Im form the hopital.

Vorsia

Vorsia

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Im home from the hopital was like really like bad
as hello doctors with hands over there faces treating me like i was a retard im going the big D if some says what if thnk im r my is really bad right now. the hospital well just wanted you know.one had the nurve to says if your hearing loss is so severe how cant you understand me if told some people are easyer then others soon if completely be profound in both ear they keep forget if cant hear it the worse i tell you voise off get more respect in was nyc presbyterian hospital one day not so bad feelings like crap with meds keppra the seziure if have are focle spelling off love you all thanks for careing..
 
Glad you are home.

Yes, I've seen it before. You try to accommodate hearies and many show you no respect. Go voice off and they have to give you respect -- By law.

Hope everything goes well for you.
 
Vorsia said:
Im home from the hopital was like really like bad
as hello doctors with hands over there faces treating me like i was a retard im going the big D if some says what if thnk im r my is really bad right now. the hospital well just wanted you know.one had the nurve to says if your hearing loss is so severe how cant you understand me if told some people are easyer then others soon if completely be profound in both ear they keep forget if cant hear it the worse i tell you voise off get more respect in was nyc presbyterian hospital one day not so bad feelings like crap with meds keppra the seziure if have are focle spelling off love you all thanks for careing..
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Sadly im back in nyc presbyterian on 68 street.
 
Oh i am sorry. hope they are able to help you to feel better. :/ do you bring your cellphone or laptop at the hosptial
 
I'm sorry that you had to go back to the hospital. I hope they treat you better this time. :hug:
 
Ignorant people are frustrating. Sometimes it seems like it's not simply ignorance, but willful ignorance. Willful ignorance bothers me the most.

I hope that you feel better soon.
 
Vorsia, I'm sorry you had to go back in to a hospital. On the plus side though, that hospital has a good patients relations department and at least one good social worker.

I don't know if either of those depts are open today though.

I suggest telling doctors, nurses and other hospital employees that:

1) You recently lost your hearing and don't know sign lanaguage yet.
2) Therefore you require translation from spoken English to written English.
3) You are still able to speak and are willing to do so to save time, but that doesn't mean that you are still able to hear. If they don't understand that -- start writing to them only also.

That hospital's culture is a little nuts though. Most of my doctors (primary and etc.) are employees of that hospital. My experience is that I can tell their employees (desk staff, etc) that I'm HH and will not hear them call my name, the employee will look me right in the eye and tell me he/she will remember and sure enough guess who ends up calling my name without making any effort to come and get me or see if I notice that they are calling my name?

That is minor compared to what you are going but it does show that they are not set up at all for HH people, or have received any education from their employers that this is something important that they should know how to be prepared for.
 
Vorsia, I'm sorry you had to go back in to a hospital. On the plus side though, that hospital has a good patients relations department and at least one good social worker.

I"m sure that they will help you except that I I don't know if either of those depts are open on weekends though.

I suggest telling doctors, nurses and other hospital employees that:

1) You recently lost your hearing and don't know sign lanaguage yet.
2) Therefore you require translation from spoken English to written English.
3) You are still able to speak and are willing to do so to save time, but that doesn't mean that you are still able to hear. If they don't understand that -- start writing to them only also.

That hospital's culture is a little nuts though when it comes to dealing with HH people. Most of my doctors (primary and etc.) are employees of that hospital. My experience is that I can tell their employees (desk staff, etc) that I'm HH and will not hear them call my name, the employee will look me right in the eye and tell me he/she will remember and sure enough guess who ends up calling my name without making any effort to come and get me or see if I notice that they are calling my name?

That is minor compared to what you are going through but it does show that the hospital and their employees are not set up at all for HH people, or have received any education from their employers that this is something important that they should know how to be prepared for.

I hope you get better soon.
 
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Vorsia said:
Im home from the hopital was like really like bad
as hello doctors with hands over there faces treating me like i was a retard im going the big D if some says what if thnk im r my is really bad right now. the hospital well just wanted you know.one had the nurve to says if your hearing loss is so severe how cant you understand me if told some people are easyer then others soon if completely be profound in both ear they keep forget if cant hear it the worse i tell you voise off get more respect in was nyc presbyterian hospital one day not so bad feelings like crap with meds keppra the seziure if have are focle spelling off love you all thanks for careing..
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that's why I'm not a fan of NYC hospitals. I know this is kinda far but if you can - go to Holy Name in Teaneck, NJ. it's the best one. it's just 15 minutes from George Washington Bridge.
 
