CI for son...CI friendly only please

[greema]

Hey Greema.... I am not here to bash anyone....just read all posts...
SxyPorkie

Good morning, SxyPorkie! No, I'm not targeting you for bashing .... Makes great reading doesn't it?

And Cloggy it is SO good to see you back too...

Isaacsmom, Cloggy is the most excellent source of information for hearing parents with implanted children. And Fragmenter should be posting soon about his experiences.

Good day, all!

 

[Isaacsmom]

Picture of Isaac

I hope I am doing this right, but here is a picture of Isaac playing with his Dad.

 

[Isaacsmom]

Cloggy,
I read your thread about the experiences with your daughter. I am so encouraged. I just know that Isaac will be successful. My husband and I are determined to give him the best future he can have. It is so awesome to learn about your experiences. I will keep everyone posted as to the progress with Isaac.

 

[Oceanbreeze]

Umm, no........I'm just saying that total and complete mainstreaming (meaning regular classes) doesn't always work out too well. I think mainstreaming rocks.......but I also think that hearing parents need to be a little more opemminded as to educational placement.......I'm not saying to ship him off to res school, but I'm just warning her that a mainstream education isn't all rainbows and roses. Her family could have a completely different experiance.....All I'm saying is that I think it's better to be openminded and flexiable as to educational placement at the very beginning. Actually, I think a really good idear when he's old enough for school, would be to get him tested and evaluted at the School for the Deaf first, and see what they say and reccomend. I'm not anti-mainstream.....I just don't think that the mainstream is always the best placement. I mean, I really do think that a significent part of the reason why academic acheivement among dhh kids hasn't risen, is that a lot of them fell through the cracks educationally.

You're entitled to your opinion, and sometimes, I agree with you. However, in this case, I think it's better if we step back, and let Isaac'sMom handle this the way she sees fit. Sounds like she has done her research, so she's NOT going into this blind. She also knows her child, and we do not.

I think it's better if we reserve judgment on the situation and see what happens with him. He could surprise everyone and really do well!

On a personal note, I am one of the ones who had a crappy mainstreaming experience. My experience with total inclusion was horrible. However, as I said in another post , all children experience what I experienced to some degree. I'm physically disabled, and for the first few years of my schooling, I was placed with other children just like me. However, in 3rd grade, I was mainstreamed. Kids were horrific to me. But, it also happened to my able-bodied younger sister. So, therefore, the only conclusion I can draw from this is, some children are cruel and they will pick on anybody who they see fit to pick on. Unfortunately, you're not going to change that. Little Isaac is going to be exposed to all kinds of people as he grows up, and he's going to have to learn to handle all sorts of situations. In my opinion, you're far better off teaching him how to handle these experiences, instead of insulating him from it.

I also am trying to not let my experiences with mainstreaming color my opinion for others. Times have changed, somewhat. People are more educated now than they were 10, 15, or 20 years ago. His experiences could very well be different from mine (and yours DD).

 

[deafdyke]

I also am trying to not let my experiences with mainstreaming color my opinion for others. Times have changed, somewhat. People are more educated now than they were 10, 15, or 20 years ago. His experiences could very well be different from mine (and yours DD).

That's true, but I do know that many kids are still misrable under a total and complete inclusion system. I'm not totally bashing mainstreaming.....just saying that maybe it might be good to keep an open mind about alternative options. That's why I reccomended that Issacsmom join and contact organizations like Hands and Voices and American Society for Deaf Children, so she can network with a lot of people who are going through the same things. Mainstreaming is more of a tabla rasa......something for which everything is possible, but nothing is promised 100%.

 

[Cloggy]

Cloggy,
I read your thread about the experiences with your daughter. I am so encouraged. I just know that Isaac will be successful. My husband and I are determined to give him the best future he can have. It is so awesome to learn about your experiences. I will keep everyone posted as to the progress with Isaac.

Thanks, love to hear you enjoyed the posts about Lotte.
I'll update it in the near future, since she made big steps while on holiday. Main reason for this is taht instead of Norwegian, Dutch and sign, she now only got Dutch while on holiday in Holland.

Loved your pictures by the way.

 

[Cloggy]

........
And Cloggy it is SO good to see you back too...
.............

Had a great holiday in Holland and Austria. Good to be able to post again....
Strange how that works....

C U later

 

[rockdrummer]

As a parent with a CI implanted child I feel compelled to share my experience. While I will not try to sway your decision one way or another I just want to share with you that with our child we did not have success with the CI. In fact the first CI was replaced with a second which still had no benefit. I have spoken with other parents in my area that have had similar experiences and the ones that have had success with the CI tell me that they were lucky. Lucky!. So while I wish you the best of luck no matter what your decision, I would caution you to be prepared for an outcome that could go either way. I truly hope you are one of the lucky ones. All the best!!

 

[highlands]

As a parent with a CI implanted child I feel compelled to share my experience. While I will not try to sway your decision one way or another I just want to share with you that with our child we did not have success with the CI. In fact the first CI was replaced with a second which still had no benefit. I have spoken with other parents in my area that have had similar experiences and the ones that have had success with the CI tell me that they were lucky. Lucky!. So while I wish you the best of luck no matter what your decision, I would caution you to be prepared for an outcome that could go either way. I truly hope you are one of the lucky ones. All the best!!

