VamPyroX's audiologist fiddled with the controls to push CIs!

Thats a great decibel hearing level for HA's!
 
MomToDeafChild said:
You need a functioning auditory nerve in order for a CI to work.
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Thank You...so if that's right, why did the doctors at Mayo Clinic "encourage me" to have the CI????..Saying I would be an "excellent candidate"...as I still had and have my speech....hmmmm...and was deafened at 14 yrs. old. Been a long time now!
 
Deafteen90 said:
hm
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She has a progressive loss. She was born hearing and has been losing it slowly. She passed her newborn screen and a follow up ABR at 6 months old. She still had normal hearing as of 9-12 months old. At 15 months I noticed something wasn't right, but we were dismissed by doctors. At 18 months we discovered her moderate loss. She has since lost more and more hearing until now she is at 90+ db.
 
I was born hearing and was found to have a hearing loss at 9 months. It was severe at nine months but it is now in the profound range
 
Deafteen90 said:
I was born hearing and was found to have a hearing loss at 9 months. It was severe at nine months but it is now in the profound range
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There is a link between the heart-lung bypass she had and late onset, progressive hearing loss. It could be the procedure itself, the lack of oxygen, the medication, or the long term ventilation that causes the loss, or a combination of all them.
 
My hearing loss was caused by medication the doctors think. But I dont know
 
rockin'robin said:
Thank You...so if that's right, why did the doctors at Mayo Clinic "encourage me" to have the CI????..Saying I would be an "excellent candidate"...as I still had and have my speech....hmmmm...and was deafened at 14 yrs. old. Been a long time now!
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Hmm. I can't figure that one out! The way an implant works is that it bypasses the damaged portion of the ear and stimulates the auditory nerve directly. Without a functioning auditory nerve, there is nothing to stimulate. Is the nerve completely dead, or is there some function? Maybe they determined it was functioning enough that a CI would work? Or is it possible that they meant an ABI (Auditory Brainstem Implant)? That is an option for those who don't have a functioning nerve due to the removal of tumors on the nerve.

My daughter had an implant failure 2 yrs ago, but it had the misfortune to occur at the exact same time as an antibiotic-resistant ear infection. The implant passed integrity testing, but she could not hear ANYTHING with it.

They blamed it on auditory nerve death and said a CI would never work for her again. She has a malformed cochlea, and there is no 'test' to accurately determine nerve function, short of reimplantation (a new implant would either work, or it wouldn't, thus proving the case one way or the other). We decided to reimplant so that we'd know once and for all.

She wore her implant every day right up until she was reimplanted 4 months later (she wouldn't take it off, even though it didn't work anymore), and it never worked again. 2 weeks after she was reimplanted, she was activated, and imagine everyone's surprise when her little voice pipes up, "I can hear you!" So it wasn't nerve failure after all, though they still will not call it an implant failure (subsequent testing of the implant showed it to be in perfect working condition). Frankly, they have no idea what happened. I call it a soft failure though.
 
Last night I went to PA for girls' night out. One of my friends has 2 deaf boys and she was sharing her experiences about the oral school she had them in and why she pulled them out. She said that she felt she was being pressured into implanting her boys by the audiologist at the school. I agree...audies need to back off about it. Doesnt make me anti-CI but against the views that without CIs, deaf children will never have a good life.
 
deafdude1 said:
While searching the forums, I came across this post(from late 2006) from VamPyroX. I was absolutely shocked when I read this! That took place in late 2006 when the CI hype was getting started. I do feel sorry for some of the people from what I read in CI blogs. One lady with moderate(!) hearing loss(only 60db at 250Hz!) was pressured into a CI(so her audie could score a big, fat commission). She scored 95% speech comphrension on an online test!(I scored 72% on the same test) She didn't want a CI but all the pressure got to her and she relented and is getting surgery a few days from now!

I have my own blog but it's about how most people benefit from HAs and it also discusses the CI hype. Ive already discussed plenty about HAs and CIs in my blog and on other posts in this forum. I just wanted to show everyone to watch out for audiologists, ENTs and surgeons who try to pressure/force CI on you. Seek second and third opinions, get your hearing test from other audies and compare results. Make sure your audie properly programs your HA as well!
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Most Audiologists are not qualify for Cochlear Implant mapping. I have to travel a distance for CI mapping. I don't think regular audiologists really want to lose their business. Maybe the ones who work with CI certified doctors will probably suggest it.They said that audiologist who deal with CI have to be near CI certified doctors so they can work with them in case something goes wrong.
 
shel90 said:
Last night I went to PA for girls' night out. One of my friends has 2 deaf boys and she was sharing her experiences about the oral school she had them in and why she pulled them out. She said that she felt she was being pressured into implanting her boys by the audiologist at the school. I agree...audies need to back off about it. Doesnt make me anti-CI but against the views that without CIs, deaf children will never have a good life.
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I'm starting to agree. Seems there is a lot of pressure to implant kids. I can see offering them the option of the CI, but once that happens, it should be the parents decision to implant or not. It would seem that the schools is where the pressuring is mostly taking place. CI reps coming to your school to push CI marketing. Audi's and SLP's in the oral schools pushing the CI on the parents. Oy!
 
Oceanbreeze said:
I'm starting to agree. Seems there is a lot of pressure to implant kids. I can see offering them the option of the CI, but once that happens, it should be the parents decision to implant or not. It would seem that the schools is where the pressuring is mostly taking place. CI reps coming to your school to push CI marketing. Audi's and SLP's in the oral schools pushing the CI on the parents. Oy!
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I didnt know this about her experience until last night. I was blown away by what she shared with her experiences. I just kept my mouth shut and let her share everything. All I could think was "Why am I not surprised by this?"
 
shel90 said:
I didnt know this about her experience until last night. I was blown away by what she shared with her experiences. I just kept my mouth shut and let her share everything. All I could think was "Why am I not surprised by this?"
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I'm really not, either. It would seem they are now leaving the rhealm of the hospital, ENT and audi and are now getting the SLPs to promote the CI or the reps will come directly to the deaf school.

Sad.
 
Oceanbreeze said:
I'm really not, either. It would seem they are now leaving the rhealm of the hospital, ENT and audi and are now getting the SLPs to promote the CI or the reps will come directly to the deaf school.

Sad.
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Where did you say this was happening? I have never heard of a CI rep going to a Deaf school before.
 
faire_jour said:
The CI rep? Which company? Who were they speaking to? Why does your school allow strangers that have nothing to do with school inside?
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There were a bunch of them. I think they were consultants. Dont remember which company. They were speaking to all of us. Allow strangers? Huh?
 
shel90 said:
There were a bunch of them. I think they were consultants. Dont remember which company. They were speaking to all of us. Allow strangers? Huh?
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Schools are generally closed campuses. They don't allow random people to enter and walk around.
 
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