CAPD terminology (Audi says I'm "hearing impaired.")

Thanks for the thoughts, everyone.

Having only been diagnosed last Tuesday, I'm still kinda figuring a lot of this out. I'm actually not sure myself just how good or bad my comprehension is in any given situation. Or, at least, I wasn't sure until I recently started paying attention to such and learning more about it. Before that, I just felt vaguely uncomfortable and awkward in some situations.

It's like the one poster said about never realizing how easy it was for hearing people to hear. Before recently, I thought hearing was this active, difficult task for everyone. I never really realized that it could be *easy* and not involve lots of guesswork and fill-in-the-blank games. (I've been finding ASL to be positively wonderful on that front, so far.)

With a little more research and self-observation, I think my experiences are similar to those of someone with "mild" to "moderate" sensorineural/conductive hearing loss, in terms of how I relate to other people and speech, and depending on the situation.

It's really weird, right? Because my sensorineural/conductive hearing is actually really good. Above average, the audiologist said. So situations where my CAPD isn't being triggered, I hear very well. But start piling on the noise, fast speech, etc., and I quickly lose comprehension.

Depending on a number of circumstances, my experience of speech comprehension can range from that of a typical hearing person to resembling someone with moderate hearing loss. In general, though, my experience tends to resemble a "mild hearing loss.". It's a bizarre mix and a significant range of speech comprehension ability that makes it hard to quantify my experience using the language of hearing loss. It is extremely situational for me.

Another poster on this thread indicated that my fluctuating ability to understand speech and function as hearing makes the label "hard of hearing" accurate for me. Due to the range of comprehension ability that I have, there are some situations where I can function as hearing, others where it is difficult and requires effort and focus if I want to function as hearing, and still others where I simply cannot function as hearing. In those situations, especially some group conversations in noisy environments such as parties or restaurants, I can't understand what anyone's saying at all.

Based on the different responses here about some people saying that people with APD are HoH if they want to label themselves that way, whereas others want to make clear the distinction between APD and deafness... Well, it gives me a lot to think about, but I think it gives me enough to manage navigating both Deaf and Hearing spaces with sufficient accuracy and tact to be understood and not offend.
 
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Thanks for the thoughts, everyone.

Having only been diagnosed last Tuesday, I'm still kinda figuring a lot of this out. I'm actually not sure myself just how good or bad my comprehension is in any given situation. Or, at least, I wasn't sure until I recently started paying attention to such and learning more about it. Before that, I just felt vaguely uncomfortable and awkward in some situations.

It's like the one poster said about never realizing how easy it was for hearing people to hear. Before recently, I thought hearing was this active, difficult task for everyone. I never really realized that it could be *easy* and not involve lots of guesswork and fill-in-the-blank games. (I've been finding ASL to be positively wonderful on that front, so far.)

With a little more research and self-observation, I think my experiences are similar to those of someone with "mild" to "moderate" sensorineural/conductive hearing loss, in terms of how I relate to other people and speech, and depending on the situation.

It's really weird, right? Because my sensorineural/conductive hearing is actually really good. Above average, the audiologist said. So situations where my CAPD isn't being triggered, I hear very well. But start piling on the noise, fast speech, etc., and I quickly lose comprehension.

Depending on a number of circumstances, my experience of speech comprehension can range from that of a typical hearing person to resembling someone with moderate hearing loss. In general, though, my experience tends to resemble a "mild hearing loss.". It's a bizarre mix and a significant range of speech comprehension ability that makes it hard to quantify my experience using the language of hearing loss. It is extremely situational for me.

Another poster on this thread indicated that my fluctuating ability to understand speech and function as hearing makes the label "hard of hearing" accurate for me. Due to the range of comprehension ability that I have, there are some situations where I can function as hearing, others where it is difficult and requires effort and focus if I want to function as hearing, and still others where I simply cannot function as hearing. In those situations, especially some group conversations in noisy environments such as parties or restaurants, I can't understand what anyone's saying at all.

Based on the different responses here about some people saying that people with APD are HoH if they want to label themselves that way, whereas others want to make clear the distinction between APD and deafness... Well, it gives me a lot to think about, but I think it gives me enough to manage navigating both Deaf and Hearing spaces with sufficient accuracy and tact to be understood and not offend.

The way I see it, the only accurate "label" is the one you choose for yourself. If someone has a problem with the way you label yourself that is their problem.....not yours.
 
The way I see it, the only accurate "label" is the one you choose for yourself. If someone has a problem with the way you label yourself that is their problem.....not yours.

