Son's CI surgery

Boult said:
Thanks for the link.. good one!

I think you confuse me

It didn't occur to me when I had bilateral HA but now it occur to me when I am using CI.

No, I am not using HA anymore like what Hear Again said that my HA were of no benefit to me after a while.
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Er...didn't mean to confuse you. I meant that a CI alone (or bilateral CIs) can't pick up bone conduction sounds. That wouldn't be the source of "distortion" of one's voice (compared to as others hear it). It would have to be something else.

Boult said:
Keep in mind I am AB user so my BTE has a Auria T-Mic (a in-the-ear microphone) so I am guessing it's different thing between AB and Cochlear hmm? and I am using HiResolution sound processing.

but it's amazing though...
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Now, that is a neat idea in microphone placement. I can see the possiblities there but I'm not so sure that it would make any difference in why you are hearing your voice differently than others. Maybe the sound processing contributes to this effect...who knows? Very interesting and thanks for the info.
 
Hello everyone,

I've been busy working overtime with several deadlines to meet at the office. This will keep up until sometimes in March so I won't be online much until then.

I just wanted to break news to yall that we found out our son has type 1 diabetes yesterday. This news blindsided everyone and of course everyone was devasated. Apparently type 1 diabetes could happen to anyone (when they're young) even without family history. I didn't know my tear ducts could produce bottomless water.

Marshall doesn't think he has a medicial condition (LOL) but it's because we caught it before it hurt anything in his body so we are extremely grateful for that. Today was all about educating ourselves and trying to bring his blood sugar count down. I gave him an insulin shot today for the first time. It is the first of thousands to come. We all will be OK and since we've had experience living as deaf people, we are tough and we can survive this, too.

Adam Morrison has become my favorite athlete overnight, by the way ;)
 
Hi, I'm really sorry to find out that your son has diabetes type 1. I've type 2 myself.

I am really glad you found out before he got any serious complications from it. I had a friend with type 1. He was 20ish when he first came down with type 1. I had thought that type 1 only happened to children before his aunt found him in a coma in the bathroom and he had to stay in the hospital for quite a while as a result.

I wish your son well and I hope that his diabetes will be easy to control.
 
deafskeptic said:
I wish your son well and I hope that his diabetes will be easy to control.
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Thank you for the kind words.

As long as we are educated about this and know exactly what we are doing, this stuff can be easy to control. My brother in law who is a doctor said he wouldn't be surprised if in 10 years there is a "cure" where you don't have have a strict lifestyle.

We'll see but we won't hold our breath but we're gonna change our diet and everything to revolve around his diet. I guess everyone in the family will become health freaks soon enough.
 
Sorry to hear that news Fragmenter. I'm glad it was picked up at this early stage and that a strategy is in place for managing it. How did you come to pick it up? Did it show up in a routine test or did Marshall start showing some symptoms? Thoughts are with you and your family.
 
That is a bit of a shock to hear. I'm sorry to hear that but I'm glad it was caught so quickly. My thoughts are with Marshall and your family as you all are adjusting to this situation.
 
Fragmenter said:
I just wanted to break news to yall that we found out our son has type 1 diabetes yesterday. This news blindsided everyone and of course everyone was devasated. Apparently type 1 diabetes could happen to anyone (when they're young) even without family history. I didn't know my tear ducts could produce bottomless water.
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Oh wow...I'm sorry to hear about that! But I know that you, your son, and your entire family will get through this. My thoughts are with y'all.
 
Yesterday he went to the bathroom 20 times so my wife thought he had bladder infection so she took him to our brother in law's office. There we went through urine sample testing and they found 5x the normal sugar count so they drew blood and tests confirmed he has type 1 diabetes.

