Parants of CI children.

Which statements are true for you?

  • I want my child to hear

    Votes: 9 40.9%

  • I was advised to have a CI for my child

    Votes: 2 9.1%

  • I want a CI to be included in a full tool box aproach

    Votes: 6 27.3%

  • My child knew sign language before CI.

    Votes: 6 27.3%

  • My child is only just learning sign language after CI.

    Votes: 1 4.5%

  • I don't feel my child needs sign language at all.

    Votes: 2 9.1%

  • My child uses cued speach with CI

    Votes: 0 0.0%

  • My Child is in AVT for speech therapy

    Votes: 5 22.7%

  • If my child decided to stop using their CI I'd let them.

    Votes: 6 27.3%

  • If I had had to fund the CI myself I would have still gone ahead

    Votes: 7 31.8%

  • My child is in mainstream school

    Votes: 11 50.0%

  • My child is in deaf school

    Votes: 3 13.6%

  • I am happy with results of CI

    Votes: 7 31.8%

  • I am disapointed with the results of CI

    Votes: 1 4.5%

  • Speech is most important for my child.

    Votes: 4 18.2%

  • Literacy is most important for my child

    Votes: 8 36.4%

  • Communication through any means is most important.

    Votes: 10 45.5%

  • I think I made the right decision to implant my child

    Votes: 8 36.4%

  • I regret having implanted my child.

    Votes: 2 9.1%

  • Other. (please state)

    Votes: 7 31.8%
  • Total voters
    22
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faire_jour said:
Thank you. I agree with this completely.
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You're welcome faire_jour. I get tired of reading arguments from people who claim that the only reason a parent wants to implant their child is because they need to be "fixed."
 
Hear Again said:
You're welcome faire_jour. I get tired of reading arguments from people who claim that the only reason a parent wants to implant their child is because they need to be "fixed."
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And then wouldn't that imply that you (and other adults who choose them) are self loathing and hate being deaf? It is absurd.


It's about OPTIONS!!!
 
faire_jour said:
99.5% of CI's work. But each person's benefit is different.

Just because a person doesn't use ASL doesn't mean they can not communicate. If an oral kid's CI stop working, they would probably notice it and complain much quicker than Miss Kat would.
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And, while it is not working?
 
dreama said:
That's what I mean. Parents make that assumsion and deprive the child of sign language. This is the kind of attitude that puts me off CI's. How would you like it if someone considered your hearing so greatly corrected that you didn't need visual clues.

I don't think we will ever really agree on this because I take a lot of research into early implantation with as much faith as I do tales of little green men whereas you put way too much faith in them.

Give me personal experience any day.
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What assumption are parents making? Research proves that early implantation results in success. That's not an assuption. It's fact.

You asked "How would you like it if someone considered your hearing so greatly corrected that you didn't need visual clues." I've lived that experience from age 15-24. Ever since I had moderately-severe hearing loss, I experienced a great deal of difficulty hearing female voices as well as any speech in background noise. No one taught me tactile sign or other alternative forms of communication. I didn't learn ASL, PSE or SEE until my hearing loss was severe-profound.

By the way, what does that have to do with CIs? CIs don't take away a person's ability to use visual cues.
 
faire_jour said:
The .5% of the time? I don't know what other parents do, but the kids probably fall back on lipreading and other communication methods.
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What other communication methods, other than lipreading? And, if the goal of the CI is to get a child to use their auditory function independently of all other sensory modes, how effective will their lipreading skills be when they really need them?

Also, your 99.5% was stated in reference to the initial implantation. What of the implant that stops working down the road? They are not included in the stats on initial implantation.

And that is exactly the point. It is the kids that must compensate. Kind of responsibility in reverse.
 
jillio said:
What other communication methods, other than lipreading? And, if the goal of the CI is to get a child to use their auditory function independently of all other sensory modes, how effective will their lipreading skills be when they really need them?

Also, your 99.5% was stated in reference to the initial implantation. What of the implant that stops working down the road? They are not included in the stats on initial implantation.

And that is exactly the point. It is the kids that must compensate. Kind of responsibility in reverse.
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Who says that it the goal? The goal is better audition.

