Mrs. Bucket, Hear Again.. any other help is appreciated.

If there's anything I can do to support you, let me know. This is the first time I've read your post. You know I adore you and will do anything for you. :)
 
deafbajagal said:
If there's anything I can do to support you, let me know. This is the first time I've read your post. You know I adore you and will do anything for you. :)
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Thanks :hugs:

Good to see you pop back in here. Been a while gal!
 
Babyblue, how is everything going regarding this situation?
 
Wow, as a deafblind who have to resort to using public transit, car sevices, using friends and boating. I would be incredibly bitter and angry if I was discriminated against by my deafness influencing my driving, and not my blindness. It doesn't even make any logical sense that your deafness is the deciding factor!

* hugs *
 
souggy said:
Wow, as a deafblind who have to resort to using public transit, car sevices, using friends and boating. I would be incredibly bitter and angry if I was discriminated against by my deafness influencing my driving, and not my blindness. It doesn't even make any logical sense that your deafness is the deciding factor!

* hugs *
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This is where I, as a DB, must and have to use composure all the time when people brush me off/patronize me. I keep my calm and remind them I'm just the same as I was before. This usually startles them when I reply in a calm & quiet manner because they don't realise they're doing this.

Those who does this purposely on a regular basis, I tell them point blank to stop it because they're walking a thin line on ending a good friendship with their own ignorance. I will not have a good friend disable me when they could enable my independence.
 
dreama said:
I was born HOH, mildly asperger, thyroid deficent, with Petit mal epilepsy so in my case it was a bit of everything. Add a series of minor invisible disabilites on top of being half french at a time when the french are openly disliked doesn't help matters.

My sight didn't start going until I was 17. Before that I only had problem with 3d.

When my sight did start to go I went to pieces. I even tried overdosing a few times. I used to do fine point embroyery and drawings. It meant major changes for me. As I said it wasn't easy.

It does get better in time though. Right now I'm profoundly deaf. Sometimes I have a little vision. Sometimes I don't. It's not something I can rely on. Getting used to my light sensitivity issues weren't too easy either but I'm determined to adapt to all this. I think it's a matter of developing the right mindset to except deafblindness and move on. Rather then clinging to false hopes.

Have you looked into any rehab yet?
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Dreama, you sound a lot like me! Any chance you had CMV as a baby?
 
CMV is Cytomegalovirus.

CMV is an infection from the herpes family and quite common however when it affects pregnant women & infants, this becomes much more serious.

Infants who are infected before birth usually show no symptoms of a CMV infection after they are born, although some of these infants can develop hearing, vision, neurological, and developmental problems over time. In a few cases, there are symptoms at birth, which can include premature delivery, being small for gestational age, jaundice, enlarged liver and spleen, microcephaly (small head), seizures, rash, and feeding difficulties. These infants are also at high risk for developing hearing, vision, neurological, and developmental problems.
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KidsHealth
 
Mrs Bucket said:
CMV is Cytomegalovirus.

CMV is an infection from the herpes family and quite common however when it affects pregnant women & infants, this becomes much more serious.

KidsHealth
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Yup - that! I ended up with low-vision, autism, deaf, seizures, mild CP and all kinds of other fun stuff ;-)
 
Mrs Bucket: Thanks for explaining.

I hadn't heard of that before. I remember I was very sick at birth. I had jaundice and was also born premmie but the doctors weren't very good. My dad had to threaten to sue the doctor before he would give me tests for thyroxine deficency. My aunt Chantal has got that so when I was acting really sluggish as a baby my parents wanted tests done.

The blindness came later at age 18.

But HOH, Asperger and petit mal epilepsy could have been due to me being premmie.
 
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