Son's CI surgery

OK, my son had his audiogram today (exactly 7 days after activation) and the results are astonishing. The audiologist called his hearing progress "rare", so keep that in mind.

Let me start with the most recent audiograms before today. (Please maximize the AD website screen to read the crude graph clearly)

Date: 5/1/06 (No Hearing Aids)

Frequency (Hz)
(Low Pitch) 250-----500-----1000-----2000-----4000 (High Pitch)

Hearing----80db----90db-----90db----95db-----95db-----Level


Date: 5/10/06 (With Hearing Aids)

Frequency (Hz)
(Low Pitch) 250-----500-----1000-----2000-----4000 (High Pitch)

Hearing----N/A-----25db-----25db----40db-----55db-----Level


Date: 9/5/06 (With Cochlear Implant only)

Frequency (Hz)
(Low Pitch) 250-----500-----1000-----2000-----3000-----4000-----6000 (High Pitch)

Hearing----N/A-----25db-----25db----15db-----15db-----25db-----20db-----Level​

The audiologist was surprised to find out my son was hearing sounds at 2000 through 3000 Hz at 15 decibels. My wife couldn't hear the higher frequencies that our son heard. The audiologist said it must be because his brain has been used to sound stimulation since he was 9 months old and she said it is remarkable and wonderful!

Oh yeah, he also received 2 new maps today!
 
Wow that is fast progress audiogram wise.

How is Marshall going with all the new louder sounds? Is he quite oblivious to it all or is it a totally new experience for him?
 
R2D2 said:
Wow that is fast progress audiogram wise.

How is Marshall going with all the new louder sounds? Is he quite oblivious to it all or is it a totally new experience for him?
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To be honest, I don't notice any difference with him responding to sounds. Maybe he has selective hearing? My mother in law said that Marshall's speech sounded more natural so I guess everything points to "improvement" right now.
 
Impressive!!!

He is on his way...

Not so sure what to say about "selective" hearing....:D
 
Fragmenter said:
Mars.jpg


Yep. The kid's trying really hard to not crack a smile...

Things went really well today and he went through the motions of activation with flying colors. He tells me all he can hear are beeps and stuff like that and I remember somebody saying that motorcycle engine sounds happened for a while after getting activated. I guess that is what my son is hearing right now. He is on P1 map and will upgrade to P2 tomorrow since he gives clear feedback to the audiologist as to what he is hearing. We all are excited and can't wait to see more progress!

Thank you guys for exchanging information so I could prepare myself and my wife for what should be expected.

Gonna go now so I can enjoy my internet-free evening again lol.
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He is soooo cute.... with cowlick.. i got one too.. even my children.. i wonder if you have one too...
 
Wow, he is doing great! I love reading about all the progress you and others are having with the CI's. He must be so excited to hear all the new sounds.
 
SxyPorkie said:
He is soooo cute.... with cowlick.. i got one too.. even my children.. i wonder if you have one too...
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I got two cowlicks right next to eachother at the top back of my scalp. It doesn't show up until my hair is 2 inches long then I look like Alfalfa of the Little Rascals.
 
2kids1hoh said:
Wow, he is doing great! I love reading about all the progress you and others are having with the CI's. He must be so excited to hear all the new sounds.
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Thanks!

To SrSoars, he had selective hearing when he wore HA's :pissed: LOL.

When the kids went to bed tonight, I took the opportunity to talk more with my wife about today. She said Marshall can hear sounds at all Hz ranges but he doesn't understand them yet. So, the hearing & speech language part is what he and his speech therapists are gonna tackle next.
 
Fragmenter said:
Thanks!

To SrSoars, he had selective hearing when he wore HA's :pissed: LOL.

When the kids went to bed tonight, I took the opportunity to talk more with my wife about today. She said Marshall can hear sounds at all Hz ranges but he doesn't understand them yet. So, the hearing & speech language part is what he and his speech therapists are gonna tackle next.
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He is still young, he will get the speech language part fast. It's amazing how fast kids learn things.

All kids have selective hearing... it's amazing how they can't hear you when they are getting yelled at, but whisper "want a snack", they come running.

Marshall is adorable!!
 
Well it could be 'selective' hearing :D but at this point I'd be more of the opinion that the sounds aren't necessarily registering that well so he's not really noticing them. I still have those moments where I answer after what was said finally registers in my brain, a much longer then normal delay. :)

Great that things are going so well, and he looks so happy. :) :) :)
 
Fragmenter said:
I got two cowlicks right next to eachother at the top back of my scalp. It doesn't show up until my hair is 2 inches long then I look like Alfalfa of the Little Rascals.
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Thats what i figured .... after seeing pix of your darling son with cowlick,,, i know it runs in the family....
 
Fragmenter said:
To be honest, I don't notice any difference with him responding to sounds. Maybe he has selective hearing? My mother in law said that Marshall's speech sounded more natural so I guess everything points to "improvement" right now.
Click to expand...