It just hurt so much because I grew up thinking I was invincible and now I know I'm just mortal. I wish it happened to me instead of him.. that's all I can say. I realize he can still lead an active and quality life... there are a lot of misconceptions about having diabetes just like there are misconceptions about deafness. Diabetes is not a death spell (although I felt as if Death called me and asked for my son when I learned of the news) and it can be controlled. The problem is the pancreas is not producing insulins to break down sugar/carbohydrates in the body. It's that simple :) As long as we monitor the levels in his blood and keep him on a strict diet daily, he will not feel any different than us. It just takes a different and HEALTHY lifestyle so that is a blessing in disguise.
 
Fragmenter said:
...
I realize he can still lead an active and quality life... there are a lot of misconceptions about having diabetes just like there are misconceptions about deafness. Diabetes is not a death spell (although I felt as if Death called me and asked for my son when I learned of the news) and it can be controlled. ...
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Yes, that is true and I have known quite a few people in these circumstances (both type I and II). I'm sure that your son do just fine. I have heard of some very promising ideas to assist those with diabetes. Given your son's age, I would have to believe these things will definitely benefit him in his lifetime. One of the more likely possibilities is the promise of an inhaler type of insulin medicine. They are working on that right now.
 
In another thread we were talking about comparing ourselves to others that have more serious medical conditions. B, look at it this way, there are plenty of worse things that Marshall could have gotten. As you said, this is managable. He will be fine. Simple diet change and stay active. and he'll (and the rest of the family) will be fine. I'll kepp him in my prayers.
 
Fragmenter said:
I just wanted to break news to yall that we found out our son has type 1 diabetes yesterday. This news blindsided everyone and of course everyone was devasated. Apparently type 1 diabetes could happen to anyone (when they're young) even without family history. I didn't know my tear ducts could produce bottomless water.
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Hey frag, my 2nd daughter has a friend who was diagnosed with type 1 at 13 or so...after using her older sisters test kit. That is unusal to have 2 type 1 kids in one family. Both have kids now, which at one time they didn't recommend. (pregnancy of course won't be a problem with your son for obvious reasons, :))

Both of these women now have pumps. I also know of a girl with Down Syndrome diagnosed around 10 who has had a pump since her early teens. This is something you might want to look into with your son once he has learned to control his food intake and insulin. ACtually a pump would probably cut down on the number of necessary visits to the nurses office, since the kids, even teens who've been managing their own shots can no longer just give it to themselves. Hey, my oldest daugter had a classmate who'd give himself his shot at his locker and it was no biggie to anyone around him, just something he had to do. (was before it became a hugh no no to even have an aspirin in your purse)
 
jag said:
ACtually a pump would probably cut down on the number of necessary visits to the nurses office, since the kids, even teens who've been managing their own shots can no longer just give it to themselves. Hey, my oldest daugter had a classmate who'd give himself his shot at his locker and it was no biggie to anyone around him, just something he had to do. (was before it became a hugh no no to even have an aspirin in your purse)
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This isn't necessarily true - I just graduated HS a few years ago, and I had a friend who self-injected insulin at school (which was great in the cafeteria - "DON'T LOOK IF YOU DON'T HAVE A STRONG STOMACHE, EVERYBODY!"). I and a few friends also got permission from the administration to carry various pills around that we needed. So it all depends on how flexible and student-friendly your school's staff is. A pump is great for some people, but syringes aren't out of the question.
 
Damn Fragmenter,

Talk about "good news - bad news"
Another chapter in the medical journals and internet resourses to investigate..
another reality check... just when you think you're invincible.

From the view I have on you and your family.. he couldn't be in better hands.

Take care. Keep us informed..
 
"From the view I have on you and your family.. he couldn't be in better hands"

Cloggy, You could not be more correct!

B, you have a very closeknit, tight family that will ensure that Marshall will do just fine in every thing he does in life, whether it is medical related or anything else. Marshal comes from a good supportive family, he can accomplish anything he puts his mind to.
 
Frag,do you think that the diabetes might be the reason for him being so tired all the time? I know you were saying that you might opt for a second CI b/c he was so tired from only input from one CI, but the diabetes might be the real reason for his fatigue.
 
