Aw......
Wow....poor baby. I remember my sister was pregnant and the doctor told her that the baby was not going to live because she would be born without a skin back of her head and maybe back of head skull. You could only see her back of her brain. Sure enough, she was born without a skin and a part of skull (back) and my sister held her for a few minutes, then she died. It was hard on us. The greatest things she has, 5 boys and just had another baby girl. Overall, she has 7 children including her daughter who died at birth.
I hope this baby will get a miracle. Poor thing. I can't imagine for what baby is going through.