Maybe I've just gotten too damned involved with identity politics in the LGBT community. Everyone is always up in arms about what labels apply to whom there. I'm always trying to be sensitive to everyonr's labels. Perhaps this is a bit different here. :)
 
Maybe I've just gotten too damned involved with identity politics in the LGBT community. Everyone is always up in arms about what labels apply to whom there. I'm always trying to be sensitive to everyonr's labels. Perhaps this is a bit different here. :)

Well, it is nice to have concern for others and not wanting to offend but IMO it's more important to define yourself in a way you are comfortable and let the chips fall where they may.

BTW, I know many LGBT members in your area.... Most of them live in SJ, Redwood City and Sunnyvale. I play softball at Twin Creeks with many of them.
 
Well, it is nice to have concern for others and not wanting to offend but IMO it's more important to define yourself in a way you are comfortable and let the chips fall where they may.

BTW, I know many LGBT members in your area.... Most of them live in SJ, Redwood City and Sunnyvale. I play softball at Twin Creeks with many of them.

Hey cool! I wonder if I know any of them. I've lived in SJ and Sunnyvale, both!
 
You mean as opposed to describing it as "Hard of Hearing?" Why did they make that suggestion? What is the motivation to distinguish between APD and HoH? Not saying it's right or wrong, just asking, as it is different from what some of the posts here have been saying.

Apparently, the Voc. Rehab. trainers point of view was that what mainstream people prefer is a less technical (or a more dumbed down) explanation for things. I know it sounds really condescending of the mainstream, but I've found there is quite a bit of truth in her P.O.V. during several interviews that I had afterwards.
 
A direct quote from Joseph Santos-Sacchi, Ph.D. ....

TXgolfer doesn't mess around! :) Last week he e-mailed Joseph Santos-Sacchi, Ph.D. and asked him to further explain some of the issues that came up in this thread about the ear-brain pathway.

I had linked to Dr. Santos-Sacchi's web page that briefly described his research efforts in posts 27 and 58. Here it is again:

The exquisite sensitivity and frequency resolving power of the mammalian inner ear depends upon interactions between the two receptor cells of the organ of Corti, inner (IHC) and outer (OHC) hair cells. Whereas inner hair cells appear to function solely as receptors of acoustic information, OHCs function both as receptors and effectors, producing motile responses as a function of transmembrane potential fluctuations. These motile responses are believed to modify the mechanical input to the inner hair cells which receive the majority of afferent innervation, thereby enhancing the gross frequency tuning afforded by basilar membrane mechanics. Currently, we are studying the effector role of the OHC with electrophysiological and displacement measurement techniques using isolated OHCs from the guinea pig. In particular, we use the whole cell voltage clamp to study the voltage dependence of the mechanical response, and the corresponding nonlinear charge associated with the motility voltage sensor. Estimates of the mechanical frequency response are made in order to assess the potential significance of OHC motility in the in vivo feedback scheme. In addition to the work on OHCs, we are also involved with studies on electrical coupling in the supporting cells, as well as characterization of the ionic currents in these cells and in spiral ganglion cells.

I got the go-ahead from TXgolfer to pass on part of his e-mail from Dr. Santos-Sacchi to this thread:

As far as I know there are efferent paths down from high levels (cortical?) to the superior olive. Not sure if they directly drive the well characterized efferents that come from the olive to the Organ of Corti to innervate the hair cells – medial efferents to the OHC’s cell body and lateral efferents to the inner hair cell’s afferent fibers. The efferents to the OHC directly affect cochlear amplification, and out hearing sensitivity. So, definitely there is contact from some central regions to the cochlea within the organ of Corti to the hair cells. OHCs send some info to the cochlear nuclei with possible feedback to the cochlea.


Last week I had found a diagram on Wiki that shows the auditory pathways from the inner ear to the auditory cortex and from the auditory cortex to the inner ear. I didn't post it last week because, for one thing, I think the diagram should have only shown one auditory cortex and a second cochlea. However, I think the diagram's two-way arrows between the various structures including the inner ear, "relay stations" along the auditory nerve, and the auditory cortex is helpful. So, I attached it -- it's at the bottom of ths post. The original link is here:

File:Aud pathway.png - Wikipedia, the free encyclopedia



Mini-glossary

per: Efferent definition - Medical Dictionary definitions of popular medical terms easily defined on MedTerms

efferent
Carrying away. An artery is an efferent vessel carrying blood away from the heart. An efferent nerve carries impulses away from the central nervous system. The opposite of efferent is afferent.

central nervous system:
The central nervous system is that part of the nervous system that consists of the brain and spinal cord.


and per 2 OHCS Acronym/Abbreviation Meanings - What Does OHCS Stand For?

OHCS
outer hair cells


Per my reading:
As far as I know, outer hair cells only occur in the cochlear.
 