Communicating

Vorsia said:
Im home from the hopital was like really like bad
as hello doctors with hands over there faces treating me like i was a retard im going the big D if some says what if thnk im r my is really bad right now. the hospital well just wanted you know.one had the nurve to says if your hearing loss is so severe how cant you understand me if told some people are easyer then others soon if completely be profound in both ear they keep forget if cant hear it the worse i tell you voise off get more respect in was nyc presbyterian hospital one day not so bad feelings like crap with meds keppra the seziure if have are focle spelling off love you all thanks for careing..
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Vorsia, I'm so sorry your in the hospital again. The only advice I can give you is what I had to do. I went deaf the day I was brought to the hospital. I was out so long that I didn't get to make my medical choices.. My husband had to do this. But, when I came around a month later I had a white board they usually have large ones in every hospital room. Anyway, before any meds, blood tests or other tests I wouldn't consent unless they wrote it on my board telling what they were doing. Some of the staff were hard to break in but they soon realized it would go a lot easier if they wrote what was going to happen. Good luck.keep me posted on how your doing. Love from California:angel::angel:
 
Angle1989 said:
Vorsia, I'm so sorry your in the hospital again. The only advice I can give you is what I had to do. I went deaf the day I was brought to the hospital. I was out so long that I didn't get to make my medical choices.. My husband had to do this. But, when I came around a month later I had a white board they usually have large ones in every hospital room. Anyway, before any meds, blood tests or other tests I wouldn't consent unless they wrote it on my board telling what they were doing. Some of the staff were hard to break in but they soon realized it would go a lot easier if they wrote what was going to happen. Good luck.keep me posted on how your doing. Love from California:angel::angel:
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Great idea Angle!

Hospitals are run by lawyers. I bet the hospital staff would feel more comfortable writing on an erasable board than they would in a notebook.
 
White boars

Jazzberry said:
Great idea Angle!

Hospitals are run by lawyers. I bet the hospital staff would feel more comfortable writing on an erasable board than they would in a notebook.
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The white board is what we continue to use for communication atleast until if and or when I get HA. My primary care doc actually is one of the few that types to me in large print on her computer. She's great. Some of my male doctors continue to talk to my husband and ignore me like I'm a child. Pisses me off. :angel:
 
Angle1989 said:
The white board is what we continue to use for communication atleast until if and or when I get HA. My primary care doc actually is one of the few that types to me in large print on her computer. She's great. Some of my male doctors continue to talk to my husband and ignore me like I'm a child. Pisses me off. :angel:
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Your primary doctor sounds wonderful :angel: and your other doctors sounds like they need to be replaced. What they are doing would piss me off also. :mad:
 
Vorsia Update

I visited Vorsia in the hospital today. She is doing better and she apprears to be optimistic that she will be able to go home soon.

Re hospital staff -- as far as communication issues go they were ignorant but willing to be educated. That's all I'll say because this is Vorsia's story to tell.
 
Angle1989 said:
Vorsia, I'm so sorry your in the hospital again. The only advice I can give you is what I had to do. I went deaf the day I was brought to the hospital. I was out so long that I didn't get to make my medical choices.. My husband had to do this. But, when I came around a month later I had a white board they usually have large ones in every hospital room. Anyway, before any meds, blood tests or other tests I wouldn't consent unless they wrote it on my board telling what they were doing. Some of the staff were hard to break in but they soon realized it would go a lot easier if they wrote what was going to happen. Good luck.keep me posted on how your doing. Love from California:angel::angel:
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I would rather have it written on paper so you will have something in case there is any misunderstanding later on what was said by the doctor or hospital staff you have in written to back yourself up.
 
Wishing you a speedy recovery!.....

I just got out of the hospital myself. I had the Nurse post a sign above my Bed....Patient is Deaf....Lipreads....face her when talking.


I only had a few problems...one Nurse did not take the time to see the sign and was "speaking" into my ear...so I did correct her gently...that I was not HOH...I was deaf and she needed to slow down with her speech or write things down...

One of my 3 Doctors was awesome, taking time to write everything down, and I still have it at home....Word got around that I was Deaf and the only patient on that wing that was...so after a few days....things got much better.
 
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