Mrs. Bucket, Hear Again.. any other help is appreciated.

Babyblue said:
:lol:

Leave it up to ya, Jillio!

:giggle:

But you do have a way of making me laugh.

:hug:
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Laughter is medicine for the soul, gal! You know how to find me if you need me.
 
Jiro said:
i wonder - how's your finger sensitivity, babyblue? for braille of course
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I wonder the same Jiro.. :dunno:


I would walk around and try out the braille signs they have out in public, and run my fingers through. I don't know.
 
Babyblue said:
Funny thing is... That annoying green color helps me get around at times. I would take my video camera(on night vision) and walk around with it at night when I am camping and able to see where I am going. (no joke)

So if one is to make glasses, for me to do so would be an absolute hero!!!
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i was thinking - instead of green color, it'd be the natural color as if sun's still there.

I don't know how big your video camera is but I'm assuming it's big. There's a small digital camera that has night vision capability. You can watch it on the big screen behind the camera. How nifty is that?
 
Amber is the color recommended by my doctor for the sunglass lenses. I have a badly messed up retina in my right eye.

I don't know the reason, but amber is supposed to help more, and I can truly tell some difference.
 
Babyblue said:
I have now finally accepted the fact that I am Deaf/Blind.

Although my vision with corrective lenses is 20/30.

I am growing more and more frustrated.

I failed the physical to become a Van Driver. I already told my boss I would fail it. Due to my field vision is limited.

but that is not what the Dr. Failed me for. She failed the physical due to my Deafness. :shock:

I was appalled!! I asked her again..."Why did you fail my physical?" She said that I need to get new corrective lenses and that will fix my eyes. but I failed the physical due to my hearing loss.

Fix my eyes! I was like WTF. I failed the field vision test that they gave me and she thinks Glasses will fix that.

There is no glasses out there that can do that to my knowledge.

I know it is for the best that I did fail the test. but it was all for the wrong reasons.
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Babyblue,

Another ADer brought your thread to my attention. :hug:

The way you were treated was clearly discriminatory. Your deafness should and does NOT have anything to do with your ability to drive.

If I were you, I'd file a complaint against the DMV and get in touch with a local organization for people with disabilities. I would also contact AADB (American Association of the Deafblind) as well as HKNC (Helen Keller National Center) to find out what they suggest.

I also hope that Mrs Bucket will chime in because she's a wonderful advocate whom I'm sure could provide you with excellent, helpful advice. I'm sure she will respond as soon as she comes across your thread.

If you have any other questions for me, feel free to send me a PM anytime.

I don't know if what I've suggested helps you at all, but I hope it does.

I also think you deserve kudos for accepting your deafblindness. Good for you! :D :hug:
 
Babyblue,

You may also want to see a low vision specialist who can recommend the proper color sunglasses for you. Different tints work best for different people. Some people prefer grey tint while others prefer orange or amber. Hope this helps!
 
Babyblue,

If you want excellent training in blindness skills, I would highly recommend that you contact the Florida chapter of the NFB (National Federation of the Blind) The NFB has worked with deafblind clients before, so they are familiar with the requirements for doing that.
 
Babyblue is exactly right. Deafblind people do not need sympathy. Sympathy does not increase their independence. It is no different than the way you would treat a Deaf person. People with disabilities need to learn how to adapt to them -- not feel sorry for themselves. (Note Babyblue that I am not referring to you. I'm talking in a general sense)
 
Jiro said:
i was thinking - instead of green color, it'd be the natural color as if sun's still there.

I don't know how big your video camera is but I'm assuming it's big. There's a small digital camera that has night vision capability. You can watch it on the big screen behind the camera. How nifty is that?
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nope it is a small digital camera.. :) Not a big ol' bulky thing you are thinking of.
 
Babyblue,

One more comment. I hope the hug I gave you didn't upset you. I wanted to show my emphathy as a fellow deafblind person because I have an idea of what you are going through. I experienced many of the same feelings in 1995 after I lost my hearing.
 
