VamPyroX's audiologist fiddled with the controls to push CIs!

faire_jour said:
Schools are generally closed campuses. They don't allow random people to enter and walk around.
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Ever heard of professional development or workshops for teachers/parents?
 
shel90 said:
Ever heard of professional development or workshops for teachers/parents?
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Professional development wouldn't be during school hours.

I want to know if you are saying that cochlear implant company reps came to your school to attempt to pressure people into getting CI's. Were they "proselyting"? Or were they invited there by administration or for some kind of workshop.

If they just showed up uninvited, that would be unethical and I would think that the school would ask them to leave.
 
faire_jour said:
Professional development wouldn't be during school hours.

I want to know if you are saying that cochlear implant company reps came to your school to attempt to pressure people into getting CI's. Were they "proselyting"? Or were they invited there by administration or for some kind of workshop.

If they just showed up uninvited, that would be unethical and I would think that the school would ask them to leave.
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I was responding how u said u never heard of a CI rep going to a school before. If u were referring to just a rep walking up to a school and pressuring..then no, that hasnt happened and it would be unethical. These consultants came for an open forum. As for pressuring people to get CIs, that wasnt what the open forum was about and when I brought it up, it wasnt related to the topic but to your post.
 
shel90 said:
I was responding how u said u never heard of a CI rep going to a school before. If u were referring to just a rep walking up to a school and pressuring..then no, that hasnt happened and it would be unethical. These consultants came for an open forum. As for pressuring people to get CIs, that wasnt what the open forum was about and when I brought it up, it wasnt related to the topic but to your post.
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Oceanbreeze said that reps are "showing up at deaf schools" to pressure people into CI's. I was asking for an example of where that happened.
 
faire_jour said:
Oceanbreeze said that reps are "showing up at deaf schools" to pressure people into CI's. I was asking for an example of where that happened.
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Oh ok...then it was my error at interpreting what what u meant. My apologies.
 
rockin'robin said:
I'm not against CI's or HA at all! Just wish one of them could help me....my ears are not healthy! My nerves are dead, and I do not have any ear drums! The disease I had (which was rare), and I don't remmy the name of it, destroyed the ear drums and a surgery took skin off my side to cover up what "little bit" of ear drums that I did have!

Remind you, this was back in 1962 !! The 1st surgery was blotched, and the surgeon butchered me (my nerves)! The other 3 surgeries I had was for all the infections I was having, drainage of both ears and pain. Nothing helped!

I went to Duke and Mayo Clinic....many specialists...I did "my homework".

I loved music, I wrote songs.

My ears continue to drain and I have pain and pressure. My records are a mile high, doctor to doctor.

So I've resigned myself as the way I am. And would not have a device implanted when my ears are so badly infected all the time and pain.

But to those who have "healthy ears", I say go for it! Same as with HA'S!
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If I was born during the 60's I would NOT have surgeries of any kind because their surgical techniques and technology is not as good as it is today and they scare me. When I hear stories of people having surgeries in the 60s it scares me, and makes me grateful I was born in 1980 where technology and surgical techniques were so much better as I was born with hip dysplasia that required several major surgeries to fix it and I was in a body cast every time for 6 months, and I didn't walk until I was 4 years old, then I moved to Milwaukee from Colorado while in a body cast from the last surgery (2-3 days on the road!!!), and then a few months later I also had another surgery to repair my right ear lobe that was bitten off by a dog when I was 4 1/2 years old, and even today you can't even tell the difference between my ear lobes UNLESS you touched them and squeezed them, that will be the only way to tell as you will feel the tissue on my right ear lobe is thicker than the left one - that is scar tissue. And I am glad this is 2009 now because it makes me less scared because there are always newer surgical techniques and newer technology.
 
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She was born hearing and has been losing it slowly. She passed her newborn screen and a follow up ABR at 6 months old. She still had normal hearing as of 9-12 months old. At 15 months I noticed something wasn't right, but we were dismissed by doctors. At 18 months we discovered her moderate loss. She has since lost more and more hearing until now she is at 90+ db.
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Well there you have it. The reason she's done very well hearing with the CI is b/c she had a relatively late onset loss. If she had been born with the loss, you might have seen different results. I know you're concerned about her speech issues...........but it's possible she may have oral apraxia of speech.


rockinrobin,
have you tried an Eye and Ear hoispital? You may need a specialized specialist.
Lucia, thank you. I do agree somewhat with deafdude that the marketing of CIs is a little too akin to the relationship some docs have with Big Pharma....however I also think that it's not a HUGE widespread thing. I think if hearing aids were covered by insurance there wouldn't be all this huge marketing to "ambigious" canidates, or "off label" use.
 
deafdyke said:
Well there you have it. The reason she's done very well hearing with the CI is b/c she had a relatively late onset loss. If she had been born with the loss, you might have seen different results. I know you're concerned about her speech issues...........but it's possible she may have oral apraxia of speech.


rockinrobin,
have you tried an Eye and Ear hoispital? You may need a specialized specialist.
Lucia, thank you. I do agree somewhat with deafdude that the marketing of CIs is a little too akin to the relationship some docs have with Big Pharma....however I also think that it's not a HUGE widespread thing. I think if hearing aids were covered by insurance there wouldn't be all this huge marketing to "ambigious" canidates, or "off label" use.
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Right, she heard well for a long time. That is why she is such a good candidate.
 
faire_jour said:
Professional development wouldn't be during school hours.I want to know if you are saying that cochlear implant company reps came to your school to attempt to pressure people into getting CI's. Were they "proselyting"? Or were they invited there by administration or for some kind of workshop.

If they just showed up uninvited, that would be unethical and I would think that the school would ask them to leave.
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In-service is professional development. It is typically held during school hours. That is why students get the day off when teachers are in-sevice.
 