I want to thank everyone for their support of Fragmenter's son and his family -- I am SO appreciative of all your kind words! :grouphug: Yes, like Frag said, we all had been blindsided with this devsating news but hey we'll get through this new chapter...
 
Cloggy said:
From the view I have on you and your family.. he couldn't be in better hands...
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Aw you made me blush! Thanks, everyone, for the kind words!

There were other kids in the hospital with far more serious health problems so we are still lucky just to have diabetes. It is an easy condition to live with depending on the individual's character. In Marshall's case, he has lots of character and strength so it will be an easy transition in our lives. For the first time he didn't cry after an insulin shot today but I think he just put on a front in front of the family :) We will be allright.

About the inhaler type insulin "shots", it's going through FDA testing and it's doing it's job so far. I heard there were research on curing diabetes that may happen in the next 10 or 20 years. Like I said, we are not holding our breath and we will stick to what is available today. When better treatments surfaces, we will move up.

Deafdyke, yes, I remarked that this might be why Marshall was always tired after school but the doctors said he got diabetes very recently. They said people with diabetes usually learns about it in the emergency room. Our son simply got diagnoised without ever becoming sick so we are blessed that he didn't suffer. Bilateral CI can wait right now because we need to cover our bases with his medical condition. We are trying to make it one day at a time.. The interpreter was surprised to learn Marshall had CI (we know eachother) and he remarked that he could understand his speech just fine! He said he doesn't sound like a deaf person and he was impressed with his speech. Looks like we converted another interpreter :devil:

About the insulin pumps, the doctors recommended that we stick to shots so we get a full hands-on experience with his diabetes so we know what to do without thinking down the road. Pumps usually gets into discussion about a year to two after being diagnoised with diabetes. I'm already comfortable drawing blood for tests, calculating the carbs and administering insulin shots. We need to learn how to change our everyday eating habits so that is the hardest part, I think.

Again, I also find comfort here, because of you guys! I appreciate everyone's concerns and remarks. God bless everybody.
 
Well I think it's good that you're waiting on bilateral CI. It's definitly something that can wait.
Still think that there might have been an endrocrinal reason for his tiredness. Like not diabetes, but maybe a diabetes "precursor"
I had endo probs as a kid, and can rememeber being very tired.
Is Marshall gonna have to follow a special diet?
 
deafdyke said:
Well I think it's good that you're waiting on bilateral CI. It's definitly something that can wait.
Still think that there might have been an endrocrinal reason for his tiredness. Like not diabetes, but maybe a diabetes "precursor"
I had endo probs as a kid, and can rememeber being very tired.
Is Marshall gonna have to follow a special diet?
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Bi-lateral CI is something that we will look at harder than the first one. It will depend on how much he improves in the next 12 months. There is only one event that will make bi-lateral CI a default decision -- when Marshall demands it. So far, he has been open to the idea but we are gonna weight everything unless he demands it.

Marshall will follow a healthy diet as every human being should :) It's funny, diabetic people follows a correct diet. That is why we probably all will become health freaks. Soon enough, we will be reading that small nurition facts box on every food packaging without thinking. So we simply are becoming 20 times more organized overnight.

It is weird... I took our eating habits for granted until now. I can tell you straight up that your lives do revolve around your eating habits, healthy or not.
 
Fragmenter said:
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It is weird... I took our eating habits for granted until now. I can tell you straight up that your lives do revolve around your eating habits, healthy or not.
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I know what you mean. We changed our diets drastically due to some health problems my wife experienced a couple of years ago. She is doing much better but we are sticking to eating healthy. In fact, it is even more expensive to do so but well worth the effort. The best part is that we can keep our kids much healthier. They are rarely sick compared to many other kids. You are what you eat and we can see the truth of it every day.

Believe me, it will be for your family a blessing in disguise. Now, just don't get me started on how bad Americans eat nowadays... ;)
 
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