Hear Again said:
Babyblue,

Another ADer brought your thread to my attention. :hug:

The way you were treated was clearly discriminatory. Your deafness should and does NOT have anything to do with your ability to drive.

If I were you, I'd file a complaint against the DMV and get in touch with a local organization for people with disabilities. I would also contact AADB (American Association of the Deafblind) as well as HKNC (Helen Keller National Center) to find out what they suggest.

I also hope that Mrs Bucket will chime in because she's a wonderful advocate whom I'm sure could provide you with excellent, helpful advice. I'm sure she will respond as soon as she comes across your thread.

If you have any other questions for me, feel free to send me a PM anytime.

I don't know if what I've suggested helps you at all, but I hope it does.

I also think you deserve kudos for accepting your deafblindness. Good for you! :D :hug:
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I have considered contacting someone about the limitation of driving... I can understand if they halted me due to me not being able to see well enough to do so.

But in this case, It was not my visual test that failed me.. It was my deafness.

I do not know if this makes sense or not. I was expecting to fail the test due to my vision.... Not to my deafness.

I failed the field test... I have 20/30 as of now.

You have to have a 70 percent field vision or better. Which I did not.

I failed the hearing test obviously.

Then the M.D. said she can not allow me to pass the physical due to my deafness, I was like WTF...
 
Hear Again said:
Babyblue,

One more comment. I hope the hug I gave you didn't upset you. I wanted to show my emphathy as a fellow deafblind person because I have an idea of what you are going through. I experienced many of the same feelings in 1995 after I lost my hearing.
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You have not... Giving Support is much different than pity,


so a hug, is not giving one sympathy.
 
Bottesini said:
As soon as you get the official Usher's syndrome diagnosis, go to Florida's commission for the blind and get training before it goes too far so you will already be ready.
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Some one told me you do not have to be officially diagnosis to go to the Florida's Commission for the Blind.
 
Oh my dear. :hug: I´m sorry to know but ít´s good to know that you positive and prepare.

Have you thought about eye surgery ?
 
Babyblue said:
I have considered contacting someone about the limitation of driving... I can understand if they halted me due to me not being able to see well enough to do so.

But in this case, It was not my visual test that failed me.. It was my deafness.

I do not know if this makes sense or not. I was expecting to fail the test due to my vision.... Not to my deafness.

I failed the field test... I have 20/30 as of now.

You have to have a 70 percent field vision or better. Which I did not.

I failed the hearing test obviously.

Then the M.D. said she can not allow me to pass the physical due to my deafness, I was like WTF...
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I understand that you were discriminated against because of your deafness Babyblue. I would contact someone to file a complaint. Good luck.
 
A big hug for you my dear!

Hi Babyblue, I'm so sorry for not replying much quicker as I usually do. Hubby and I have been extremely busy since our move to Toronto, ON.

I wanted to give you a big tactile hug first of all. I do understand the feelings you are feeling. I can relate. I also wanted to make sure that you have a support group as well. You will feel all kinds of emotions you didn't feel and they will be very overwhelming. Please remember you can count on me.

Check your inbox for my pager number. Page me anytime and I mean anytime.

I googled up all the services in Florida for the DeafBlind community.

The Lighthouse is very important to rely on. It is amazing to have in the DeafBlind PalmBeach community. The AADB is just a beautiful family that gets together every two years however each state & location does get together on a much frequent basis. It is very important for the DB family to be together for morale and emotional support.

Florida DBS has a helpful website and they will accomodate you with your deafblindness.

An adult must have a visual impairment in both eyes and require services to improve or maintain their independence at their home and community.
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FCCDHH is a website that has all the information you need for a DeafBlind living in Florida. I encourage you to register with FDBA. Vicky Magliocchino is the contact person.

I'm not done with you my dear DB sister. Babyblue, hang in there and tactile smile dear girl. 90 Love!

Remember please beep me anytime!
Lots of love,
Patty oxox
 
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