Whoa!

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I am not surprised...the same thing happened to my son's 2 year old deaf friend...their audi said the same thing to the parents. The mother was not really comfortable with the decision but they went for it. Well, she refuses to wear her processor.

Just another reason not to trust the medical community.

Yes, children with head shunts are implanted. I worked with a boy who had a head shunt and a CI. He is a teenager now..no problems with the shunt but stopped using the implant a long time ago.
 
deafbajagal said:
I just found out about something that had happened very recently in my hometown. A mother very recently found out her two year old daughter is deaf. She's overwhelmed with all of the information about deafness, communication philosophies, etc. Her audiologist discussed getting a CI. The mother said she wanted to wait until she had time to sort through all of the information first (and to have time for her shock to sink in).

The audiologist went ahead and scheduled the surgery anyway. She insisted that if the mother puts off the CI, then it may be "too late" for the child. Now the mother feels pressured to proceed with the CI surgery.

What's wrong with this picture?
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Insurance???? CAT scan???? There is a lot to do before a CI surgery can be scheduled. The audie does not have this "power" to do this all. It comes from the doctor's office and doctor.
 
deafbajagal said:
I called the audiologist just a few moments ago because I wanted a straight answer. Apparently she does this (call for an appointment to meet with the surgeon and even will schedule the surgery because the surgeon and her are great friends) for a lot of parents to help them with the "transition process." This person is claimed to be one of the most successful audiologists (who is also a speech pathologist) in the state. She has a lot of recognition for her work...and is highly praised by the field. Oh, boy.
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It is unethical for her to discuss the case with you.
 
TechBill said:
The story is too far fetched to be true.

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The whole thing or some parts?

I believe the part about the "waiting too long" part cuz I see that happening too often. However, this is a first that I have heard or read of an audi scheduling a CI appt without the parents' contest. Wait and see what the OP says.
 
Angel said:
For a cochlear implant? really? how come? :curious:
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For CAT/MRI, the ENT wants to make sure there is fluid in the cochlea that they can put the wire go thru without any trouble. If its no fluid then it will be very difficult. Also they want to see if theres cochlea in the ear. Some deaf people born without cochlea. So thats why they need to get CAT/MRI

As for blood test, they need what type if need for tranfusion, in case.

As for the shot, we need to get vaccine to prevent to get menitigtis (SP)
 
shel90 said:
The whole thing or some parts?

I believe the part about the "waiting too long" part cuz I see that happening too often. However, this is a first that I have heard or read of an audi scheduling a CI appt without the parents' contest. Wait and see what the OP says.
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Pretty much the whole thing, At first it had me wondering that there was an audlgoist doing this out there but when poster replies stating that poster made a call to confirm this story, it sort of pretty much tell me that it far fetched since I know there will be no medicial personal willing to risk their job to disclose any patient's record or story whatever it true or not.


.
 
TechBill said:
Pretty much the whole thing, At first it had me wondering that there was an audlgoist doing this out there but when poster replies stating that poster made a call to confirm this story, it sort of pretty much tell me that it far fetched since I know there will be no medicial personal willing to risk their job to disclose any patient's record or story whatever it true or not.


.
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Well...look at all those malpractice lawsuits that have happened in the medical field. Drs and audis are humans too and I wont be surprised if there are few who are seriously unethical.

Come on...what about those drs who tell the parents if they want their children implanted they better not put them in programs where ASL is used. That is seriously unethical and I have personally seen that happen too often.

Truth to be told....all CI drs and audis are not all ethical.
 
vallee said:
Insurance???? CAT scan???? There is a lot to do before a CI surgery can be scheduled. The audie does not have this "power" to do this all. It comes from the doctor's office and doctor.
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Yes - it does sound odd. My audie never scheduled my CI surgery. I had to meet separately with the surgeon for the testing and it was his office that made the arrangements together with the hospital. I also had to sign consent forms and a form to show that I understood the risks of surgery before I even got my date. Maybe things are different in deafbagal's State and in the USA? And I am aghast that this audiologist discussed the case with Deafbajagal over the phone - perhaps the child is a client of deafbajagal's?
 
The parent is a friend of a friend, so she gave written consent for the audiologist to speak with me. And unfortunately, it is true what I've posted. It is outrageous, and it does seem far-fetched. What the audiologist has scheduled is the initial part of the whole, long process of getting the child approved for a CI. Thenshe told the mother that she needs to go to the appointment. This practice is unethical and by doing so, she's overstepping the boundaries.

It makes me very angry that a person in this field would abuse her "power." She should give her advice to the parent...and leave it to the parents to make the next step of what they think is the best.

The mother and I both are going to meet with her this week.
 
Audiologist is wrong for what she did!! She is not making any decision for the little girl who is NOT her kid!! Its up to the mother. If the mother wasnt sure about CI then respect her and be patience till maybe she changes her mind..

