Im form the hopital.

Me ...im doing better so will post my hole storry soon just a play by play nurses are good and one doctor a lady is wonderful.seziures are gone but my myasthenia gravis was giving me breath ing isues so they started me one ivig trancefuion. Anyway one more round of treatment tuesday im should be home my kids came the nurse are like you speak so well my hearing loss is progressive so at one time did have mild hearing loss i speak well yes but now deaf so thats it cant live in the past.love you alldeaf well let you all kbow more.ps.hospital staff are really slow with communication.
 
Jazzberry said:
I visited Vorsia in the hospital today. She is doing better and she apprears to be optimistic that she will be able to go home soon.

Re hospital staff -- as far as communication issues go they were ignorant but willing to be educated. That's all I'll say because this is Vorsia's story to tell.
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Jazz you can share my storry i love you so much for being there ng no one understand s deaf/hoh isues thanks for the suport and teaching staff.i tend to just go along and agree.
 
I hope your treatments go well so you can go home on time.
 
Vorsia, I'm glad you are home again and I hope you get to stay home longer this time! ;)

As far as hospital doctors and nurses goes -- I'm really surprised how many of them don't "get it" as far as how to communicate with the D/d/HH.

A lot of them completely don't understand how lipreading works. Often many of them seem to believe that a D/d/HH person can lipread almost as well as a hearing person can listen.

Hollywood movies and TV shows don't help. All Deaf people seem to be able to double as mind readers on those shows -- their supposed lip reading abilities are so good. I found myself recommending to the nurses and doctors that they google for Bad Lipreading videos on youtube when they had a chance. I can't help but wonder if they had internet access while at work, because that recommendation seemed to make a big difference. So, thank goodness for the folks behind Bad Lip Reading -- they seemed to have managed to help more people understand the limitations of lip reading faster than any other explanation I have ever attempted before.

Anyway, glad you are feeling better Vorsia.
 
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