I'm sad to hear about that

To be simple, success of CI is highly based on THE BRAIN

 

[rockdrummer]

I'm sad to hear about that

To be simple, success of CI is highly based on THE BRAIN

Thank you and I agree with you but there are also many other factors. In our case the culprit was ossification.

 

[Awauphi]

thats true.. not always will work .. it all depend on every individual's .. so beware of that.. if it works then great.. but if it doesnt.. then no choice but learn asl .. and send to deaf school with great education but u know technology will improve so maybe one day ...

 

[deafdyke]

is highly based on THE BRAIN

You really can't say which factors are directly responsible for sucess with CI.
I think part of the reason why the CI has been more sucessful in recent years is b/c kids who got some benifit from hearing aids....like they could hear some words, got implanted. For them, they had a language base from being aided that they could start, with when the "volumne was turned up".
Stats indicate that the majority of deaf kids can benifit from traditional hearing aids.

 

[highlands]

Thank you and I agree with you but there are also many other factors. In our case the culprit was ossification.

I heard about ossification before .
Don't CI manufacturers have implants for ossificated cochleas ?
I did read a manual of MED-EL ( a CI brand ) and it mentioned about specially made implants for ossificated cochleas !!!
I don't know if I'm right , anyway .

 

[highlands]

You really can't say which factors are directly responsible for sucess with CI.
I think part of the reason why the CI has been more sucessful in recent years is b/c kids who got some benifit from hearing aids....like they could hear some words, got implanted. For them, they had a language base from being aided that they could start, with when the "volumne was turned up".
Stats indicate that the majority of deaf kids can benifit from traditional hearing aids.

The center of hearing process ( and perceiving speech ) is brain , I suppose . Am I wrong ?
If the brain rejects devices or implants , nothing can be done !!!
of course there may be another causes , too but the brain is the core , in my opinion.

 

[Awauphi]

I heard about ossification before .
Don't CI manufacturers have implants for ossificated cochleas ?
I did read a manual of MED-EL ( a CI brand ) and it mentioned about specially made implants for ossificated cochleas !!!
I don't know if I'm right , anyway .

I thought so too.. but dont know about that one?? not sure.. hmm..

 

[greema]

Thank you and I agree with you but there are also many other factors. In our case the culprit was ossification.

Hmm, interesting. Rockdrummer, may I ask you how old your child was?

 

[darkangel8603]

I also am trying to not let my experiences with mainstreaming color my opinion for others. Times have changed, somewhat. People are more educated now than they were 10, 15, or 20 years ago. His experiences could very well be different from mine (and yours DD).

That is correct, I don;'t know how old you guys are, or what your times were like in elementary school, but today has more scricter policies and even laws for bullying. ALot of schools now have a zero tolerance policy, and does not accept even the tiniest of bullying. so it is different than your times (not that you are old or anything. )

DA

 

[samantha kennel]

son with ci

My son was implanted at 16 months old.. I was nervous,but very excited...It was scary with him that young having surgery that young.but now we see how he is thriving I know we made the right decision... Issaacs mom.. I wish you much luck on this adventure for your son... It is an amazing opprunitity...My son was born hearing and we wanted to give him back that gift..even if it meant surgery.When you see Issacc turn to you when you call his name, say Mama, Dada, bye-bye...your heart will melt..We are waiting to do the other side... hearing at a moderate level with his aide.but that can change any time with his progressive loss..I know you are a christain and strongly beleive in prayer... And I beleive our prayer is being answered in the way of the implant.. We can't forget that they are deaf, but why not give them this chance.THe trips to theropy and mappings are worth it. I get early intervention..Help Me grow and Regional Infant hearing program. He wil also get free pre-school.Look into early intervention they are wondreful.God Bledd you and good luck!!!!!!!!

 

[Oceanbreeze]

That is correct, I don;'t know how old you guys are, or what your times were like in elementary school, but today has more scricter policies and even laws for bullying. ALot of schools now have a zero tolerance policy, and does not accept even the tiniest of bullying. so it is different than your times (not that you are old or anything. )

DA

DA!!

I'm in my late 30s. I was in elementary school in the 70s and Jr High in the early 80s. Was hell. Things DID get better for me in high school, but it took me years to gain some measure of acceptance from my peers. Even then, I wasn't "Miss Popular, USA...".

You're right about the policy changes nowadays. I think we can thank the school shootings for that. We've had enough of them that now, people are waking up to some of the root causes, and making changes. It's nice to see, because, "There for the Grace of God, go I" ..In other words, I could have been one of those kids who took an uzi, and shot up a school. I WASN'T inclined to do that, but had I had a different personality (I'm more of an introvert), anything could have happened. My school experience was anything but pretty.

 

[SxyPorkie]

DA!!

I'm in my late 30s. I was in elementary school in the 70s and Jr High in the early 80s. Was hell. Things DID get better for me in high school, but it took me years to gain some measure of acceptance from my peers. Even then, I wasn't "Miss Popular, USA...".

You're right about the policy changes nowadays. I think we can thank the school shootings for that. We've had enough of them that now, people are waking up to some of the root causes, and making changes. It's nice to see, because, "There for the Grace of God, go I" ..In other words, I could have been one of those kids who took an uzi, and shot up a school. I WASN'T inclined to do that, but had I had a different personality (I'm more of an introvert), anything could have happened. My school experience was anything but pretty.

I thought you said you were gay .. i assumed youre male??? Am i wrong??
SxyPorkie