very slowly. She NEVER experienced dis-comfort. The first time, they just turned up the system without looking for reflexes of the eyes. The second time, in the afternoon, they looked for blinking of the eyes... a normal reflex. The following day's the "system" was tuned up more. But never did she feel uncomfortable.
At home there were - as expected - little responses. The brain just ignores the new input. It took a while before there were reactions, but then it was as if the floodgates opened. When it "clicks".... it CLICKS!!

It will be a wonderfull experience. The child will have a wonderfull time because it's all play. FOr you it will be the beginning of a new journey. And a beautiful one it is!
 
This child hasn't even started school yet, and you're already predicting educational gloom and doom for him. This child probably will have a rough experience at some pt in his life, but guess what? ALL kids do! Being mainstreamed may NOT be the thing for him, but lets give him the oppotunity to see if it's for him before you decide it's not and start screaming " Deaf res school."
Click to expand...
Umm, no........I'm just saying that total and complete mainstreaming (meaning regular classes) doesn't always work out too well. I think mainstreaming rocks.......but I also think that hearing parents need to be a little more opemminded as to educational placement.......I'm not saying to ship him off to res school, but I'm just warning her that a mainstream education isn't all rainbows and roses. Her family could have a completely different experiance.....All I'm saying is that I think it's better to be openminded and flexiable as to educational placement at the very beginning. Actually, I think a really good idear when he's old enough for school, would be to get him tested and evaluted at the School for the Deaf first, and see what they say and reccomend. I'm not anti-mainstream.....I just don't think that the mainstream is always the best placement. I mean, I really do think that a significent part of the reason why academic acheivement among dhh kids hasn't risen, is that a lot of them fell through the cracks educationally.
 
Cloggy said:
In short....

Regarding the operation/groggy:
I recall that for my daughter (2½ at the time), the decision was the biggest hurdle. The operation - both sides in 1 operation - lasted from 09:00 to 13:00. After this, she was in the recovery-room, but was quickly send to the normal ward because she was too awake. She felt a bit sick, threw up, got a paracet and from there on started looking for the tricicle to start playing. She never got any other painkillers. Actually, the biggest "problem" was the IV in her foot (fluids) but when this was removed, we couldn't keep up with her.

We have not experienced complications of any kind... Well, we can't shut her up now. They never told us that when we take of the CI... she doesn't stop talking!!! So, you're warned! :)

Reaction at turn-on....
This happened over 3 day's and went very slowly. She NEVER experienced dis-comfort. The first time, they just turned up the system without looking for reflexes of the eyes. The second time, in the afternoon, they looked for blinking of the eyes... a normal reflex. The following day's the "system" was tuned up more. But never did she feel uncomfortable.
At home there were - as expected - little responses. The brain just ignores the new input. It took a while before there were reactions, but then it was as if the floodgates opened. When it "clicks".... it CLICKS!!

It will be a wonderfull experience. The child will have a wonderfull time because it's all play. FOr you it will be the beginning of a new journey. And a beautiful one it is!
Click to expand...

Welcome Back ... Cloggyhead :hyper:
 
Hey Greema.... I am not here to bash anyone....just read all posts...
SxyPorkie
 
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