The 6 year rate of survival for AB is 96.8%. For implant surgeons a CI failure is considered an immediate medical need, they are reimplanted (from what my surgeon says) within days.
 
faire_jour said:
Who says that it the goal? The goal is better audition.

The 6 year rate of survival for AB is 96.8%. For implant surgeons a CI failure is considered an immediate medical need, they are reimplanted (from what my surgeon says) within days.
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Link, please. And that would be 96.8% of 95.5% according to your numbers. I'd still like to see those numbers substantiated.

Hmmm....then I guess AVT should not be used as a first line therapy for deaf kids with CI.
 
jillio said:
Link, please.

Hmmm....then I guess AVT should not be used as a first line therapy for deaf kids with CI.
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If you break your arm and it is in a cast, and unable to be used, and then they take it off, the physical therapist then has you do special exercises to strengthen the arm. Does that mean you no longer use your legs? Of course not, you are just strengthening what you haven't used in awhile.

Link for what?
 
faire_jour said:
If you break your arm and it is in a cast, and unable to be used, and then they take it off, the physical therapist then has you do special exercises to strengthen the arm. Does that mean you no longer use your legs? Of course not, you are just strengthening what you haven't used in awhile.

Link for what?
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What in the world are you talking about? This was the most confusing attempt at an analogy I have ever seen!:shock:

Link to confirm the percentages you are stating as fact.
 
faire_jour said:
If you break your arm and it is in a cast, and unable to be used, and then they take it off, the physical therapist then has you do special exercises to strengthen the arm. Does that mean you no longer use your legs? Of course not, you are just strengthening what you haven't used in awhile.

Link for what?
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I think a link like this one?

History of Moisture at Advanced Bionics

Sept. 24, 2004: Because of the “potential presence of moisture” in the internal circuitry of its cochlear implants, Advanced Bionics issued a recall on September 24, 2004, of its all of its cochlear implant devices that were still on the shelf and that had not yet been surgically implanted. According to the press release, defective Advance Bionic surgical implant devices that had already been surgically implanted, were to be left in the person until pain, noise or failure occurred. You can the read the recall press release.

Feb. 1, 2005: FDA inspections at the Advanced Bionics plant showed that the cochlear implant devices were “adulterated” with entrapped moisture in the devices that could be due to manufacturing deficiencies, inadequate failure analysis, and overall quality system deficiencies. FDA findings included a lack of training and inspection related to the manufacture of these devices. You can read the warning letter.

Mar. 10, 2006: Because of a high “moisture-related device failure” rate, Advanced Bionics again issued a recall on March 10, 2006, of certain of its cochlear implant devices that were still on the shelf and that had not yet been surgically implanted. The defective Advanced Bionics devices that had already been implanted were to be left in the person until problems developed. You can read the recall notice and the FAQ.
Click to expand...

Los Angeles INJURY LAW | John C. Torjesen | Advanced Bionics - defective cochlear implant devices
 
Hear Again said:
CIs don't take away a person's ability to use visual cues.
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It would if your parents refused to teach you sign language or refused to let anyone use it with you due to some concept that the CI worked so well that such things weren't needed.
 
jillio said:
What in the world are you talking about? This was the most confusing attempt at an analogy I have ever seen!:shock:

Link to confirm the percentages you are stating as fact.
Click to expand...

I'll simplify for you.

Deaf kids haven't heard before, they need to practice. That is what AVT is.
 
dreama said:
It would if your parents refused to teach you sign language or refused to let anyone use it with you due to some concept that the CI worked so well that such things weren't needed.
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If a parent knows that their child is struggling to hear and does not allow them to learn sign, then that says more about the parent than it does CIs.

Furthermore, that kind of a decision isn't the fault of a CI. It's the fault of the parent for being closed-minded.
 
Hear Again said:
Cochlear uses a test called an NRT which can program a CI for a child or adult who cannot hear well enough to respond. If a CI fails, the NRT can determine this as well.
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Yes, but the parent would have to notice this and stop using the CI, and take the child to an audiologist to have the test done. Sometimes the child might just repeatedly try to get the magnet off but have the parent simply put it back on again. Babies and small children cry a lot anyway so the reason for them to cry might very easily be misinterpreted.
 
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