That's funny I've got the same comments too. Lots of people have said how much my speech has improved. I never realised after my sudden loss that it had got worse.
 
R2D2 said:
That's funny I've got the same comments too. Lots of people have said how much my speech has improved. I never realised after my sudden loss that it had got worse.
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Oh, I knew and I noticed it myself. My family and friends noticed big time. That was one of the reasons I knew I had to go the CI route.

That feedback loop between hearing and speech is amazing to say the least. I had people tell me within the first week that I was speaking a whole lot clearer. When you can hear yourself....watch out!
 
Thanks, Lillys Dad -- my hubby got to spend some time with Frag and his family and he took pictures for me... I hear more and more about Marshall's progress everyday and I'm quite impressed (and I'm not easy to impress, LOL)

Glad to see you back on line...
 
greema said:
And so, momtotoes, welcome aboard! And so your sweet Erin Toes will be seeing the ENT this Tuesday? I wish you the best in getting good news about the surgery being approved and getting a surgery date! How old is she?
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I suck and only just logged back in here.

I have been reading posts for over an hour now and I am totally hooked!

Erin Toes had her surgery on 9/25. Her initial stimulation is scheduled for 10/20.

Erin is 14 months old. She was *finally* diagnosed with a severe to profound loss at 9 months, aided at 10 months. We knew much earlier that there was a major issue. But, we fumbled upon a very overly optimistic audiologist who kept saying "let's give it another few weeks...".

It was a very frustrating process. Erin failed her newborn screenings and then passed an ABR at 2 months old. We had a period of time where we thought everything was fine, but by the time she was 4 months old I started becoming concerned about her continued lack of response to sound.

My husband and my mother and my mother-in-law all told me I was imagining things. But I knew better. Our daughter could not hear.

When Erin was first aided she showed an improvement in her hearing and vocalization. But, over the next few months, she lost a lot of what she had gained. We found out that her hearing was getting worse and the aids were no longer providing near enough benefit for her to develop speech.

I know it is a controversial issue, but as hearing parents, we can't help but want Erin to be mainstreamed as much as possible. So, we made the very difficult decision of going ahead with the CI.

So, here we are.
 
but as hearing parents, we can't help but want Erin to be mainstreamed as much as possible.
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Momtotoes, I can understand that. My best advice however, is not to reject anything just b/c it's "not mainstream"..... Definitly give her the tools to be mainstreamed, so she can parcipate in the hearing world. But also, be open to things like Sign,Cued Speech etc. If you offer those tools to her, and she rejects them......that's fine. There are some kids who are exposed to both, and end up dropping sign for whatever reason. I hope I'm not being annoying about this, but I just think that no dhh kid should ever have to ask their parents why they didn'tdo sign or speech or whatever. I really think sometimes ideology gets in the way.Do a child centered approach and see what Toes does best with.
 
momtotoes said:
I suck and only just logged back in here.

I have been reading posts for over an hour now and I am totally hooked!

Erin Toes had her surgery on 9/25. Her initial stimulation is scheduled for 10/20.

Erin is 14 months old. She was *finally* diagnosed with a severe to profound loss at 9 months, aided at 10 months. We knew much earlier that there was a major issue. But, we fumbled upon a very overly optimistic audiologist who kept saying "let's give it another few weeks...".

It was a very frustrating process. Erin failed her newborn screenings and then passed an ABR at 2 months old. We had a period of time where we thought everything was fine, but by the time she was 4 months old I started becoming concerned about her continued lack of response to sound.

My husband and my mother and my mother-in-law all told me I was imagining things. But I knew better. Our daughter could not hear.

When Erin was first aided she showed an improvement in her hearing and vocalization. But, over the next few months, she lost a lot of what she had gained. We found out that her hearing was getting worse and the aids were no longer providing near enough benefit for her to develop speech.

I know it is a controversial issue, but as hearing parents, we can't help but want Erin to be mainstreamed as much as possible. So, we made the very difficult decision of going ahead with the CI.

So, here we are.
Click to expand...

I recognise so much in your story.
We also figured something was wrong at 4-5 months, but got the all's OK. Even an informal test at the hospital she passed at 7 months (periferal vission really helps...) .... We got it on record that she can hear. It took 12 months to finally get the BAR which she flunked... completely deaf...
The, HA's for another year to no effect, and finally she was OK for CI...
24 months that could be 12... precious time lost...

She now has had Ci for the last 22 months and she's doing great. She was in a kindergarten where sign was used until august, and shared over hearing/deaf kindergarten until october.
Now, 100% in a hearing environment and she's doing fine. It's 1-1/2 years before she goes to the school where here (hearing) brother and sister are going...

It's a great adventure....
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Information about . . . . . my daughter. . . . . . . how the ear works . . . . . . . CI-nonsense . . . . . . . .
 
Just like my son's father. His voice had improved so much. everyone said he have clear speech like a natural pro? i was impressed with that. I am happy for him!

What does selective hearing mean? It is not clear to me?
 
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