The hearing and cochlear implant debate! Share your opinion!

faire_jour said:
An audiologist's job is to help you hear the best you can. That is their job, that is why they recommended a CI. From their perspective, it would help you hear more and that is what they are supposed to do.
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Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.
 
dreama said:
Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.
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You didn't say they held you down and tried to implant you, you said they recommended it. I don't see that as unreasonable.
 
Bottesini said:
And I thank you. In another thread Sound and Fury, Doubletrouble who is the mother in the movie, does admit the risks and imperfections.

She seem one of the few CI user here who are not trying to push it for everyone.
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ooohhhh... so that's what the thread is about... I've actually never checked it out. Now your post just piqued my curiosity...
 
dreama said:
Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.
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I know how u feel... lately, it seems like a simple visit to the audi for new ear molds becomes a tug-of-war with them about why I dont want CIs. They should back off and just focus on the purpose of each clients' visit instead of "selling" CIs.
 
Well that should change. Audio shouldn't ram CI's on everyone.

In the 10 years I had severe-profound hearing loss, none of my audis (2 of them) ever mentioned CIs to me. My ENT recommended an MEI, but after seeing a specialist, I learned that I didn't have enough residual hearing.

Even the audi who gave me my first pair of hearing aids in 1985 told me that she didn't know if I would qualify as a CI candidate with a 90+ dB loss.

I don't know where all of these audis are who ram CIs down people's throats.
 
faire_jour said:
An audiologist's job is to help you hear the best you can. That is their job, that is why they recommended a CI. From their perspective, it would help you hear more and that is what they are supposed to do.
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Exactly.
 
Hear Again said:
In the 10 years I had severe-profound hearing loss, none of my audis (2 of them) ever mentioned CIs to me. My ENT recommended an MEI, but after seeing a specialist, I learned that I didn't have enough residual hearing.

Even the audi who gave me my first pair of hearing aids in 1985 told me that she didn't know if I would qualify as a CI candidate with a 90+ dB loss.

I don't know where all of these audis are who ram CIs down people's throats.
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Me either. I had one audiologist straight out tell me "NO" for Miss Kat. She also said that she thinks that we shouldn't be implanting pre-linguially deafened adults unless they are 100% oral. That view is twice as offensive to me as someone offering a CI as an option to profoundly deaf person.
 
shel90 said:
I know how u feel... lately, it seems like a simple visit to the audi for new ear molds becomes a tug-of-war with them about why I dont want CIs. They should back off and just focus on the purpose of each clients' visit instead of "selling" CIs.
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same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....
 
faire_jour said:
Me either. I had one audiologist straight out tell me "NO" for Miss Kat. She also said that she thinks that we shouldn't be implanting pre-linguially deafened adults unless they are 100% oral. That view is twice as offensive to me as someone offering a CI as an option to profoundly deaf person.
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I'm sorry, but that audi was wrong for telling you that. As you already know, prelingually Deaf adults can benefit from a CI even if they aren't oral. After all, the purpose of a CI is to hear -- not to speak. If that audi would have said the same thing to me, I would have been offended too.
 
Jiro said:
same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....
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That's one way to solve the problem of audis who suggest CIs to their profoundly deaf clients.
 
Jiro said:
same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....
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I just feel tired of that anticipation that the next time I visit the audi, I would have to waste 10 to 20 mins of my time explaining why I am not interested in a CI. After going thru that several times, it gets tiresome and annoying. I just want to be able to visit an audi for what I need and leave.
 
dreama said:
I went to an Audiologist recently hoping to obtain a tactaid7. I was even willing to fund it myself. I just needed an Audiologist to purchase it since they don't sell directly to the public.
Anyway they recomended a CI instead. Since a Tactaid7 is much cheaper, I can't understand why. I don't want a CI because I like being profoundly deaf. The tactaid would just alert me to environmental noise through tactile means.
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I must be missing something because in the 10 years I had severe-profound hearing loss, none of my audis told me about CIs. The closest any audi came to telling me how bad my hearing was when I was told that I couldn't benefit from digital aids because my hearing loss was too severe. Personally, I don't think that audi knew how to properly program digital aids.
 
Hear Again said:
I'm sorry, but that audi was wrong for telling you that. As you already know, prelingually Deaf adults can benefit from a CI even if they aren't oral. After all, the purpose of a CI is to hear -- not to speak. If that audi would have said the same thing to me, I would have been offended too.
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I hate the woman with a passion. She told me at our first visit, when Miss Kat was 18 months old, that if she didn't learn to talk it was because I was a lazy mother. She hates that we use ASL and judges us for her school placement. She said that since Miss Kat is in a bi-bi school and uses ASL she couldn't get a CI. That she "only implants kids who will become 100% oral, and (we) have shown that she won't".

That is WAY worse! We walked out and never went back. We have also had several families complain as well and move to other audiologists. Hopefully she will at least stop seeing kids.
 
faire_jour said:
I hate the woman with a passion. She told me at our first visit, when Miss Kat was 18 months old, that if she didn't learn to talk it was because I was a lazy mother. She hates that we use ASL and judges us for her school placement. She said that since Miss Kat is in a bi-bi school and uses ASL she couldn't get a CI. That she "only implants kids who will become 100% oral, and (we) have shown that she won't".

That is WAY worse! We walked out and never went back. We have also had several families complain as well and move to other audiologists. Hopefully she will at least stop seeing kids.
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She actually accused you of being a lazy mother? What nerve!

How can an audi determine which child will become 100% oral and which one won't after receiving a CI? Just because a child uses ASL does not mean they can't benefit from a CI.

That audi's attitude is sad -- not to mention inexcuseable.
 
dreama said:
They haven't out and out refused. I'm being redirected to someone else now. Another long waiting list.
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That doesn't make any sense whatsoever.

At any rate, I hope the next audi you see will be willing to order a Tactaid 7 for you.

By the way, you may want to follow Jiro's lead and have your audi write in your chart "No CI" so that you don't have to worry about another audi asking you if you'd like a CI.
 
Hear Again said:
She actually accused you of being a lazy mother? What nerve!

How can an audi determine which child will become 100% oral and which one won't after receiving a CI? Just because a child uses ASL does not mean they can't benefit from a CI.

That audi's attitude is sad -- not to mention inexcuseable.
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Outrageous! I'm glad I am smarter enough to not fall for it. I just feel bad for other, more impressionable parents who may run into her.
 
Hear Again said:
That doesn't make any sense whatsoever.

At any rate, I hope the next audi you see will be willing to order a Tactaid 7 for you.

By the way, you may want to follow Jiro's lead and have your audi write in your chart "No CI" so that you don't have to worry about another audi asking you if you'd like a CI.
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I'll ask them to do that then in about 3 to 6 months time when I next have another appointment...If I rememeber by then. Since this isn't an urgent matter I can expect to wait a long time by which time the tactaid may have gone out of buisness.
 
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