LuciaDisturbed said:
She what.....?
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You still didn't get the chance to read my long reply, it got cut off last time and I edited it and posted more. I disagreed with some of the things you said to me, it's not true. Also I provided her audiogram so you can see her loss starts at 60db(moderate) and slopes downwards from there. Her hearing is way better than mine.

faire_jour said:
I hope you don't actually expect to hear at 5 db. There is no way that is going to happen. I doin't want you getting your hopes up and then calling "foul" and saying your audi is dishonest or is unprofessional when that happens.

Miss Kat had a 60 db loss and they only brought her up to 15-20 db. Not because that was all the hearing aids could do, but because that is reasonable and appropriate.
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I will start a new thread, my audiologist who sold me those HAs replied to my email and answered 5 of my questions, that's all the time he had. I never expected 0db to be realistic(not with my degree of loss anyway) The 5db figure is the max I can get, doesn't guarantee I will. My audie did say I can expect 15db to be realistic and that honestly is still great. I have only 65db loss at 125Hz and only 75db loss at 250Hz which is somewhat worse than Miss Kat's 60db loss. This also explains why I am not interested in a CI at this time. You made the choice for her. When/if I have children and they have only 60db loss, no way are they getting any CI. I was born with worse than 60db hearing loss at any frequency and benefitted fine from HAs(no digitals back then!) so I have been there and know what it's like.


faire_jour said:
Yes. She was doing pretty well with her hearing aids back then.
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It should come by no surprise I am also doing pretty well with my HAs since im able to be aided to 25db or better in the lows. Actually, I tested my aided score at 12.5db at 250Hz with my home test(ill post that in another existing thread)

Deafteen90 said:
Thats a great decibel hearing level for HA's!
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It depends on how much residual hearing a person has. I have a decent amount of hearing at 500Hz and below so im hearing the lows great. If you can't hear even low frequencie well with HAs, it's likley your loss is profound even at 250Hz.

faire_jour said:
She had a lot of residual hearing back then. Her loss was only moderate. It started at 15 db and then dipped down to about 60.
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That would be labled as "normal with moderate high frequency loss" My dad has a similar loss to that but not enough to benefit yet from HAs. He has no trouble understanding speech despite a moderate high frequency loss(this is why I made a thread questioning the importance of high frequencies for speech) My type of loss is "severe with very profound high frequency loss"

faire_jour said:
She has a progressive loss. She was born hearing and has been losing it slowly. She passed her newborn screen and a follow up ABR at 6 months old. She still had normal hearing as of 9-12 months old. At 15 months I noticed something wasn't right, but we were dismissed by doctors. At 18 months we discovered her moderate loss. She has since lost more and more hearing until now she is at 90+ db.
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I thought you said in another thread that she had only 60db loss when you decided to get her a CI? I would never get any of my future children a CI till they have 90+ db loss, nothing less than profound. I did see a few with moderate losses(40-70db) range get CI. I would love to trade my hearing for theirs anyday and would take their hearing anyday over any CIs because if I had only a moderate loss, id benefit so much from HAs. Look at Phi4Sius results(100% speech comphrension!) with his high power Unitron analog HAs. He has a 50db loss sloping down to 100+ db in the high frequencies. My audiologist stands correct when he said if I had 20db more residual hearing, id hear perfect with HAs.
 
Again, at the time of implantation, she had 65 db loss at 250 hz, but it then dipped down to 90 and then to 105. It was not moderate.

But when we found her loss, 5 years ago, it was. It was 15 at 250 and then 60 at 500, 60 at 1000 and 65 at 2000.
 
Hmmm....65dB at 250 Hz.....normal male speaking voice averages 40 dB at 128 Hz and normal female speaking voice averages 40 dB at 225 Hz.
 
It should come by no surprise I am also doing pretty well with my HAs since im able to be aided to 25db or better in the lows. Actually, I tested my aided score at 12.5db at 250Hz with my home test(ill post that in another existing thread)
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A home test does not give you accuracy in what you are hearing. Aided or unaided. Maybe a rough estimate but not accuracy like an audiologist and sound booth and audiometer will.
 
faire_jour said:
Again, at the time of implantation, she had 65 db loss at 250 hz, but it then dipped down to 90 and then to 105. It was not moderate.

But when we found her loss, 5 years ago, it was. It was 15 at 250 and then 60 at 500, 60 at 1000 and 65 at 2000.
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Thanks for explaining. Was that 90db at 500Hz? What about the 105db, was it at 1000Hz? Was her better ear alot better or how much better? I must have misunderstood you before when I saw you say "60db" and I was shocked. You did mention she was only able to be aided to 40-45db before getting CI, this would have made sense perfectly for profound loss frequencies. Couldn't she have gotten more gains in the low frequencies? This is what my audiologist is going to do so ill hear louder/more/better. Yes, itll still make a difference thats why he's going to reprogram my HAs when he's not so busy.

As for her loss 5 years ago, that is much worse than what my dad has. His hearing is normal in the low and mid frequencies and only begins to slope down to moderate above 2000Hz, but that's normal for most 60+ year olds.

I remember when I was younger, I had only 70db loss at 250Hz but it went to 90db at 500Hz then 100-105db at 1000Hz to 6000Hz straight. I was able to be aided at 30db in the lows, 35-40db in the mids and only 50-60db in the highs(HAs back then weren't able to do much for high frequencies without getting feedback, I was already getting max gains without feedback.). But at that time, I was on older analogs then got my Widex digital. They didn't come close to the gains/power of today's HAs.
 
Oh....and why are you so obessed with hearing perfectly at 0 dcb? Even hearing people don't always hear at 0 dcb!
 
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