Attachments

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Plasticity. It is a lifelong phenomenon. I would suggest reading The Brain that Changes Itself, by Norman Doidge, MD.

Thanks. I just requested it from my library.

Yes - that's (for practical purposes) correct.

One of the most profound examples of the degree of the brain's plasticity / ability to make new connections is seen in those who've had partial or total hemispherectomies (removing some or part of one side of the brain). This surgery is done for extreme seizure disorders as well as major brain injury. Over days, weeks, months and years many functions (effected by the removal) begin to be taken over by the remaining brain. Of course, a lot of the recovery and ability of the brain to make new connections has to do with the specific parts removed, amount removed and if the remaining brain is completely healthy etc. I find the plasticity of the brain especially in extremes to be utterly fascinating.

Me too. And to bring it home to hearing loss, in the past when I have purchased radically improved hearing aids, I have found that my ability to hear continued to improve for as long as 6 months after wearing the new HAs. I attribute that to the brain's plasticity.

ETA: Joyce, I think I have definitely hijacked your thread ... and several times. I hope you forgive me! :Oops:
 
wot???!! :eek3:

It's the first I've learned the term "hearing impaired" is offensive to the deaf.

WHY ?????? what's so offensive in the "impairment"??
how do you describe, then, the "impairment"?

Fuzzy
 
wot???!! :eek3:

It's the first I've learned the term "hearing impaired" is offensive to the deaf.

WHY ?????? what's so offensive in the "impairment"??
how do you describe, then, the "impairment"?

Fuzzy

I read that this was offensive in "For Hearing People Only," a book on Deaf culture that I read in my ASL 1 class.

Here's a link on this forum to a discussion on the subject: http://www.alldeaf.com/general-chat/81464-hearing-impaired-offensive.html

And another: http://www.alldeaf.com/our-world-our-culture/63919-offensive.html

My understanding is that it focuses on the "impairment" the "can't" and not on the abilities and "cans" of the person in question. It focuses on what is missing instead of what is gained, as in Deaf Culture.
 
Hmm, interesting. (and thanks for the links :) )

I call myself "hearing impaired" because I believe I AM hearing impaired - gosh-darn it,
I can't hear! so what do you call it?!

people got so tangled up with political correctness that pretty soon
we are going to use "inferior ribbon" instead of simple TP to clean our behind.

I do not have any negative connotation with the word "impaired" - why should I?
It's just polite, neutral -elegant even- a word stating the simple matter of fact.

I am one cool, hearing impaired lady. And I can kick a$$. As simple as that :giggle:

Fuzzy
 
a cultural/way of being vs. basing identity or description on a "lack of" or on a "function".
 
Maybe those of us who don't mind the phrase "hearing-impaired" don't consider it our "identity" in the same way that those born deaf do.

To me, using hearing aids is about the same as wearing glasses. Both are necessary to go about my daily life, but there are many things that are much higher on my personal "identity" list than using these assistance devices.
 
Maybe those of us who don't mind the phrase "hearing-impaired" don't consider it our "identity" in the same way that those born deaf do.

To me, using hearing aids is about the same as wearing glasses. Both are necessary to go about my daily life, but there are many things that are much higher on my personal "identity" list than using these assistance devices.

Exactly
 
I read that this was offensive in "For Hearing People Only," a book on Deaf culture that I read in my ASL 1 class.

Here's a link on this forum to a discussion on the subject: http://www.alldeaf.com/general-chat/81464-hearing-impaired-offensive.html

And another: http://www.alldeaf.com/our-world-our-culture/63919-offensive.html

My understanding is that it focuses on the "impairment" the "can't" and not on the abilities and "cans" of the person in question. It focuses on what is missing instead of what is gained, as in Deaf Culture.

It's true, alot of people feel this way. Personally I have no problems with the label
 
Myself, I don't like "hearing impaired" while can't call myself deaf, unknown now whether born with hearing loss or not.

I understand about identity and why people don't like that label.
 
wot???!! :eek3:

It's the first I've learned the term "hearing impaired" is offensive to the deaf.

WHY ?????? what's so offensive in the "impairment"??
how do you describe, then, the "impairment"?

Fuzzy

You haven't been paying attention, then. We have been telling you for years that "hearing impaired" is seen as offensive by the vast majority of the deaf, and all of the Deaf.
 
Maybe those of us who don't mind the phrase "hearing-impaired" don't consider it our "identity" in the same way that those born deaf do.

To me, using hearing aids is about the same as wearing glasses. Both are necessary to go about my daily life, but there are many things that are much higher on my personal "identity" list than using these assistance devices.

Late deafened have a different perspective about anything related to deafness. To be certain that you are not going to offend, the PC term devised by the hearing should not be used in any reference to the deaf/hoh.
 
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