I feel bad for the mother..
 
deafbajagal said:
I just found out about something that had happened very recently in my hometown. A mother very recently found out her two year old daughter is deaf. She's overwhelmed with all of the information about deafness, communication philosophies, etc. Her audiologist discussed getting a CI. The mother said she wanted to wait until she had time to sort through all of the information first (and to have time for her shock to sink in).

The audiologist went ahead and scheduled the surgery anyway. She insisted that if the mother puts off the CI, then it may be "too late" for the child. Now the mother feels pressured to proceed with the CI surgery.

What's wrong with this picture?
Click to expand...


Indeed, there is something wrong with this picture. It is suppose to be decision between the doctor and the patient. Beside the doctor need the consent from the mother to go ahead with the CI surgery like signing on the form to agree upon. The audiologist is doing the very wrong to go ahead and make plan to have the child get CI without the consent of the mother. If the audiologist sign the form pretending to be the mother of the child which is way far out of this world and she might as well be in the mental institution to have her head check on why she would do a thing like that. Beside it is against the medical law to go ahead without the knowledge of the child's parent. The mother have a right to think and wait for the right time and to get over her shock of finding out about her child's deafness. It is her decision, not the audiologist. :roll:
 
deafbajagal said:
I called the audiologist just a few moments ago because I wanted a straight answer. Apparently she does this (call for an appointment to meet with the surgeon and even will schedule the surgery because the surgeon and her are great friends) for a lot of parents to help them with the "transition process." This person is claimed to be one of the most successful audiologists (who is also a speech pathologist) in the state. She has a lot of recognition for her work...and is highly praised by the field. Oh, boy.
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Of course she is highly praised by the field. She is nothing more than a salesperson, and she is probably topping the charts with tactics like these. Sounds like there might be some financial incentive offered for referrals by her friend the doctor. In which case, he is acting not just unethically, but illegally.
This action is totally unethical. It has absolutely nothing to do with trasitioning. It is making a decision for a client, that is unacceptable. She needs to be reported to the licensing board, and the doctor that is collaborating with her on this little scheme needs to be reported to the state medical board. In fact, get me their names, and I'll freakin' report them both myself! :mad:
 
deafbajagal said:
The parent is a friend of a friend, so she gave written consent for the audiologist to speak with me. And unfortunately, it is true what I've posted. It is outrageous, and it does seem far-fetched. What the audiologist has scheduled is the initial part of the whole, long process of getting the child approved for a CI. Thenshe told the mother that she needs to go to the appointment. This practice is unethical and by doing so, she's overstepping the boundaries.

It makes me very angry that a person in this field would abuse her "power." She should give her advice to the parent...and leave it to the parents to make the next step of what they think is the best.

The mother and I both are going to meet with her this week.
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Yes, I agree with you. The way the audiologist has gone about this without the parent's consent sounds very unethical and unprofessional.

I hope you can make notes from our own experiences when you go to meet her. i.e. dates should only be arranged by the surgeon, when candidacy has been established by surgeon, when consent forms signed and risks read and understood. I think in my case, it took about 6 weeks from the time I signed the consent form before they contacted me with a date in a further 6 weeks. So plenty of time to think about things!

Good luck with your meeting and let us know how it goes.
 
I'm not a liar. Saying the story is "too far fetched" implies that the story is untrue, thus drawing the conclusion that the OP (which in this case would be me) is lying.

To tell you the truth, I wish it was an untrue story.
 
Bebonang said:
Indeed, there is something wrong with this picture. It is suppose to be decision between the doctor and the patient. Beside the doctor need the consent from the mother to go ahead with the CI surgery like signing on the form to agree upon. The audiologist is doing the very wrong to go ahead and make plan to have the child get CI without the consent of the mother. If the audiologist sign the form pretending to be the mother of the child which is way far out of this world and she might as well be in the mental institution to have her head check on why she would do a thing like that. Beside it is against the medical law to go ahead without the knowledge of the child's parent. The mother have a right to think and wait for the right time and to get over her shock of finding out about her child's deafness. It is her decision, not the audiologist. :roll:
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Agreed. I didn't have anything like that happen to me though my father tried to cancel my surgery once but both my audie and my doctor have been nothing less than professional; this audie doesn't sound professional.
 
I hope this Audie will learn her lesson once you've showed up supporting this poor mother.

Makes me sick to hear stories of hearie pushing those sort of technology on kids when the parents feel unsure, and to top on that with no ASL comment.
 
deafbajagal said:
And this deaf girl has a lot of other medical problems, not just deafness. She's undergone several medical treatments that includes a head shunt.

Uh..do we implant children with head shunts?[/QUOTE]

Good question! Unfortunately, I can't answer you, but my instinct tells me no, because hydrocephalus (fluid on the brain, which the shunt is alleviating), can cause an increased risk for meningitis.

I developed hydrocephalus at just a few days old and was shunted at 3 weeks of age. I also contracted bacterial meningitis when I was 8 mos old. I recovered with my hearing intact, but it is NOT something you wanna mess with! I'm absolutely appalled that the audi would arbitrarily schedule the CI evaluation against the parents wishes and without first consulting a neurosurgeon !
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